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CLL Support

22,618 members • 38,846 posts

All posts for February 2021

CLL glands

Hi All Sorry if these questions have already been answered I other post. I am on W & W since September 2020. I was told probably need time need treatment...

Hi All Sorry if these questions have already been answered I other post. I am...

Stavrou1

•3 years ago

1 Reply

Anyone in Massachusetts going for their Covid Vaccine?

Hello Fellow CLL Friends! Wondering if there is anyone in this wonderful community who’s a Massachusetts resident and is going for their first or second Covid...

Hello Fellow CLL Friends! Wondering if there is anyone in this wonderful commun...

Leoblue

•3 years ago

11 Replies

CLL and antibodies

I had my second vaccine injection on Jan 30 and my doctor ran a SARS-COV-2-ABIGG on Feb 11. just received my antibodies test and the result is negative. Does...

I had my second vaccine injection on Jan 30 and my doctor ran a SARS-COV-2-ABIGG...

DaveCll

•3 years ago

4 Replies

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Venclexta and Skin

Hi there. Five months into Venclexta and had a bad rash tat caused my doc to take me off until the rash cleared. Now I have itchy skin, but no rash per se....

Hi there. Five months into Venclexta and had a bad rash tat caused my doc to ta...

msccsm11

•3 years ago

2 Replies

Vaccine and IVIG

I have my second vaccine next Saturday but am scheduled for my routine IVIG on Tuesday. I just found a journal article that suggested that IVIG before a...

I have my second vaccine next Saturday but am scheduled for my routine IVIG on T...

beanlake14

•3 years ago

21 Replies

Chest pain in CLL

Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and...

Hi all am waiting to start fcr treatment for my cll quite soon, but for the past...

Daisy1993

•3 years ago

16 Replies

Immunity and Covid

https://www.theatlantic.com/science/archive/2021/02/antibody-evolution/618004/ Interesting article on Immunity

https://www.theatlantic.com/science/archive/2021/02/antibody-evolution/618004/ ...

Hidden

•3 years ago

2 Replies

Imbruvica Good News

Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W until Dec 2020. WBC went from initial 99K to 357 K and hematologist said it's...

Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W un...

Phyllis731

•3 years ago

9 Replies

A Caregiver’s Story: Remember your caregiver on Valentine's Day!

A Caregiver’s Story: Remember your caregiver on Valentine's Day! Highlighting an excerpt from our February 4th Ed Forum: ASH 2020 Comes to You, caregiver Linda...

A Caregiver’s Story: Remember your caregiver on Valentine's Day! Highlighting an...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

It's the little things....!!!

Just about to start cycle 11 of the Loxo 305 trial and finally......my nails look good! They have split -vertically and horizontally, they have flaked, they...

Just about to start cycle 11 of the Loxo 305 trial and finally......my nails loo...

UKfulloflife

•3 years ago

2 Replies

Abdomen Growing?

I feel somewhat stupid with this question, but I'd truly appreciate any input you can give. I've had a bunch of abdominal discomfort, especially after eating,...

I feel somewhat stupid with this question, but I'd truly appreciate any input yo...

wizzard166

•3 years ago

29 Replies

Update on my ABCDE minus L diet for fighting CLL

Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See:...

Four months ago, I posted that I was embarking on, what I called the "ABCDE minu...

HowardR

•3 years ago

16 Replies

Brukinsa

My wife is starting Brukinsa today with 1 pill 80mg in the morning and 1 at night. Please post who has been taking this and how they are doing.

My wife is starting Brukinsa today with 1 pill 80mg in the morning and 1 at nigh...

brooklyn7672

•3 years ago

22 Replies

Hemoglobin

Dx in 2013 and have been treated with Ibrutinib then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now...

Dx in 2013 and have been treated with Ibrutinib then Venetoclax. Overall I have ...

Fant1924

•3 years ago

6 Replies

Vaccination side effects? One week on?

Hello everyone, I’m 7.5 years into W&W with CLL. (I’m 55) Had the first dose of the Oxford/AstraZeneca vacccination last Friday (5th February) Felt tired the...

Hello everyone, I’m 7.5 years into W&W with CLL. (I’m 55) Had the first dose of ...

Lucy0908

•3 years ago

42 Replies

Chris Whitty talk

I’ve been watching all of Chris Whittys Gresham College public health lectures and can recommend them heartily. But this one will obviously be of interest ....

I’ve been watching all of Chris Whittys Gresham College public health lectures a...

