Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2020

Long time CLL survivor

Yesterday I meat a gentleman who has been in watch and wait for twenty years with no treatment. I guess that he is one of the lucky ones although his wife...

Yesterday I meat a gentleman who has been in watch and wait for twenty years wit...

noeagaman

•4 years ago

3 Replies

Bence Jones Protein

I recently went for tests for osteoporosis. The urine test came back positive for Bence Jones protein Kappa. My hematologist has ordered a follow up blood...

I recently went for tests for osteoporosis. The urine test came back positive fo...

JKDLED

•4 years ago

7 Replies

Atypical cll

After 4 months of test I have been diagnosed with Atypical cll and would just like to know the difference between Atypical cll and cll my cns said it is a...

After 4 months of test I have been diagnosed with Atypical cll and would just li...

Cunard

•4 years ago

11 Replies

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Treatment does not have to be something to dread

I had so many symptoms before I started treatment. Stomach issues - I was referred to a Gastrologist, ear issues - I was referred to an ENT, I had hearing...

I had so many symptoms before I started treatment. Stomach issues - I was refe...

aquafinn

•4 years ago

15 Replies

Has anyone had these problems with chemo

First diagnosed with CCL in Sept. 2019,from that that time to Jan. 2020 my WBC has gone from 15 to 68.In Jan. 2020 my RBC was 2.75, HGB 79, PLT 91, I was also...

First diagnosed with CCL in Sept. 2019,from that that time to Jan. 2020 my WBC h...

laldoroty

•4 years ago

5 Replies

Root Canals and Wisdom Teeth

There’s a DDS out there that write a book about the correlation between failed root canals and CLL. The theory is that the anaerobic bacteria harbored within a...

There’s a DDS out there that write a book about the correlation between failed r...

tkstat

•4 years ago

11 Replies

Mutated and unmutated cll for dummies

When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just...

When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard w...

cajunjeff

•4 years ago

53 Replies

Travel advice.

Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We are in Scotland. Read that it was not required to get injections however I’m...

Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We ...

Billys60

•4 years ago

7 Replies

Treatment for CLL

Treatment for CLL does anyone know at what # WBC and #Lym? Do Doctors start treatment?

Treatment for CLL does anyone know at what # WBC and #Lym? Do Doctors start tr...

India12345

•4 years ago

12 Replies

Beta 2 Microglobulin

I just had my first visit at Dana Farber, and thank God I went there. Back home my hematologist hadn't run much more than ongoing WBC Differential; although,...

I just had my first visit at Dana Farber, and thank God I went there. Back home...

wizzard166

•4 years ago

40 Replies

New form of cancer

Hubby has CLL which has been brought under control with Ibrutinib. He has just been diagnosed with small bowel Cancer and awaiting discussions over treatment....

Hubby has CLL which has been brought under control with Ibrutinib. He has just b...

fussybritches

•4 years ago

6 Replies

Massive Bruising on Left Thigh

I have recently changed from Ibrutinib capsules (140mg x 3) to one 420mg tablet. I went to Turkey last week on a golfing holiday (six rounds, 1 walking & 5...

I have recently changed from Ibrutinib capsules (140mg x 3) to one 420mg tablet....

Wessex

•4 years ago

6 Replies

Acalabrutinib and Coffee

Best time to have coffee while taking Acalabrutinib.

Carl123

•4 years ago

2 Replies

Bay Bay Sashimi, brie and feta with Ibrutinib

Does anybody tried or know about raw fish, brie and feta with ibrutinib (or acalabrutinib)?

Does anybody tried or know about raw fish, brie and feta with ibrutinib (or acal...

Mik_

•4 years ago

10 Replies

Low LY#?

Hi everybody, Just got some labs back: oncologist is pleased, WBC is good, RBC is good, HGB is good, ANC is good ... but my “LY#” (and %) is low. The doctor...

Hi everybody, Just got some labs back: oncologist is pleased, WBC is good, RBC i...

DRM18

•4 years ago

18 Replies

Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)

"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these...

"To date, no prospective trials have directly compared ibrutinib with venetoclax...

avzuclav

•4 years ago

7 Replies

Emotional effects of CLL?

Hi! My name is Alec Trifilo and I am a student conducting a research experiment on the levels of anxiety, depression, and stress in patients with cancer. If...

Hi! My name is Alec Trifilo and I am a student conducting a research experiment ...

alecsanto

•4 years ago

2 Replies

Long term imbruvica users.....

Has anyone been on imbruvica for over 5yrs? Drs only seem to talk about 5yrs. They never mention anything beyond that. My bf has been on it with no side...

Has anyone been on imbruvica for over 5yrs? Drs only seem to talk about 5yrs. Th...

Beefcakesgirl

•4 years ago

39 Replies

Martyn - 19/02/2020 ♥️

I just wanted to let you know that Martyn lost his battle on Wednesday. He passed away surrounded by all his family. I know he enjoyed communicating with you...

