Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for February 2021

Stopping and Restarting Calquence

I’m having 2 basal cells removed and will come off of calquence prior to procedure. I have been on the drug for 5 weeks with no side effects. Has anyone had...

I’m having 2 basal cells removed and will come off of calquence prior to proced...

Mackiec1108

•3 years ago

10 Replies

Hello from CT

Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I...

Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the result...

controlsct

•3 years ago

13 Replies

Having to re-sign for the FLIAR trial as Ibrutinib producing high than expected blood pressure

The local FLAIR organiser just phoned say that the FLAIR trial is finding that Ibrutinib is giving more people higher blood pressure that predicted (above...

The local FLAIR organiser just phoned say that the FLAIR trial is finding that I...

zaax

•3 years ago

10 Replies

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COVID vaccine while receiving CD-20 (Rituxan)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7315961/ Hello everyone, I have not been in here in while so my apologies if this was discussed already. My...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7315961/ Hello everyone, I have n...

Carolinaj

•3 years ago

10 Replies

Hi , recently I have been informed that my CLL is T cell related . TPLL does anyone have any information on this ?

Hi , recently I have been informed that my CLL is T cell related . TPLL does anyone have any information on this ? Having seen 2 consultants one says it’s LGLL...

Hi , recently I have been informed that my CLL is T cell related . TPLL does any...

333butterfly

•3 years ago

8 Replies

Puppies and CLL

Is it advisable for a patient with CLL to get a new puppy?

Janetkay923

•3 years ago

85 Replies

Took second Covid-19 shot results

Wow! Got the shot came home I was OK. Had a headache a little tired then the reaction hit: - Flat on back in bed - Temp went up to 104.2 - Shortness of...

Wow! Got the shot came home I was OK. Had a headache a little tired then the rea...

halldp

•3 years ago

32 Replies

Hi every one! I’m going for a CT on Monday

I’m allergic to iv dye , Told My Hematologists because he is the one that is sending me for a CT scan, The hematologist is saying that I can do it with no...

I’m allergic to iv dye , Told My Hematologists because he is the one that is sen...

Paulibiris

•3 years ago

41 Replies

CLL Tiredness

Good morning I have been on W &W since being diagnosed last September I just wondered if others are feeling tired , effecting daily life even with pacing...

Good morning I have been on W &W since being diagnosed last September I just ...

Stavrou1

•3 years ago

11 Replies

Ibrutinib 30 months doing well,last months HTC & Hb have risen 2 the limit. jak2 tests (-) had phlebotomy, any other with both MPN-CLL ?

CLL and MPN

antonb

•3 years ago

1 Reply

CLL and covid vaccine - efficacy and side effects?

Has anyone with CLL had the covid vaccine yet? Did you experience any side effects? I had a flu shot this year that made my lymph nodes swell and sore for...

Has anyone with CLL had the covid vaccine yet? Did you experience any side effec...

SpiralDreams

•3 years ago

28 Replies

Carrot juice extracts for the treatment of leukemia

Just ran across this absract of a scholarly article from the US National Institute of Health, and thought it was interesting enough to pass along:...

Just ran across this absract of a scholarly article from the US National Institu...

Pogee

•3 years ago

107 Replies

Vitamins which ones ?

What vitamins do anyone take ! For fatigue consultant just gave go a head to take some again been on itrunib for 2/12 years thanks in advance

What vitamins do anyone take ! For fatigue consultant just gave go a head to tak...

Duder

•3 years ago

8 Replies

Itching around my raised lymph nodes on my neck

I have noticed that I get a bit of itchiness around my lymph nodes and wonder if it is anything to worry about. There is nothing visible and it is not always...

I have noticed that I get a bit of itchiness around my lymph nodes and wonder if...

kitchengardener2

•3 years ago

3 Replies

1st dose of Pfizer highly effective after 14 days.

Even before the second dose, BNT162b2 was highly efficacious, with a vaccine efficacy of 92.6%, a finding similar to the first-dose efficacy of 92.1% reported...

Even before the second dose, BNT162b2 was highly efficacious, with a vaccine eff...

zaax

•3 years ago

7 Replies

ibrutinib and increased WBC

80 year old. On ibrutinib for 5 months with great results until last blood work. WBC stopped going down and in fact went up slightly. Any one have this...

80 year old. On ibrutinib for 5 months with great results until last blood work...

mobirdy

•3 years ago

8 Replies

Profuse daytime sweating

Hi everyone I'm 78 female and diagnosed with CLL about 4/5 years ago but am on W&W though I think it was suspected in 2007 after a strange blood test before I...

Hi everyone I'm 78 female and diagnosed with CLL about 4/5 years ago but am on ...

Jamyang

•3 years ago

18 Replies

Ibrutinib and blood pressure

I've been on a low dose of Ibrutinib for about 1.5 years with positive, improving blood readings. Within the last few months I've been experiencing elevated...

