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CLL Support

22,532 members • 38,709 posts

All posts for December 2020

NEW MEDICATIONS ON THE HORIZON

I read a lot, and in particular have google news send notices to my email about new successful Clinical Trials in Phase 2 and 3 etc. To an extent I do this...

I read a lot, and in particular have google news send notices to my email about...

wizzard166

•3 years ago

8 Replies

Bruising with Ibrutinib

Does anyone have pictures of red blotches on skin whilst taking Ibrutinib. Looks like a blood bruise. Thank you and a Merry Xmas to you all.

Does anyone have pictures of red blotches on skin whilst taking Ibrutinib. Looks...

Broadbent

•3 years ago

1 Reply

Zinc

As well as taking Vitamin D3 should we be taking a supplement zinc? https://www.youtube.com/watch?v=aIvRR_y5i-k

As well as taking Vitamin D3 should we be taking a supplement zinc? https://www....

zaax

•3 years ago

11 Replies

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Drug Costs $$$

It's that time of year again in the USA. Choose a Medicare plan, etc. I'm 72 and satisfied with my supplemental insurance and drug plan. I did BR late 2016 to...

It's that time of year again in the USA. Choose a Medicare plan, etc. I'm 72 and...

louie48

•3 years ago

6 Replies

compromised immunity

As a CLL patient who recently completed Venetoclax monotherapy and stopped because all bloods were in the normal range, would I still be considered...

As a CLL patient who recently completed Venetoclax monotherapy and stopped becau...

ivy39

•3 years ago

21 Replies

Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.

The SMC has accepted venetoclax in combination with obinutuzumab for use in certain patients. There is a restriction that means that venetoclax may be used...

The SMC has accepted venetoclax in combination with obinutuzumab for use in cert...

Jm954

Administrator•3 years ago

5 Replies

I don’t have CLL. Do you also post about CNS lymphomas?

I don’t have CLL. Do you also post about ibrutinib use with CNS lymphomas?

Lemur2020

•3 years ago

4 Replies

Introduction

Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo...

Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced ch...

Tehtarek

•3 years ago

11 Replies

Hi! Anyone who has had to stop and restart Ibrutinib because of major surgery. When is it safe to resume? Post op5 days ok?

Stopping Ibrutinib surgery

peneloope

•3 years ago

35 Replies

Searching

Wondering if there is a way to search a topic in CLL only? For example, if I want to search skin issues and cll, can that be done without bringing up all...

Wondering if there is a way to search a topic in CLL only? For example, if I wan...

Davidcara

•3 years ago

9 Replies

CLL Canada Statement on COVID - 19 Vaccines

From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2020 12:08 PM Subject: Will COVID vaccines work for CLL patients? Dear CLL...

From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2...

lankisterguy

Volunteer•3 years ago

4 Replies

Vaccines

I just had an appointment with Dr. John Byrd(one of the top cll gurus). He recommended the Pfizer or Moderna vaccines as soon as they are available. I was also...

I just had an appointment with Dr. John Byrd(one of the top cll gurus). He recom...

cmh55

•3 years ago

47 Replies

Dec 4th 7:00a.m. PT 20-year CLL survivor Terry Evans + CLL expert Dr. John Gribben and other physician panelists Don't miss it!

Dec. 4th 7:00a.m. PT Don't miss 20-year CLL survivor Terry Evans, Director of CLL Society Support Groups + CLL Expert Dr. John Gribben + panelists Ryan Jacobs,...

Dec. 4th 7:00a.m. PT Don't miss 20-year CLL survivor Terry Evans, Director of CL...

bkoffman

CLL CURE Hero•3 years ago

5 Replies

The road ahead

My oncologist called me yesterday and said they had found a donor match for a stem cell transplant and did I want to proceed? So a little of my story, I have...