I just wanted to let you know that Martyn lost his battle on Wednesday. He passe...

MartyR

•4 years ago

56 Replies

Acalabrutinib — Penetration to the Spine

I have stage 4 NHL, CLL/SLL 11q. I received my diagnosis on 12/27/2019 and have not started treatment yet. I have enlarged liver, spleen, and lymph nodes. A...

I have stage 4 NHL, CLL/SLL 11q. I received my diagnosis on 12/27/2019 and have ...

DylanPxxx

•4 years ago

2 Replies

CART T CELL THERAPY

https://immuno-oncologynews.com/2020/02/19/cirmtuzumab-car-t-cell-therapy-shows-strong-sustained-activity-against-leukemia-in-mouse-model/ Apologies if...

https://immuno-oncologynews.com/2020/02/19/cirmtuzumab-car-t-cell-therapy-shows-...

Wroxham

•4 years ago

2 Replies

Acalabrutinib CBC problems

Been on Acalabrutinib for 3 months ,no leg pain or fatigue that I had with Ibrutinib . Initially had mouth sores and rashes and itching ... all gone or...

Been on Acalabrutinib for 3 months ,no leg pain or fatigue that I had with Ibru...

fish61

•4 years ago

5 Replies

AMAZING HERBS! VITAMINS! AND SUPPLEMENTS! TO GIVE CANCER A PUNCH💪!!!

ALOE VERA GEL , AMLA: Highest antiox.on Earth! APRICOT KERNELS, Apricot seed, MORINGA: Amazing Superfood! powder form is great! Super greens powder too!...

ALOE VERA GEL , AMLA: Highest antiox.on Earth! APRICOT KERNELS, Apricot seed, M...

debdetermine58

•4 years ago

23 Replies

Ibrutinib (acalabrutinib)

Acalabrutiunib/ibrutinib Can anybody share if you manage to work as "normal" and if your job requires to travel? how long it takes adaptation to pills? what...

Acalabrutiunib/ibrutinib Can anybody share if you manage to work as "normal" an...

Mik_

•4 years ago

4 Replies

Imbruvica-Mouth Sores

I started Imbruvica 420 mg a month ago. I am having a real problem with mouth sores. Anybody else?

I started Imbruvica 420 mg a month ago. I am having a real problem with mouth so...

Wahoowa

•4 years ago

26 Replies

Switching from 3 Imbruvica capsules to 1 420 mg Tablet

Has anyone had a problem switching to the Imbruvica tablet? I am having some new side effects and possibly having an allergy, itching. I have stopped until I...

Has anyone had a problem switching to the Imbruvica tablet? I am having some new...

Zeit

•4 years ago

7 Replies

Side effect or sickness?

I was on Augmentin for a sinus infection. On the last day of the antibiotic, January 31st, I started taking imbruvica/ibutinib. The next day I felt great....

I was on Augmentin for a sinus infection. On the last day of the antibiotic, Ja...

siciliansoul

•4 years ago

11 Replies

Risk of infection with rectal surgery? (Nottingham, UK)

CLL diagnosis 6 years ago, not yet in treatment, lymphocytes low and stable, but recently diagnosed with anaemia, prompting bowel investigations. Two polyps...

CLL diagnosis 6 years ago, not yet in treatment, lymphocytes low and stable, but...

Hidden

•4 years ago

7 Replies

Lab Report - first sight today

Last week I saw a haematologist oncologist and CLL was confirmed. The appointment lasted 5 minutes, no information offered. I've asked for the lab report....

Last week I saw a haematologist oncologist and CLL was confirmed. The appointmen...

Alobs

•4 years ago

10 Replies

Life with cll. Another new concern.

Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils...

Hi everyone, My last post was three weeks ago just after I had my tonsillectomy...

Suzuki1000

•4 years ago

22 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2020

Long time CLL survivor

Bence Jones Protein

Atypical cll

Treatment does not have to be something to dread

Has anyone had these problems with chemo

Root Canals and Wisdom Teeth

Mutated and unmutated cll for dummies

Travel advice.

Treatment for CLL

Beta 2 Microglobulin

New form of cancer

Massive Bruising on Left Thigh

Acalabrutinib and Coffee

Bay Bay Sashimi, brie and feta with Ibrutinib

Low LY#?

Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)

Emotional effects of CLL?

Long term imbruvica users.....

Martyn - 19/02/2020 ♥️

Acalabrutinib — Penetration to the Spine

CART T CELL THERAPY

Acalabrutinib CBC problems

AMAZING HERBS! VITAMINS! AND SUPPLEMENTS! TO GIVE CANCER A PUNCH💪!!!

Ibrutinib (acalabrutinib)

Imbruvica-Mouth Sores

Switching from 3 Imbruvica capsules to 1 420 mg Tablet

Side effect or sickness?

Risk of infection with rectal surgery? (Nottingham, UK)

Lab Report - first sight today

Life with cll. Another new concern.

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