Posts - CLL Support | HealthUnlocked

CLL Support

22,510 members • 38,657 posts

All posts for February 2021

Which vaccine is better for CLL patients, Pfizer or Astra Zeneca ?

After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000...

After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, ...

Ankakoza

•3 years ago

5 Replies

IBRUTINIB AND HIP PAIN

IBRUTINIB AND HIP PAIN: First, I want to say that since Ibrutinib is such a miraculous drug, many people want to stay on it. The hip pain needs work throughout...

IBRUTINIB AND HIP PAIN: First, I want to say that since Ibrutinib is such a mira...

reducebloodpressure

•3 years ago

10 Replies

What happens IF you break a venetoclax tablet before you swallow it?

Good morning, I am on Venetoclax and have been for 4+months. No pesky side effects but my platelet count has fluctuated from the mid 40's to the 80's. My...

Good morning, I am on Venetoclax and have been for 4+months. No pesky side effe...

ronsolo306

•3 years ago

13 Replies

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RLS and CLL

In my earlier post, I asked for advice about coming off Mirapex, a drug prescribed for Restless Leg Syndrome. I am currently in a clinical trial for CLL,...

In my earlier post, I asked for advice about coming off Mirapex, a drug prescrib...

loflash

•3 years ago

7 Replies

Need advice to get off Mirapex!

After taking Mirapex for 10 years (now at .75mg) I am trying again to get off it as augmentation has become worse than my RLS. My doctor isn't helpful; he says...

After taking Mirapex for 10 years (now at .75mg) I am trying again to get off it...

loflash

•3 years ago

2 Replies

Chlorambucil

I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on...

I had Chlorambucil along with Rituximub infusions which put me in remission for ...

JanChas

•3 years ago

6 Replies

stopping Ibrutinib for covid vaccine ?

For those on Ibrutinib 1-What vaccine did you receive 2- Did your Dr mention possibility of stopping Ibrutinib while getting vaccine shots?

For those on Ibrutinib 1-What vaccine did you receive 2- Did your Dr mention pos...

antonb

•3 years ago

21 Replies

Pfizer vaccine after Shinrix

Hello everyone. I am looking for a little advice. I had a Shinrix shot Feb 17 and have a Pfizer COVID shot booked for tomorrow. On the consent form, there is a...

Hello everyone. I am looking for a little advice. I had a Shinrix shot Feb 17 an...

Can2021

•3 years ago

8 Replies

Dealing with muscle joint pain on Imbruvica

Imbruvica muscle joint pain I have been on imbruvica for six months and had an excellent response but am having knee pain, leg pain, ankle pain....limping...

Imbruvica muscle joint pain I have been on imbruvica for six months and had an e...

pianogal

•3 years ago

35 Replies

Leukemia diagnosis

I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please

I am confused .I was told I had leukemia .I now have a diagnosis of lymphoprolif...

Mariacat01

•3 years ago

32 Replies

Antibody test

I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet...

I just got my 2nd covid vaccination, Moderna. I would like to get an antibody t...

PerfectPurple

•3 years ago

45 Replies

CLL Specialist in Ontario + other questions

Hi everyone. Apologies if there is already a thread on this topic. I did a search and didn't come across one. My mom was dx 12 years ago with her WBC slowly...

Hi everyone. Apologies if there is already a thread on this topic. I did a searc...

AM0000

•3 years ago

15 Replies

Ibrutinib

Anyone on ibrutinib been told the covid vaccine won't help them. Been on ibrutinib for 7 months and haematologist said I could have the vaccine but it wouldn't...

Anyone on ibrutinib been told the covid vaccine won't help them. Been on ibrutin...

Denzel42

•3 years ago

37 Replies

COVID Vaccines and the immune system - NOT CLL specific but some examination of people with compromised immune systems

ZOE COVID Symptom Study are offering a webinar on COVID Vaccines and the immune system on Wednesday 3rd March, 4pm GMT / 11am ET. You will be joined by Prof....

ZOE COVID Symptom Study are offering a webinar on COVID Vaccines and the immune ...

Jm954

Administrator•3 years ago

9 Replies

Please help CLL Society learn more about what you know and/ or yearn to know more about CAR-T therapy.

Please take our CLL Society's CAR-T Survey! At ASH 2020 we learned that CAR-T cells may soon have an important place in treating CLL. Patients currently...

Please take our CLL Society's CAR-T Survey! At ASH 2020 we learned that CAR-T ce...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

Cough while on Imbruvica?

My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva and is now on Imbruvica. His counts are good. He has had a cough (something...

My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva a...

Gustac

•3 years ago

6 Replies

Is this the way forward? Electronic patient self-Reporting of Adverse-events in Real Time.

This is a different patient group to us CLLers but the principle would apply across all patient groups and disease types. Funded by the National Institute for...

This is a different patient group to us CLLers but the principle would apply acr...

Jm954

Administrator•3 years ago

3 Replies

Can someone please help me read the results of my 1 1/2 year old daughter.

