Posts - CLL Support | HealthUnlocked

CLL Support

22,643 members • 38,865 posts

All posts for April 2020

Can I be cured of CLL?

Can I be cured of CLL? In reference to cure of CLL - Interesting posts. I have Trisomy 12 unmutated. Age now 77 years. Diagnosed in April 2015. I was...

Can I be cured of CLL? In reference to cure of CLL - Interesting posts. I have ...

halldp

•4 years ago

36 Replies

Acalabrutinib Trial for COVID-19

https://www.forbes.com/sites/nathanvardi/2020/04/13/exclusive-astrazenecas-calquence-shows-early-promise-for-covid-19-patients/

https://www.forbes.com/sites/nathanvardi/2020/04/13/exclusive-astrazenecas-calqu...

Mldeterm

•4 years ago

46 Replies

CLL & Ibrutinib: bleeding, bruising and broken fingernails

59, diagnosed at 53 with unmutated, del17 CLL and started Ibrutinib June 2019. Fairly wild ride to date: early on was a lot of edema, particularly in lower...

59, diagnosed at 53 with unmutated, del17 CLL and started Ibrutinib June 2019. F...

Hidden

•4 years ago

46 Replies

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CLL AND COVID-19

I'm curious about the response the CLL community has had to the Covid-19 virus. Those under W&W, those under treatment with the different modalities. I...

I'm curious about the response the CLL community has had to the Covid-19 virus....

desti

•4 years ago

4 Replies

Covid and Life after 12 Weeks of Medical Isolation

So we are now 3 weeks into our 12 weeks of lockdown, what about life for us once the restrictions start to be lifted? If we look at China, after 10 weeks of...

So we are now 3 weeks into our 12 weeks of lockdown, what about life for us once...

RobertCLL

•4 years ago

39 Replies

I am in high risk group?

Hi after some advice. I live in Scotland and not sure if I should of received the government letter. I have had cll for nearly 15 yrs. Get infections all the...

Hi after some advice. I live in Scotland and not sure if I should of received th...

Frodo21

•4 years ago

11 Replies

TO ALL MY CLL MEMBERS

WISHING YOU & YOURS A BLESSED EASTER 👼🐇😇. SENDING YOU HEALTHY WISHES💪 AND 😊 SMILES!!! YOURS IN HEALTH, 🙋‍♀️ DEBBIE.

WISHING YOU & YOURS A BLESSED EASTER 👼🐇😇. SENDING YOU HEALTHY WISHES💪 AND 😊...

debdetermine58

•4 years ago

9 Replies

Vancomycin taper, CDiff, and probiotics

I've had C-Diff two months ago... have waded through Vanco and probiotics... and wondering if any have had recurrance experience of CDiff... so afraid I will...

I've had C-Diff two months ago... have waded through Vanco and probiotics... and...

Butitisme

•4 years ago

8 Replies

Alc calculations

WBC 74.8 Lymphocytes 88% Abs lymphocyte 65.9 k/ul What is my Alc? Thanks.

Rottie1934

•4 years ago

12 Replies

3 Months of Imbruvica update

I just crossed the 3 month timeline w/Imbruvica. The big issue I was dealing with was my Neutrophil count was at a critical level of .4. They are now safely in...

I just crossed the 3 month timeline w/Imbruvica. The big issue I was dealing wit...

12Caine12

•4 years ago

17 Replies

Shielding letter from Scottish Goverment

Received a second letter from the Scottish Government giving an update on what is available when Shielding. Lots of information / advice. One interesting...

Received a second letter from the Scottish Government giving an update on what i...

Alex15alex

•4 years ago

29 Replies

🐇🐇Wishing you all a happy Easter🐇🐇

Hi all, Wishing you a very happy,healthy and safe Easter. So different to all our previous Easters we’ve ever experienced in our lifetime. We’ll just have to...

Hi all, Wishing you a very happy,healthy and safe Easter. So different to all ou...

josephinef

•4 years ago

6 Replies

Wishes

For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna

For a very odd Easter I wish you all lots of health and successes ! Seven month ...

Ankakoza

•4 years ago

4 Replies

Are these early symptoms of cll?

Hello guys, I am glad to find you and through your experiences to be more informed about cll. For a year now I have constantly higher than 4500 lymphocytes and...

Hello guys, I am glad to find you and through your experiences to be more inform...

Alexpan2004

•4 years ago

4 Replies

Tea now ?

I almost never drink tea. I drink warm water. But would any tea ( or combination/blend) be of any benefit now to A. increase general immunity, B. counter...

I almost never drink tea. I drink warm water. But would any tea ( or combination...

vog292

•4 years ago

20 Replies

UK Webinar - Corona-virus and CLL - video now available

On the 8th March Leukaemia Care, CLL Support and many CLL patients were joined in a webinar by Professor Chris Fegan, consultant haematologist at University...

On the 8th March Leukaemia Care, CLL Support and many CLL patients were joined i...

HAIRBEAR_UK

Founder Admin•4 years ago

5 Replies

Face sores side effects from imbruvica

I’m 57 and recently diagnosed with CLL/SLL. I’ve been on 420 mg Imbruvica daily for 8 months with the typical side effects of fatigue, stiff joints, leg...

