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CLL Support

22,524 members • 38,686 posts

All posts for May 2020

Front-Runners Emerge in the Race for a Covid-19 Vaccine

Herd immunity via a vaccine that produces a good immune response is the best way forward for CLL and other immunocompromised patients all over the world. From...

Herd immunity via a vaccine that produces a good immune response is the best way...

Jm954

Administrator•4 years ago

9 Replies

Opportunity to support the listing of Acalabrutinib and Venetoclax for the treatment of Australians with CLL

No matter where you live, you can support the access of Australians with CLL to Acalabrutinib or Venetoclax treatment. Australia's Pharmaceutical Benefits...

No matter where you live, you can support the access of Australians with CLL to ...

AussieNeil

Administrator•4 years ago

48 Replies

Anyone else get this?

Hi It will be sixteen years ago this summer when I was first diagnosed as having CLL. I'm still on Watch and Wait, despite having been given an original...

Hi It will be sixteen years ago this summer when I was first diagnosed as having...

Hidden

•4 years ago

13 Replies

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Decrease in Anemia after starting Ibrutinib

Hi, can the folks who were anemic before starting Ibrutinib advise on the time it took for Hb levels to start rising again? My mother has started Ibrutinib 40...

Hi, can the folks who were anemic before starting Ibrutinib advise on the time i...

VikPa

•4 years ago

5 Replies

Good afternoon on 75th VE Day lockdown & exercise

Hi Everyone I spent this morning tending to my girls - all 50,000 give or take ( 🐝) I had a new hive arrive yesterday & had to split them immediately because...

Hi Everyone I spent this morning tending to my girls - all 50,000 give or take ...

Sepsur

•4 years ago

22 Replies

Ibrutinib and Swimming

Will be asking my MD, but wondering if anyone has experience with this. Just started ibrutinib, is it safe to swim in my backyard pool?

Will be asking my MD, but wondering if anyone has experience with this. Just sta...

Davidcara

•4 years ago

6 Replies

Radio 4 talks about CLL

Hi all, interesting segment on The Today Programme on Radio 4 this morning about CLL, and how those not receiving treatment are falling through the cracks of...

Hi all, interesting segment on The Today Programme on Radio 4 this morning about...

Tinkataz

•4 years ago

48 Replies

CLL and vaccine

I have CLL and I am worried that any vaccine may not work for CLL sufferers if it’s a live vaccine. I am also concerned as to how long we need to shield if...

I have CLL and I am worried that any vaccine may not work for CLL sufferers if i...

KrisBren01

•4 years ago

11 Replies

1 year ago

A year ago today I lost my beautiful sister. I feel the loss and pain today especially like I did 366 days ago. But I still pray and talk to her as much as I...

A year ago today I lost my beautiful sister. I feel the loss and pain today espe...

TeresaVince

•4 years ago

40 Replies

Ibrutinib

I was diagnosed with CLL on the 6th March 2020 and have lymph nodes in my neck, armpits and apparently in my abdomen. Some days I an very fatigued, however, I...

I was diagnosed with CLL on the 6th March 2020 and have lymph nodes in my neck, ...

Dym230109

•4 years ago

35 Replies

Confused

Hi I am on watch & wait and have been feeling really unwell the last few weeks, chronic fatigue can’t stay awake constant really bad headache 24/7 abdominal...

Hi I am on watch & wait and have been feeling really unwell the last few weeks, ...

Shelling

•4 years ago

4 Replies

Management of CLL Patients Early in the COVID-19 Pandemic: An International Survey of CLL Experts

Hi, We have been busy. The CLL Society is proud to have taken a leadership role in producing Management of CLL Patients Early in the COVID-19 Pandemic: An...

Hi, We have been busy. The CLL Society is proud to have taken a leadership role ...

bkoffman

CLL CURE Hero•4 years ago

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Treatment Options

CLL diagnosed around 2013. Went 2 yrs...then acquired dep 17 marker. Mutated....2017 went to MDA for clinical trial....placed on Imbruvica....took for 2...

CLL diagnosed around 2013. Went 2 yrs...then acquired dep 17 marker. Mutated......

vdarr1

•4 years ago

2 Replies

Bloodwork and FaceTime With oncologist

I’m so happy I’ve been on Imbruvica for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am...

I’m so happy I’ve been on Imbruvica for almost 5 months, with 230,000 w/b Now mi...

littledab

•4 years ago

10 Replies

Venetoclax plus obinutuzumab - the first chemotherapy-free, fixed-duration first line CLL treatment approved by Health Canada

* VENCLEXTA® (venetoclax) plus obinutuzumab is the first chemotherapy-free, fixed-duration combination regimen approved by Health Canada for patients...

* VENCLEXTA® (venetoclax) plus obinutuzumab is the first chemotherapy-free, ...

AussieNeil

Administrator•4 years ago

10 Replies

Never be without this !!!

HEY, TOILET PAPER RULES!!!😁

debdetermine58

•4 years ago

16 Replies

Unsure about specialist

I had a telephone consultation 1 week ago with my CLL doctor regarding my recent blood tests. I have only previously seen her twice face to face. I was...

