Posts - CLL Support | HealthUnlocked

CLL Support

22,516 members • 38,677 posts

All posts for October 2020

New carving

Here is a new carving from what is left of our Monkey Puzzle tree in Sewerby park. Can't seem to add the photos altogether so will add them individually.

Here is a new carving from what is left of our Monkey Puzzle tree in Sewerby par...

kitchengardener2

•4 years ago

CLL overview article

I recently came across this article from 2018, which seems authoritative and comprehensive although 2 years dated. I'm certain this has been already seen by...

I recently came across this article from 2018, which seems authoritative and com...

•4 years ago

New CLL Imbruvica user, 63, asking for friendly advice please, diagnosed in ‘02 and its finally on the move : -)

Can anyone share the experience of starting Imbruvica for the first time? How does it make you feel? Any problems? Advice? I’m 63, diagnosed in 2002 with...

Can anyone share the experience of starting Imbruvica for the first time? How d...

•4 years ago

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Imbruvica, Ibrutinib in China

Hello, I wonder how much the Ibrutinib in China costs for Chinese pepole and what is the name of the medicine in China. It is clear that 1,440,646,255 Chinese...

Hello, I wonder how much the Ibrutinib in China costs for Chinese pepole and wha...

•4 years ago

Imbruvica och preparation for influenza and pneumococcal vaccinations

Hej Does anyone know that if you take Imbruvica you must take a break in connection with influenza vaccination or pneumococcal vaccine?

Hej Does anyone know that if you take Imbruvica you must take a break in connect...

•4 years ago

Front-load your knowledge. Build your team. Develop a good strategy. Don't get the wrong treatment!

One Week from Today. CLL Society's Sat. Oct. 10th BIG EVENT: CLL patients are living longer. CLL treatments are better than ever. Front-load your knowledge....

One Week from Today. CLL Society's Sat. Oct. 10th BIG EVENT: CLL patients are li...

CLL CURE Hero•4 years ago

How to manage increased diabetes on ibrutinib?

My dad 73 years old started with Ibrutininb treatment for relapsed CLL on 20 september after 10 days the sugar levels are going very high. Today fasting was...

My dad 73 years old started with Ibrutininb treatment for relapsed CLL on 20 sep...

•4 years ago

Started B&R Treatment last week.

Hello. As so many do on this site, I thought I would provide info in the hope of helping others. Brief health history: diagnosed with CLL 2012, no symptoms,...

Hello. As so many do on this site, I thought I would provide info in the hope o...

•4 years ago

CLL Virtual Town Hall Saturday (Tomorrow)

Wow! Almost 400 people concerned about CLL are joining us for Saturday’s Town Hall with experts from the top Cleveland medical centers. I hope you are in the...

Wow! Almost 400 people concerned about CLL are joining us for Saturday’s Town Ha...

•4 years ago

Car-T and a bone marrow transplant

Is someone in their late 70's and older too old to have Car-T therapy or a bone marrow transplant?

Is someone in their late 70's and older too old to have Car-T therapy or a bone ...

•4 years ago

Steroids with CLL

Doctor has prescribed prednisolone with antibiotics for respiratory infection. Had 6 this year so far. Still on W&W. Is it safe to take. Don't have...

Doctor has prescribed prednisolone with antibiotics for respiratory infection. H...

•4 years ago

Adding Venetoclax to Ibrutinib

Any thoughts about adding Venetoclax to ibrutinib. Been on ibrutinib since May 2020, with a beautiful response. Thinking about my future and if it would be...

Any thoughts about adding Venetoclax to ibrutinib. Been on ibrutinib since May ...

•4 years ago

What is usually first line of treatment?

I was offered trial with 2 options you dont get to pick Ibrutinib, obinutuzumab, venetoclax Or Ibrutinib, obinutuzumab I am hearing from the group that these...

I was offered trial with 2 options you dont get to pick Ibrutinib, obinutuzumab,...

•4 years ago

CLL Society: Letter from a patient COVID-19 is no joke

CLLSociety: "COVID-19 is highly infectious; it’s no joke!" A Letter from a CLL patient who contracted and recovered from COVID-19....

CLLSociety: "COVID-19 is highly infectious; it’s no joke!" A Letter from a CLL p...

CLL CURE Hero•4 years ago

Pneumococcal vaccine

Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR chemotherapy which finished in October 2018. I’ve been invited for a second...

Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR c...

•4 years ago

I need your help

Hello all, Please, I need Help! I was for 4 months on Leukeran,and first 2 months everythings was ok.Later ,my WBC started to increase and Hg and Plt to...

Hello all, Please, I need Help! I was for 4 months on Leukeran,and first 2 month...

•4 years ago

You can help to find a cure. Short guide to BOINC (Berkeley Open Infrastructure for Network Computing)

Hi to you reader. First of all I want to ask you, If an opportunity to help with research for treatments and cures for health conditions , would you accept ?...

Hi to you reader. First of all I want to ask you, If an opportunity to help with...

•4 years ago

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fatigue

Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (6 cycles) and several months of bone marrow not producing red cells (recovered...

Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (...

•4 years ago

Be the first to reply

Myelodyplastic Syndrome (MDS)

Hi. In my previous post I wrote about reaching a point 18months after completing FCR where my bone marrow stopped producing red cells. This got a diagnosis of...

Hi. In my previous post I wrote about reaching a point 18months after completin...

•4 years ago

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