I’m 57 and recently diagnosed with CLL/SLL. I’ve been on 420 mg Imbruvica daily...

Tweetybird1962

•4 years ago

8 Replies

Bone marrow biopsy

I had a bone marrow biopsy for ostiomylititis but came back just bone Maddie disease can anyone explain why it didn’t give the precise parhogen report

I had a bone marrow biopsy for ostiomylititis but came back just bone Maddie dis...

Natty1234

•4 years ago

4 Replies

Good morning

This is my new avatar

AKAICUsurvivor

•4 years ago

20 Replies

Leukaemia Care Webinar 8th April - a bit more information

Professor Dr Chris Fegan talked about CLL and COVID19 and answered previously submitted questions. Following on from AdrianUK's post (...

Professor Dr Chris Fegan talked about CLL and COVID19 and answered previously su...

Jm954

Administrator•4 years ago

17 Replies

IVIG infusions - Covid

UKCLLForum - Practical guidelines for managing CLL in COVID pandemic. The guidelines state: Postpone IVIG infusions as risk of exposure to COVID19 may outweigh...

UKCLLForum - Practical guidelines for managing CLL in COVID pandemic. The guidel...

RobertCLL

•4 years ago

7 Replies

World's largest trial of potential Coronavirus treatments being rolled out across the UK - RECOVERY Trial

The world’s largest randomised clinical trial of potential coronavirus treatments is well underway in the UK as part of the race to find a treatment. A number...

The world’s largest randomised clinical trial of potential coronavirus treatment...

Jm954

Administrator•4 years ago

3 Replies

Just to add to the confusion..

I still have not received a letter or text from .gov or NHS England re shielding but yesterday received an e-mail from the local council. It said that I had...

I still have not received a letter or text from .gov or NHS England re shielding...

Hidden

•4 years ago

9 Replies

CLL Society & CancerCare Update on Chronic Lymphocytic Leukemia (CLL)

CLL Society & CancerCare Update on Chronic Lymphocytic Leukemia (CLL) Thursday, April 9th at 4:00p.m. ET/ 1:00p.m. PT Drs. Adam Kittai, Deborah Stephens,...

CLL Society & CancerCare Update on Chronic Lymphocytic Leukemia (CLL) Thursday, ...

bkoffman

CLL CURE Hero•4 years ago

Be the first to reply

Is the skin around the lower left side tender to the touch(like a burn) if there's a spleen problem?

Sometimes a sharp pain.

Burning

•4 years ago

9 Replies

Possible use of ivermectin to coronavirus

Possible coronavirus drug identified by Australian scientists. Ivermectin is an inhibitor of the COVID-19 in vitro and beeing tested to COVID-19....

Possible coronavirus drug identified by Australian scientists. Ivermectin is an ...

cristo

•4 years ago

4 Replies

Further text from NHS re Coronavirus.

Hi everyone. Hope this lovely weather is adding a ray of sunshine🌞 to your day but still observing shielding instructions.. I've received a 2nd text from NHS...

Hi everyone. Hope this lovely weather is adding a ray of sunshine🌞 to your day...

mbear

•4 years ago

32 Replies

Text from gov.uk confusion

I received this text from Gov.uk which seems to suggest I am vulnerable. I haven’t received the original letter although I self registered and heard nothing....

I received this text from Gov.uk which seems to suggest I am vulnerable. I haven...

Miggins60

•4 years ago

16 Replies

Swollen legs

My mom is on ibrutinib I dont know if the med is responsible but have any others had a side effect where their legs/ankles have swollen. They are red and also...

My mom is on ibrutinib I dont know if the med is responsible but have any others...

Kuschey

•4 years ago

1 Reply

CLL Society & Clinical Care Options created a Patient Decision Support Tool

The CLL Society + Clinical Care Options created this Clinical Care Options Interactive Decision Support Tool! Check it out:...

The CLL Society + Clinical Care Options created this Clinical Care Options Inter...

bkoffman

CLL CURE Hero•4 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2020

Can I be cured of CLL?

Acalabrutinib Trial for COVID-19

CLL & Ibrutinib: bleeding, bruising and broken fingernails

CLL AND COVID-19

Covid and Life after 12 Weeks of Medical Isolation

I am in high risk group?

TO ALL MY CLL MEMBERS

Vancomycin taper, CDiff, and probiotics

Alc calculations

3 Months of Imbruvica update

Shielding letter from Scottish Goverment

🐇🐇Wishing you all a happy Easter🐇🐇

Wishes

Are these early symptoms of cll?

Tea now ?

UK Webinar - Corona-virus and CLL - video now available

Face sores side effects from imbruvica

Bone marrow biopsy

Good morning

Leukaemia Care Webinar 8th April - a bit more information

IVIG infusions - Covid

World's largest trial of potential Coronavirus treatments being rolled out across the UK - RECOVERY Trial

Just to add to the confusion..

CLL Society & CancerCare Update on Chronic Lymphocytic Leukemia (CLL)

Is the skin around the lower left side tender to the touch(like a burn) if there's a spleen problem?

Possible use of ivermectin to coronavirus

Further text from NHS re Coronavirus.

Text from gov.uk confusion

Swollen legs

CLL Society & Clinical Care Options created a Patient Decision Support Tool

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