Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2020

CLL REMISSION.

I am in remission from CLL, since Christmas 2019. How can I tell if it is coming back, because I can't have blood tests at the moment, due to lock down. My...

I am in remission from CLL, since Christmas 2019. How can I tell if it is coming...

Hidden

•4 years ago

26 Replies

COVID19 Antibody tests and the current state of play

The image shows COVID19 in yellow entering a cell. Touted as society’s way out of widespread lock downs, scientists say the true potential of these rapidly...

The image shows COVID19 in yellow entering a cell. Touted as society’s way out ...

Jm954

Administrator•4 years ago

4 Replies

Leg pain

Does any one else have really bad leg pain with their CLL/SLL?

Packers46

•4 years ago

16 Replies

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CLL Medications and Corona Virus

I read a fascinating transcript of a moderated meeting between a Patient Power host and three very talented CLL Specialists. It had to do with the latest CLL...

I read a fascinating transcript of a moderated meeting between a Patient Power h...

wizzard166

•4 years ago

18 Replies

Water retention

I have been bothered by swollen feet, ankles and now the calves of my legs. I have been on Ibrutinib for 4 months now and more recently (6weeks) on weekly...

I have been bothered by swollen feet, ankles and now the calves of my legs. I ha...

Marber

•4 years ago

3 Replies

Please pass a tissue

I've had a cold non - stop for three months. How do I get rid of it ? I've had CLL for about twelve years and am still in the W&W stage.

I've had a cold non - stop for three months. How do I get rid of it ? I've had ...

Jcilom

•4 years ago

10 Replies

Marginal Zone Lymphoma (MZL) or Aggressive/Transformed CLL?

Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-. Are these accurate, and what are other key markers, including genetic...

Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-....

Phs2385

•4 years ago

12 Replies

Coronavirus

With all the uncertainties around this health emergency. FutureLearn have a free short online course that you can easily join anywhere in the world. I have...

With all the uncertainties around this health emergency. FutureLearn have a free...

HappyDave

•4 years ago

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imbruvica

How long has anyone been on Imbruvica and how are you feeling.

brooklyn7672

•4 years ago

11 Replies

Capsule almost empty?

My Ridellan 20 mg extended release white capsules that say G 20 mg 013 are barely halfway full with beads is that normal?

My Ridellan 20 mg extended release white capsules that say G 20 mg 013 are barel...

Kayleigh513

•4 years ago

2 Replies

What about getting some exercise ?

I am on W&W having been diagnosed with CLL two years ago. I was checked in January and no treatment is planned any time in the near future. We are quarantining...

I am on W&W having been diagnosed with CLL two years ago. I was checked in Janua...

FairweatherSailor

•4 years ago

33 Replies

Well what next

Hello you lovely, lovely people. you gave so much support, just about receiving my husbands medicine. He has just had his 3 month blood review and the the...

Hello you lovely, lovely people. you gave so much support, just about receiving ...

popys

•4 years ago

7 Replies

Antibodies for COVID-19

There have been several discussions about tests for antibodies and whether everyone develops resistance after contracting COVID-19. - The CLL Society is...

There have been several discussions about tests for antibodies and whether every...

lankisterguy

Volunteer•4 years ago

3 Replies

Simple, practical ways to improve our immune systems

Here are some great tips from Professor Janet Lord (University of Birmingham, UK). https://www.youtube.com/watch?v=k6_zJtbzMho I like this woman. I like...

Here are some great tips from Professor Janet Lord (University of Birmingham, UK...

PaulaS

Volunteer•4 years ago

54 Replies

Zinc with Green Tea?

Zinc has some anti-viral properties (it is also toxic in large doses) and green tea has two chemicals that make zinc more available to the body (quercetin and...

Zinc has some anti-viral properties (it is also toxic in large doses) and green ...