My oncologist called me yesterday and said they had found a donor match for a st...

steve_canada

•3 years ago

59 Replies

Bleending gums

Hi everyone, I have big problems with bleending gums! I'm on ibrutinib about 6 weeks. Any advice or opinion will be appreciated! Best wishes , Lilica

Hi everyone, I have big problems with bleending gums! I'm on ibrutinib about 6 ...

lilica955

•3 years ago

15 Replies

UK government guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19, 2 December 2020

For those as confused as me by news reports, ministerial announcements and bosses' pronouncements, here it is in detail, from the horse's mouth...

For those as confused as me by news reports, ministerial announcements and bosse...

bennevisplace

•3 years ago

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NHS and CLL coverage: seeking advice

For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL...

For those of you living in the UK we are moving to Scotland and I am seeking adv...

gingerlovesal

•3 years ago

6 Replies

Taking vitamin d

Hi. Im on watch and wait and just had a gov letter offering me vitamin d tablets for 4 months.can i have these. Thanks Mick

Hi. Im on watch and wait and just had a gov letter offering me vitamin d tablets...

mickyboy63

•3 years ago

10 Replies

Vaccines , they are a-coming. Woohoo but which?

As we see COVID-19 vaccines beginning to roll out I would love some advice from the sages and elders of this forum. With vaccines, the key issue is...

As we see COVID-19 vaccines beginning to roll out I would love some advice from ...

Me2AsWell

•3 years ago

2 Replies

COVID Vaccine approved in UK

Just in case anybody in the UK hasn’t seen this yet... Covid Pfizer vaccine approved for use next week in UK https://www.bbc.co.uk/news/health-55145696 On...

Just in case anybody in the UK hasn’t seen this yet... Covid Pfizer vaccine app...

Oleboyredw-uk

•3 years ago

8 Replies

Inherited?

CLL Society ASH 2019 Inherited? Does an inherited defect in the germline ATM tumor suppressor gene contribute to the development of CLL? Dr. Jennifer Brown...

CLL Society ASH 2019 Inherited? Does an inherited defect in the germline ATM tum...

bkoffman

CLL CURE Hero•3 years ago

9 Replies

"It will change everything" - two scientific blockbusters we'll all benefit from

Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-Cas9 Within weeks we expect to have several effective vaccines against the...

Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-...

bennevisplace

•3 years ago

7 Replies

Repetitive cold infection

Hello, I am 45 from Morocco and on WW, this autumn I have repetitions of cold infection 4 times in 2 months a little fever sometimes without, but my concern...

Hello, I am 45 from Morocco and on WW, this autumn I have repetitions of cold i...

Hicham

•3 years ago

16 Replies

Treatment of Reynauds

I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication...

I have had Reynauds for about 8 years. Despite wearing insulated gloves, having ...

Floxxy

•3 years ago

22 Replies

CLL Meets COVID Vaccines/ Dr. Brian Koffman's take

There is promising news about COVID-19 vaccines, but does that news apply to those of us with CLL? The Moderna and Pfizer vaccines are made with a new...

There is promising news about COVID-19 vaccines, but does that news apply to tho...

bkoffman

CLL CURE Hero•3 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2020

NEW MEDICATIONS ON THE HORIZON

Bruising with Ibrutinib

Zinc

Drug Costs $$$

compromised immunity

Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.

I don’t have CLL. Do you also post about CNS lymphomas?

Introduction

Hi! Anyone who has had to stop and restart Ibrutinib because of major surgery. When is it safe to resume? Post op5 days ok?

Searching

CLL Canada Statement on COVID - 19 Vaccines

Vaccines

Dec 4th 7:00a.m. PT 20-year CLL survivor Terry Evans + CLL expert Dr. John Gribben and other physician panelists Don't miss it!

The road ahead

Bleending gums

UK government guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19, 2 December 2020

NHS and CLL coverage: seeking advice

Taking vitamin d

Vaccines , they are a-coming. Woohoo but which?

COVID Vaccine approved in UK

Inherited?

"It will change everything" - two scientific blockbusters we'll all benefit from

Repetitive cold infection

Treatment of Reynauds

CLL Meets COVID Vaccines/ Dr. Brian Koffman's take

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