Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2020

Do you stop Ibrutinib while treated for an infection ?

If you are currently on Ibrutinib, do you stop taking it while you are taking an antibiotic to fight an infection ? I am asking because Ibrutinib has a...

If you are currently on Ibrutinib, do you stop taking it while you are taking an...

MikeOr

•4 years ago

6 Replies

Being quarantined

HI. Great news, I'm in remission But my Doctor still doesn't want me close to anyone. Can't play cards, go to the store etc. Can only see people on my deck 8...

HI. Great news, I'm in remission But my Doctor still doesn't want me close to an...

dcfrey645

•4 years ago

18 Replies

CD57 meaning

What the heck does CD57 4% mean, anyone??

gustave

•4 years ago

7 Replies

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CLL Australian Webinar 21 October 2020. Keynote speaker Prof Peter Hillmen, Leeds UK. Interview of Sharon Winton CEO Lymphoma Australia, Q&A

Join MC Julie McCrossin and keynote speaker - the world renowned clinician and researcher - Prof. Peter Hillmen from St James’s University...

Join MC Julie McCrossin and keynote speaker - the world renowned clinician and r...

AussieNeil

Administrator•4 years ago

2 Replies

Base of skull update with further questions ???

Hi all!!! We are JUST now scheduled for the MRI. Oncologist took forever to get it going it seems. 🤦🏻‍♀️ My bf did try the “Celebrex” but felt no relief. So...

Hi all!!! We are JUST now scheduled for the MRI. Oncologist took forever to get ...

Beefcakesgirl

•4 years ago

2 Replies

TREATMENT OPTION FOR TRISOMY 12

Hi Dr. Aussie Neil! I am pleased to write to you once again about my test result. As i previously indicated, a year ago i was diagnosed with CLL Rai Stage II...

Hi Dr. Aussie Neil! I am pleased to write to you once again about my test resul...

amaagabg2020

•4 years ago

25 Replies

Questioning if I should question my doctor's decision to start treatment or decision not to order genetic testing before that Tx.

[ Dx 2013, 13q, mutated, basically asymptomatic] Sept lab results were personal worsts (both red & white enough to make one blue). ALC near 100K, RBC, Hgb, &...

[ Dx 2013, 13q, mutated, basically asymptomatic] Sept lab results were personal ...

gemit2000

•4 years ago

61 Replies

dry eyes

Hello, Is it common to develop extremely dry eyes with CLL? I am not on any treatment at this time>

Hello, Is it common to develop extremely dry eyes with CLL? I am not on any tre...

gustave

•4 years ago

10 Replies

Hives/Rash

I have just recently broken out in a rash/hives in both arms, left leg and stomach area. Some of them are very itchy and others are just pimple like with no...

I have just recently broken out in a rash/hives in both arms, left leg and stoma...

Murman

•4 years ago

19 Replies

Ultra V - Cycle 4

Hi, all, I wanted to give an update on my husbands progress in the Ultra V trial (3 drug combo:Ublituximab, Umbrilisib, & Venetoclax) . (For reference - ha...

Hi, all, I wanted to give an update on my husbands progress in the Ultra V tria...

WDSmith

•4 years ago

5 Replies

CLL Society Q 3 2020 Tribune: Remember "Dear Abby"? Ever see your own burning question answered in one of her columns?

CLL Society Q 3 2020 Tribune: Remember "Dear Abby"? Ever see your own burning question answered in one of her columns? CLL Society has "Ask the Doctors, Ask...

CLL Society Q 3 2020 Tribune: Remember "Dear Abby"? Ever see your own burning qu...

bkoffman

CLL CURE Hero•4 years ago

2 Replies

Ivig and severe headache

Started ivig 6 months ago. For 4 months I had a relatively lose dose but continued to get infections so cll specialist increase dose for #5 .I didn't feel...

Started ivig 6 months ago. For 4 months I had a relatively lose dose but continu...

Imbub

•4 years ago

13 Replies

GOOD NEWS! WE CAN DONATE UNUSED AND UNOPEN DRUGS IN US

https://www.cancer.net/blog/2014-04/what-should-i-do-unused-medications...

aacx

•4 years ago

4 Replies

Day 15 of COVID 19

Haven’t posted in six months because I’ve been working at home. I let my guard down once for a half hour and knew it was a mistake before the half hour was up....

Haven’t posted in six months because I’ve been working at home. I let my guard d...

GrapeGrower1

•4 years ago

29 Replies

Don't Get the Wrong Treatment!

Don't get the wrong treatment! CLL treatments are better than ever! Learn from these outstanding CLL experts to get the best possible care for your CLL. Drs....

Don't get the wrong treatment! CLL treatments are better than ever! Learn from t...

bkoffman

CLL CURE Hero•4 years ago

3 Replies

IVIG CURE?

HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user...

HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL f...

