Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for May 2020

Is Calquence helping you with Lymphoma?

I need patient reviews for Calquence. I have Mantle Cell Lymphoma, been through RChop (bought 4 years), could only tolerate 2 infusions of Bendamustine...

I need patient reviews for Calquence. I have Mantle Cell Lymphoma, been through...

Keptindark

•4 years ago

30 Replies

Swollen fingers

Hi everyone. Can anyone advise me if they have had any of the following. My husband has been suffering with swollen fingers they are on both hands mainly his...

Hi everyone. Can anyone advise me if they have had any of the following. My husb...

Dongeandpaul

•4 years ago

8 Replies

Advice re exercise and cold showers.

Hi all, I was diagnosed in 2018 with CLL which came to light after a TIA and surgery for blocked artery. I am on W&W. As a result of this I changed my lifesyle...

Hi all, I was diagnosed in 2018 with CLL which came to light after a TIA and sur...

Vindicatrix

•4 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Acne in your no-ose...shame on you!

I'd much rather have curlers in my hair, if you got the reference... My nose has been getting more and more plugged lately from all the pus and blood scabs....

I'd much rather have curlers in my hair, if you got the reference... My nose has...

Hidden

•4 years ago

2 Replies

The Benefits of Exercise with CLL and COVID-19

With CLL being a relatively rare cancer, it is often hard to find studies specific to our cancer. Often we are reliant on studies from more common cancers,...

With CLL being a relatively rare cancer, it is often hard to find studies specif...

AussieNeil

Founder Admin•4 years ago

24 Replies

Thank you

Thank you everyone who has posted a comment to my recent sad news. My heart has been lifted to read such positive words.

Thank you everyone who has posted a comment to my recent sad news. My heart has ...

fussybritches

•4 years ago

1 Reply

Good news from my consultant !

I was diagnosed with CLL about 2 1/2 years ago. I am asymptomatic and feel very fit and healthy. I don't seem to pick up any colds or flu type things and have...

I was diagnosed with CLL about 2 1/2 years ago. I am asymptomatic and feel very ...

FairweatherSailor

•4 years ago

8 Replies

When will shielders be able to have an antibody test?

Do people on here agree that an antibody test would be really helpful?! My husband has CLL and so we're therefore both shielding. I was unwell just before...

Do people on here agree that an antibody test would be really helpful?! My husba...

Tpdnotts

•4 years ago

11 Replies

Wearing a Mask

The below article discusses some issues made possible by wearing a mask. My Hg is around 12 And I frequently wake with a headache. I concluded that it is...

The below article discusses some issues made possible by wearing a mask. My Hg i...

Fant1924

•4 years ago

8 Replies

Swollen Elbow (bursitis)

My father who has CLL and has been on ibrutinib a year or 2, today developed a swollen elbow that had some pus. He went to a family doctor today and they said...

My father who has CLL and has been on ibrutinib a year or 2, today developed a s...

Soundsinamotion

•4 years ago

9 Replies

Latest blood results

Well what a week . I was told last week I was to have my thyroid bloods taken and a nurse came to my house so yesterday I Phoned and asked for the results and...

Well what a week . I was told last week I was to have my thyroid bloods taken an...

pet-lamb

•4 years ago

16 Replies

Shortness of breath

Good morning from upstate NY, Has anyone had severe shortness of breath when walking uphill? I am 71, and have been on wait & watch for 6years.

Good morning from upstate NY, Has anyone had severe shortness of breath when wal...

Winsey

•4 years ago

33 Replies

Has anyone had a similar situation?

Hi, I was wondering if anyone has had these problems. I have been on Rituximab and Bendamustine treatment since the end of January with only minor annoyances...

Hi, I was wondering if anyone has had these problems. I have been on Rituximab a...

laldoroty

•4 years ago

13 Replies

What to worry about, what not to worry about re: Covid-19

There have been many postings about Covid-19, but this is the best article I have read about understanding how the virus spreads and what situations are the...

There have been many postings about Covid-19, but this is the best article I hav...

HikerBiker

•4 years ago

13 Replies

More Or Less: coronavirus mythbuster

I strongly recommend listening to today's edition (yes it's all about CV19 again). Catch up on BBC Sounds, radio 4, 9:00. In half an hour it takes a critical...

I strongly recommend listening to today's edition (yes it's all about CV19 again...

bennevisplace

•4 years ago

Be the first to reply

CLL/ Polymyalgia/GCA

Hi I have had CLL for 9 years on WW, I am awaiting confirmation that I have Polymyalgia / GCA if confirmed the standard treatment is long term course of...

Hi I have had CLL for 9 years on WW, I am awaiting confirmation that I have Poly...

MrsB1963

•4 years ago

12 Replies

Are you wearing gloves or a mask? You might be doing it wrong. Masks DO save lives from the coronavirus!

Many people in the community are wearing face masks and gloves in an attempt to protect themselves against the coronavirus. They might put on these...

Many people in the community are wearing face masks and gloves in an attempt to ...

AussieNeil

Founder Admin•4 years ago

49 Replies

Ibrutinib and anti depressants

Been finding myself getting more anxious during lockdown slightest tickle in the nose ,cough and my mind race's. Did suffer with this before I was DX as...

Been finding myself getting more anxious during lockdown slightest tickle in the...

cartwheels

•4 years ago

7 Replies

Remission?

Quick question for today. My doctor told me that when absolute lymphocyte number is below 5 thousand that is like being in remission true or false?...

