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CLL Support

22,366 members38,474 posts

All posts for October 2020

CLL cells accumulate genetic aberrations prior to the first therapy even in outwardly inactive disease phase

No definite conclusions from this paper about genetic evolution and disease driv...
Jm954 profile image
Administrator

Cll improvement on Ibrutinib

Hi everyone! I started Ibrutinib on Tuesday last week. I was curious how quickl...
Temida profile image

Platelet Counts

Just wondering. Is there a way a person can increase platelet counts??
ballynb profile image
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Imbruvica and an extremely active lifestyle

Picked up my Imbruvica today. I'll start Sunday. Just joined my first forum/bl...

On Venetoclax for 3 weeks, no issues

I am so happy to report that I am on my 3rd week of the ramp up phase with Venet...
ronsolo306 profile image

A reminder to join us for our next webinar: "CLL Update in the Time of Pandemic". Tomorrow (Friday) at 1.00 pm GMT with Dr Samir Agrawal.

Keynote speaker will be Dr Samir Agrawal, Senior lecturer in haematology at the ...
pkguk2 profile image
Partner

Heard from Adrian?

Has anyone heard from Adrian? Just wondering
trenaleigh profile image

Acalabrutinib is working!

I have a great report on how well Acalabrutinib is working. Start date for Acala...
Drago1941 profile image

Identifying Skin Cancers

Because CLL patients are susceptible to secondary cancers including skin cancers...
cllady01 profile image
Former Volunteer

Flying can be safer than grocery shopping, Harvard study asserts

Flying can be safer than grocery shopping, Harvard study asserts https://www.cnn...
lankisterguy profile image
Volunteer

Stomach bloating

Anyone suffers from stomach bloated while on ibrutinib!
ANA4 profile image

What do your white blood cells look like?

I thought some members might like to see these images of what the various 'norma...
Jm954 profile image
Administrator

"NO!" This mask does not protect against COVID!

#CLLSociety Dr. Koffman says "NO!" This mask does not protect against COVID! Goo...
bkoffman profile image
CLL CURE Hero

Increase in WBC

Hi everyone, my WBC rose from 39 to 51 in three months. My lymphocytes went fro...

A071402 Phase 3 clinical trial - Obinituzumab+Ibrutinib+Venetoclax

Hello, I’m new to this forum. I am 74 year old male. I was diagnosed with CLL in...
Iupiter profile image

MBL numbers going up

Just had my yearly labs and my WBC increased from 10 to19 and my absolute lympho...
Freeskier989 profile image

Ibrutining affecting the lungs?

I have been on Ibrutinib since 3rd June 2020 and was making good progress with m...
Dym230109 profile image

DD Diet.

I wonder whether any members have experience with a deuterium depleted diet. Muc...
LeoPa profile image

Should I be worried.

please advise on my recent labs
iChn profile image

I'm new to this community Am from India My ALC count is 37500 and it came across during a routine check. Is it too high?

My cancer consultant is not ready to start any treatment or investigate further....

Acalabrutinib side effects

I am difficulty with side effects of acalabrutinib, I am experiencing extreme fa...
BallyB profile image

TPLL

I want to thank you all again for welcoming me into your community. Mike's cance...

A update with some concerns

Hi and thanks, now after 7 days I got another visit to the doctor and after I co...
2017cll profile image

Your view on what questions I should ask at my teleclinic next week.

Having a teleclinic with one of our cancer nurse specialists on thur (29th Oct) ...
Random78 profile image

imbruvica and weight training

Well, I wasn't expecting so soon but, I started treatment. My symptoms had reach...
POKEY1168 profile image

Green Tea Extract and Curcumin

Hi All - I’ve been taking green tea extract and curcumin capsules daily since I ...

CLL Australian October Webinar videos now available. Speakers: Prof Peter Hillmen, Leeds UK and Sharon Winton CEO Lymphoma Australia + Q&A

Here is the link to last week's webinar videos: https://www.cc-dr.org/online/cll...
AussieNeil profile image
Administrator

Good Info- Easily Read

Just thought I’d share this article. It may have been posted before but some new...
210savannah profile image

Venclexta 400mg and leg cramps

Coincidence or side effect?
msccsm11 profile image

Venetoclax before Gazyva

Hello group, I hope this message finds everyone well. The beginning of my trea...
Philipoc profile image