Ptcad

•3 years ago

3 Replies

Ygaut living with cll

I was diagnosed with cll/sll about 2 years ago and I’m still in the watch and wait stage. This is a confusing disease because I look healthy but I don’t feel...

I was diagnosed with cll/sll about 2 years ago and I’m still in the watch and wa...

Willowbug

•3 years ago

12 Replies

Reaction to Astra Zeneca Jab

I had my first jab 7 days ago. After 2 days O started to feel sick and a terrible head. Tiredness is awful wAlmostbas bad as when cll first diagnosed. I know...

I had my first jab 7 days ago. After 2 days O started to feel sick and a terribl...

GD-K

•3 years ago

2 Replies

Moderna Vaccine Dose 2 Update

Three days ago I wrote a response to JustaSheet1 about my experience with the second dose of the Moderna vaccine....to make a long story short, the arm where I...

Three days ago I wrote a response to JustaSheet1 about my experience with the se...

hayleym1004

•3 years ago

13 Replies

not sure

I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as...

I all ,i started treatment august 2020 FCR, i was doing fine no problems until m...

kel555

•3 years ago

8 Replies

Warts

Hi I wondered if anyone had any success getting rid of warts and whether anyone had found them to get better once they started treatment and if so which...

Hi I wondered if anyone had any success getting rid of warts and whether anyone...

Hm15

•3 years ago

24 Replies

COVID vaccine

I visited my oncologist a couple of weeks after receiving my 2nd COVID vaccine shot, and asked him whether I could get an antibody test to see if I had a...

I visited my oncologist a couple of weeks after receiving my 2nd COVID vaccine s...

Sb1962

•3 years ago

56 Replies

starting treatment

I am 82+ male. CLL diagnosed 10 years ago . WBC is 207,000.0. I feel OK . Can walk bike and row. Weight is up. some tirdness following tasks. No lumps or...

I am 82+ male. CLL diagnosed 10 years ago . WBC is 207,000.0. I feel OK . Can w...

benchica

•3 years ago

10 Replies

Update on CT Scan

Everything seems stable no spleen or liver involvement. Multiple enlarged lymph nodes but only mildly larger. I am so mad I didn’t ask the oncologist if a high...

Everything seems stable no spleen or liver involvement. Multiple enlarged lymph ...

Wendy328

•3 years ago

3 Replies

Organic apple cider vinegar "unpasteurized and unfiltered" ?

I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider...

I am starting to use a very small quantity (spoons full ) of organic apple cider...

janvog

•3 years ago

8 Replies

In layperson’s terms, what’s a P13K drug?

Hi folks, Apologies if this is old news, but I just read the attached interview, where the good doctor expresses excitement at P13Ks as alternatives to many...

Hi folks, Apologies if this is old news, but I just read the attached interview...

DRM18

•3 years ago

7 Replies

Register u 60’s with GP

If you are under 60 & you register with your GP surgery as a carer - you get moved to tier 6. Anyone older would have already been vaccinated...

If you are under 60 & you register with your GP surgery as a carer - you get mov...

Sepsur

•3 years ago

19 Replies

Advice on my mum

My mother is 93 , lives alone and is in lockdown but had a recent blood test . Her CLL is progressing and her haemaglobin and platelets are now significantly...

My mother is 93 , lives alone and is in lockdown but had a recent blood test . H...

Canterburybells

•3 years ago

7 Replies

I had the pfizer vaccine yesterday

I have a sore arm and feeling a bit woozy today so it seems to be working....

zaax

•3 years ago

2 Replies

Unbalancedness

Does anyone have problems with unbalancedness using ibrutinib & venetaclax?

Kiddlette

•3 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2021

CLL glands

Anyone in Massachusetts going for their Covid Vaccine?

CLL and antibodies

Venclexta and Skin

Vaccine and IVIG

Chest pain in CLL

Immunity and Covid

Imbruvica Good News

A Caregiver’s Story: Remember your caregiver on Valentine's Day!

It's the little things....!!!

Abdomen Growing?

Update on my ABCDE minus L diet for fighting CLL

Brukinsa

Hemoglobin

Vaccination side effects? One week on?

Chris Whitty talk

Ygaut living with cll

Reaction to Astra Zeneca Jab

Moderna Vaccine Dose 2 Update

not sure

Warts

COVID vaccine

starting treatment

Update on CT Scan

Organic apple cider vinegar "unpasteurized and unfiltered" ?

In layperson’s terms, what’s a P13K drug?

Register u 60’s with GP

Advice on my mum

I had the pfizer vaccine yesterday

Unbalancedness

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