I've been on a low dose of Ibrutinib for about 1.5 years with positive, improvin...

desti

•3 years ago

22 Replies

Advice for newly diagnosed CLL patient please,

I am new here , a reasonably fit 76year old woman went for a blood test and found to be diagnosed with CLL , . I would like to know how I Can help myself, if...

I am new here , a reasonably fit 76year old woman went for a blood test and fo...

Sipis1k1

•3 years ago

5 Replies

Are you wearing the right mask?

It's easy to get vaccine-happy and forget that everyday situations can still put you in danger. In light of new, more transmissible variants of SARS-CoV-2,...

It's easy to get vaccine-happy and forget that everyday situations can still put...

bennevisplace

•3 years ago

3 Replies

Richter's Transformation

Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated...

Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on...

Feisal

•3 years ago

4 Replies

Does anyone has enlarged liver on acalabrutinib?

I am wondering if anyone has enlarged liver on acalabrutinib. I am on acalabrutinib since September 1st. My blood tests are much improved, but I feel now more...

I am wondering if anyone has enlarged liver on acalabrutinib. I am on acalabrut...

Belkin123

•3 years ago

10 Replies

Ibrutinib is an immunosuppressive

I seem to be reading that amongst other things Ibrutinib is an immunosuppressive, is this right?

I seem to be reading that amongst other things Ibrutinib is an immunosuppressive...

zaax

•3 years ago

14 Replies

Ivig therapy and health insurance

Hello everyone. I am in watch & wait year 7 with Cll. I hav had low IGG all along, now markedly low.,154 sine August 2020. I had bloodwork repeated in...

Hello everyone. I am in watch & wait year 7 with Cll. I hav had low IGG all a...

Rachat35

•3 years ago

11 Replies

Early CLL

Hi I’m 48 diagnosed December 2020 with cll I’ve been ill since June and have now been diagnosed with a mass in my adrenal gland which they assure me isn’t...

Hi I’m 48 diagnosed December 2020 with cll I’ve been ill since June and have no...

Suki581

•3 years ago

4 Replies

Newsflash! CA and NY have moved CLL and other vulnerable patients up the vaccine priority list.

Newsflash! We are making a difference! CA and NY have moved CLL and other vulnerable patients up the vaccine priority list. For details on these important...

Newsflash! We are making a difference! CA and NY have moved CLL and other vulner...

bkoffman

CLL CURE Hero•3 years ago

10 Replies

Phizer jab Feb 12

Just had my first vaccine of Phizer February 05, 2021 Second jab scheduled for Phizer February 26, 2021 No reaction to the first vaccine. Still being...

Just had my first vaccine of Phizer February 05, 2021 Second jab scheduled for ...

Tapps

•3 years ago

1 Reply

Clinical Trials studying COVID-19 vaccines in CLL: Some have begun/ others are coming!

Clinical Trials studying COVID-19 vaccines in CLL: In response to all those who have reached out to CLL Society inquiring as to whether there are clinical...

Clinical Trials studying COVID-19 vaccines in CLL: In response to all those who ...

bkoffman

CLL CURE Hero•3 years ago

17 Replies

Starting treatment

I am 60 year old male 13q mutated. My white count is about 150,000. I have had a year of progressively worsening fatigue and can not do my job. I could wait...

I am 60 year old male 13q mutated. My white count is about 150,000. I have had ...

jjaarons

•3 years ago

40 Replies

Just had Moderna shot

FYI, I just had my first Moderna vaccine, and have had no reaction to speak of, except very mild localized pain at the injection site. I must say I was...

FYI, I just had my first Moderna vaccine, and have had no reaction to speak of, ...

Pogee

•3 years ago

28 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2021

Stopping and Restarting Calquence

Hello from CT

Having to re-sign for the FLIAR trial as Ibrutinib producing high than expected blood pressure

COVID vaccine while receiving CD-20 (Rituxan)

Hi , recently I have been informed that my CLL is T cell related . TPLL does anyone have any information on this ?

Puppies and CLL

Took second Covid-19 shot results

Hi every one! I’m going for a CT on Monday

CLL Tiredness

Ibrutinib 30 months doing well,last months HTC & Hb have risen 2 the limit. jak2 tests (-) had phlebotomy, any other with both MPN-CLL ?

CLL and covid vaccine - efficacy and side effects?

Carrot juice extracts for the treatment of leukemia

Vitamins which ones ?

Itching around my raised lymph nodes on my neck

1st dose of Pfizer highly effective after 14 days.

ibrutinib and increased WBC

Profuse daytime sweating

Ibrutinib and blood pressure

Advice for newly diagnosed CLL patient please,

Are you wearing the right mask?

Richter's Transformation

Does anyone has enlarged liver on acalabrutinib?

Ibrutinib is an immunosuppressive

Ivig therapy and health insurance

Early CLL

Newsflash! CA and NY have moved CLL and other vulnerable patients up the vaccine priority list.

Phizer jab Feb 12

Clinical Trials studying COVID-19 vaccines in CLL: Some have begun/ others are coming!

Starting treatment

Just had Moderna shot

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