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CLL Support

22,505 members • 38,654 posts

All posts for November 2019

What is Cellulitis?

I just got the second series of my pneumonia shot and second series of the new shingles shot, both in the same arm. By that same evening, my arm was swollen, I...

I just got the second series of my pneumonia shot and second series of the new s...

awoodiette

•4 years ago

36 Replies

Ibrutinib and Anti-Inflammatories

In the past if I ever got any muscular/body aches or pains I use to take an anti- inflammatory Voltaron EC. Usually one dose only was...

In the past if I ever got any muscular/body aches or pains I ...

fossicker

•4 years ago

11 Replies

Long time DX,SORT TIME TMT

I was diagnosed with CLL in 1995. I’ve been on W&W until this year in Sept. at age 86. Treatment was initiated Ibrutinib 140mg, orally per diem. I’ve positive...

I was diagnosed with CLL in 1995. I’ve been on W&W until this year in Sept. at ...

desti

•4 years ago

11 Replies

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New Study: Study of Ibrutinib Resistance Development and Intervention with Venetoclax in CLL

The Ohio state University, Columbus This phase 2 study is designed to follow CLL pts taking Ibrutinib and at high risk for resistance (observation cohort) and...

The Ohio state University, Columbus This phase 2 study is designed to follow CLL...

Jm954

Administrator•4 years ago

3 Replies

Does first night sweats mean CLL progressed

86 year old female.. Have been feeling fatigued ..slightly out of breath after walking a while..no interest in usual things..not falling but swaying when...

86 year old female.. Have been feeling fatigued ..slightly out of breath after w...

poppykraus

•4 years ago

7 Replies

Debulking Eliminates Need for Hospitalization Prior to Initiating Venetoclax Therapy in untreated CLL pts

This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cell death caused by the targeted activity of venetoclax, some patients require...

This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cel...

Jm954

Administrator•4 years ago

11 Replies

Thank you

I’m sorry I haven’t written before but not sure what to write besides the cells are in me but it takes a few MONTHS to know if it works! In the meantime I’ve...

I’m sorry I haven’t written before but not sure what to write besides the cells ...

rlyndecker

•4 years ago

11 Replies

Happy Thanksgiving Babies!!!!💓💓

Wishing all my Cll Friends a Healthy safe Thanksgiving

kollock93

•4 years ago

7 Replies

USA Brave People

Happy Thanksgiving Just checking to see which brave souls are willing to brave the after thanksgiving holiday Black Friday sales! The crush of bodies and germs...

Happy Thanksgiving Just checking to see which brave souls are willing to brave t...

Big_Dee

•4 years ago

18 Replies

ASH 2019

Hi, Off to ASH soon with about 20 interviews with top researchers already scheduled, scores of oral and poster sessions to attend and a chance to present our...

Hi, Off to ASH soon with about 20 interviews with top researchers already schedu...

bkoffman

CLL CURE Hero•4 years ago

10 Replies

IBRUTINIB-side effects

Hi everyone,my name is Anthony,I'm 53,have had CLL since 2005,initially diagnosed with Non-Hodgkinsons,then rediagnosed with CLL,so far I've been through 3...

Hi everyone,my name is Anthony,I'm 53,have had CLL since 2005,initially diagnose...

Nickos66

•4 years ago

18 Replies

B-PLL Lymphoma

Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this...

Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to star...

Hidden

•4 years ago

22 Replies

Dr Michael Keating's Story - Taking CLL Therapies From Bedside to Community

A fascinating overview of one of the giants in CLL research, who provided many of us with the first treatment capable of prolonging life expectancy (FCR) and...

A fascinating overview of one of the giants in CLL research, who provided many o...

AussieNeil

Administrator•4 years ago

12 Replies

2019 Medicine International Price Index

Medbelle was conducting research into the cities with the best hospital systems and became aware that one of the biggest disparities across the world, when it...

Medbelle was conducting research into the cities with the best hospital systems ...

Jm954

Administrator•4 years ago

2 Replies

Clive James, Broadcaster, Writer and CLL patient dies

Clive James, the Australian writer and broadcaster known around the world for his dry wit, has died at the age of 80. Diagnosed with CLL in 2010, the author...

Clive James, the Australian writer and broadcaster known around the world for hi...

Jm954

Administrator•4 years ago

42 Replies

IVGH results

Hello. I am new to the group, just diagnosed this month. My last CBC showed absolute lymphocytes at 5280. I was feeling pretty good after my doctor explained...

Hello. I am new to the group, just diagnosed this month. My last CBC showed abso...

lmav

•4 years ago

8 Replies

Molecular Genetics and Prognosis in Younger Patients with CLL

While CLL is commonly diagnosed in older patients, there are ~15% of patients diagnosed at ages younger than 50. Several past studies have investigated...

While CLL is commonly diagnosed in older patients, there are ~15% of patients di...

Jm954

Administrator•4 years ago

5 Replies

Clinical Utility of Chromosomal Microarray in Richter's Transformation

Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes...

Chromosomal microarray (CMA) is clever, very sensitive technology which looks fo...

Jm954

Administrator•4 years ago

12 Replies

Muscle weakness.

