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CLL Support

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All posts for November 2019

BLOODWISE Meet Scientist 25 Nov 14:15-17:15 GMT

On Monday we'll be live streaming our Meet the Scientists event, which will feature some fascinating talks from leading blood cancer researchers. To hear about...

On Monday we'll be live streaming our Meet the Scientists event, which will feat...

Myrddin

•4 years ago

2 Replies

WW?

A lot of posts talk about people being on WW. What do the letters WW mean with respect to CLL?

A lot of posts talk about people being on WW. What do the letters WW mean with r...

ritainpsl

•4 years ago

2 Replies

To Go or Not To Go

Well; here it is flu and cold season and Thanksgiving is almost here in the US. I'm supposed to fly next Tuesday to see family and the airline has said expect...

Well; here it is flu and cold season and Thanksgiving is almost here in the US. ...

ladyprescott

•4 years ago

17 Replies

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B Cell PLL, Extreme Fatigue, On ibrutinib, Chest infection, Low Haemoglobin

My father, 65 years old, was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He received 6 cycles of Chemotherapy (Rituximab+Bendamestine) Aug. 17...

My father, 65 years old, was diagnosed with B Cell Prolymphocitic Leukemia in Ma...

B-PLL_Pakistan

•4 years ago

3 Replies

CLL and other cancers.

Has anyone heard of a cancer treatment using pure maple syrup and baking soda? 3 parts syrup and 1 part baking soda.

Has anyone heard of a cancer treatment using pure maple syrup and baking soda? 3...

suncity18

•4 years ago

32 Replies

Newbie

Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to...

Hey CLLers, I found this website and looks like I found a new family. I'll soon ...

louie48

•4 years ago

10 Replies

Some concerns about continuing oncologist visits!

Well I usually don't post but read the post from other people. Here is what I get out of this. I was diagnosed in April of 2017. Prognoses is good. I have had...

Well I usually don't post but read the post from other people. Here is what I ge...

CharlesLove

•4 years ago

32 Replies

Shingrix Vaccine

Dear fellow CLL patients, I am trying to decide if I should have the shingrix shot. I know many CLL specialists recommend it, but not all (Dr Kipps and Dr...

Dear fellow CLL patients, I am trying to decide if I should have the shingrix s...

bmbclaims

•4 years ago

46 Replies

Cancer Fatigue and Getting Through the Holidays

The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register:...

The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for...

lankisterguy

Volunteer•4 years ago

2 Replies

INDIAN IMBRUVICA

A few months ago an article/post was published regarding an Indian Drug company filing for approval by USFDA for generic Imbruvica. Is anybody aware of how the...

A few months ago an article/post was published regarding an Indian Drug company ...

fossicker

•4 years ago

4 Replies

Good news

Had my every 10 yr colonoscopy this AM and all good. Next one in 10 years. Yahoo. Back of ibrutinib that I held for 3+ days before. No lymph nodes bouncing up...

Had my every 10 yr colonoscopy this AM and all good. Next one in 10 years. Yahoo...

bkoffman

CLL CURE Hero•4 years ago

24 Replies

Transformation Confirmed - Likely Richter’s

My doctor called yesterday and confirmed my PET from last week shows definite transformation and the PA called today to say it’s likely Richter’s (forgot to...

My doctor called yesterday and confirmed my PET from last week shows definite tr...

SarasotaPaul

•4 years ago

49 Replies

Plasma cell Leukemia

What is the treatment for Plasma cell Leukemia?

Mkmund

•4 years ago

4 Replies

Is a Keto diet helpful?

Hi has anyone tried a keto diet? I was recently diagnosed with CLL and thought I'd see how diet could help. For two weeks I was on a Keto diet and then...

Hi has anyone tried a keto diet? I was recently diagnosed with CLL and thought I...

Research123

•4 years ago

40 Replies

Support

I was diagnosed in November 2018 and could really have done with speaking to others with the condition. I am trying to start a support group. Where are you in...

I was diagnosed in November 2018 and could really have done with speaking to oth...

kitchengardener2

•4 years ago

6 Replies

Week 3 of Ibrutinib. Ear problems

I’m m on week three of Ibrutinib and the glands in my neck hurt as well as my ears. Is this normal?

I’m m on week three of Ibrutinib and the glands in my neck hurt as well as my ea...

Mjklover

•4 years ago

5 Replies

CLL under 30

Hi, I’ve seen a post about young people being diagnosed with CLL and this appears to be people in their 30’s. I’m wondering if anyone has any information on...

Hi, I’ve seen a post about young people being diagnosed with CLL and this appear...

Courtney151

•4 years ago

14 Replies

Remembering my Dad, Chris Dwyer on his birthday.

Hi all, thanks to Paula for encouraging me to post here. In the days following my dads death I found peace in making a playlist of all his favorite songs....

