Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2020

Dental Treatment on Venetoclax

I had a dental check up this morning as a back molar has crumbled - dentist will be able to do a filling. He also advised a scale and polish which I am more...

I had a dental check up this morning as a back molar has crumbled - dentist will...

Jooby59

•4 years ago

7 Replies

There's a new Kid in Town

The discussion of wearing masks and treating covid. I wondered when this was coming, even surprised that Youtube has not taken it down. Video removed by...

The discussion of wearing masks and treating covid. I wondered when this was com...

Smakwater

•4 years ago

12 Replies

Vaccines

Would appreciate thoughts: On ibrutinib, thinking about asking MD for Shingrix vaccination. I see second Shingrix vaccine should be given 2 to 6 months after...

Would appreciate thoughts: On ibrutinib, thinking about asking MD for Shingrix v...

Davidcara

•4 years ago

5 Replies

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Skin Cancer and Surgery

Question: Why must I be off of Ibrutinib three days before, and three days after, surgery for skin cancer. Basal Cell on my nose ? Mohs Surgery

Question: Why must I be off of Ibrutinib three days before, and three days after...

Tapps

•4 years ago

8 Replies

Is there any connection between gastro-intestinal problems and CLL?

Shortly after CLL diagnosis (two weeks before lockdown), I suffered (and still do) from severe abdominal pain. Following colonoscopy, finally have had a...

Shortly after CLL diagnosis (two weeks before lockdown), I suffered (and still ...

accordio

•4 years ago

16 Replies

CAR T for richter transformation

Hi, my husband has cll/RT and he is going to have car T cell next week, I would like to meet anybody who went through car T cell therapy. Thank you Zohreh

Hi, my husband has cll/RT and he is going to have car T cell next week, I would ...

SZ202

•4 years ago

12 Replies

CLL Society Webinar Nov. 17th Dr. Joe Fraietta "The Future of CAR-T Therapy: Can CAR-T CURE CLL?" Some CAR-T patients are 10 years CLL-free!

CLL Society CAR-T Webinar Nov. 17th featuring CAR-T researcher Dr. Joe Fraietta: "The Future of CAR-T Therapy: Can CAR-T Cure CLL?" While CAR-T therapy is not...

CLL Society CAR-T Webinar Nov. 17th featuring CAR-T researcher Dr. Joe Fraietta:...

bkoffman

CLL CURE Hero•4 years ago

6 Replies

Is 3.4 high or something I should worry about for my lymph absolute blood work? My red blood cell count was 5.29 and my vitamin d came back

Is 3.4 high or something I should worry about for my lymph absolute blood work? My red blood cell count was 5.29 and my vitamin d came back 27. I am really...

Is 3.4 high or something I should worry about for my lymph absolute blood work? ...

Basketball1986

•4 years ago

1 Reply

VO2 max Vs Lymphocytes

Hi. Im reading things about VO2 and VO2 max. I do understand its a way of measuring your fitness as such. But has there been any evidence that a good VO2 max...

Hi. Im reading things about VO2 and VO2 max. I do understand its a way of measu...

Someca

•4 years ago

13 Replies

Common flu

Can I take cold and flu tablets whilst taking ibrutinib?

ANA4

•4 years ago

4 Replies

Vitamin D and Green Tea

Big thanks to this site as I’ve found a new Haematologist recommended here with whom I am 😊 He suggested three cups of Green Tea per day so I’ve included it...

Big thanks to this site as I’ve found a new Haematologist recommended here with ...

YelvertonDevon

•4 years ago

29 Replies

Update from my Appointment

Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it...

Hi All, I want to thank everyone for the kind words of support, good thoughts, a...

Moonmyst

•4 years ago

13 Replies

Fluid in lower legs and foot numbness ..

Hi All, Been On Imbruvica 140mg 3 per day for 3.5 years , no side effects to speak of except now, fluid in lower legs And some numbness in feet and...

Hi All, Been On Imbruvica 140mg 3 per day for 3.5 years , no side effect...

Rance2222

•4 years ago

11 Replies

7 weeks on acalabrutinib bloating and constipation

7 weeks on acalabrutinib , headaches stopped after couple of days, but bloating and constipation continues ... any advice? Thank you, B

7 weeks on acalabrutinib , headaches stopped after couple of days, but bloating ...

Belkin123

•4 years ago

5 Replies

Finally seeing my new doctor today

Hi, I am going to see my new CLL doc today. It's been almost 2 years since my diagnosis and nearly that long since I have had decent follow-up care because I...

Hi, I am going to see my new CLL doc today. It's been almost 2 years since my di...

Moonmyst

•4 years ago

7 Replies

Upset stomach on 400 mgm Ventoclax

Just over 2 weeks ago my Ventoclax was increased to to full 400 mgms per day. Since then I have experienced indegestion, acid reflux heartburn and general...

Just over 2 weeks ago my Ventoclax was increased to to full 400 mgms per day. Si...

GreyB

•4 years ago

12 Replies

Lymph nodes under ear

Today I woke up with the lymph nodes under my ear enlarged. They have been enlarged for a while but today they are a bit bigger and very tender. I got my flu...

Today I woke up with the lymph nodes under my ear enlarged. They have been enlar...

McBuster

•4 years ago

21 Replies

Does Seaband control nausea?