Has anyone on ibrutinib experienced weakness in the legs?

tola2222

•4 years ago

7 Replies

ASH 2019: A Clinical Trial of Cannabis As Targeted Therapy for Indolent Leukemic Lymphoma

"Conclusion: This study demonstrates that it is safe to administrate a single dose of Sativex to elderly patients with indolent B-cell lymphoma with regards to...

"Conclusion: This study demonstrates that it is safe to administrate a single do...

avzuclav

•4 years ago

43 Replies

Grateful

With my Pilonidal Cyst surgery behind me, (Just realized how that sounds) I learned an important lesson on Caregivers. Since my diagnosis, I have been very...

With my Pilonidal Cyst surgery behind me, (Just realized how that sounds) I lea...

Sojomama13

•4 years ago

27 Replies

Newly diagnosed ?

I've just seen my GP.and been given this letter .I have had an examination but I'm asymptomatic so waiting a appointment with the haematologist .failing that...

I've just seen my GP.and been given this letter .I have had an examination but I...

pet-lamb

•4 years ago

9 Replies

So far so good.

I posted about 6 months ago that 1 round of FCR nearly killed me. My Hemoglobin dropped to 45 and I needed many transfusions. They decided to abandon treatment...

I posted about 6 months ago that 1 round of FCR nearly killed me. My Hemoglobin ...

Racing1961

•4 years ago

23 Replies

CALQUENCE gets FDA approval for treating CLL

The latest approval for Calquence (acalabrutinib), a Bruton tyrosine kinase (BTK) inhibitor, was granted under the FDA’s Real-Time Oncology Review and newly...

The latest approval for Calquence (acalabrutinib), a Bruton tyrosine kinase (BTK...

Myrddin

•4 years ago

11 Replies

CLL and skin issues/genetic markers

Hi everyone, I am a 67 yr old male and just had a visit to the hematologist. After reading many posts I realized I know very little about my cll. I asked...

Hi everyone, I am a 67 yr old male and just had a visit to the hematologist. Af...

Gman2

•4 years ago

17 Replies

I have irregular heartbeat and treatment

I have irregular heartbeat. Is it true that I can't take Ibrutinib or Venetoclax to treat my CLL. Is anyone familiar with this in the community. Thank You

I have irregular heartbeat. Is it true that I can't take Ibrutinib or Venetoclax...

Test_Tech

•4 years ago

13 Replies

Having a rough day

Having a really rough day with fatigue and leg pain. Grateful for the "Magic Mouthwash for these mouth sores

Having a really rough day with fatigue and leg pain. Grateful for the "Magic Mou...

Packers46

•4 years ago

16 Replies

Exhaustion from CLL

Tired from CLL. DIAGNOSED 26 months ago. So far my problem has been only tiredness. No other symptom. Is there a treatment for tiredness or must I live with...

Tired from CLL. DIAGNOSED 26 months ago. So far my problem has been only tiredn...

Brigidoon

•4 years ago

23 Replies

Dr. O'Brien on how she treats CLL frontline and Dr. Pagel on new ways to block BTK

Hi, In frantic mode heading to ASH. We had our poster accepted about research on our own free Expert Access Program. More on that later. If you have burning...

Hi, In frantic mode heading to ASH. We had our poster accepted about research on...

bkoffman

CLL CURE Hero•4 years ago

12 Replies

Updated Results: Combined Ibrutinib and Venetoclax for 1st lineTreatment for CLL

Michael J Keating et al Dec 2019 - ASH oral presentation Here they report updated data for the 80 pts with focus on MRD results. After 12 cycles of the...

Michael J Keating et al Dec 2019 - ASH oral presentation Here they report update...

Jm954

Administrator•4 years ago

38 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2019

What is Cellulitis?

Ibrutinib and Anti-Inflammatories

Long time DX,SORT TIME TMT

New Study: Study of Ibrutinib Resistance Development and Intervention with Venetoclax in CLL

Does first night sweats mean CLL progressed

Debulking Eliminates Need for Hospitalization Prior to Initiating Venetoclax Therapy in untreated CLL pts

Thank you

Happy Thanksgiving Babies!!!!💓💓

USA Brave People

ASH 2019

IBRUTINIB-side effects

B-PLL Lymphoma

Dr Michael Keating's Story - Taking CLL Therapies From Bedside to Community

2019 Medicine International Price Index

Clive James, Broadcaster, Writer and CLL patient dies

IVGH results

Molecular Genetics and Prognosis in Younger Patients with CLL

Clinical Utility of Chromosomal Microarray in Richter's Transformation

Muscle weakness.

ASH 2019: A Clinical Trial of Cannabis As Targeted Therapy for Indolent Leukemic Lymphoma

Grateful

Newly diagnosed ?

So far so good.

CALQUENCE gets FDA approval for treating CLL

CLL and skin issues/genetic markers

I have irregular heartbeat and treatment

Having a rough day

Exhaustion from CLL

Dr. O'Brien on how she treats CLL frontline and Dr. Pagel on new ways to block BTK

Updated Results: Combined Ibrutinib and Venetoclax for 1st lineTreatment for CLL

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