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CLL Support

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All posts for February 2021

COVID-19 Vaccine - how effective

Interesting and informative article from The Guardian https://www.theguardian.com/commentisfree/2021/feb/08/compare-vaccines-effective-trial-data

Interesting and informative article from The Guardian https://www.theguardian....

YelvertonDevon

•3 years ago

3 Replies

Had my vaccine yesterday. I’m on W&W since I was diagnosed February 2020. I feel no one seems to know how much protection we CLLers have????

I had the Oxford vaccine, I have had no side effects which I’m surprised as I normally have a bad reaction to the flu jab painful arm and swollen. I asked the...

I had the Oxford vaccine, I have had no side effects which I’m surprised as I n...

Pekingese

•3 years ago

10 Replies

Why less Flu

A good video on why we haven’t had more Flu during the COVID outbreak. https://fb.watch/3wYwD8brmG/

A good video on why we haven’t had more Flu during the COVID outbreak. https:...

BeckyLUSA

•3 years ago

3 Replies

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LOOKING FOR CLL SP3EECIALIST RECOMMENDATIONS IN SOUTHERN CALIF. Los Angeles area. Please.

NEED AN EXCELLENT CLL SPECIALIST RECOMMENDATION In Southern California. Thank you for your responses.

NEED AN EXCELLENT CLL SPECIALIST RECOMMENDATION In Southern California. Thank...

starfish51

•3 years ago

16 Replies

Positive Covid Vaccine Antibody Response

Have heard of non responses. Wondering if anyone has had a positive covid vaccine response. Would be helpful to know if on WW, what type of treatment, and...

Have heard of non responses. Wondering if anyone has had a positive covid vacci...

Davidcara

•3 years ago

42 Replies

Imbruvica and vaccine

I have CLL since 2011, age 67, male, Israeli. I am on Imbruvica for the last 2 years, numbers are normal. dosage 280mg/day. got the 2nd shot of Pfizer vaccine,...

I have CLL since 2011, age 67, male, Israeli. I am on Imbruvica for the last 2 y...

moty3012

•3 years ago

6 Replies

Has anyone had more than one FISH test?

I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem...

I’ve been on IB for two years and 17p deleted and was wondering if the genetic ...

steve_canada

•3 years ago

15 Replies

LLS information booklets

The Leukaemia and Lymphoma Society have just published updates to their range of information booklets. They are geared around the USA healthcare systems and...

The Leukaemia and Lymphoma Society have just published updates to their range of...

Jm954

Administrator•3 years ago

3 Replies

Persistent Itching

Has anyone experienced itching behind the left ear-near the hairline . Thank you

Has anyone experienced itching behind the left ear-near the hairline . Thank you...

ANA4

•3 years ago

4 Replies

Oxford jab

Have been on Watch and Wait for two and a half years, and had the Oxford jab on Monday, no reactions at all except a very mild arm ache.

Have been on Watch and Wait for two and a half years, and had the Oxford jab on ...

Vindicatrix

•3 years ago

4 Replies

Slightly enlarged spleen

Hi all hope your keeping safe, so Monday night I was in a and e with a hernia so they did tests and a CT scan with the yellow dye and said it was ok just take...

Hi all hope your keeping safe, so Monday night I was in a and e with a hernia so...

ash6

•3 years ago

3 Replies

completely debilitated after stopping one weeks tablets

Relative went in Ibrutinib after one week felt great but now cant eat, sickness, and almost cant walk...told oncologist so stopped tablets but barely able to...

Relative went in Ibrutinib after one week felt great but now cant eat, sickness,...

SIA7

•3 years ago

11 Replies

Has anyone experienced a rash as a result of the AZ vaccine?

Reactions to AZ vaccine I had the AZ vaccine on Tuesday (I'm on w&w). I was fine all day after. On the following day I had the expected feeling tired and a bit...

Reactions to AZ vaccine I had the AZ vaccine on Tuesday (I'm on w&w). I was fine...

Jake_Bullet

•3 years ago

8 Replies

11q and 17p

I have read on the Fact Sheet about Test Before Treat that if a Fish Test shows a deletion of the 17 chromosome or del(17P) that BR treatment will not be...

I have read on the Fact Sheet about Test Before Treat that if a Fish Test shows ...

Joffre1

•3 years ago

10 Replies

observe and act

Hello, I'm (female, 52) new here, I got my diagnosis in 2018, maybe I can still learn something here. Because I don't just like to watch and wait :)

Hello, I'm (female, 52) new here, I got my diagnosis in 2018, maybe I can still ...

Omaschnabel

•3 years ago

12 Replies

Astra Zeneca - any reactions?

Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired...

Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, als...

Mandy56

•3 years ago

45 Replies

Covid vax

Had the covid jab yesterday at my local heath clinic....Woke up alive this morning, no horns on my head, no headache, no temp, no achey arm.....No problem !...

Had the covid jab yesterday at my local heath clinic....Woke up alive this morni...