HowardR

•4 years ago

32 Replies

Dry, wet, barking, hacking: a guide to coughs in the time of coronavirus when you are immune compromised with CLL

"Coughs are a valuable diagnostic tool, but how do you know if you’ve got a relatively harmless cough, a coronavirus cough – or something else...

"Coughs are a valuable diagnostic tool, but how do you know if you’ve got a rela...

AussieNeil

Founder Admin•4 years ago

4 Replies

The BTK-inhibitor ibrutinib may protect against pulmonary injury in COVID-19 infected patients

"Ibrutinib and possibly other BTK-inhibitors may therefore provide protection against lung injury, and even improve pulmonary function in hypoxic patients...

"Ibrutinib and possibly other BTK-inhibitors may therefore provide protection a...

avzuclav

•4 years ago

3 Replies

What occurs if I don’t treat CLL?

My Oncologist suggests it may be time to begin treatment with targeted therapies. I can find a slew of information regarding side effects of each of the drugs....

My Oncologist suggests it may be time to begin treatment with targeted therapies...

Pokerguy

•4 years ago

41 Replies

NOVA: Flow Cytometry demo 40 min into show

https://www.pbs.org/wgbh/nova/video/cubas-cancer-hope/ Showing cooperation between Roswell in Rochester NY and Cuba. Biotech ventures together. Graphic...

https://www.pbs.org/wgbh/nova/video/cubas-cancer-hope/ Showing cooperation betw...

db601

•4 years ago

Be the first to reply

Treatment options CLL 73 year old male with AFib.

Hello everyone I have a question. My Dad has CLL his WBC is 74,000. He has a swollen lymp node in his neck that is very large. He is 73 with AFib what drug is...

Hello everyone I have a question. My Dad has CLL his WBC is 74,000. He has a swo...

grace2017

•4 years ago

10 Replies

What time do you take your IB

Hey y’all just a question as to when is the optimum time to take Ibrutinib. I take mine at 3:30 pm everyday Thanks Steve

Hey y’all just a question as to when is the optimum time to take Ibrutinib. I ta...

steve_canada

•4 years ago

32 Replies

ALL of us with CLL are immune compromised, so what does it mean to be immunocompromised? Why does this increase our risk of coronavirus?

ALL of us with CLL are immune compromised to some extent, more so during treatment. CLL adversely impacts our immunity in many ways, not only by...

ALL of us with CLL are immune compromised to some extent, more so during treatme...

AussieNeil

Founder Admin•4 years ago

18 Replies

CLL Treatment

I started Imbruvica 2 days ago . 420MG. Today is the third day and experiencing fever of 38C. When the shivering stopped I decided to check my temperature so...

I started Imbruvica 2 days ago . 420MG. Today is the third day and experiencing ...

Kmegood

•4 years ago

27 Replies

Paraimmunoblasts?

Hi all, The doctor told me my father has paraimmunoblastic cells which make the cancer even more aggressive. Does anyone have experience with this; do any...

Hi all, The doctor told me my father has paraimmunoblastic cells which make the ...

Phs2385

•4 years ago

1 Reply

UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can - repeat request

***This is a repeat request, please complete if you can.*** UK CLL Forum is the special interest group for medical doctors in UK with an interest and working...

***This is a repeat request, please complete if you can.*** UK CLL Forum is the ...

Jm954

Administrator•4 years ago

2 Replies

For those on Watch and Wait......

Not sure if this has appeared on the Group already......but released this week, the website Medscape has this article.... 'New Score Predicts When Patients...

Not sure if this has appeared on the Group already......but released this week, ...

NavyDavy

•4 years ago

4 Replies

B-PLL: Ibrutrinib Monotherapy or Obinutuzumab (aka Gazyva) & Venetoclax Combination as first-line treatment for transformed CLL

Hi Everyone, I'm new to this group. My Dad has CLL with a B-PLL transformation in his lymph nodes. He has good genetic markers (TP53 unmutated, 17P undeleted)...

Hi Everyone, I'm new to this group. My Dad has CLL with a B-PLL transformation i...