I had a telephone consultation 1 week ago with my CLL doctor regarding my recent...

Dracaena

•4 years ago

9 Replies

COVID19 - What we know, think we know, or want others to think we know

"More or Less" on BBC Radio 4 is "the show that uses numbers to explore and explain the world around us". What it really does is dissect and correct the...

"More or Less" on BBC Radio 4 is "the show that uses numbers to explore and expl...

bennevisplace

•4 years ago

3 Replies

Chilblains and CLL

Hello everyone. Does anyone have chilblains and if so how does it affect your CLL? I have stopped taking the dog for a walk and not wearing closed shoes or...

Hello everyone. Does anyone have chilblains and if so how does it affect your CL...

Random78

•4 years ago

5 Replies

Just want to say thank you everyone for your support

Last week I joined this forum to ask for advice, because I’d found my first lump (on my neck). I received loads of answers, all putting my mind at rest. I...

Last week I joined this forum to ask for advice, because I’d found my first lump...

Tinkataz

•4 years ago

1 Reply

IGG level increase and Final stretch of Veneteclax

Happy to report that I am on my last month of Veneteclax . Started my journey on treatment with Gazyva June 2019 for 8 infusions followed by veneteclax 400mg....

Happy to report that I am on my last month of Veneteclax . Started my journey on...

Downriver555

•4 years ago

1 Reply

A Visit to The Vampires

I needed a blood test in the next week for Doctors appointment on May 20 which I hope will be by telephone. Am in the UK on W & W. I rang the vampires, sorry...

I needed a blood test in the next week for Doctors appointment on May 20 which I...

shornoff

•4 years ago

33 Replies

Lymph Nodes or Hernia?

Greetings everyone. Its been a while since I have posted. I have a follow up with my doctor on the 22nd and 29th of this month. Recently I noticed a bump grow...

Greetings everyone. Its been a while since I have posted. I have a follow up wit...

JayPay

•4 years ago

2 Replies

First ivig this week

Scheduled for first ivig on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I...

Scheduled for first ivig on Thursday. My veins like to play hide and seek whene...

Imbub

•4 years ago

23 Replies

Swollen Lymph Node

I was diagnosed 2 1/2 years ago with CLL. Not much has changed in my life. Just blood draw every 6 months with specialist check up. But I found a swollen...

I was diagnosed 2 1/2 years ago with CLL. Not much has changed in my life. Just ...

Shari-Lt

•4 years ago

3 Replies

Canadians are always sensible

I thought this little bullet point article was helpful https://choosingwiselycanada.org/covid-19/

I thought this little bullet point article was helpful https://choosingwiselyc...

Sepsur

•4 years ago

3 Replies

How COVID-19 Has Impacted Clinical Trials for Chronic Lymphocytic Leukemia

"Many patients with chronic lymphocytic leukemia (CLL) rely on the outcomes of clinical trials that examine new ways to treat the disease. But with the new...

"Many patients with chronic lymphocytic leukemia (CLL) rely on the outcomes of c...

AussieNeil

Administrator•4 years ago

4 Replies

Absolutely exhausted.

Tiredness that seems to be associated with CLL just gets worse. I feel absolutely exhausted all the time. I don't get much sympathy from my gp who says I...

Tiredness that seems to be associated with CLL just gets worse. I feel absolutel...

GD-K

•4 years ago

13 Replies

shielding after covid

What is the situation for shielding, if you have had covid 19, assuming that it was diagnosed by swabbing in the hospital?

What is the situation for shielding, if you have had covid 19, assuming that it...

couchbeings

•4 years ago

4 Replies

coming out of remission. Cll

coming out of remission cll, 13q deleted bone marrow. 50 to60 % involvement of b cell lym. What to next . Treatment?

coming out of remission cll, 13q deleted bone marrow. 50 to60 % involvement of ...

tom3659

•4 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2020

Front-Runners Emerge in the Race for a Covid-19 Vaccine

Opportunity to support the listing of Acalabrutinib and Venetoclax for the treatment of Australians with CLL

Anyone else get this?

Decrease in Anemia after starting Ibrutinib

Good afternoon on 75th VE Day lockdown & exercise

Ibrutinib and Swimming

Radio 4 talks about CLL

CLL and vaccine

1 year ago

Ibrutinib

Confused

Management of CLL Patients Early in the COVID-19 Pandemic: An International Survey of CLL Experts

Treatment Options

Bloodwork and FaceTime With oncologist

Venetoclax plus obinutuzumab - the first chemotherapy-free, fixed-duration first line CLL treatment approved by Health Canada

Never be without this !!!

Unsure about specialist

COVID19 - What we know, think we know, or want others to think we know

Chilblains and CLL

Just want to say thank you everyone for your support

IGG level increase and Final stretch of Veneteclax

A Visit to The Vampires

Lymph Nodes or Hernia?

First ivig this week

Swollen Lymph Node

Canadians are always sensible

How COVID-19 Has Impacted Clinical Trials for Chronic Lymphocytic Leukemia

Absolutely exhausted.

shielding after covid

coming out of remission. Cll

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