Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2021

No Antibodies shown after taking the Moderna Vaccine

I am new to CLL only a year on W&W. My Lymphs are #10.26 and % is 69.7. WBC is 14.73. I had the Moderna vaccine in Feb and March. Just had an antibody...

I am new to CLL only a year on W&W. My Lymphs are #10.26 and % is 69.7. WBC is...

CBME

•3 years ago

21 Replies

Acalabrutinib

How is acalabrutinib tolerated? I am new to it all!

paddlerwhite

•3 years ago

4 Replies

Once you start Ibrutinib you can’t stop?

Hi guys! Been following this page for years and have been very helpful! Asking for my husband, can one stop taking ibrutinib after blood cell are normal or one...

Hi guys! Been following this page for years and have been very helpful! Asking f...

krikri1989ho

•3 years ago

14 Replies

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It’s official Study shows T cells are activated against Covid after vaccination

Just heard on the Irish Radio from Professor Luke O’Neill, a super immunologist in Trinity College Dublin, results of a study on Leukemia patients show T Cells...

Just heard on the Irish Radio from Professor Luke O’Neill, a super immunologist ...

Hidden

•3 years ago

24 Replies

First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.

Background: Increased selectivity of the Bruton tyrosine kinase inhibitor (BTKi) acalabrutinib (Aca) vs ibrutinib (Ib) may improve tolerability. We conducted...

Background: Increased selectivity of the Bruton tyrosine kinase inhibitor (BTKi)...

Jm954

Administrator•3 years ago

16 Replies

CLL: from molecular pathogenesis to novel therapeutic strategies

September 2020 An interesting paper "CLL is a well-defined lymphoid neoplasm with very heterogeneous biological and clinical behavior. The last decade has been...

September 2020 An interesting paper "CLL is a well-defined lymphoid neoplasm wit...

Jm954

Administrator•3 years ago

2 Replies

Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic leukaemia

On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor ibrutinib has revolutionised the therapeutic landscape of chronic lymphocytic...

On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor...

Jm954

Administrator•3 years ago

3 Replies

Worsening of immune thrombocytopenia following Covid-19 vaccination

Immune thrombocytopenia can be a recognised complication of CLL due to our dysregulated immune system. This abstract reports that COVID-19 vaccination may...

Immune thrombocytopenia can be a recognised complication of CLL due to our dysre...

Jm954

Administrator•3 years ago

8 Replies

News - Acalabrutinib approved for Restricted use in Scotland

Following an abbreviated and full submissions, the Scottish Medicines Consortium has approved Acalabrutinib for CLL with the following restrictions:...

Following an abbreviated and full submissions, the Scottish Medicines Consortiu...

Jm954

Administrator•3 years ago

8 Replies

Cancer 'power failure' stops the spread of tumor cells

Sirturo, targeted the fuel supply of cancer cells and blocked metastasis by nearly 85%. The drug had no effects on normal cells, thereby minimizing...

Sirturo, targeted the fuel supply of cancer cells and blocked metastasis by near...

Richard_TX

•3 years ago

1 Reply

vaccination hesitancy

I live in Perth western Australia, and although we had an initial co vid outbreak like most countries our state got on top of it very quickly and we have no...

I live in Perth western Australia, and although we had an initial co vid outbrea...

paulgf54

•3 years ago

3 Replies

Taurine ? Taurine for "us" ?

Is Taurine useful in general, and is it useful for us with CLL ?

janvog

•3 years ago

4 Replies

Obinutuzumab side effects

Hi all anyone suffered bad joint pain 🤔

Hd07

•3 years ago

6 Replies

cll-patient-survival-improves

Recent analysis and discussion of old data at June ASCO:...

whmk

•3 years ago

28 Replies

Ibrutinib 2021

Hi, I was diagnosed nearly 6 years ago. W and W until starting Ibrutinib, February 2021. Vainly looking for travel insurance. My own policy will cover...

Hi, I was diagnosed nearly 6 years ago. W and W until starting Ibrutinib, Februa...

Hidden

•3 years ago

8 Replies

Anyone get random side effects from COVID vaccine?

Hello everyone hope everyone is enjoying this Friday night! After I got the 2nd dose (pfizer) back on Valentine's day I got the normal reactions (fever, body...

