Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2021

Our morning walk

We had a beautiful clifftop walk this morning. We stopped for a while at our memorial bench and then continued across the cricket field to the fabulous...

We had a beautiful clifftop walk this morning. We stopped for a while at our me...

kitchengardener2

•3 years ago

7 Replies

Shortness of breath after starting Imbruvica treatment

Anyone having shortness of breath after taking imbuvica for 2 months ?

Eaglemba

•3 years ago

5 Replies

Vaccine does work

After reading countless posts on how the covid vaccine does not work very well on patients with cll I put a direct call into my clinic. Well it seems we DO...

After reading countless posts on how the covid vaccine does not work very well o...

NoMoRLS

•3 years ago

7 Replies

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Where am I?

Dear all, In these times where geographic location is even more sensitive than normal (i.e. COVID vaccine availability) I am going to make an ask. Please...

Dear all, In these times where geographic location is even more sensitive than...

Oleboyredw-uk

•3 years ago

10 Replies

Moderna vaccine and CLL

Had my Moderna Covid vaccine on the 29th and am scheduled for the second one on the 26 th of Jan. Had my bi yearly Oncology appointment with my DR and asked...

Had my Moderna Covid vaccine on the 29th and am scheduled for the second one on ...

Stevevolo

•3 years ago

2 Replies

CLL patient Mazen D. shares his story of contracting and recovering from COVID-19

Mazen D.'s story: In the early autumn of 2020, Mazen D., a CLL patient who had contracted and recovered from COVID-19, shared his story with the CLL Society....

Mazen D.'s story: In the early autumn of 2020, Mazen D., a CLL patient who had ...

bkoffman

CLL CURE Hero•3 years ago

3 Replies

Cost of Imbruvica and how long do I need to take it?

Just getting ready to start. Imbruvica is very expensive is there a cheaper place to get the med.? Do I take it the rest of my life?

Just getting ready to start. Imbruvica is very expensive is there a cheaper plac...

Razor32

•3 years ago

12 Replies

vaccine and antibodies...

So I understand theres doubt of the efficacy of the covid vaccines in the case of immuno-compromised folks such as us. I understand it could be that our...

So I understand theres doubt of the efficacy of the covid vaccines in the case o...

Belfastbees

•3 years ago

32 Replies

Richter Syndrome

Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind!...

Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about...

Bee4028

•3 years ago

31 Replies

Covid Vaccination ✈️🚢🚇🚠🚘

I know there’s been a lot of conversation on the efficacy of the Covid Vaccines for people with CLL. Which I am not discussing. It seems getting the Vaccine...

I know there’s been a lot of conversation on the efficacy of the Covid Vaccines ...

YelvertonDevon

•3 years ago

15 Replies

Oooooooooch

Just had the vaccine at my local hospital wow it was a bit of sting much worse than my usual flu jab , but so grateful for any type of protection I may get...

Just had the vaccine at my local hospital wow it was a bit of sting much worse t...

stewie

•3 years ago

7 Replies

Quick update

Well I am still on the high dependency covid ward but I am a lucky as I am a slowly improving, I ended up waiting 13 hours for the ambulance and a couple of...

Well I am still on the high dependency covid ward but I am a lucky as I am a slo...

9876

•3 years ago

31 Replies

Telephone consultation today

Please keep everything crossed for me today. I have a telephone consultation with my haematologist at 12.15 today. As usual, I am nervous and anxious. I am...

Please keep everything crossed for me today. I have a telephone consultation wit...

kitchengardener2

•3 years ago

35 Replies

Message to Admin - missing updates

My daily digest updates have ceased to appear. Please get them back for me.

G1llHa1n

•3 years ago

3 Replies

What are Tocilizumab and Sarilumab treatments for COVID?

The REMPA-CPAP Clinical trial results show that the drugs reduced the risk of death by 24% for critically ill patients and reduced the time spent in intensive...

The REMPA-CPAP Clinical trial results show that the drugs reduced the risk of de...

Jm954

Administrator•3 years ago

7 Replies

ACP 196 Acalabutinib

Hi Every one My father is on ACP-196 trial since 2016 November. I am looking people who also taking this medication and what is there experience with this...

Hi Every one My father is on ACP-196 trial since 2016 November. I am looking peo...

agneshun

•3 years ago

5 Replies

B cell T cell Screen

Has anyone here had a B and T cell Screen to see if you have enough B cells to mount an antibody response to the covid vaccines? Do you think it would be...

Has anyone here had a B and T cell Screen to see if you have enough B cells to m...

Palmetto

•3 years ago

19 Replies

Anyone in NYC area have tips on how to get on a vaccine list?

Hi everyone! Happy, healthy New Year! I’d hoped that my husband could receive vaccine at CLL docs office but it seems they’re not distributing that way -...

Hi everyone! Happy, healthy New Year! I’d hoped that my husband could receive v...

Funboys33

•3 years ago

9 Replies

coenzyme q10 if one has CLL ?

MAYO CLINIC states that coenzyme q 10 might be considered general supplement , but ask your doctor !

MAYO CLINIC states that coenzyme q 10 might be considered general supplement , ...

janvog

•3 years ago

8 Replies

"Just Diagnosed: What do I need to know?"