Her blood count was 11.5 and her Lymphocytes is at 74%

85veronica30

•3 years ago

7 Replies

I’m newly diagnosed with CLL. I just got done going through surgery for early stage of breast cancer (DCIS).

I’m looking for someone with the same form of CLL. 13q deletion (85%) and mutated. Since I just got diagnosed I would love to hear from someone who has been...

I’m looking for someone with the same form of CLL. 13q deletion (85%) and mutate...

Cfarrar

•3 years ago

40 Replies

Restarting Venetoclax?

I started on Ibrutinib early June 2000 and was then taken off Ibrutinib for October/November as there was a concern that the Ibrutinib was irritating my lungs....

I started on Ibrutinib early June 2000 and was then taken off Ibrutinib for Octo...

Dym230109

•3 years ago

5 Replies

Not feeling right

Since the weekend I have been feeling extremely tired (more than I usually do) This is accompanied with weak, shaky legs, stomach slightly 'off', foggy head...

Since the weekend I have been feeling extremely tired (more than I usually do) T...

ladyscream

•3 years ago

19 Replies

Any one know ......

Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23...

Hi due to have my pneumonia vacination next week it's been 8 years since my las...

stewie

•3 years ago

21 Replies

UTI

Hello all and hope you’re coping ok in these strange times I’ve been diagnosed with a urinary tract infection and prescribed Alprim (trimethoprim) The fact...

Hello all and hope you’re coping ok in these strange times I’ve been diagnosed w...

shazzy57

•3 years ago

9 Replies

COVID Vaccine

Is CLL diagnose puts us ahead of the line for COVID vaccine?

Durachok

•3 years ago

4 Replies

How the Pfizer Covid vaccine works.

Yet another interesting and informative article from Siouxsie Wiles and Toby Morris....

Yet another interesting and informative article from Siouxsie Wiles and Toby Mor...

YelvertonDevon

•3 years ago

4 Replies

Prof Dr Pete Hillmen retires

Prof Dr Pete Hillmen retired from his (current) role at Leeds hospital at the end of January, after changing the world of PNH & CLL for so many patients. Many...

Prof Dr Pete Hillmen retired from his (current) role at Leeds hospital at the en...

Jm954

Administrator•3 years ago

13 Replies

Ublituximab plus ibrutinib versus ibrutinib alone for patients with relapsed or refractory high-risk chronic lymphocytic leukaemia (GENUINE)

The Lancet, Feb22nd 2021. Jeff P Sharman, Mato et al Patients with chronic lymphocytic leukaemia and high-risk features (TP53mutated, 11qdel, and 17p del)...

The Lancet, Feb22nd 2021. Jeff P Sharman, Mato et al Patients with chronic lymph...

Jm954

Administrator•3 years ago

15 Replies

Comparing Covid vaccines

Cujoe shared an article last week that reported that a CD8 response needs to be mounted and that our often discombobulated immune systems may be failing us in...

Cujoe shared an article last week that reported that a CD8 response needs to be ...

Wpooh

•3 years ago

4 Replies

Dodging the storm

Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_source=facebook&utm_medium=social&utm_campaign=bcon-jacksonlabs_article_2 - a new...

Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_sourc...

bennevisplace

•3 years ago

Be the first to reply

Can some one advice

I have CLL and been on W&W For 15 years my dr isn’t worried at all as my bloods are only progressing very slowly ie like doubled in the time since I was first...

I have CLL and been on W&W For 15 years my dr isn’t worried at all as my bloods ...

Deniz2012

•3 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2021

Which vaccine is better for CLL patients, Pfizer or Astra Zeneca ?

IBRUTINIB AND HIP PAIN

What happens IF you break a venetoclax tablet before you swallow it?

RLS and CLL

Need advice to get off Mirapex!

Chlorambucil

stopping Ibrutinib for covid vaccine ?

Pfizer vaccine after Shinrix

Dealing with muscle joint pain on Imbruvica

Leukemia diagnosis

Antibody test

CLL Specialist in Ontario + other questions

Ibrutinib

COVID Vaccines and the immune system - NOT CLL specific but some examination of people with compromised immune systems

Please help CLL Society learn more about what you know and/ or yearn to know more about CAR-T therapy.

Cough while on Imbruvica?

Is this the way forward? Electronic patient self-Reporting of Adverse-events in Real Time.

Can someone please help me read the results of my 1 1/2 year old daughter.

I’m newly diagnosed with CLL. I just got done going through surgery for early stage of breast cancer (DCIS).

Restarting Venetoclax?

Not feeling right

Any one know ......

UTI

COVID Vaccine

How the Pfizer Covid vaccine works.

Prof Dr Pete Hillmen retires

Ublituximab plus ibrutinib versus ibrutinib alone for patients with relapsed or refractory high-risk chronic lymphocytic leukaemia (GENUINE)

Comparing Covid vaccines

Dodging the storm

Can some one advice

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