Posts - CLL Support | HealthUnlocked

CLL Support

22,629 members • 38,857 posts

All posts for August 2021

My husband is interested in possibly joining a CLL support group for patients - anyone have one they like?

My husband is interested in possibly joining a CLL support group, for patients - anyone have one they like? I think it could be good for him to be able to...

My husband is interested in possibly joining a CLL support group, for patients ...

OaktownA

•3 years ago

13 Replies

3RD COVID VACCINE SHOT TO BE APPROVED WITHIN DAYS

My post on getting a third shot on my own, without approval from the government, has had very wide readership on this site. It should be so, because it is...

My post on getting a third shot on my own, without approval from the government,...

wizzard166

•3 years ago

12 Replies

Recognizing the delta variant and testing

I’m negative for antibodies and have allergies so I’m usually clogged and it’s hard to use congestion as a warning sign of covid. What other signs are there?...

I’m negative for antibodies and have allergies so I’m usually clogged and it’s ...

Atds

•3 years ago

22 Replies

Want to take advantage of all our features? Just log in!

IVIG

As some of you know who have been active in my recent posts, I started seeing an Immunologist a few weeks ago. She encouraged me to get the third shot, and...

As some of you know who have been active in my recent posts, I started seeing an...

wizzard166

•3 years ago

13 Replies

We are all one big experiment for the drug companies

I have been through chemotherapy, big setbacks, complications and side effects from medications. What I am learning from this 10 year journey is that even...

I have been through chemotherapy, big setbacks, complications and side effects f...

pragnar

•3 years ago

14 Replies

Feeling tired, and not having much appetite.

My husband was diagnosed with CLL 5 year's ago and been in remission for 3 year's, and still on ibruvinib,but still gets very tired and doesn't always have...

My husband was diagnosed with CLL 5 year's ago and been in remission for 3 year'...

BayfieldAnnette

•3 years ago

10 Replies

CDC To Stop Counting Breakthru Unless Hospitalized

I read that the CDC will no longer count breakthrough Covid cases unless the patient is hospitalized. I cannot recall the source. Has anyone else seen this?...

I read that the CDC will no longer count breakthrough Covid cases unless the pat...

Ibru

•3 years ago

11 Replies

I have CLL. Not in treatment yet. Getting the shingrix vaccine soon. First dose.

Are the possible side effects worse for a person with CLL? Can anyone speak to this. Thank you

Are the possible side effects worse for a person with CLL? Can anyone speak to t...

Vacationmountaintop

•3 years ago

39 Replies

Shingrix approved

#CLL Society Shingrix approved in the US for prevention of shingles in immunocompromised adults...

#CLL Society Shingrix approved in the US for prevention of shingles in immunocom...

bkoffman

CLL CURE Hero•3 years ago

16 Replies

Covid & vaccine efficacy for CLL patients

Apologies if this has already been flagged up but people may find this report from the US CLL Society useful...

Apologies if this has already been flagged up but people may find this report fr...

Ptcad

•3 years ago

4 Replies

COVID-19 Breakthrough cases.

COVID-19 Breakthrough deaths in the US have doubled from 122 for the week ending 7/26 to 244 for the week ending 8/2 as vaccine effectiveness has waned for...

COVID-19 Breakthrough deaths in the US have doubled from 122 for the week ending...

whmk

•3 years ago

4 Replies

4 Checklists! Plan for COVID exposure now! Know where to find monoclonal antibodies. Be prepared!

Help Before You Need It! CLL Society’s simple checklists: Please know that vaccines and even masks and social distancing, though excellent at slowing the...

Help Before You Need It! CLL Society’s simple checklists: Please know that vacci...

bkoffman

CLL CURE Hero•3 years ago

5 Replies

Alcohol and Acalabrutinib

Ok so first of all I am not a heavy or even a moderate drinker. However, I do enjoy a glass of wine and an occasional gin and tonic. Can anyone advise me if...

Ok so first of all I am not a heavy or even a moderate drinker. However, I do e...

kitchengardener2

•3 years ago

18 Replies

Hypoglycemia and CLL

Is there any relation between hypoglycemia and cll? or does leukemia usually raise glucose levels? I can't make sense of what I'm reading

Is there any relation between hypoglycemia and cll? or does leukemia usually rai...

ElMaga

•3 years ago

1 Reply

Calquence and muscle/joint pain

Hi all, After a week on Calquence, my hubs is in excruciating pain - from the hips down. Can barely walk, can't sleep, etc. The pharmacist thinks this is a...

Hi all, After a week on Calquence, my hubs is in excruciating pain - from the hi...

qtrhorsechic

•3 years ago

6 Replies

New Information on 3rd Covid Shot Approval

I just posted an article about studies that indicated a third shot has helped the Immunocompromised. It came from a CDC meeting in July. Now there is further...

I just posted an article about studies that indicated a third shot has helped th...

wizzard166

•3 years ago

2 Replies

Healthcare in Canada and UK

Do the citizens of the UK and Canada have to pay for there CLL medications and treatments if so about how much for the pills.

Do the citizens of the UK and Canada have to pay for there CLL medications and t...

