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CLL Support

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All posts for April 2020

UK Zoom meeting - COVID-19 and shielding update for UK CLL Patients

ZOOM invite details below May 7, 2020, 10:00 AM - Webinar - COVID-19 and shieldi...
Jm954 profile image
Administrator

Found a lump 🤔

Hi, new member here, just hoping for some general advice? I got my diagnosis 3 ...
Tinkataz profile image

Covid-19 Vaccines

If the vaccine that they are developing for coved-19 is a live vaccine, what doe...
Budd77 profile image
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Surviving Covid19

I am new to this forum. I was diagnosed with CLL 12 years ago and was on watch a...
Fenella profile image

Shielding letter

Can I thank everyone for their advice . It has taken 3 weeks nearly and a lot of...

Scenarios for ending lockdown and how this will impact on those with CLL

In encouraging news for the world, New Zealand and Australia have done so well b...
AussieNeil profile image
Administrator

good news and bad news

Good news & bad news today . I had my rutine blood sample taken yesterday and Dr...
antonb profile image

Shielding letter from NHE

I received my shielding letter from NHE today. I am on watch & wait. I’ll see if...
Miggins60 profile image

Leukemia And COVID-19

I wanted to get the link to this article on our site the moment I read it this M...
wizzard166 profile image

Venetoclax 17p patient

Just a question, I read an article of a profesionals about Venetoclax responses,...
Cgr2018 profile image

Sheilding letter - I got one

Hi All I received this email see below - then forwarded it to my Dr surgery and...

Dr. Neil Kay: CLL Society Webinar, Just Diagnosed: What Do I Need to Know?

HI, Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to ...
bkoffman profile image
CLL CURE Hero

Imbruvuca cost one last time.

I have rechecked all the figures, have again called Diplomat Pharmacy. My last p...
DelrayDave profile image

Good news

I had my Pet/Cat scan at last and the good news is I do not have Ritchers Transf...
JanEyre profile image

Imbruvica and Gazyva

Newly diagnosed with CLL in January 2020 with del(17p) TP53 mutation. I have bee...
HeyWhat72 profile image

Has anyone experience face and neck swelling while taking Imbruvica?

I have been on Imbruvica for 9 months. I had a rocky start and encountered many ...
lizfuccillo profile image

Can't accept CLL diagnosis.

Hello. I have posted a couple of posts before. My history is I was diagnosed wit...
Dracaena profile image

Mouth ulcer that does not go away.

Hey gang hope everyone's safe and not going crazy locked up in the home. I was ...
Michael199 profile image

Going down the allotment

Hi people I am at stage A with something like 300 white cells count. My allotmen...
anapurna profile image

Ventoclax. Node bigger than 2 months ago

On febrery, the lab tests of my brother are wonderful. Everything is great, and ...
Cgr2018 profile image

Imbruvica cost exact figures

I now have from my part D insurer (United Health Care) the exact figures. It see...
DelrayDave profile image

Covid-19: What, if anything, can we learn from integrative oncology experts?

I have just read a long article addressing possible concrete responses to Covid-...
hsouter profile image

Is everyone with CLL on the UK Government Vulnerable/Shielding List ?

I am 2 years into W&W and still have no symptoms. I was advised in January that ...

Dapsone and Diabetes

Hi, I was diagnosed with CLL 17 years ago, and am now on Ibrutinib and Privigen....
Gary53 profile image

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for prevention

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for preve...
hsouter profile image

Update On COVID 19 AND STROKES

I realize that this article has nothing to do with CLL, but as a member of this ...
wizzard166 profile image

Covid-19: Another good reason to get control our blood sugars?

Farxiga Tested as COVID-19 Tx; Intensify Metabolic Control for Prevention “New ...

ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating scarce resources

ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating s...

Can Boosting Nitric Oxide Prevent Coronavirus? Forum Know-it-alls what's your opinion.

Prevent Coronavirus by boosting Nitric Oxide in blood. Eating Beetroot garlic fr...
Hidden profile image

Just beginning...

This is my first post. I have nothing to contribute so far. Had first visit with...
redhead1287 profile image