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CLL Support

22,532 members • 38,709 posts

All posts for December 2020

CLL and recent TIA

Hi..I ended up in Emergecy with a ministroke. The report indicates that given my CLL history, this could be related to a vascular phenomenon with subcritical...

Hi..I ended up in Emergecy with a ministroke. The report indicates that given my...

Mamouchi

•3 years ago

10 Replies

Shielding letter 23-12-2020

This is to pass on EXCERPTS from another letter from Matt Hancock and Robert Jenrick to Clinically Extremely Vulnerable individuals, arrived by email 25...

This is to pass on EXCERPTS from another letter from Matt Hancock and Robert Jen...

bennevisplace

•3 years ago

5 Replies

herpes vacine

Can I take the. herpes zoster vaccine in view I have LLC I am now suffering one and taking 400mg acyclovir 5 ties a day. Its painful and my stomach is...

Can I take the. herpes zoster vaccine in view I have LLC I am now suffering one ...

giuliano

•3 years ago

6 Replies

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A timely warning about meeting family members.

On BBC Radio 5 Live this morning there was a heart rending call from a listener whose mother had recently died from coronavirus resulting in both the caller...

On BBC Radio 5 Live this morning there was a heart rending call from a listener ...

Penkman

•3 years ago

9 Replies

Pfizer Covid-19 Vaccine

Morning everyone, just wanted to post that I've had my first part of the Pfizer Covid-19 vaccine (yesterday) all is good,my arm was a little stiff ,abit like...

Morning everyone, just wanted to post that I've had my first part of the Pfizer ...

Nickos66

•3 years ago

1 Reply

Understanding CLL better just been diagnosed

I've just been diagnosed with CLL been given a booklet to read by the consultant but don't know much else about it. I'm currently on the watch and wait plan...

I've just been diagnosed with CLL been given a booklet to read by the consultant...

sniff23

•3 years ago

13 Replies

venentoclax study comparison dr mata

compare venetoclax alone with venetoclax with cd20 enhancer

msbypass4cll

•3 years ago

1 Reply

Christmas 2020

Wishing everyone seasons greetings & a happy healthy 2021

Sepsur

•3 years ago

32 Replies

UTI infections

UTI infections are common to both sexes. I am male and it was recurring UTI infections (for about 3 years) that prompted my GP to investigate the reason. The...

UTI infections are common to both sexes. I am male and it was recurring UTI inf...

Barney2866

•3 years ago

2 Replies

Growing numbers of the SARS COV2 H69/V70 variant

I thought this graph shows us just how quickly this new variant is growing and replacing the other variants. It's been calculated to be 71% more infectious...

I thought this graph shows us just how quickly this new variant is growing and r...

Jm954

Administrator•3 years ago

16 Replies

any studies showing v+o (or other cd20affecting mab) gives superior outcomes to venetoclax alone?

venetoclax for high risk cll-without enhancing drug

msbypass4cll

•3 years ago

5 Replies

CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 ...

CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 with stage IV follicular non-Hodgkin lymphoma, an incurable blood cancer, after...

CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 wi...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

Urgent Message from Dr. Brian Koffman: Give your family and friends the best gift this holiday season:

Urgent Message from Dr. Brian Koffman! Give your family and friends the best gift this holiday season: Stop the spread of COVID-19! With vaccines on the...

Urgent Message from Dr. Brian Koffman! Give your family and friends the best gif...

bkoffman

CLL CURE Hero•3 years ago

8 Replies

IBRUTINIB STOMACH ISSUES

I am into my 3rd month on IBRUTINIB for SLL. I is affecting my stomach and 2 weeks ago I started TECTA but it is not working as well as I hoped. Any...

I am into my 3rd month on IBRUTINIB for SLL. I is affecting my stomach and 2 wee...

Syldon07

•3 years ago

7 Replies

Switching from Ibrutinib because of neutropenia

I am curious what medication you have been switched to because Ibrutinib was causing neutropenia ? Did the new medication worked better ?

I am curious what medication you have been switched to because Ibrutinib was cau...

MikeOr

•3 years ago

1 Reply

Covid Vaccine for Immunocompromised

Just heard from a friend in England who’s Mother 93 has liver cancer, has had her first Covid vaccination and her second due first week in January 2021.

Just heard from a friend in England who’s Mother 93 has liver cancer, has had h...

YelvertonDevon

•3 years ago

19 Replies

Covid variant UK explained

Another great article from Siouxsie Wiles explaining the new Covid variant in UK. She has explained all manner of things during this pandemic - and WHO now...

Another great article from Siouxsie Wiles explaining the new Covid variant in UK...

YelvertonDevon

•3 years ago

3 Replies

The new, more infectious strain of Covid may originate in immunocompromised patients

As we learned yesterday evening, a new and more infectious Covid strain, named VUI-202012/01 or B.1.1.7, recently emerged in London and southeast England...

