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CLL Support

22,532 members • 38,709 posts

All posts for July 2019

Parotid gland swelling

I understand there are lymph nodes in the parotid gland. One of mine is swollen, making me look like a chipmunk . Is there anything you can do about swollen...

I understand there are lymph nodes in the parotid gland. One of mine is swollen,...

dantetheinferno1

•5 years ago

Eye styes and Imbruvica, are they related?

Eye styes and Imbruvica - I have had two eye styes since I started IB in February, is this a unusual side effect of it when taken for CLL? The last one in...

Eye styes and Imbruvica - I have had two eye styes since I started IB in Februar...

•5 years ago

Cervical Neck MRI

Can CLL cause problems with the nerves in your neck? I am having an MRI because of nerve problems in my hands, it is not Carpel Tunnel, I also have loss of...

Can CLL cause problems with the nerves in your neck? I am having an MRI because ...

•5 years ago

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Bleeding in the lung

A friend of mine is on Imbruvica and after three yrs. On a low dose (1 tablet) has developed bleeding in the left lung. Anyone ever have this problem and...

A friend of mine is on Imbruvica and after three yrs. On a low dose (1 tablet) h...

•5 years ago

Husbands first year cll

Just wanted to let everyone know my husband has had his second appointment and his WBC gone from 15.6 to 13.2 and his lymphocytes from 10.6 to 9.....is this...

Just wanted to let everyone know my husband has had his second appointment and h...

•5 years ago

ALC Dropping Fast

I shifted from Imbruvica to Venetoclax because Imbruvica was showing signs it was failing and my ALC was rising. Also, I had an Afib event and had...

I shifted from Imbruvica to Venetoclax because Imbruvica was showing signs it wa...

•5 years ago

Neuropathy from high para p[roteins

Does anyone have neuropathy from high para proteins due go B Cell cancer? I am having more tests done to determine if this is my problem. It's just awful.

Does anyone have neuropathy from high para proteins due go B Cell cancer? I am ...

•5 years ago

NEW - Looking for advice on lab work (elevated lymphocytes, low platelets, enlarged spleen)

Hi all, First off - I didn't know what CLL was until today (still probably don't know exactly what it is). While looking for answers on my lab results I came...

Hi all, First off - I didn't know what CLL was until today (still probably don't...

•5 years ago

3 years since starting chemo ...son to do Iron Man!

I'm constantly dipping into this forum but sometimes it feels hard to read stories of people newly diagnosed with CLL...it makes the trauma that we've been...

I'm constantly dipping into this forum but sometimes it feels hard to read stori...

•5 years ago

CLL side Effect.

My CLL gives me blood spots on my arms petachiae. They are real bad! I take Imbruvica 420mg tabs for treatment. Tiredness also.

My CLL gives me blood spots on my arms petachiae. They are real bad! I take Imb...

•5 years ago

Insect Bites

I know there have been posts on reaction to insect bites but I am hoping to find some answers to fairly severe swellings and closure of my eyes from bites. Its...

I know there have been posts on reaction to insect bites but I am hoping to find...

•5 years ago

Article in NEJM on Venetoclax & Obinutuzumab

Here is an article that was just received from the New England Journal of Medicine that some may find of interest. Jack O....

Here is an article that was just received from the New England Journal of Medici...

•5 years ago

Infection proneness after Imbruvica for CLL?

My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and Imbruvica/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good...

My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and Imbr...

•5 years ago

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Imbruvica

I had been on watch n wait for about 5 years my white count started at 14 and then when it got the 132 I was put on imbruvica. Over a period of about six weeks...

I had been on watch n wait for about 5 years my white count started at 14 and th...

•5 years ago

The CLL Society Tribune: full of research, news, advice, art and sharing

Heading home from lecturing in Germany. Very proud of this quarter's CLL Society Tribune: https://cllsociety.org/quarter-2-2019-volume-5-issue-2/ this...

Heading home from lecturing in Germany. Very proud of this quarter's CLL Societ...

CLL CURE Hero•5 years ago

Imbruvica Blisters

Hello, I'm on my 11th day on Imbruvica and am starting to see what looks like blood blisters in my mouth. They started happening a few days ago and are...

Hello, I'm on my 11th day on Imbruvica and am starting to see what looks like bl...

•5 years ago

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