Quick question for today. My doctor told me that when absolute lymphocyte number...

haposwald

•4 years ago

34 Replies

Shielding letter

Just a quick update had my shielding letter today !! It wasn’t really necessary as my doctor had already written to me advising me to shield and I have a very...

Just a quick update had my shielding letter today !! It wasn’t really necessary ...

Hilo13

•4 years ago

4 Replies

Joint pain and Imbruvica

My right hip and both knees are hurting so bad it hurts to stand for any length of time. I have had one knee replaced and now they want to do the other one....

My right hip and both knees are hurting so bad it hurts to stand for any length ...

BATony

•4 years ago

12 Replies

OUR PLAN TO REBUILD: The UK Government’s COVID-19 recovery strategy

The 51 page document...

zaax

•4 years ago

2 Replies

cll and Fenbendazole

My friend has CLL and i have read so much on Fenbendazole joe Tippens protocole having used it on my husband im wondering if it could be good for my friend...

My friend has CLL and i have read so much on Fenbendazole joe Tippens protocole...

tbeau

•4 years ago

13 Replies

UK CLL Forum Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

Still time to complete this survey if you haven't already. The information gathered is already providing vital information for our CLL specialists in their...

Still time to complete this survey if you haven't already. The information gath...

Jm954

Administrator•4 years ago

Be the first to reply

Confused

I have CLL and currently on a Watch and Wait regime. With the latest changes from the PM muddying the waters somewhat, is it safe for me to venture out or do I...

I have CLL and currently on a Watch and Wait regime. With the latest changes fro...

GSBS1954

•4 years ago

17 Replies

Scottish Letter - An Update

I had my letter from the Scottish Government then a follow up phone call from my GP to check that I understood what I was to do. Thanks to this Forum and my...

I had my letter from the Scottish Government then a follow up phone call from my...

Fallain

•4 years ago

Be the first to reply

Cll and covid-19 asco

This was a recent post with regards to Cll and covid at the ASCO meeting. Interesting observations in the beginning of the blog post in relation to treatment...

This was a recent post with regards to Cll and covid at the ASCO meeting. Inter...

desti

•4 years ago

5 Replies

COVID 19 test

CLL for 4 years on W&W. Tested positive for COVID 19 April 10, fortunately mild case! Recovered quickly! BUT still testing positive 4 weeks later, last test...

CLL for 4 years on W&W. Tested positive for COVID 19 April 10, fortunately mild...

Kherl21

•4 years ago

9 Replies

Time-Limited Triplet Emerges as a Potential Standard in Relapsed/Refractory CLL

Oncology live May 06, 2020 The time-limited triplet of umbralisib, ublituximab, and venetoclax (Venclexta) could potentially become a standard of care for...

Oncology live May 06, 2020 The time-limited triplet of umbralisib, ublituximab, ...

Jm954

Administrator•4 years ago

12 Replies

my numbers on 05/09/2020

these are my numbers on 05/09/2020 I diagnosed B-CLL almost 7 months ago. I'm on W&W. my oncologist said I should be in this stage until my platelets and...

these are my numbers on 05/09/2020 I diagnosed B-CLL almost 7 months ago. I'm o...

Hidden

•4 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2020

Is Calquence helping you with Lymphoma?

Swollen fingers

Advice re exercise and cold showers.

Acne in your no-ose...shame on you!

The Benefits of Exercise with CLL and COVID-19

Thank you

Good news from my consultant !

When will shielders be able to have an antibody test?

Wearing a Mask

Swollen Elbow (bursitis)

Latest blood results

Shortness of breath

Has anyone had a similar situation?

What to worry about, what not to worry about re: Covid-19

More Or Less: coronavirus mythbuster

CLL/ Polymyalgia/GCA

Are you wearing gloves or a mask? You might be doing it wrong. Masks DO save lives from the coronavirus!

Ibrutinib and anti depressants

Remission?

Shielding letter

Joint pain and Imbruvica

OUR PLAN TO REBUILD: The UK Government’s COVID-19 recovery strategy

cll and Fenbendazole

UK CLL Forum Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

Confused

Scottish Letter - An Update

Cll and covid-19 asco

COVID 19 test

Time-Limited Triplet Emerges as a Potential Standard in Relapsed/Refractory CLL

my numbers on 05/09/2020

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2020

Is Calquence helping you with Lymphoma?

Swollen fingers

Advice re exercise and cold showers.

Acne in your no-ose...shame on you!

The Benefits of Exercise with CLL and COVID-19

Thank you

Good news from my consultant !

When will shielders be able to have an antibody test?

Wearing a Mask

Swollen Elbow (bursitis)

Latest blood results

Shortness of breath

Has anyone had a similar situation?

What to worry about, what not to worry about re: Covid-19

More Or Less: coronavirus mythbuster

CLL/ Polymyalgia/GCA

Are you wearing gloves or a mask? You might be doing it wrong. Masks DO save lives from the coronavirus!

Ibrutinib and anti depressants

Remission?

Shielding letter

Joint pain and Imbruvica

OUR PLAN TO REBUILD: The UK Government’s COVID-19 recovery strategy

cll and Fenbendazole

UK CLL Forum *Follow-Up* Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

Confused

Scottish Letter - An Update

Cll and covid-19 asco

COVID 19 test

Time-Limited Triplet Emerges as a Potential Standard in Relapsed/Refractory CLL

my numbers on 05/09/2020

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

UK CLL Forum Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.