Hello everyone hope everyone is enjoying this Friday night! After I got the 2nd ...

tinylobito

•3 years ago

Be the first to reply

New genetic research for CLL progression

I spotted this in the CLL Newsletter (can't recall which!) and wondered if anyone knew about the specific i.e. which kinds of CLL are implicated in the...

I spotted this in the CLL Newsletter (can't recall which!) and wondered if anyon...

deveritt

•3 years ago

2 Replies

ANTIBODY AFTER COVID-19

I did not receive the vaccine. I did however get tested for antibodies since I was positive for COVID July 11, 2020. I have CLL. My husband who does not...

I did not receive the vaccine. I did however get tested for antibodies since I ...

Jms19

•3 years ago

2 Replies

Swimming during summer

I was just wondering if it is safe to go swimming, my skin has become very sensitive/swollen to the sun after diagnosed with CLL. Any advice would be much...

I was just wondering if it is safe to go swimming, my skin has become very sensi...

ANA4

•3 years ago

19 Replies

Qualifying for Life Insurance with CLL Newly diagnosed

Qualifying for Life Insurance with Newly diagnosed CLL (April 2021) Otherwise healthy, on watch and Wait only , no treatment Am I insurable? Age 65. Any...

Qualifying for Life Insurance with Newly diagnosed CLL (April 2021) Otherwise h...

Mochachino

•3 years ago

19 Replies

Leukemia & Lymphoma Society COVID-19 vaccine safety data is now available ; vaccine antibody data expected later in 2021

On behalf of the Leukemia & Lymphoma Society, thank you again for joining the LLS National Patient Registry, a project of the Michael J. Garil Patient Data...

On behalf of the Leukemia & Lymphoma Society, thank you again for joining the LL...

lankisterguy

Volunteer•3 years ago

22 Replies

OxPLoreD clinical trial for those with high count MBL or early stage CLL --More recruits needed

As Milla15 wrote 6 months ago "this trial which is currently recruiting for high count Monoclonal B-cell Lymphocytosis or very early stage CLL patients (as...

As Milla15 wrote 6 months ago "this trial which is currently recruiting for high...

JEEA

•3 years ago

7 Replies

accupuncture and CLL

I have added acupuncture into my watch and wait regimen. Any of you out there do the same? What are your thoughts? I am on the fence.

I have added acupuncture into my watch and wait regimen. Any of you out there ...

Gardengirl44

•3 years ago

13 Replies

If you have LLC and are taking Ibrutinib, is it advisable to inject the vaccine against Covid?, and wich one Pfizer, Moderna or J&J ?

I have been reading very interesting posts about CLL and the vaccine, but to this date I still do not know which is the best option since I read that one of...

I have been reading very interesting posts about CLL and the vaccine, but to thi...

Geom2000

•3 years ago

8 Replies

Something helps with bruising

For those that have bruising there is a natural remedy that gets rid of them faster. ARNICA MONTANA. They are pellets in a tube. Doctors have patients take...

For those that have bruising there is a natural remedy that gets rid of them fas...

showdog

•3 years ago

21 Replies

CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL

https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for-fixed-duration-treatment-of-cll-sll/ The data in the uMRD cohort of this trial...

https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for...

WinJ3

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2021

No Antibodies shown after taking the Moderna Vaccine

Acalabrutinib

Once you start Ibrutinib you can’t stop?

It’s official Study shows T cells are activated against Covid after vaccination

First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.

CLL: from molecular pathogenesis to novel therapeutic strategies

Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic leukaemia

Worsening of immune thrombocytopenia following Covid-19 vaccination

News - Acalabrutinib approved for Restricted use in Scotland

Cancer 'power failure' stops the spread of tumor cells

vaccination hesitancy

Taurine ? Taurine for "us" ?

Obinutuzumab side effects

cll-patient-survival-improves

Ibrutinib 2021

Anyone get random side effects from COVID vaccine?

New genetic research for CLL progression

ANTIBODY AFTER COVID-19

Swimming during summer

Qualifying for Life Insurance with CLL Newly diagnosed

Leukemia & Lymphoma Society COVID-19 vaccine safety data is now available ; vaccine antibody data expected later in 2021

OxPLoreD clinical trial for those with high count MBL or early stage CLL --More recruits needed

accupuncture and CLL

If you have LLC and are taking Ibrutinib, is it advisable to inject the vaccine against Covid?, and wich one Pfizer, Moderna or J&J ?

Something helps with bruising

CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL

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