Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for July 2021

Reassurance

Hi back in the NHS again next week and due to have a booster Hep B jab tomorrow my original was back in 2005 when starting my nurse training I know the Hep b...

Hi back in the NHS again next week and due to have a booster Hep B jab tomorrow...

stewie

•3 years ago

2 Replies

Is canabis tea any good for us?

I hear a lot of stuff about canabis oil etc and cancer - is it any help to us? Or no good at all? Look forward to your opinions!

I hear a lot of stuff about canabis oil etc and cancer - is it any help to us? O...

Research123

•3 years ago

7 Replies

COVID-19 Antibody - Interpretation of Test Results

Would anyone know how to interpret the test results? Are there any guidelines other than „positive“ or „negative“? Everywhere I checked it states that the...

Would anyone know how to interpret the test results? Are there any guidelines ot...

Mumu1

•3 years ago

8 Replies

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Low Levels of IgA, IgG and IgM - What Triggers IGIV?

Greetings from your UN-mutated colleague! The blood work from last week's visit to oncology revealed (besides the other troubling CLL indicators) that my Ig...

Greetings from your UN-mutated colleague! The blood work from last week's visit ...

Jungle-Jim

•3 years ago

42 Replies

Recovering from Covid

Some good news- I was diagnosed with CLL in 2012. I am currently on second line treatment - Ibrutinib for one year A month ago I tested positive for Covid....

Some good news- I was diagnosed with CLL in 2012. I am currently on second line ...

Paidraigin21

•3 years ago

27 Replies

Treatment and ocular lymphocytic leukemia

My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count 6.1 hemoglobin I joined a threefold trial Ibrutinib, Obinutuzumab and...

My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count...

mickimauser11

•3 years ago

9 Replies

Immune response to Pfizer Covid19 vaccine is different depending on the dosing interval - PITCH Study

The PITCH study compared short (2-5 weeks) and long (6-14 weeks) dosing schedules of the Pfizer vaccine in 503 healthcare workers. "We found that for...

The PITCH study compared short (2-5 weeks) and long (6-14 weeks) dosing schedule...

bennevisplace

•3 years ago

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COVID-19 in patients with CLL: improved survival outcomes and update on management strategies

https://mashupmd.com/covid-19-in-patients-with-cll-improved-survival-outcomes-and-update-on-management-strategies-blood-american-society-of-hematology-3/ -...

https://mashupmd.com/covid-19-in-patients-with-cll-improved-survival-outcomes-an...

JIDD

•3 years ago

2 Replies

I Got A Third Shot

Any of you who have read my prior posts in the last week on this subject know how I feel about this issue. We are all wondering if they will approve the third...

Any of you who have read my prior posts in the last week on this subject know ho...

wizzard166

•3 years ago

74 Replies

Low neutralizing antibody responses in WM, CLL and NHL patients after the first dose of the BNT162b2 and AZD1222 vaccine

Research from National and Kapodistrian University of Athens on first dose effects of both AZ and Pfizer vaccines looks guardedly positive....

Research from National and Kapodistrian University of Athens on first dose effec...

JIDD

•3 years ago

1 Reply

Israel says Pfizer Covid vaccine is just 39% effective as delta spreads, but still prevents severe illness

Delta is spreading rapidly here despite the fact that we are mostly vaccinated. Keep in mind that the bulk of the population here was already fully vaccinated...

Delta is spreading rapidly here despite the fact that we are mostly vaccinated. ...

Youngen

•3 years ago

2 Replies

Another HSCT question….

There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have...

There are report that young people who have cll, who have done hematopoietic ste...

krikri1989ho

•3 years ago

4 Replies

Looking for alternatives with BTK C481 resistant CLL

Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up...

Looking for alternatives. I have had 3 prior treatments from FCR to other chemo ...

micg

•3 years ago

15 Replies

New SLL/CLL diagnosis

I was just diagnosed with SLL/CLL at age 62. This was diagnosed incidentally when I was admitted for acute sigmoidal diverticulitis. A flow cytometry was done...

I was just diagnosed with SLL/CLL at age 62. This was diagnosed incidentally whe...

peacethruthestorm

•3 years ago

13 Replies

CLL Expert in Las Vegas

Hi, A friend is looking for a CLL expert in Las Vegas. If you know someone with CLL expertise, please share the name and institution with me. Thanks Stay...

Hi, A friend is looking for a CLL expert in Las Vegas. If you know someone with ...

bkoffman

CLL CURE Hero•3 years ago

Be the first to reply

The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)

As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you...

As a valued member of The Leukemia & Lymphoma Society’s National Patient Regi...

lankisterguy

Volunteer•3 years ago

7 Replies

Imbruvica ibrutinib & ACE inhibitors

I have just been told to stop my ramipril due to an interaction with ibrutinib having the risk of sudden cardiac death! I have been taking ibrutinib daily for...