Ebenezer68

•3 years ago

11 Replies

THIRD SHOT BEING RECOMMENDED BY CDC FOR IMMUNOCOMPROMISED

As a follow up to my post last week about getting a third shot, news stories caught my eye yesterday that I thought I'd pass on. As a precursor to some who...

As a follow up to my post last week about getting a third shot, news stories cau...

wizzard166

•3 years ago

2 Replies

CLL and Hyperbaric chamber

Hi Diagnosed in 2013 and on W&W but blood tests not so good and expecting to get some sort of treatment soon. Trying out using Hyperbaric Chamber, will do 20...

Hi Diagnosed in 2013 and on W&W but blood tests not so good and expecting to get...

roblaw

•3 years ago

15 Replies

what does '13q14' mean?

I have seen in a few posts '13q14' mentioned as something that is positive in CLL patients. Can someone tell me what this means and is it something that...

I have seen in a few posts '13q14' mentioned as something that is positive in C...

Lindaan

•3 years ago

32 Replies

CLL and Drugs website?

Are there websites about CLL and related new drugs? Or info on new drugs development? Thank you

Are there websites about CLL and related new drugs? Or info on new drugs develo...

krikri1989ho

•3 years ago

1 Reply

Ibrutinib

Hello I was diagnosed in 2016 and was ww until 2019 when I had chemo until now My oncologist wants me to start ibrutinib now as my general condition has...

Hello I was diagnosed in 2016 and was ww until 2019 when I had chemo until now ...

pughn

•3 years ago

24 Replies

BUPA's get-out clause for cancer

Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on...

Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer prom...

MovingForward4423

•3 years ago

5 Replies

Diagnosis of CLL

Just been diagnosed with CLL from a biopsy taken of Bowel during surgery. Is this a normal way to be diagnosed or unusual ?

Just been diagnosed with CLL from a biopsy taken of Bowel during surgery. Is thi...

Jam53

•3 years ago

42 Replies

Side effects with 3rd vaccine?

Any studies about adverse effects to 3rd covid vaccine shot?

ElMaga

•3 years ago

3 Replies

Dr & Haematologist say no to second pneumonia jab

Could I get some thoughts on this please . I’ve been asking about second pneumonia jab for a while , got an appointment at the doctors who then decided they...

Could I get some thoughts on this please . I’ve been asking about second pneumon...

Elaine7061

•3 years ago

32 Replies

Anxiety Attacks Anyone? Imbruvica!

I've been on imbruvica for two months now and have started having nasty panic attacks! I went to the emergency room because it got so bad I thought something...

I've been on imbruvica for two months now and have started having nasty panic at...

Tchapman

•3 years ago

6 Replies

Does COVID vaccine work for those taking Ibrutinib

I am under treatment with Ibrutinib for CLL and was concerned that the COVID vaccine would not be effective for me (I’ve had both AstraZeneca Jabs) so I’ve...

I am under treatment with Ibrutinib for CLL and was concerned that the COVID vac...

Chamberlayne

•3 years ago

21 Replies

Have you relapsed on, or become refractory to a Btki drug such as ibrutinib, or the bcl-2i venetoclax?

Upcoming CLL Society webinar featuring Dr. Ian Flinn. Have you relapsed on, or become refractory to a Btki drug such as ibrutinib, or the bcl-2i venetoclax?...

Upcoming CLL Society webinar featuring Dr. Ian Flinn. Have you relapsed on, or b...

bkoffman

CLL CURE Hero•3 years ago

4 Replies

Cll and Shindrix Don't Mix

Had the "dead virus" Shindrix shot back in 10/2019 then caught Shingles 1 week later ( around my chest). Tested for immune disorders and diagnosed with CLL in...

Had the "dead virus" Shindrix shot back in 10/2019 then caught Shingles 1 week l...

CLLBLOG-1

•3 years ago

25 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2021

My husband is interested in possibly joining a CLL support group for patients - anyone have one they like?

3RD COVID VACCINE SHOT TO BE APPROVED WITHIN DAYS

Recognizing the delta variant and testing

IVIG

We are all one big experiment for the drug companies

Feeling tired, and not having much appetite.

CDC To Stop Counting Breakthru Unless Hospitalized

I have CLL. Not in treatment yet. Getting the shingrix vaccine soon. First dose.

Shingrix approved

Covid & vaccine efficacy for CLL patients

COVID-19 Breakthrough cases.

4 Checklists! Plan for COVID exposure now! Know where to find monoclonal antibodies. Be prepared!

Alcohol and Acalabrutinib

Hypoglycemia and CLL

Calquence and muscle/joint pain

New Information on 3rd Covid Shot Approval

Healthcare in Canada and UK

THIRD SHOT BEING RECOMMENDED BY CDC FOR IMMUNOCOMPROMISED

CLL and Hyperbaric chamber

what does '13q14' mean?

CLL and Drugs website?

Ibrutinib

BUPA's get-out clause for cancer

Diagnosis of CLL

Side effects with 3rd vaccine?

Dr & Haematologist say no to second pneumonia jab

Anxiety Attacks Anyone? Imbruvica!

Does COVID vaccine work for those taking Ibrutinib

Have you relapsed on, or become refractory to a Btki drug such as ibrutinib, or the bcl-2i venetoclax?

Cll and Shindrix Don't Mix

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive