Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for May 2021

Going off venetoclax

My labs came back and it appears I am in total remission. (Hallelujah!) My oncologist said I could potentially go off venetoclax and if (or when) I have a...

My labs came back and it appears I am in total remission. (Hallelujah!) My oncol...

Lulu8581

•3 years ago

24 Replies

update

MIck, has his MRI on Tuesday the 11th it was requested as urgent. His consultant appointment is on the 8th of June. Jenny uk

MIck, has his MRI on Tuesday the 11th it was requested as urgent. His consultan...

very

•3 years ago

10 Replies

Suggestions where to find CBC pre-made spreadsheets

I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ......

I apologize up-front to ask the subject question as this topic previously had gr...

Pin57

•3 years ago

22 Replies

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What to do-New hematologist

Just received results of bloodwork -CLL-30 months Imbruvica-first time in 10 years my chart is all within normal range-my doctor retired-phone visit with new...

Just received results of bloodwork -CLL-30 months Imbruvica-first time in 10 yea...

wilhoitaz

•3 years ago

24 Replies

Covid Antibody Test

I am on IgG substitution and get the infusion 4-weekly. I got vaccinated with Pfizer and got my second jab 4 weeks ago. I read that in the meantime Covid...

I am on IgG substitution and get the infusion 4-weekly. I got vaccinated with Pf...

Reinhard

•3 years ago

5 Replies

Steven Johnson Syndrome and CLL

Has anyone experienced SJS also having CLL? i am suffering from it for 2 months and still have a lot of issues with mouth and tongue, very dry and tight mouth,...

Has anyone experienced SJS also having CLL? i am suffering from it for 2 months ...

DivineLight

•3 years ago

20 Replies

Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL

Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial...

Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Ma...

Jm954

Administrator•3 years ago

19 Replies

Sinus infection

wondering if I should get my lab work today with a horrible sinus infection; any experience with it raising WBC?

wondering if I should get my lab work today with a horrible sinus infection; an...

ElMaga

•3 years ago

3 Replies

any ideas

hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou

hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these ...

kel555

•3 years ago

7 Replies

Blood Thinners and CLL

I have MS and CLL, my Cardiologist suggested I be removed from blood thinners due to past PE's and DVT's. He said to talk to my Oncologist. Has anyone here...

I have MS and CLL, my Cardiologist suggested I be removed from blood thinners d...

MSGMP

•3 years ago

5 Replies

Had Covid, why get the vaccine

I had covid in Dec 2020. Pretty sick & hospitalized for 7 days and I survived. If my body produced the antibodies why do I need the vaccine? TIA

I had covid in Dec 2020. Pretty sick & hospitalized for 7 days and I survived. ...

Kmc383

•3 years ago

53 Replies

Acalabrutnib & Fatigue

I am curious if anyone has experienced more fatigue with the Acalabrutnib treatment? I have been on Calquence since September. Three months into treatment,...

I am curious if anyone has experienced more fatigue with the Acalabrutnib treat...

Corgiluvr

•3 years ago

23 Replies

Ibrutinib and covid vaccination

Hello, I have a brother 56 years old who uses Ibrutinib daily for 1 year and he is feeling well. I wonder if he should take a break from the medicine before...

Hello, I have a brother 56 years old who uses Ibrutinib daily for 1 year and he ...

Green202

•3 years ago

17 Replies

Last Call - Places available for today's UK CLL treatments update webinar

Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will...

Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequ...

HAIRBEAR_UK

Founder Admin•3 years ago

4 Replies

CT scan results

Yesterday, my husband had a telephone appointment with his consultant which was brought forward from August. The results of his ct scan show a lesion on his...

Yesterday, my husband had a telephone appointment with his consultant which was ...

very

•3 years ago

17 Replies

Ibrutinib and low platelet

Hello, my father have been taking ibrutinib for a month. His WBC has decreased but his platelet count has decreased and doktor stopped ibrutinib for test. Does...

Hello, my father have been taking ibrutinib for a month. His WBC has decreased b...