I have just been told to stop my ramipril due to an interaction with ibrutinib h...

sphexx

•3 years ago

16 Replies

Hi All . Anyone been having weekend away while on Venetoclax for breaks in UK

Just me and partner and thinking of short break away and just wondered if anyone has been still travelling with COVID numbers so high

Just me and partner and thinking of short break away and just wondered if anyone...

Hd07

•3 years ago

2 Replies

Covid isolation nightmare

I had covid in June (see reply to Wonderwoman post for grisly details) but I am now caught up in a bureaucratic nightmare and am seeking advice. I am still...

I had covid in June (see reply to Wonderwoman post for grisly details) but I am ...

camper2

•3 years ago

1 Reply

Swelling on Imbruvica

Has anyone experienced swelling of the hands and feet on imbruvica? I've just started to notice it the last week. Plus my blood pressure has went up a bit...

Has anyone experienced swelling of the hands and feet on imbruvica? I've just st...

Tchapman

•3 years ago

2 Replies

Skin cancer

Because of the CLL information on skin cancer, I had a small biopsy taken from my lower lip today. I had a little sore, that did not heal, for months, it was...

Because of the CLL information on skin cancer, I had a small biopsy taken from m...

Mother1943

•3 years ago

4 Replies

Reduced dosing of acalabrutinib

I recently reduced my daily dose of acalabrutinib from 200mg to 100mg (half the manufacturer's recommended dose) due to a full body rash I developed during the...

I recently reduced my daily dose of acalabrutinib from 200mg to 100mg (half the ...

Savvyman

•3 years ago

24 Replies

Hyaluronic Acid and CLL

I have been using a Revitalift over the counter face serum that is 1.5% Hyaluronic Acid sold as a treatment for wrinkles and aging skin. I seem to remember...

I have been using a Revitalift over the counter face serum that is 1.5% Hyaluron...

CBME

•3 years ago

13 Replies

New Yorker article

What was the date of the issue that contained the CLL article recentlyY. Thank you.

What was the date of the issue that contained the CLL article recentlyY. Thank y...

Geometrics

•3 years ago

1 Reply

Dermatologist

Has anyone been told by their oncologist to see a dermatologist 2-3 times a year. She believes there is a connection between CLL and skin cancer.

Has anyone been told by their oncologist to see a dermatologist 2-3 times a year...

Mother1943

•3 years ago

16 Replies

Consultant appointment

Hi you kind souls out there, Just an update on my follow up with my consultant today as you’ve been so reassuring to me so far. Met him today and admittedly...

Hi you kind souls out there, Just an update on my follow up with my consultant...

Lennc

•3 years ago

3 Replies

Is Immunoglobulins Blood Testing Needed?

My hematologist in Canada does not requisition Immunoglobulins Blood Testing. I've been diagnosed 10 years ago and am currently being successfully treated...

My hematologist in Canada does not requisition Immunoglobulins Blood Testing. I...

Drago1941

•3 years ago

14 Replies

What Factors Impact CLL Treatment Options? -- Patient Empowerment Network --Dr. Lyndsey Roeker is a hematologic oncologist at Memorial Sloan

What Factors Impact CLL Treatment Options? May 14, 2021 click to view video...

lankisterguy

Volunteer•3 years ago

3 Replies

The Freedom Cafe

Need I say more?

bennevisplace

•3 years ago

39 Replies

Muscle Relaxants for Pain?

To follow up on the pain from Acalabrutinib and Venetoclax—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if...

To follow up on the pain from Acalabrutinib and Venetoclax—Have any of you been ...

Franklin2021

•3 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2021

Reassurance

Is canabis tea any good for us?

COVID-19 Antibody - Interpretation of Test Results

Low Levels of IgA, IgG and IgM - What Triggers IGIV?

Recovering from Covid

Treatment and ocular lymphocytic leukemia

Immune response to Pfizer Covid19 vaccine is different depending on the dosing interval - PITCH Study

COVID-19 in patients with CLL: improved survival outcomes and update on management strategies

I Got A Third Shot

Low neutralizing antibody responses in WM, CLL and NHL patients after the first dose of the BNT162b2 and AZD1222 vaccine

Israel says Pfizer Covid vaccine is just 39% effective as delta spreads, but still prevents severe illness

Another HSCT question….

Looking for alternatives with BTK C481 resistant CLL

New SLL/CLL diagnosis

CLL Expert in Las Vegas

The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)

Imbruvica ibrutinib & ACE inhibitors

Hi All . Anyone been having weekend away while on Venetoclax for breaks in UK

Covid isolation nightmare

Swelling on Imbruvica

Skin cancer

Reduced dosing of acalabrutinib

Hyaluronic Acid and CLL

New Yorker article

Dermatologist

Consultant appointment

Is Immunoglobulins Blood Testing Needed?

What Factors Impact CLL Treatment Options? -- Patient Empowerment Network --Dr. Lyndsey Roeker is a hematologic oncologist at Memorial Sloan

The Freedom Cafe

Muscle Relaxants for Pain?

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