Posts - CLL Support | HealthUnlocked

CLL Support

22,623 members • 38,852 posts

All posts for October 2019

How long can CLL patients expect to have treatment.

Thought this brief video, some might find of interest. https://www.patientpower.info/video/how-long-can-cll-patients-expect-to-have-treatment?autoplay=1

Thought this brief video, some might find of interest. https://www.patientpower...

jdolinger

•5 years ago

6 Replies

FLOW CYTOMETRY

Hi, my husband 49 was diagnosed with MBL in 2018 April. Our hemototogyst wanted him to go for a flow cytometry last week. This is the report we got. We are...

Hi, my husband 49 was diagnosed with MBL in 2018 April. Our hemototogyst wanted ...

Rifka

•5 years ago

2 Replies

What is ERIC and Why Should We Care?

Dr. Stamatopolous is one of its directors and in these short videos he talks about ERIC in general and its first big meeting. He then discusses his research on...

Dr. Stamatopolous is one of its directors and in these short videos he talks abo...

bkoffman

CLL CURE Hero•5 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Mosquito bites

Hi there, I was diagnosed in 2018 at age 46. I’m on WW as the disease is progressing slowly. However, I do have a problem recovering from mosquito bites. I...

Hi there, I was diagnosed in 2018 at age 46. I’m on WW as the disease is progre...

TennisGreg

•5 years ago

12 Replies

Bone Marrow at 65% after 6 months Imbruvica and ^ months of Gazyva

My question is centered on expectations and bone marrow results. What is the expected bone marrow cellularity after 8 months of Imbruvica and 6 months of...

My question is centered on expectations and bone marrow results. What is the exp...

alijoel

•5 years ago

2 Replies

Imbruvica and elbow cyst

I have been on Imbruvica 25+ months. At midday today, I realized I have a golf ball sized bag of fluid on my left elbow. Have never had such a “cyst” before...

I have been on Imbruvica 25+ months. At midday today, I realized I have a golf ...

Agatesup

•5 years ago

4 Replies

CLLSA Newcastle meeting videos

for those not subscribed the videos from the Newcastle meeting are available on YouTube. ( search cllsa Newcastle) main talk by Dr Scott Marshall...

for those not subscribed the videos from the Newcastle meeting are available on ...

Myrddin

•5 years ago

1 Reply

MRD on venetoclax and ibrutinib

I have been on this Trial for 12 months,I was told my Blood showed MRD Negative at my last hospital visit,but was called today informing me that it now shows...

I have been on this Trial for 12 months,I was told my Blood showed MRD Negative ...

Hippo68

•5 years ago

34 Replies

Elevated Triglyceride level 12.9

After BR treatment in March this year from which I had a severe adverse reaction requiring 2 months in Hospital ,on life support etc. Kidney failure . Despite...

After BR treatment in March this year from which I had a severe adverse reaction...

Joffre1

•5 years ago

2 Replies

Night sweats ONION SCENT

My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get...

My wife has noted that my night sweats come with a strong onion scent in ...

lacroixx1

•5 years ago

4 Replies

Imbruvica and low platelets

I've been on imbruvica about 3 years. When I first started all my counts were low and my platelets were down to 11. Over time everything looked good and...

I've been on imbruvica about 3 years. When I first started all my counts were lo...

Jamstev71

•5 years ago

2 Replies

My CLL adventure

In Vietnam 1965...now diagnosed with CLL. My local VA Dr is a terrific help... can’t say enough good about Dr Yutz. Now dealing with the VA for disability...

In Vietnam 1965...now diagnosed with CLL. My local VA Dr is a terrific help... c...

JimboW

•5 years ago

18 Replies

CLL Society Weekly Alert- International activities

New this week! https://myemail.constantcontact.com/CLL-Society-Alert----October-15--2019.html?soid=1120967015548&aid=9zs_PnhBf2E This Alert focuses on ERIC,...

New this week! https://myemail.constantcontact.com/CLL-Society-Alert----Octob...

lankisterguy

Volunteer•5 years ago

Be the first to reply

Pnumonia

Hi ,just like to ask i have bronchietasis,and have i just had my flu jab ,but advised to get Pnumonia vacination aswell ,as l have a low immune system...

Hi ,just like to ask i have bronchietasis,and have i just had my flu jab ,but ad...

Lyla2018

•5 years ago

10 Replies

Arrhythmia on Ibrutinib

I started Ibrutinib 3 weeks ago, developed an arrhythmia after the first week and a half, was reduced from 3 capsules a day to 2. That was effective with no...

I started Ibrutinib 3 weeks ago, developed an arrhythmia after the first week an...

Hidden

•5 years ago

1 Reply

Lots of news

Hi, I have been negligent in posting all the news in our website so I need to catch up. Please be prepared for multiple interviews and articles at...

Hi, I have been negligent in posting all the news in our website so I need to ca...

bkoffman

CLL CURE Hero•5 years ago

4 Replies

CLL, the marathon, and me Thank you!