As we learned yesterday evening, a new and more infectious Covid strain, named V...

bennevisplace

•3 years ago

16 Replies

Lymph nodes

I am having hernia surgery tomorrow and stopped Ibrutinib 7 days now. On Friday (5 days in) I can feel lymph nodes on both sides of my neck and under my...

I am having hernia surgery tomorrow and stopped Ibrutinib 7 days now. On Friday...

habsrule

•3 years ago

12 Replies

IVIG: Wondering if it's right for me? Your experience?

Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc....

Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it ...

suz02

•3 years ago

22 Replies

Sinusitis

I have persistent Sinusitis over 6 months plus and have now tried 3 different strength antibiotics with the last being co-amoxiclav. None have helped and I’m...

I have persistent Sinusitis over 6 months plus and have now tried 3 different st...

Nell2009

•3 years ago

34 Replies

New To CLL and I had Covid in March 2020.

Hello, I'm 49 and I was diagnosed with CLL in November of this year. It's been quite a year. Both myself and husband got covid in March, his case was mild but...

Hello, I'm 49 and I was diagnosed with CLL in November of this year. It's been q...

Tri12

•3 years ago

10 Replies

chronic coughing and scaring lesion on lungs of CLL patients

I finished 6 cycles of R-CVP therapy recommended for my CLL 7 months ago and now scheduled to be put on BR chemoimmunotherapy because of poor response and...

I finished 6 cycles of R-CVP therapy recommended for my CLL 7 months ago and no...

amaagabg2020

•3 years ago

14 Replies

Vaccine with Venclexta

I may have missed previous posts on the subject, but wondering what the consensus is on taking the Covid vaccine while on Venclexta. I’ll consult with my...

I may have missed previous posts on the subject, but wondering what the consensu...

Survivor1951

•3 years ago

14 Replies

Imbruvica and Sex

CLL question - I am a 67-year-old man who has been on Imbruvica (420 mg daily) for two years with excellent results. I have recently become sexually active....

CLL question - I am a 67-year-old man who has been on Imbruvica (420 mg daily) f...

TheTraveler

•3 years ago

2 Replies

unmutated

hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5...

hi all is there any members who has had fcr who are unmutated had longer than 3...

kel555

•3 years ago

4 Replies

Suitability of 3 Current Vaccines for CLL 'ers

Just thought I would update on the advice which I have just got from my NHS consultant at Royal Marsden. His view is that both Pfizer and Moderna are suitable...

Just thought I would update on the advice which I have just got from my NHS cons...

FairweatherSailor

•3 years ago

6 Replies

Once IgG transfusions start, must they continue for the rest of my life

My IgG is 330 mg/dL at the moment , feel fine and have not been getting sick or infections. My doctor told me this morning that if my IgG goes below 300, then...

My IgG is 330 mg/dL at the moment , feel fine and have not been getting sick or ...

markjeep51

•3 years ago

21 Replies

Post COVID Travel with CLL

Being new to CLL, is it generally safe to travel (visit friends and family and vacation) with CLL considering our compromised immune symptoms? Also when...

Being new to CLL, is it generally safe to travel (visit friends and family and v...

Eagles1

•3 years ago

33 Replies

Moderna Vaccine latest

This FDA briefing document, for consideration of an Emergency Use Authorisation (EUA), appeared on the web in the past few minutes...

This FDA briefing document, for consideration of an Emergency Use Authorisation ...

bennevisplace

•3 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2020

CLL and recent TIA

Shielding letter 23-12-2020

herpes vacine

A timely warning about meeting family members.

Pfizer Covid-19 Vaccine

Understanding CLL better just been diagnosed

venentoclax study comparison dr mata

Christmas 2020

UTI infections

Growing numbers of the SARS COV2 H69/V70 variant

any studies showing v+o (or other cd20affecting mab) gives superior outcomes to venetoclax alone?

CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 ...

Urgent Message from Dr. Brian Koffman: Give your family and friends the best gift this holiday season:

IBRUTINIB STOMACH ISSUES

Switching from Ibrutinib because of neutropenia

Covid Vaccine for Immunocompromised

Covid variant UK explained

The new, more infectious strain of Covid may originate in immunocompromised patients

Lymph nodes

IVIG: Wondering if it's right for me? Your experience?

Sinusitis

New To CLL and I had Covid in March 2020.

chronic coughing and scaring lesion on lungs of CLL patients

Vaccine with Venclexta

Imbruvica and Sex

unmutated

Suitability of 3 Current Vaccines for CLL 'ers

Once IgG transfusions start, must they continue for the rest of my life

Post COVID Travel with CLL

Moderna Vaccine latest

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