Hi all, thanks to Paula for encouraging me to post here. In the days following ...

tara_mann

•4 years ago

52 Replies

Small sores that will not go!

Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one...

Just want some advice please. It’s my third month on Ibrutinib and all going rea...

Jooby59

•4 years ago

20 Replies

And here's to Year 7

Delighted to say today marks the start of my 7th year of watch & wait!! Was more concerned than I've been on previous annual checks because I've had a couple...

Delighted to say today marks the start of my 7th year of watch & wait!! Was more...

G1llHa1n

•4 years ago

11 Replies

News about V+O and Acalabrutinib from EHA

Hi, The future of CLL therapy we believe will include fixed duration treatments of non-chemo drugs. In this interview from EHA 2019, Dr. Peter Hillman...

Hi, The future of CLL therapy we believe will include fixed duration treatments ...

bkoffman

CLL CURE Hero•4 years ago

30 Replies

Navy corpsman serving at Camp Lejune

I am 79 years old, Live in Canada but served at Camp Lejune NC from 1959-1961. A few years ago I found out that agent orange got into the water there. At this...

I am 79 years old, Live in Canada but served at Camp Lejune NC from 1959-1961. A...

laldoroty

•4 years ago

16 Replies

Fever and pain

Hello here i’m again after going the the hospital last night due the fever and pain. I have been diagnosed with a urinary infection and i’m going to take...

Hello here i’m again after going the the hospital last night due the fever and ...

Deta1961

•4 years ago

4 Replies

Stopping Ibrutinib

Have to share this episode of CLL ...Last week i posted about leg muscles problem and Stopping Ibrutinib , All answers were helpful ... Aussie Neil suggested...

Have to share this episode of CLL ...Last week i posted about leg muscles proble...

fish61

•4 years ago

63 Replies

Treatment Coverage Under Medicare

Hello everyone, My husband is Medicare eligible and currently on watch and wait, but he is nearing treatment most likely with a drug such as Imbruvica or...

Hello everyone, My husband is Medicare eligible and currently on watch and wait,...

bingbang

•4 years ago

30 Replies

First line above at 69Y: Venetoclax vs Ibrutinib vs BR

Hello All, After consulting 3 of the best available doctors I could find all of the suggest different options and its up to us to chose. So far: 1)...

Hello All, After consulting 3 of the best available doctors I could find all of...

paula_dae

•4 years ago

13 Replies

WBC SWINGS

My husbands WBC has gone from 28 to 47 in less than a week. He has been sick for a few weeks. Could that be why? Also when he was last checked in July his WBC...

My husbands WBC has gone from 28 to 47 in less than a week. He has been sick for...

Chewy5

•4 years ago

1 Reply

AMD Drugs... yes or no?

AMD perhaps... doc wants me on prednisolone acetate and nepafenac ophthalmic susp. drugs for 6 weeks... and I'm concerned it will give me a problem with my...

AMD perhaps... doc wants me on prednisolone acetate and nepafenac ophthalmic sus...

Butitisme

•4 years ago

2 Replies

One year good results with Imbruvica:

I was diagnosed with CLL in 2006 and on "watch and wait" until Oct. 2018. Then the hematologist got the results about my enlarged spleen and critical level CBC...

I was diagnosed with CLL in 2006 and on "watch and wait" until Oct. 2018. Then t...

vog292

•4 years ago

5 Replies

Chronic lymphocytic leukaemia by Dr Philip Thompson, MDAnderson

Video of Dr Philip Thompson talk Leukaemia Foundation on CLL

LawrenceofArabia

•4 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2019

BLOODWISE Meet Scientist 25 Nov 14:15-17:15 GMT

WW?

To Go or Not To Go

B Cell PLL, Extreme Fatigue, On ibrutinib, Chest infection, Low Haemoglobin

CLL and other cancers.

Newbie

Some concerns about continuing oncologist visits!

Shingrix Vaccine

Cancer Fatigue and Getting Through the Holidays

INDIAN IMBRUVICA

Good news

Transformation Confirmed - Likely Richter’s

Plasma cell Leukemia

Is a Keto diet helpful?

Support

Week 3 of Ibrutinib. Ear problems

CLL under 30

Remembering my Dad, Chris Dwyer on his birthday.

Small sores that will not go!

And here's to Year 7

News about V+O and Acalabrutinib from EHA

Navy corpsman serving at Camp Lejune

Fever and pain

Stopping Ibrutinib

Treatment Coverage Under Medicare

First line above at 69Y: Venetoclax vs Ibrutinib vs BR

WBC SWINGS

AMD Drugs... yes or no?

One year good results with Imbruvica:

Chronic lymphocytic leukaemia by Dr Philip Thompson, MDAnderson

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