"Just Diagnosed: What do I need to know?" On-demand! One of our all-time "most visited on the replay" webinars ever! Dr. Neil Kay and Dr. Brian Koffman...

"Just Diagnosed: What do I need to know?" On-demand! One of our all-time "most v...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

CEV letter v2.0, NI edition.

So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about...

So lots of posts on here from people getting CEV letters again. Mostly England I...

Belfastbees

•3 years ago

9 Replies

Cytokine storm effects on your body

If you're unlucky enough to suffer this extreme reaction by your body to COVID-19 then these are all the systems that can be affected. The damage can lead to...

If you're unlucky enough to suffer this extreme reaction by your body to COVID-1...

Jm954

Administrator•3 years ago

9 Replies

IMPORTANT ALL COVID-19 Vaccines are thought to be safe for CLL Patients- they are NOT live vaccines and cannot cause illness

There has been much concern following the statement by Prof Salisbury on BBC24 stating that the Oxford vaccine is a live vaccine and that it may not be...

There has been much concern following the statement by Prof Salisbury on BBC24 s...

Jm954

Administrator•3 years ago

19 Replies

Vaccine with Venclexta

I found Dr. Rick Furnam’s information (posted on this site previously) to be the most helpful I’ve run across thus far regarding the Covid vaccine. I am on...

I found Dr. Rick Furnam’s information (posted on this site previously) to be th...

Survivor1951

•3 years ago

7 Replies

CLL ASYMTOMATIC PT

DID ANY CLL PT TRIED EGCG AND CURCUMIN IN HIGH DOSE TO CURE CLL?

nehla

•3 years ago

20 Replies

Partner of ECV expected to work in school or unpaid.

This is a question about employment of my partner. I have CLL, I was hospitalised twice recently for a respiratory condition. I am therefore on the vulnerable...

This is a question about employment of my partner. I have CLL, I was hospitalise...

nigeldodd

•3 years ago

9 Replies

Vitamin D - Government Supply

Anyone in the UK received their supply of vitamin D from the Government?

RobertCLL

•3 years ago

20 Replies

3 Monthly Check up (via telephone)

All good except for minor side effects, so I worried for nothing. Except stress is supposed to be good for the immune system(bbc1 last night)!! I asked which...

All good except for minor side effects, so I worried for nothing. Except stress ...

wroxham-gb

•3 years ago

4 Replies

Survival rate?

How can I know the survival rate for my markers! Can I make a plan for 10 years ? I feel confused and depressed . It’s not easy to live with cll😌

How can I know the survival rate for my markers! Can I make a plan for 10 years...

ANA4

•3 years ago

20 Replies

CLL and Colloidal Silver

Does anyone have any information on using colloidal silver with CLL?

usabaseball

•3 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

Our morning walk

Shortness of breath after starting Imbruvica treatment

Vaccine does work

Where am I?

Moderna vaccine and CLL

CLL patient Mazen D. shares his story of contracting and recovering from COVID-19

Cost of Imbruvica and how long do I need to take it?

vaccine and antibodies...

Richter Syndrome

Covid Vaccination ✈️🚢🚇🚠🚘

Oooooooooch

Quick update

Telephone consultation today

Message to Admin - missing updates

What are Tocilizumab and Sarilumab treatments for COVID?

ACP 196 Acalabutinib

B cell T cell Screen

Anyone in NYC area have tips on how to get on a vaccine list?

coenzyme q10 if one has CLL ?

"Just Diagnosed: What do I need to know?"

CEV letter v2.0, NI edition.

Cytokine storm effects on your body

IMPORTANT ALL COVID-19 Vaccines are thought to be safe for CLL Patients- they are NOT live vaccines and cannot cause illness

Vaccine with Venclexta

CLL ASYMTOMATIC PT

Partner of ECV expected to work in school or unpaid.

Vitamin D - Government Supply

3 Monthly Check up (via telephone)

Survival rate?

CLL and Colloidal Silver

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

Our morning walk

Shortness of breath after starting Imbruvica treatment

Vaccine does work

Where am I?

Moderna vaccine and CLL

CLL patient Mazen D. shares his story of contracting and recovering from COVID-19

Cost of Imbruvica and how long do I need to take it?

vaccine and antibodies...

Richter Syndrome

Covid Vaccination ✈️🚢🚇🚠🚘

Oooooooooch

Quick update

Telephone consultation today

Message to Admin - missing updates

What are Tocilizumab and Sarilumab treatments for COVID?

ACP 196 Acalabutinib

B cell T cell Screen

Anyone in NYC area have tips on how to get on a vaccine list?

coenzyme q10 if one has CLL ?

"Just Diagnosed: What do I need to know?"

CEV letter v2.0, NI edition.

Cytokine storm effects on your body

*IMPORTANT* ALL COVID-19 Vaccines are thought to be safe for CLL Patients- they are NOT live vaccines and cannot cause illness

Vaccine with Venclexta

CLL ASYMTOMATIC PT

Partner of ECV expected to work in school or unpaid.

Vitamin D - Government Supply

3 Monthly Check up (via telephone)

Survival rate?

CLL and Colloidal Silver

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

IMPORTANT ALL COVID-19 Vaccines are thought to be safe for CLL Patients- they are NOT live vaccines and cannot cause illness