I was given a sea band by my holistic doctor to treat nausea. I am wary to use ut without consulting my Oncologist. I am currently taking Zofran before taking...

I was given a sea band by my holistic doctor to treat nausea. I am wary to use u...

zitchie

•4 years ago

13 Replies

Joint steroid injection

How much will a steroid injection for my arthritic hip affect my immune system ? I’m on watch and wait but have lots of long lasting chest infections

How much will a steroid injection for my arthritic hip affect my immune system ?...

Notmuchenergy

•4 years ago

6 Replies

Vitamins for CLL

I've always been a firm believer that God provides a means in the natural world to help heal ourselves mentally and physically. Along with my chemotherapy...

I've always been a firm believer that God provides a means in the natural world ...

PJWheeler

•4 years ago

18 Replies

Flying with CLL

Hi- I am trying to decide if it’s safe to fly with CLL- I am 73 and untreated but nearing needing treatment. I would be flying from New Jersey USA to Florida...

Hi- I am trying to decide if it’s safe to fly with CLL- I am 73 and untreated bu...

Matsi

•4 years ago

6 Replies

Good to be alive

For all the discomfort bestowed by CLL, a morning walk like this is a tonic. The hedgerows have already yielded their blackberries, sloes and rose hips....

For all the discomfort bestowed by CLL, a morning walk like this is a tonic. The...

bennevisplace

•4 years ago

21 Replies

CLL Society: Share Your CAR-T Story!

CLL Society: Share Your CAR-T Story! Do you have personal experience with CAR-T? Would you like to share your story in our upcoming Q4 2020 CAR-T Special...

CLL Society: Share Your CAR-T Story! Do you have personal experience with CAR-T?...

bkoffman

CLL CURE Hero•4 years ago

Be the first to reply

Cracked nails

I’m on Imbruvica since last April . Besides joint pain, my nails are brittle , cracking and breaking .

I’m on Imbruvica since last April . Besides joint pain, my nails are brittle , ...

Kmegood

•4 years ago

9 Replies

Acalabrutinib Update

So, three weeks on Acalabrutinib and a visit to the haematologist. Results are looking good. After an initial rise, WBC is now on the way down. Platelets are...

So, three weeks on Acalabrutinib and a visit to the haematologist. Results are l...

SOLLYTHEGOLLY

•4 years ago

23 Replies

Has anybody found that regular running helps with CLL?

I am at the "wait and see" stage with my CLL. When my CLL was first diagnosed in April 2019, the ABS Lymphocyte count in my blood was 68.7. I continued to...

I am at the "wait and see" stage with my CLL. When my CLL was first diagnosed in...

HowardR

•4 years ago

30 Replies

In remission after FCR treatment for CLL 7yrs ago. Should I be shielding because of Covid? I did not have a letter from my GP. I am 63yrs.

Now in a household with 2 frontline health workers.

Jessian2

•4 years ago

11 Replies

V+O or FCR

Hi folks, I've been reading your posts for some time, but due to a lack of experience, I haven't been able to provide a response myself. but now I would like...

Hi folks, I've been reading your posts for some time, but due to a lack of exper...

Germanguest

•4 years ago

17 Replies

I am Artygolf! Feeling I am without proper guidance! I was diagnosed with CLL/SLL X 2 vears ago! I am 73 and I live in the South of England.

I am a trained nurse, and I have asked for blood test history but unable to get these unless I visit Haematology Unit at St. Richards Hospital Chichester....

I am a trained nurse, and I have asked for blood test history but unable to get...

Artygolf

•4 years ago

27 Replies

65 hours into my 72 hour fast.

Started on Thursday evening. It would be extremely easy if I wasn't so darn hungry! I'd take this any day over a toothache or a headache though. And most...

Started on Thursday evening. It would be extremely easy if I wasn't so darn hung...

LeoPa

•4 years ago

40 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2020

Dental Treatment on Venetoclax

There's a new Kid in Town

Vaccines

Skin Cancer and Surgery

Is there any connection between gastro-intestinal problems and CLL?

CAR T for richter transformation

CLL Society Webinar Nov. 17th Dr. Joe Fraietta "The Future of CAR-T Therapy: Can CAR-T CURE CLL?" Some CAR-T patients are 10 years CLL-free!

Is 3.4 high or something I should worry about for my lymph absolute blood work? My red blood cell count was 5.29 and my vitamin d came back

VO2 max Vs Lymphocytes

Common flu

Vitamin D and Green Tea

Update from my Appointment

Fluid in lower legs and foot numbness ..

7 weeks on acalabrutinib bloating and constipation

Finally seeing my new doctor today

Upset stomach on 400 mgm Ventoclax

Lymph nodes under ear

Does Seaband control nausea?

Joint steroid injection

Vitamins for CLL

Flying with CLL

Good to be alive

CLL Society: Share Your CAR-T Story!

Cracked nails

Acalabrutinib Update

Has anybody found that regular running helps with CLL?

In remission after FCR treatment for CLL 7yrs ago. Should I be shielding because of Covid? I did not have a letter from my GP. I am 63yrs.

V+O or FCR

I am Artygolf! Feeling I am without proper guidance! I was diagnosed with CLL/SLL X 2 vears ago! I am 73 and I live in the South of England.

65 hours into my 72 hour fast.

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