Feelsolow

•3 years ago

8 Replies

Update for UK FLAIR Study Participants who have come to the end of 6 years of Ibrutininb treatment.

Many patients were fortunate to receive Ibrutinib as their first treatment in the UK FLAIR study and the first patients are now at 6 years of treatment. These...

Many patients were fortunate to receive Ibrutinib as their first treatment in th...

Jm954

Administrator•3 years ago

24 Replies

AZ for me

I just returned from getting jab. It was AZ for me. Happy, treating myself to an early Jasmine tea as a thank you. best to all, rob

I just returned from getting jab. It was AZ for me. Happy, treating myself to ...

Oleboyredw-uk

•3 years ago

24 Replies

Clinical trial with Acalabrutinib and Obinutuzumab

I have the opportunity to be part of a clinical trial. The purpose of the study is to understand if early intervention (people on W&W in the high or very high...

I have the opportunity to be part of a clinical trial. The purpose of the study ...

Reflectionofsky

•3 years ago

3 Replies

Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.

A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail:...

A update on my very surprising results when combining Ibrutinib + Idelalisib + V...

UniversallyPersonal

•3 years ago

4 Replies

Muscle pain

Is anyone experiencing muscle pains, particularly leg pain, from taking IMBRUVICA

Is anyone experiencing muscle pains, particularly leg pain, from taking IMBRUVIC...

Hidden

•3 years ago

13 Replies

After uMRD

Hi Everyone, I've finally been labeled uMRD after 3 straight years of treatment, my first was a drug trial that was a little brutal. I learned over MyChart...

Hi Everyone, I've finally been labeled uMRD after 3 straight years of treatment,...

ChrisLovesLife

•3 years ago

14 Replies

Covid jabs in the thigh if you haven’t any axillary lymph nodes?

For ladies (or men) who have previously had their lymph nodes removed from under their arms during breast cancer surgery. I had that on both sides in 2008, and...

For ladies (or men) who have previously had their lymph nodes removed from under...

ChristyAnne_UK

•3 years ago

6 Replies

Covid trial in UK examines mixing different vaccines

A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using...

A UK trial has been launched to see if giving people different Covid vaccines fo...

Jm954

Administrator•3 years ago

1 Reply

Covid vaccine for under 65 with CLL ?

Hello ,, I was diagnosed with CLL last August, I am on watch and wait nor requiring treatment . Does anybody know when I will get the Covid vaccine ? I do not...

Hello ,, I was diagnosed with CLL last August, I am on watch and wait nor requir...

jane119

•3 years ago

13 Replies

First Covid vaccine...

Hi all, I opted to go to a large vaccine centre which I booked online and went yesterday. Just before I left I had a text from my surgery saying I had a slot...

Hi all, I opted to go to a large vaccine centre which I booked online and went y...

CrazyDaisy68

•3 years ago

3 Replies

Vaccine mix & match

Hi everyone I’m having my 1st jab on Saturday, don’t know which brand. Could any of our experts give advice on the news item that 1st and 2nd doses could be...

Hi everyone I’m having my 1st jab on Saturday, don’t know which brand. Could an...

skytortoise

•3 years ago

5 Replies

CLL and covid-19 vaccine

hello due to the lack of enough information about the safety of covid-19 vaccine specially to mention Pfizer vaccine , with CLL disease My mom is taken...

hello due to the lack of enough information about the safety of covid-19 vaccine...

htam

•3 years ago

4 Replies

Confused

Hi everyone! I don’t know what to think about all this... When I was first diagnosed with CLL was thru my Hematologists , I decided to find a CLL Specialist...

Hi everyone! I don’t know what to think about all this... When I was first diag...

Paulibiris

•3 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2021

COVID-19 Vaccine - how effective

Had my vaccine yesterday. I’m on W&W since I was diagnosed February 2020. I feel no one seems to know how much protection we CLLers have????

Why less Flu

LOOKING FOR CLL SP3EECIALIST RECOMMENDATIONS IN SOUTHERN CALIF. Los Angeles area. Please.

Positive Covid Vaccine Antibody Response

Imbruvica and vaccine

Has anyone had more than one FISH test?

LLS information booklets

Persistent Itching

Oxford jab

Slightly enlarged spleen

completely debilitated after stopping one weeks tablets

Has anyone experienced a rash as a result of the AZ vaccine?

11q and 17p

observe and act

Astra Zeneca - any reactions?

Covid vax

Update for UK FLAIR Study Participants who have come to the end of 6 years of Ibrutininb treatment.

AZ for me

Clinical trial with Acalabrutinib and Obinutuzumab

Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.

Muscle pain

After uMRD

Covid jabs in the thigh if you haven’t any axillary lymph nodes?

Covid trial in UK examines mixing different vaccines

Covid vaccine for under 65 with CLL ?

First Covid vaccine...

Vaccine mix & match

CLL and covid-19 vaccine

Confused

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