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CLL Support

22,531 members • 38,702 posts

All posts for January 2021

CLL and Roundup lawsuit: update

I recently advised of a potential suit against the manufacturer of Roundup, and mentioned one law firm with which I was planning to work. I will not longer do...

I recently advised of a potential suit against the manufacturer of Roundup, and ...

Pogee

•3 years ago

6 Replies

Pandemic Prescriptions Delivery Service

According to the Government Guidance, Clinically extremely vulnerable (CEV) patients self-isolating at home should avoiding visiting pharmacies in person....

According to the Government Guidance, Clinically extremely vulnerable (CEV) pati...

RobertCLL

•3 years ago

5 Replies

Not a joke, please be careful

Thought I would share this with you. NOT A JOKE My husband has just had a message from our financial advisers. It seems that there is a recent scam doing the...

Thought I would share this with you. NOT A JOKE My husband has just had a messa...

kitchengardener2

•3 years ago

9 Replies

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Has anyone heard about vaccinations for people in your household?

I was really pleased to hear from Blood Cancer UK that they were urging government to include partners of CLL patients in the same tier of vaccine roll out....

I was really pleased to hear from Blood Cancer UK that they were urging governme...

Harvist

•3 years ago

3 Replies

PNEUMONIA

Hello, my fellow CLL (Chronic Lymphocyte Leukaemia) patients. For those who have followed my previous posts you will know that this time last year began the...

Hello, my fellow CLL (Chronic Lymphocyte Leukaemia) patients. For those who have...

Mick491

•3 years ago

8 Replies

About boosting your immune system

There have been several questions raised on this subject in the past few months. While not earth-shattering, an interesting programme was screened on BBC1 this...

There have been several questions raised on this subject in the past few months....

bennevisplace

•3 years ago

20 Replies

Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination

Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data...

Interesting 'conversation' with CLL experts on a variety of topics including: Do...

Jm954

Administrator•3 years ago

12 Replies

Recent warnings about vaccine safety

This is a known issue to health professionals and it will affect only a small minority of people: "vaccine-associated anaphylaxis has been a rare event". But...

This is a known issue to health professionals and it will affect only a small mi...

bennevisplace

•3 years ago

27 Replies

Symptoms I think ????

Hi all I feel that my Cll is progressing as strange things have started to happen and I don’t know why !!!! I wake up with several bruises that wernt...

Hi all I feel that my Cll is progressing as strange things have started to happe...

Walfo

•3 years ago

10 Replies

CLL specialist in Sydney Australia?

Hi All I was wondering if anyone is seeing or knows a CLL specialist in Sydney Australia? Thanks

Hi All I was wondering if anyone is seeing or knows a CLL specialist in Sydney ...

Jimmy_9

•3 years ago

2 Replies

ibrutinib, acalabrutinib, covid, vaccine

https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-module/faq/page-1

https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-mo...

Mik_

•3 years ago

1 Reply

COVID & CLL patients

Just had a good discussion with my oncology Physicians Assistant (PA) at the Veterans Administration (VA) in the USA Nashville facility regarding COVID...

Just had a good discussion with my oncology Physicians Assistant (PA) at the Ve...

markjeep51

•3 years ago

6 Replies

Long COVID - what is it?

I have a friend who contracted COVID. They happen to be a consultant in infection control and microbiology and have been working on the front line for many...

I have a friend who contracted COVID. They happen to be a consultant in infect...

Jm954

Administrator•3 years ago

11 Replies

Information re New SARS-CoV-2 variant found in the UK

In early December 2020 a group of scientists tracking the SARS-CoV-2 pandemic in the UK noted that the virus was spreading fast and leading to rapidly rising...

In early December 2020 a group of scientists tracking the SARS-CoV-2 pandemic in...

Jm954

Administrator•3 years ago

1 Reply

lymph node behind ear

Hello all I usually post in NRAS as I have Inflammatory Arthritis and Raynaud's, among other things and symptoms of rheumatic disease can includes lumps and...

Hello all I usually post in NRAS as I have Inflammatory Arthritis and Raynaud's,...

Brychni

•3 years ago

3 Replies

Friday 15th January, 2pm Webinar - COVID-19 vaccines – your questions answered

Two of our partner charities - Leukaemia Care and Lymphoma Action are to host this joint webinar for those living with lymphoma and leukaemia. Date: Friday...

Two of our partner charities - Leukaemia Care and Lymphoma Action are to host th...

Jm954

Administrator•3 years ago

1 Reply

Is there a delay in Shielding letters being sent out in Tier 4

Hi I was wondering if you are on CLL and watch and wait are you still classed as high risk as although I had a text on 30/12 from GOV Uk no letter yet and my...