Kimsome

•4 years ago

6 Replies

MRD Special Edition of The CLL Society Tribune (Minimal Residual Disease explained by the experts )

MRD Special Edition: Volume 6 Issue 3...

lankisterguy

Volunteer•4 years ago

1 Reply

Treatment time, hard choice!

Like others have written, it is time for my treatment, and the decision on which to choose is incredibly challenging! I’ve been on W&W for 3 1/2 years....

Like others have written, it is time for my treatment, and the decision on which...

NaturalWaze

•4 years ago

57 Replies

Panniculitis on Ibrutinib

Has anyone developed Panniculitis while on Ibrutinib? Red hard and painful bumps under the skin?

Has anyone developed Panniculitis while on Ibrutinib? Red hard and painful bump...

harley2018

•4 years ago

2 Replies

Father Diagnosed with CLL or SLL

Good morning, I was referred here by a lovely woman from the cancer research website forum. My family is based in the UK and rely on the NHS. No private care....

Good morning, I was referred here by a lovely woman from the cancer research web...

Shanetheson

•4 years ago

7 Replies

Telephone consultant but still need to go to Hospital for blood test

I have not seen my consultant for a year now (covid precautions of course.) 2 telephone appointments. But in preparation for next week's one I had to go into...

I have not seen my consultant for a year now (covid precautions of course.) 2 t...

Harvist

•4 years ago

5 Replies

Can’t get rid of C diff

I have been having C diff for quite sometime. I have tried antibiotics and am on floraster and culturelle. It just keeps coming back. I need some help. Any...

I have been having C diff for quite sometime. I have tried antibiotics and am on...

Jances13

•4 years ago

3 Replies

3 years on Ibrutinib

My ALC is slowly going up after 3 years on Ibrutinib. It is now 4.5 up from 2.6. I have no other symptoms. How high does my ALC have to go for me to start...

My ALC is slowly going up after 3 years on Ibrutinib. It is now 4.5 up from 2.6...

Bmarbler

•4 years ago

5 Replies

Night Sweats

Hello CLL Community Friends. I hope you are all doing well, remaining healthy and safe, especially during these unprecedented crazy times. I was diagnosed...

Hello CLL Community Friends. I hope you are all doing well, remaining healthy a...

CouldBworse

•4 years ago

10 Replies

Effect of Acalabrutinib on the T cell function

My husband has been on Acalabrutinib for 3 months but he has developed a few days ago an ear infecion requiring antibiotics. Does Acalabrutinib also increses...

My husband has been on Acalabrutinib for 3 months but he has developed a few day...

ikahan

•4 years ago

4 Replies

Belly button abscess recurring

Hi guys and girls again, You are my source of information because I don’t have a consultant as I’m on W & W. It’s about the 4th time in 2 years that I’ve had...

Hi guys and girls again, You are my source of information because I don’t have a...

Pav545

•4 years ago

7 Replies

Dealing with Nausea side effect of Acalabrutinib

On my first day on Acalabrutinib I was throwing up and on the 2nd day I took Zofran 3 times to prevent the side effect. I am also drinking ginger tea. Does...

On my first day on Acalabrutinib I was throwing up and on the 2nd day I took Zof...

zitchie

•4 years ago

20 Replies

New blood work

I still don't have a dx, and we thought I was in the clear after I had two normal blood work results after two abnormal. My doc order more testing this week...

I still don't have a dx, and we thought I was in the clear after I had two norma...

gustave

•4 years ago

1 Reply

Carving number 3

Here are the Dolphins

kitchengardener2

•4 years ago

6 Replies

Carving number 2

Here we go with the Puffin and Bempton RSPB cliffs

kitchengardener2

•4 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2020

Do you stop Ibrutinib while treated for an infection ?

Being quarantined

CD57 meaning

CLL Australian Webinar 21 October 2020. Keynote speaker Prof Peter Hillmen, Leeds UK. Interview of Sharon Winton CEO Lymphoma Australia, Q&A

Base of skull update with further questions ???

TREATMENT OPTION FOR TRISOMY 12

Questioning if I should question my doctor's decision to start treatment or decision not to order genetic testing before that Tx.

dry eyes

Hives/Rash

Ultra V - Cycle 4

CLL Society Q 3 2020 Tribune: Remember "Dear Abby"? Ever see your own burning question answered in one of her columns?

Ivig and severe headache

GOOD NEWS! WE CAN DONATE UNUSED AND UNOPEN DRUGS IN US

Day 15 of COVID 19

Don't Get the Wrong Treatment!

IVIG CURE?

MRD Special Edition of The CLL Society Tribune (Minimal Residual Disease explained by the experts )

Treatment time, hard choice!

Panniculitis on Ibrutinib

Father Diagnosed with CLL or SLL

Telephone consultant but still need to go to Hospital for blood test

Can’t get rid of C diff

3 years on Ibrutinib

Night Sweats

Effect of Acalabrutinib on the T cell function

Belly button abscess recurring

Dealing with Nausea side effect of Acalabrutinib

New blood work

Carving number 3

Carving number 2

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