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All posts for April 2021

IVIG - Joint Pain - Hydrocortisone

I have written before that IVIG seems to reduce the join pain that I experience. I have been off IVIG for the last 4 months due to the pandemic and have...

I have written before that IVIG seems to reduce the join pain that I experience....

RobertCLL

•3 years ago

4 Replies

Vaccines Won’t Protect Millions of Patients With Weakened Immune Systems

Just read this article (https://www.nytimes.com/2021/04/15/health/coronavirus-vaccine-immune-system.html?referringSource=articleShare) in the NYT. Not the best...

Just read this article (https://www.nytimes.com/2021/04/15/health/coronavirus-va...

Iupiter

•3 years ago

8 Replies

CLL Covid Antibody Response Study - Publication

Hi everyone! My CLL specialist published his study in which he evaluated the antibody response to the Pfizer Covid vaccine in CLL patients (both W&W and in...

Hi everyone! My CLL specialist published his study in which he evaluated the an...

Youngen

•3 years ago

6 Replies

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Sore throat after jab 2

I’ve had a sore throat for a week after my second Covid jab. Just wondering if it will ever go and if it’s the CLL advancing or the side effects of the...

I’ve had a sore throat for a week after my second Covid jab. Just wondering if i...

anapurna

•3 years ago

5 Replies

CLL and surgery

I’ve recently had Bi-lateral knee replacement and it seems to be taking an age to show any sign of recovery. Does CLL impact on the recovery process. Anyone...

I’ve recently had Bi-lateral knee replacement and it seems to be taking an age t...

Britcom

•3 years ago

13 Replies

Interview: “Fresh” CAR-T cells for Richter's Transformation?Interview with Dr. John & Dr. Arnon Nagler

CAR-T Therapy for Richter's Transformation? Richter's Transformation remains one of the greatest unmet needs in CLL, but there is hope with a novel CAR-T...

CAR-T Therapy for Richter's Transformation? Richter's Transformation remains one...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

T Cell Testing

Wondering if anyone has had, or knows of any post covid T cell testing happening ?

Wondering if anyone has had, or knows of any post covid T cell testing happening...

Davidcara

•3 years ago

4 Replies

Covid Vaccine Antibody Test

I am taking Alacabrutinib and just received my Covid Vaccine Antibody Test done by LLS. It was negative for covid antibodies. Has anyone had a positive...

I am taking Alacabrutinib and just received my Covid Vaccine Antibody Test done ...

country76

•3 years ago

21 Replies

Trouble booking Second Vaccine in Toronto

I live in Toronto and had my first Pfizer covid vaccine shot 3 weeks ago. I am eligible to get my second booster shot now as I have a letter from my...

I live in Toronto and had my first Pfizer covid vaccine shot 3 weeks ago. I am e...

Par3

•3 years ago

36 Replies

New CLL Regimen after 6 years on Imbruvica

I was diagnoses with CLL with 17P deletion in Oct. 2013, was on W&W 1 year and have been on Imbruvica until this month. My white cells have gone up the last...

I was diagnoses with CLL with 17P deletion in Oct. 2013, was on W&W 1 year and ...

Gisygirl

•3 years ago

3 Replies

April 21st CLL Society’s CAR-T Ed Forum: The Basic Science and Latest Data with Drs. John Pagel & Tanya Siddiqi

What Are You Doing on April 21st? How about joining the CLL Society’s CAR-T Ed Forum: The Basic Science and Latest Data? Respected by colleagues for their...

What Are You Doing on April 21st? How about joining the CLL Society’s CAR-T Ed F...

bkoffman

CLL CURE Hero•3 years ago

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Aggressive CLL - Richter's Transformation

Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and...

Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocyti...

Phs2385

•3 years ago

32 Replies

Study suggests two-dose COVID-19 vaccine is less effective for people with CLL as compared to healthy controls (CLL specific)

This study is specific to us, and there are no surprises! (Don't think I have see this before on this site). In this study of 167 patients with CLL, only four...

This study is specific to us, and there are no surprises! (Don't think I have s...

RobertCLL

•3 years ago

28 Replies

Covid: Spike (vaccine) Antibodies v Human immune system antibodies

I am sure I have read somewhere the antibodies produced by a covid infections are different to those produced by the vaccines. I f this is the case are the...

I am sure I have read somewhere the antibodies produced by a covid infections ar...

zaax

•3 years ago

8 Replies

Covid Antibodies and CLL

What are CLL specialists telling their patients on BTK’s about the effectiveness of the vaccines? Thank you! Yuck

What are CLL specialists telling their patients on BTK’s about the effectiveness...

Yuck

•3 years ago

2 Replies

Protection from Covid and CLL

Regeneron, Lily, and AstraZeneca are developing and trialing monoclonal antibodies. The hope is they will protect those who are immunocompromised and respond...

Regeneron, Lily, and AstraZeneca are developing and trialing monoclonal antibodi...

Yuck

•3 years ago

5 Replies

COVID-19 Vaccinations & Testing Dr. Furman & LLS

We had a CLL Society Zoom session on vaccinations with Dr. Furman April 11. He discourages getting the antibody & spike protein tests after the 2nd...

