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CLL Support

22,508 members • 38,657 posts

All posts for September 2021

Loss of taste and smell.

i had covid a year and a half ago. Still do not have my taste or smell back yet. Skin cancers non stop. In remission with Imbruvica., Anyone else?

i had covid a year and a half ago. Still do not have my taste or smell back yet...

lsutigers2018

•3 years ago

5 Replies

Concern About New Recommendations to Relax COVID-19 Prevention Measures

This was on the Medscape site earlier today. (I've not copied the whole article). The Government is likely to follow recommendations from the new UK Health...

This was on the Medscape site earlier today. (I've not copied the whole article)...

RogerPinner

•3 years ago

10 Replies

As any one with CLL tried Adaptogenic's mushrooms for stress reduction?

I tried everything, from meditation, to tapping to Canabis oil... I have been taking Acalabrutinib for one month and feel okay, but on edge and reactive to...

I tried everything, from meditation, to tapping to Canabis oil... I have been ta...

unairdefamille

•3 years ago

12 Replies

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YTravel insurance

Can anybody recommend world wide travel insurance company to cover CCL

Thevictory1946

•3 years ago

1 Reply

Tonsils

I’ve seen informative posts here about tonsils. I had a CT PET scan that revealed some activity in my tonsils likely due to some kind of infection. This...

I’ve seen informative posts here about tonsils. I had a CT PET scan that reveal...

Rando21

•3 years ago

5 Replies

CLL Society Webinar: We recorded it! CLL Society's COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected.

In case you missed it! We recorded it! CLL Society's COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected. Recorded Friday, September...

In case you missed it! We recorded it! CLL Society's COVID-19 Virtual Community ...

bkoffman

CLL CURE Hero•3 years ago

2 Replies

Vertigo

Has anyone experienced vertigo or developed meniere’s disease with CLL or prior to diagnosis? I started to develop vertigo spells that could not be explained...

Has anyone experienced vertigo or developed meniere’s disease with CLL or prior...

Rando21

•3 years ago

16 Replies

REGEN-COV Antibody Combination and Outcomes in Outpatients with Covid-19

Just published: phase 3 results of an outpatient trial of Regn-Cov (USA; known as Ronapreve in the UK). Summary results may have been given before by press...

Just published: phase 3 results of an outpatient trial of Regn-Cov (USA; known a...

bennevisplace

•3 years ago

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Chronic lymphocytic leukemia

Chroniclymphocytic leukemia I have cll for about a year my last appointment my white blood cells when from 34000 to 65000 in 3 months my new Dr wants to...

Chroniclymphocytic leukemia I have cll for about a year my last appointment my...

William1955

•3 years ago

10 Replies

Starting Ultra V in a couple days

Hi, still learning my way around this site, and this disease. CLL has taken its toll on a lot of us. I’m 68, retired and dx 5 years ago. I go to a specialist...

Hi, still learning my way around this site, and this disease. CLL has taken its ...

Sherms757

•3 years ago

4 Replies

CT scan while on Venetoclax + Rituximab

Hello to all fellow members! I wonder whether any of you being on Venetoclax + Rituximab treatment has had a CT scan to monitor changes in lymph nodes and if...

Hello to all fellow members! I wonder whether any of you being on Venetoclax + R...

RamsesII

•3 years ago

7 Replies

There is Hope! CLL,Ibrutinib and Covid-19.

Hi everyone, I haven't posted for awhile,I'd like to share my experience of contracting Covid-19. I've been on Ibrutinib for about 2 years now,I also take...

Hi everyone, I haven't posted for awhile,I'd like to share my experience of cont...

Nickos66

•3 years ago

29 Replies

IVIG and Covid Vaccinations

Is there a recommendation of the time that should be allowed between a Covid jab and a IVIG infusion?

Is there a recommendation of the time that should be allowed between a Covid jab...

RobertCLL

•3 years ago

12 Replies

COVID-19 and leukaemia - Leukaemia Care Webinar

On todays webinar regarding COVID-19 and leukaemia, it was mentioned that there was a recruiting study for Covid antibodies in patients where the results are...

On todays webinar regarding COVID-19 and leukaemia, it was mentioned that there ...

RobertCLL

•3 years ago

13 Replies

Blood test changes.

67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had warning flags all over for first time in two years. About half of them...

67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had ...

lsutigers2018

•3 years ago

4 Replies

Hypoxic Training

Anyone heard anything about using hypoxic training to help with anemia from CLL? I guess hypoxic training can be achieved a number of ways including altitude...

Anyone heard anything about using hypoxic training to help with anemia from CLL?...

Rando21

•3 years ago

2 Replies

Shingrix and Shingles protection for CLLers

Got my first dose of Shingrix yesterday. All the discussions about people with CLL not developing antibodies got me thinking… Will Shingrix be effective? How...