Phs2385

•4 years ago

37 Replies

Pictorial reminder ❤️

Not that we CLLers really need one but I thought this was clever. Jackie, just about to go into the garden 😊

Not that we CLLers really need one but I thought this was clever. Jackie, just...

Jm954

Administrator•4 years ago

13 Replies

CLL Society invites you to submit your questions for Live Virtual Community Meeting this Friday, April 17th

CLL Society invites you to submit your questions! Live Q & A with Dr. Alexey Danilov Dr. Mazyar Shadman Dr. Brian Koffman Lab Scientist Susan Leclair...

CLL Society invites you to submit your questions! Live Q & A with Dr. Alexey Dan...

bkoffman

CLL CURE Hero•4 years ago

4 Replies

Why in times of COVID-19 you should not walk/run/bike close behind each other.

In a lot of countries walking, biking and jogging are welcome activities in these times of COVID-19. However, it is important to note that you need to avoid...

In a lot of countries walking, biking and jogging are welcome activities in thes...

Jm954

Administrator•4 years ago

29 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2020

CLL REMISSION.

COVID19 Antibody tests and the current state of play

Leg pain

CLL Medications and Corona Virus

Water retention

Please pass a tissue

Marginal Zone Lymphoma (MZL) or Aggressive/Transformed CLL?

Coronavirus

imbruvica

Capsule almost empty?

What about getting some exercise ?

Well what next

Antibodies for COVID-19

Simple, practical ways to improve our immune systems

Zinc with Green Tea?

Dry, wet, barking, hacking: a guide to coughs in the time of coronavirus when you are immune compromised with CLL

The BTK-inhibitor ibrutinib may protect against pulmonary injury in COVID-19 infected patients

What occurs if I don’t treat CLL?

NOVA: Flow Cytometry demo 40 min into show

Treatment options CLL 73 year old male with AFib.

What time do you take your IB

ALL of us with CLL are immune compromised, so what does it mean to be immunocompromised? Why does this increase our risk of coronavirus?

CLL Treatment

Paraimmunoblasts?

UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can - repeat request

For those on Watch and Wait......

B-PLL: Ibrutrinib Monotherapy or Obinutuzumab (aka Gazyva) & Venetoclax Combination as first-line treatment for transformed CLL

Pictorial reminder ❤️

CLL Society invites you to submit your questions for Live Virtual Community Meeting this Friday, April 17th

Why in times of COVID-19 you should not walk/run/bike close behind each other.

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2020

CLL REMISSION.

COVID19 Antibody tests and the current state of play

Leg pain

CLL Medications and Corona Virus

Water retention

Please pass a tissue

Marginal Zone Lymphoma (MZL) or Aggressive/Transformed CLL?

Coronavirus

imbruvica

Capsule almost empty?

What about getting some exercise ?

Well what next

Antibodies for COVID-19

Simple, practical ways to improve our immune systems

Zinc with Green Tea?

Dry, wet, barking, hacking: a guide to coughs in the time of coronavirus when you are immune compromised with CLL

The BTK-inhibitor ibrutinib may protect against pulmonary injury in COVID-19 infected patients

What occurs if I don’t treat CLL?

NOVA: Flow Cytometry demo 40 min into show

Treatment options CLL 73 year old male with AFib.

What time do you take your IB

ALL of us with CLL are immune compromised, so what does it mean to be immunocompromised? Why does this increase our risk of coronavirus?

CLL Treatment

Paraimmunoblasts?

UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can - *repeat request*

For those on Watch and Wait......

B-PLL: Ibrutrinib Monotherapy or Obinutuzumab (aka Gazyva) & Venetoclax Combination as first-line treatment for transformed CLL

Pictorial reminder ❤️

CLL Society invites you to submit your questions for Live Virtual Community Meeting this Friday, April 17th

Why in times of COVID-19 you should not walk/run/bike close behind each other.

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can - repeat request