We had a CLL Society Zoom session on vaccinations with Dr. Furman April 11. He ...

lankisterguy

Volunteer•3 years ago

20 Replies

2nd dose

Morning all, I had my second jab yesterday early morning. By 9pm last night I felt rough and like I’d caught a chill. I took a couple of paracetamol and woke...

Morning all, I had my second jab yesterday early morning. By 9pm last night I f...

Sepsur

•3 years ago

10 Replies

COVID Vaccination - Timing of second dose for blood cancer patients

Blood Cancer UK and the British Society for Haematology have written an open letter to the UK JCVI asking them to update their guidance in respect of blood...

Blood Cancer UK and the British Society for Haematology have written an open let...

Jm954

Administrator•3 years ago

15 Replies

Posting results of vaccine Covid antibody #’s

Hi all, Are people with CLL who take Ibrutinib or other BTK’s creating any Covid antibodies from the vaccines? Many thanks! Yuck

Hi all, Are people with CLL who take Ibrutinib or other BTK’s creating any Covid...

Yuck

•3 years ago

12 Replies

Working while on treatment O&V

Hello to everyone. I have been following this site since being diagnosed with CLL in Nov20 & am very grateful for the reassurance & knowledge that site...

Hello to everyone. I have been following this site since being diagnosed with CL...

Fergusaims

•3 years ago

13 Replies

Blood platelets and ibrutinib

Hi, is there anyone in this group who has low blood platelets while taking the drug ibrutinib ? According to the doctor, if the platelets are low, the drug...

Hi, is there anyone in this group who has low blood platelets while taking the d...

Elnaazz

•3 years ago

17 Replies

Over-80s show similar antibody responses following single vaccination with either Pfizer or AstraZeneca vaccine – but cellular responses are

https://www.birmingham.ac.uk/news/latest/2021/04/covid-antibody-response-vaccine-older-people.aspx

https://www.birmingham.ac.uk/news/latest/2021/04/covid-antibody-response-vaccine...

zaax

•3 years ago

4 Replies

Covid Vaccination and IVIG

I just wanted to check my memory. I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and IVIG infusion. Is that correct?

I just wanted to check my memory. I believe the medical recommendation is to le...

RobertCLL

•3 years ago

7 Replies

Question for Aussie Neil in particular

Hi Neil, do you know of anyone like me who finished Veneteclax treatment very recently and just has had a bad reaction to the Astra Zeneca vaccine. I have...

Hi Neil, do you know of anyone like me who finished Veneteclax treatment very re...

roszika

•3 years ago

2 Replies

"Did catching Covid-19 help these patients fight cancer?"

Unfortunately the source of this information is not very scientific (Daily Mail), but one described case seems to partially base on a credible source (see PDF...

Unfortunately the source of this information is not very scientific (Daily Mail)...

mantana

•3 years ago

3 Replies

Does the haematologist really know what he's talking about?!

So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to...

So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biops...

happyclappy

•3 years ago

5 Replies

Bloody Nose

Has anyone had nose bleeds using Brukinsa combined with a Covid Shot and taking Tylenol

Has anyone had nose bleeds using Brukinsa combined with a Covid Shot and taking ...

brooklyn7672

•3 years ago

2 Replies

Alochol and CLL treatment

My husband will be starting Acalabrutinib at the end of this week. I've read that alcohol use should basically be avoided while on Acalabrutinib; his doctor...

My husband will be starting Acalabrutinib at the end of this week. I've read tha...

OaktownA

•3 years ago

13 Replies

C DIF WITH CLL

Hi All, does anyone have any info on C Dif and the effect and problems connected with having CLL. Thanks Ron

Hi All, does anyone have any info on C Dif and the effect and problems connected...

Vindicatrix

•3 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2021

IVIG - Joint Pain - Hydrocortisone

Vaccines Won’t Protect Millions of Patients With Weakened Immune Systems

CLL Covid Antibody Response Study - Publication

Sore throat after jab 2

CLL and surgery

Interview: “Fresh” CAR-T cells for Richter's Transformation?Interview with Dr. John & Dr. Arnon Nagler

T Cell Testing

Covid Vaccine Antibody Test

Trouble booking Second Vaccine in Toronto

New CLL Regimen after 6 years on Imbruvica

April 21st CLL Society’s CAR-T Ed Forum: The Basic Science and Latest Data with Drs. John Pagel & Tanya Siddiqi

Aggressive CLL - Richter's Transformation

Study suggests two-dose COVID-19 vaccine is less effective for people with CLL as compared to healthy controls (CLL specific)

Covid: Spike (vaccine) Antibodies v Human immune system antibodies

Covid Antibodies and CLL

Protection from Covid and CLL

COVID-19 Vaccinations & Testing Dr. Furman & LLS

2nd dose

COVID Vaccination - Timing of second dose for blood cancer patients

Posting results of vaccine Covid antibody #’s

Working while on treatment O&V

Blood platelets and ibrutinib

Over-80s show similar antibody responses following single vaccination with either Pfizer or AstraZeneca vaccine – but cellular responses are

Covid Vaccination and IVIG

Question for Aussie Neil in particular

"Did catching Covid-19 help these patients fight cancer?"

Does the haematologist really know what he's talking about?!

Bloody Nose

Alochol and CLL treatment

C DIF WITH CLL

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