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CLL Support

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All posts for August 2019

ANYBODY ELSE IN AFIB?

I have been on Imbruvica for almost two years and it has been wonderful. It has...
RK69 profile image

Imbruvica and fatigue

I've been on imbruvica for over three years. For the past year I have a lot of f...
Jamstev71 profile image

Sugar and cancer, in particular Chronic Lymphocytic Leukaemia (CLL/SLL) – what you need to know

We've had a few questions lately about whether we should avoid sugar after a dia...
AussieNeil profile image
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Dog Vaccinations

For those of us with compromised immune systems should we be cautious around a p...
RobertCLL profile image

BP rising

Almost 1 year on Ibrutinib and my blood pressure has been rising .... My Dr sent...
antonb profile image

Medicare will begin nationwide coverage of CAR T-cell therapy

Medicare will begin nationwide coverage of CAR T-cell therapy, a complicated tre...
The_Eagle profile image

Help with questions for a new doctor please

Good morning or whatever time it is where you are. It is a beautiful morning h...
studebaker profile image

2019 flu jab info (UK specific)

Hi all, This is specific for UK based people. I was in my GP waiting room (acco...

Retiring for Good

Hi, I guess this decision is more of a struggle than I realized, seeing that I b...
bkoffman profile image
CLL CURE Hero

Chimming in

Dear All, this is my first time writing and an introduction. I am glad to be tak...
KuluJimmi profile image

A long term cll patient

I know some of my issues and problems are nothing compared to some of you. I am...
NANACAROL profile image

Bone pain

I have been on ibrutinib for 4 months and the past week I have been having pain ...
Lulu8581 profile image

Severe reaction to FCR

I posted a while ago regarding treatment options. In the end I chose FCR rather ...
Racing1961 profile image

6 Videos from OncLive - Drs. Flinn, Davids, Kahl, & Pagel - Focus on Chemo Free Frontline Treatments

Website view: https://onclive.cmail20.com/t/ViewEmail/j/660EE76BB4DAFE172540EF23...
lankisterguy profile image
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What do you do when you are MRD Negative?

I just learned I am MRD negative on Venetoclax and Rituximab. We had been planni...
profrich profile image

Test Before Treat

We believe this might be our most important campaign ever- to get everyone teste...
bkoffman profile image
CLL CURE Hero

Using CBD oil to sleep

My sleeping was poor past 12 months, averaging 3.5 hours a night. Two months ago...
Irishgreek profile image

Thanks for infusion encouragement

Thanks to all who gave me encouragement about my first infusion... I had a Smart...
Butitisme profile image

Ibrutinib Side Effect???

Hello CLL supporters, My husband Gary’s CLL was found October 2017 and we were...
Shalom33 profile image

Patient Power Video updates on Blood Testing and New Treatment updates

Patient Power email here: https://www.patientpower.info/index.cfm?objectid=0F37...
lankisterguy profile image
Volunteer

Lung nodule

Hi all, On the CT-scan is a lung nodule visable with a diameter of 6 mm. Can thi...
TOFK profile image

Jaw pain

Anyone have jaw pain while on Imbruvica?
Dom57 profile image

SLL..

Hi i would love to hear from some people with SLL......LYMPHOMA How different ...
Stelladoro profile image

Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto

Register today for Lymphoma Canada’s 3rd Annual National Conference for lymphoma...
lankisterguy profile image
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Relapsing after remission

I've been in remission for about two years now. Just came from a routine 6 month...
dianejoyce profile image

Other things to consider

Everyone that's in the age bracket I guess I would say 60 up should pay attentio...
oldguy68 profile image

Should I get a blood transfusion?

I just had a port put in a couple of days ago... but after reading the CLL sites...
Butitisme profile image

Has CLL damaged a my sperm?

Has CLL damaged a my sperm? Diagnosed may 2014, and treated for swollen painful...
tomcelic profile image

Diagnosed Influenza A Positive

Anyone gone through the flu with CLL? Any tips? The severe bone pain and weaknes...
JC70 profile image

CLLSA NOTTINGHAM CONFERENCE. THURSDAY 5 SEPTEMBER at Nottingham Racecourse, Colwick Park NG2 4BE

Come along and hear Dr Chris Fox, Consultant Haematologist, speak on ‘CLL IN 201...
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