Elnaazz

•3 years ago

18 Replies

Side effects from Acalabrutnib

Does anyone have suggestions for dealing with the headache and muscle/joint pain from Acalabrutnib?

Does anyone have suggestions for dealing with the headache and muscle/joint pain...

Bill68

•3 years ago

10 Replies

Longitudinal analysis shows durable and broad immune memory after SARS-CoV-2 infection with persisting antibody responses and memory B and T

We evaluated 254 COVID-19 patients longitudinally from early infection and for eight months thereafter and found a predominant broad-based immune memory...

We evaluated 254 COVID-19 patients longitudinally from early infection and for e...

zaax

•3 years ago

15 Replies

Cll and skin cancer - An update and a warning.

You may recall I had a neck dissection followed by 6 weeks of intensive radiotherapy which finished about 6 weeks ago. This was to treat SCC of the parotid...

You may recall I had a neck dissection followed by 6 weeks of intensive radiothe...

aloneifly

•3 years ago

32 Replies

New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL...

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Gro...

lankisterguy

Volunteer•3 years ago

2 Replies

CLL and COVID19 Vaccine

I am concerned about taking the Covid19 vaccine with this CLL and compromised Immune system. They have me on 500 mg Vitamin C. I am also a Diabetic, being...

I am concerned about taking the Covid19 vaccine with this CLL and compromised Im...

Raven305

•3 years ago

51 Replies

CLL and transformation to Richter Syndrome after having the flu vaccine

Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9...

Help all, I have been reading the posts over the past few years, I’m so relieved...

GreatDad

•3 years ago

8 Replies

Currently W&W but having talks for taking part in CLL17 trial being offered through CUH Cork.Ireland.

Hi I’m interested in anyone thinking of taking part in this trial I have been on w&w since feb 2020 now needing treatment due to lymph nodes swelling...

Hi I’m interested in anyone thinking of taking part in this trial I have been on...

Lu05

•3 years ago

13 Replies

Prophylactic Antibiotics Before Outpatient Surgery?

Hi everyone, Well, as soon I finished treatment (V + O) last month, I discovered a basal-cell carcinoma on my head. Fun! Getting it removed Tuesday (May 4)...

Hi everyone, Well, as soon I finished treatment (V + O) last month, I discovere...

DRM18

•3 years ago

20 Replies

MS and CLL

I have CLL and Multiple Sclerosis, who else has this?

MSGMP

•3 years ago

7 Replies

Covid Pfizer vaccine acalabrutinib efficacy one case

One case description: 1. dose one: none antibodies was developed, antibodies test was done 21 days after vaccination. Patient under acalabrutinib over 12...

One case description: 1. dose one: none antibodies was developed, antibodies te...

Mik_

•3 years ago

5 Replies

meningitis vaccine

Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the...

Do CLL patients who have never had meningitis vaccine need two doses? I am aski...

pth123

•3 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2021

Going off venetoclax

update

Suggestions where to find CBC pre-made spreadsheets

What to do-New hematologist

Covid Antibody Test

Steven Johnson Syndrome and CLL

Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL

Sinus infection

any ideas

Blood Thinners and CLL

Had Covid, why get the vaccine

Acalabrutnib & Fatigue

Ibrutinib and covid vaccination

Last Call - Places available for today's UK CLL treatments update webinar

CT scan results

Ibrutinib and low platelet

Side effects from Acalabrutnib

Longitudinal analysis shows durable and broad immune memory after SARS-CoV-2 infection with persisting antibody responses and memory B and T

Cll and skin cancer - An update and a warning.

New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm

CLL and COVID19 Vaccine

CLL and transformation to Richter Syndrome after having the flu vaccine

Currently W&W but having talks for taking part in CLL17 trial being offered through CUH Cork.Ireland.

Prophylactic Antibiotics Before Outpatient Surgery?

MS and CLL

Covid Pfizer vaccine acalabrutinib efficacy one case

meningitis vaccine

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