Got my first dose of Shingrix yesterday. All the discussions about people with C...

nuji

•3 years ago

4 Replies

Presently taking Calquence for lymphoma. Also having pains in lower stomach area. Can I take ranitidine while taking Calquence?

Calquence and ranitidine

Agatesup

•3 years ago

3 Replies

Letter from Sajid Javid

The government has decided that shielding is unnecessary, but in a new letter (27/09/21) have kindly invited me to look after myself. I hope I'm not being...

The government has decided that shielding is unnecessary, but in a new letter (2...

RogerPinner

•3 years ago

32 Replies

AZD 7442 and Third Covid Jab

I'd like to find out what I can about AZD 7442 Provent as a preventative measure, and about people's experience in getting the Covid third jab. Thank you!

I'd like to find out what I can about AZD 7442 Provent as a preventative measure...

Clairdensheil

•3 years ago

9 Replies

Itchy skin

Have others had itchy skin w/treatment?

Mansil

•3 years ago

6 Replies

Harvoni and CLL

Has anyone heard of the Hepatitis C medication Harvoni causing CLL? I was treated with it in 2015. I have CBC tests from 2014 and 2015 showing normal...

Has anyone heard of the Hepatitis C medication Harvoni causing CLL? I was treat...

Rando21

•3 years ago

22 Replies

Omeprazole and CLL

Has anyone noticed a jump in Lymphocyte # or increase in symptoms while on Omeprazole for heart burn? Also, did anyone have heart burn leading to diagnosis,...

Has anyone noticed a jump in Lymphocyte # or increase in symptoms while on Omepr...

Rando21

•3 years ago

21 Replies

Does CLL cause red "pink eyes"?

Does CLL cause red "pink eyes"? I am on the wait and see for about 3 years now and was wondering if this is one of the symptoms of CLL. I also have had red...

Does CLL cause red "pink eyes"? I am on the wait and see for about 3 years now a...

larrcow

•3 years ago

7 Replies

COVID and (lack of) access to monoclonal antibody treatments

Hi CLL comrades, I've been on W&W for 6 years. I've received both doses of the Moderna vaccine as well as the booster, and still have no antibodies. With a...

Hi CLL comrades, I've been on W&W for 6 years. I've received both doses of the M...

Daisyinmaine

•3 years ago

66 Replies

Has anyone had or planning to have a 2nd Booster

Could a 2nd Booster cause any problems for those of us with CLL or could it possible help us to gain more protection from Covid? I also have a question re:...

Could a 2nd Booster cause any problems for those of us with CLL or could it poss...

Lindaan

•3 years ago

7 Replies

Venetoclax

I consider it a miracle drug in May I was doing real bad needed blood transfusion WBC was 278,000 platelets 58 and rbc 2 now after 4 months on Venetoclax my...

I consider it a miracle drug in May I was doing real bad needed blood transfusio...

starlifter

•3 years ago

11 Replies

Itchy itchy — looking for solutions

Hello, I am new to this site, which was recommended by a friend. Currently I am interested in solution for relentless itching that I have been experiencing...

Hello, I am new to this site, which was recommended by a friend. Currently I am...

Marimbagirl

•3 years ago

17 Replies

Little blisters in mouthf

For some years I have experienced small blisters that pop up on the roof of my mouth. These pop and either bleed or release clear fluid, when they pop the...

For some years I have experienced small blisters that pop up on the roof of my m...

ladyscream

•3 years ago

10 Replies

On beta glucans (discussed but not instead of treatment!)

Hi, folks, despite understandable skepticism, I continue to research articles on various phytochemicals and CLL (not in lieu of treatment but to enhance...

Hi, folks, despite understandable skepticism, I continue to research articles on...

Vlaminck

•3 years ago

16 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2021

Loss of taste and smell.

Concern About New Recommendations to Relax COVID-19 Prevention Measures

As any one with CLL tried Adaptogenic's mushrooms for stress reduction?

YTravel insurance

Tonsils

CLL Society Webinar: We recorded it! CLL Society's COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected.

Vertigo

REGEN-COV Antibody Combination and Outcomes in Outpatients with Covid-19

Chronic lymphocytic leukemia

Starting Ultra V in a couple days

CT scan while on Venetoclax + Rituximab

There is Hope! CLL,Ibrutinib and Covid-19.

IVIG and Covid Vaccinations

COVID-19 and leukaemia - Leukaemia Care Webinar

Blood test changes.

Hypoxic Training

Shingrix and Shingles protection for CLLers

Presently taking Calquence for lymphoma. Also having pains in lower stomach area. Can I take ranitidine while taking Calquence?

Letter from Sajid Javid

AZD 7442 and Third Covid Jab

Itchy skin

Harvoni and CLL

Omeprazole and CLL

Does CLL cause red "pink eyes"?

COVID and (lack of) access to monoclonal antibody treatments

Has anyone had or planning to have a 2nd Booster

Venetoclax

Itchy itchy — looking for solutions

Little blisters in mouthf

On beta glucans (discussed but not instead of treatment!)

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