Hi I was wondering if you are on CLL and watch and wait are you still classed as...

Fiona1122

•3 years ago

12 Replies

Clinical Trials of Monoclonal antibodies AZD7442 against SARS=CoV-2 (COVID19) - majority of sites in UK and USA

There are two clinical trials of monoclonal antibodies that target covid19. AstraZeneca is developing mAbs to the SARS-CoV-2 S protein. The SARS-CoV-2 spike...

There are two clinical trials of monoclonal antibodies that target covid19. Astr...

Jm954

Administrator•3 years ago

30 Replies

I have COVID-19 and looking for advice

Hello , I am a long time member but tend to be a lurker, after being so careful I have contracted covid and feeling really ill , the only place I have been was...

Hello , I am a long time member but tend to be a lurker, after being so careful ...

9876

•3 years ago

48 Replies

Newly diagnosed.

Hi, I’m brand new. Was diagnosed with SLL/CLL in Oct. am going for a second opinion at MD Anderson late next week. Have no idea what to expect.

Hi, I’m brand new. Was diagnosed with SLL/CLL in Oct. am going for a second opin...

Campmack

•3 years ago

7 Replies

Avoiding COVID-19 Infection when you have Chronic Lymphocytic Leukaemia or SLL, by Chaya Venkat of CLL Topics/Updates (speculative article)

A very important post from Chaya: https://updates.clltopics.net/4936-avoiding-covid-19-infection Anyone who knows the dedication Chaya has for those of us with...

A very important post from Chaya: https://updates.clltopics.net/4936-avoiding-co...

AussieNeil

Administrator•3 years ago

113 Replies

How did they treat your low platelet count? What if low platelets are more of an issue than high white blood cells?

I wonder about others with low platelet counts. What did they do for you? My wbc count is not that high compared to many; about 18,000. No CLL symptoms yet....

I wonder about others with low platelet counts. What did they do for you? My wbc...

davidgrush

•3 years ago

24 Replies

Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)

First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and venetoclax-obinutuzumab for...

First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (P...

AussieNeil

Administrator•3 years ago

19 Replies

CLL Appointments in UK face to face or telephone

Hi all, Hope your keeping safe and well x My Dad has got his upcoming appointment by telephone in 2 weeks, but hasn’t been seen (face to face) by the...

Hi all, Hope your keeping safe and well x My Dad has got his upcoming appointmen...

ButterflyRose

•3 years ago

53 Replies

Ibrutinib and Immunoglobulins

Wonder if ibrutinib helps to increase immunoglobulins. May 2020 started ibrutinib and IGG was 425, now IGG 451

Wonder if ibrutinib helps to increase immunoglobulins. May 2020 started ibrutini...

Davidcara

•3 years ago

10 Replies

Excellent CLL Video

Just wanted to share an excellent video I just watched about CLL going forward in 2021. The two doctors in the presentation include my doctor from Dana Farber...

Just wanted to share an excellent video I just watched about CLL going forward i...

wizzard166

•3 years ago

6 Replies

Tinnitus and CLL

Dear All, Does anyone know if tinnitus is a result of CLL or it’s completely irrelevant to it? I have CLL for years (diagnosed in 2010) and I’m on treatment...

Dear All, Does anyone know if tinnitus is a result of CLL or it’s completely irr...

Temida

•3 years ago

28 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

CLL and Roundup lawsuit: update

Pandemic Prescriptions Delivery Service

Not a joke, please be careful

Has anyone heard about vaccinations for people in your household?

PNEUMONIA

About boosting your immune system

Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination

Recent warnings about vaccine safety

Symptoms I think ????

CLL specialist in Sydney Australia?

ibrutinib, acalabrutinib, covid, vaccine

COVID & CLL patients

Long COVID - what is it?

Information re New SARS-CoV-2 variant found in the UK

lymph node behind ear

Friday 15th January, 2pm Webinar - COVID-19 vaccines – your questions answered

Is there a delay in Shielding letters being sent out in Tier 4

Clinical Trials of Monoclonal antibodies AZD7442 against SARS=CoV-2 (COVID19) - majority of sites in UK and USA

I have COVID-19 and looking for advice

Newly diagnosed.

Avoiding COVID-19 Infection when you have Chronic Lymphocytic Leukaemia or SLL, by Chaya Venkat of CLL Topics/Updates (speculative article)

How did they treat your low platelet count? What if low platelets are more of an issue than high white blood cells?

Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)

CLL Appointments in UK face to face or telephone

Ibrutinib and Immunoglobulins

Excellent CLL Video

Tinnitus and CLL

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