Just to say thanks to you all for the amazingly positive responses to my post 'CLL, the marathon, and me'. So many that I cannot respond to them all, hence...

Just to say thanks to you all for the amazingly positive responses to my post 'C...

Davdow

•5 years ago

Be the first to reply

Robbob 71

Hi all I am about to start treatment can anyone let me know of their experiences of being treated with B R .

Hi all I am about to start treatment can anyone let me know of their experiences...

Robbob71

•5 years ago

6 Replies

Supplements

Hi just wondered does anyone take a supplement like berocca to help energy levels?

Hi just wondered does anyone take a supplement like berocca to help energy level...

robertsw

•5 years ago

1 Reply

Mantle cell lymphoma

is anyone coping with Mantle cell lymphoma? I'm trying to track down some Lactobacillus Johnsonii which has been said to be helpful

is anyone coping with Mantle cell lymphoma? I'm trying to track down some Lactob...

1susiE

•5 years ago

Be the first to reply

What happens after venetoclax treatment?

My relative is coming up on one year of being on venetoclax. What is the next step after the treatment is over? A little uncertain of the path forward. Does...

My relative is coming up on one year of being on venetoclax. What is the next st...

Mav74

•5 years ago

31 Replies

How to increase haemoglobin naturally in cll

I was just wondering my mother just got dengue and will be out of the hospital by tomorrow. But sadly her Haemoglobin has dropped to 9. Was just wondering what...

I was just wondering my mother just got dengue and will be out of the hospital b...

ABHINAVGARG

•5 years ago

6 Replies

Patient Advisory Board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA)

Hello, I wanted to give all of you a heads up (and a head start) on an exciting opportunity that Savvy Co-op is going to release on Monday. The co-op has...

Hello, I wanted to give all of you a heads up (and a head start) on an exciting...

lankisterguy

Volunteer•5 years ago

Be the first to reply

Quad muscles

Am 77 years old and have been on Imbruvica for 25 months. At present, quadriceps are weak - I have difficulty getting off chairs and couches. I do walk 5+...

Am 77 years old and have been on Imbruvica for 25 months. At present, quadricep...

Agatesup

•5 years ago

4 Replies

Experience with Clinical Trial

I am about 2 months into a trial starting with debulking with bitimustin and immunotherapy, followed eventually by Venetoclax for about a year. I had several...

I am about 2 months into a trial starting with debulking with bitimustin and imm...

Elam

•5 years ago

1 Reply

FLU SHOT QUESTION

Hi everybody. SO appreciate this site and everybody's input. I'm learning a lot. SO...I went to get a flu shot yesterday...I'm 2 years diagnosed in watch...

Hi everybody. SO appreciate this site and everybody's input. I'm learning a lo...

claretsauce

•5 years ago

8 Replies

SLL, Starting Venetoclax, Night Sweats

Hello, I’m new to this forum. I came across it while googling info pertaining to my Husbands SLL. Reading through the questions & responses from everyone has...

Hello, I’m new to this forum. I came across it while googling info pertaining t...

Hock1

•5 years ago

8 Replies

MRD Negative with significantly enlarged lymph nodes

ALthough venetoclax made me MRD negative, I still have significantly enlarged lymph nodes. Has anyone taken prednisone for this?

ALthough venetoclax made me MRD negative, I still have significantly enlarged ly...

profrich

•5 years ago

51 Replies

Good news about Car-T... not applying to CLL yet, but interesting!

Wanted to share this article about the coverage of Car-T cell in Canada. It's my hematologist, Dr Fleury, who is cited in the article. I'm blessed to be...

Wanted to share this article about the coverage of Car-T cell in Canada. It's m...

SenateurDupont

•5 years ago

4 Replies

Flu vaccine

Flu vaccine. Yes or no

Joannmarie

•5 years ago

18 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2019

How long can CLL patients expect to have treatment.

FLOW CYTOMETRY

What is ERIC and Why Should We Care?

Mosquito bites

Bone Marrow at 65% after 6 months Imbruvica and ^ months of Gazyva

Imbruvica and elbow cyst

CLLSA Newcastle meeting videos

MRD on venetoclax and ibrutinib

Elevated Triglyceride level 12.9

Night sweats ONION SCENT

Imbruvica and low platelets

My CLL adventure

CLL Society Weekly Alert- International activities

Pnumonia

Arrhythmia on Ibrutinib

Lots of news

CLL, the marathon, and me Thank you!

Robbob 71

Supplements

Mantle cell lymphoma

What happens after venetoclax treatment?

How to increase haemoglobin naturally in cll

Patient Advisory Board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA)

Quad muscles

Experience with Clinical Trial

FLU SHOT QUESTION

SLL, Starting Venetoclax, Night Sweats

MRD Negative with significantly enlarged lymph nodes

Good news about Car-T... not applying to CLL yet, but interesting!

Flu vaccine

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive