Posts - CLL Support | HealthUnlocked

CLL Support

22,514 members • 38,671 posts

All posts for June 2019

Indian imbruvica

Generic imbruvica that is ibrutinib has been filed as ANDA by Natco Pharma India with marketing partner alvogen , USA to USFDA in Jan 2019 for 6 months...

Generic imbruvica that is ibrutinib has been filed as ANDA by Natco Pharma India...

rjv71

•5 years ago

3 Replies

Acalabrutinib

Is anyone on Acalabrutinib? Is it ever offered before taking Ibrutinib?

bayside64

•5 years ago

27 Replies

Spots on body

Hello, I started getting these spots on my arms and legs recently and I’m starting to worry. Does anyone know what it is?

Hello, I started getting these spots on my arms and legs recently and I’m starti...

Hidden

•5 years ago

7 Replies

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Hii everyone.my 52y mother was diagnosed with CLL 9months ago,her wbc count is 18k now and 14k lymph.trisomy12+(21%) ang igG hypermutated

We're so nervous.dr said no treatmet is needed now;but isn't there anything that i can do to stop the progression? Tnx for help😢

We're so nervous.dr said no treatmet is needed now;but isn't there anything that...

Keyvanlvl

•5 years ago

24 Replies

Ibrutinib while on Steroids

Hello all anyone using Ibrutinib and is on steroids due to hemolyza? Anything important to pay attention to? Many thanks

Hello all anyone using Ibrutinib and is on steroids due to hemolyza? Anything im...

veranaish

•5 years ago

6 Replies

Upcoming CLL17 trial: (obinutuzumab + venetoclax) versus (ibrutinib + venetoclax) versus (ibrutinib monotherapy)

Once again, big thanks to the German CLL Study Group! https://twitter.com/HallekMichael/status/1136141658809143301

Once again, big thanks to the German CLL Study Group! https://twitter.com/Halle...

avzuclav

•5 years ago

12 Replies

Balance issues

I was diagnosed with CLL about 18 months ago. Early stages so not having any treatment yet but recently have started to develop a weakness on one side and also...

I was diagnosed with CLL about 18 months ago. Early stages so not having any tre...

Mui144

•5 years ago

5 Replies

Question about your experience with aloe vera

I have CLL for 5 years, no other symptops but high WBC, 105 000, doctora are about to give me chemo. I also have EDS, and Cusack Protocol reccomends aloe...

I have CLL for 5 years, no other symptops but high WBC, 105 000, doctora are abo...

Ankakoza

•5 years ago

5 Replies

What can’t I DO while on treatment?

Do you have already known things you can’t DO -or- things you wonder about (like getting your teeth cleaned) while undergoing treatment for CLL? I have a...

Do you have already known things you can’t DO -or- things you wonder about (li...

CLLmoxie

•5 years ago

13 Replies

Arm going numb

Hi everyone, Do you know if nodes can cause numbness in the arm? My right arm is getting numb several times a day. I tought it could be the fact that I am...

Hi everyone, Do you know if nodes can cause numbness in the arm? My right arm...

SenateurDupont

•5 years ago

8 Replies

Chronic lymphocytic leukemia/B-cell prolymphocytic leukemia. A tutorial for physicians, useful for us too.

From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs covering all aspects of the disease, investigation and treatment....

From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs co...

Jm954

Administrator•5 years ago

14 Replies

ASH 2018: Dr. Lindsey Roeker research from ASH 2018 on real world use of venetoclax for CLL

Today we posted on ASH 2018: Dr. Lindsey Roeker research from ASH 2018 on real world use of venetoclax for CLL: Turns out venetoclax works as well in the...

Today we posted on ASH 2018: Dr. Lindsey Roeker research from ASH 2018 on real w...

bkoffman

CLL CURE Hero•5 years ago

5 Replies

Skin lesion on face. Should he irradiate it

I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed...

I have friend with skin lesion on his face who has a follicular B-cell lymphoma....

LovecuresCLL

•5 years ago

12 Replies

Name for booklet/book

As I mentioned, I am in the beginning stages of preparing a booklet or book for mostly new patients with CLL. Besides the censored ones lol, what are some...

As I mentioned, I am in the beginning stages of preparing a booklet or book for ...

CLLmoxie

•5 years ago

41 Replies

Yale study uncovers how gut bacteria can affect whether drugs work or not

More mysteries of how our gut microbiome can affect treatment responses: "It's still quite a mystery to scientists why certain drugs work well in some...

More mysteries of how our gut microbiome can affect treatment responses: "It's s...

AussieNeil

Administrator•5 years ago

1 Reply

CLLSA Members Conference Bournemouth May 2019

A summary report for the Bournemouth meeting in May written by Olga Janssen has been added...

A summary report for the Bournemouth meeting in May written by Olga Janssen has ...

Myrddin

•5 years ago

Be the first to reply

CLLSA VIRGIN 10K RUN! A FEW PLACES LEFT!

The Virgin 10k run in London is our biggest fundraiser of the year and is a really relaxed fun event. The route is flat and takes in all the sites of central...

The Virgin 10k run in London is our biggest fundraiser of the year and is a real...

pkguk2

Partner•5 years ago

Be the first to reply

Looking for feedback on Care Oncology Treatment / COC Protocol

Any Info on 4 drugs protocol from Care Oncology, Metabolic Combination Therapy.? Would it be helpful In conjunction with 2nd line of chemo? Or will it might...

Any Info on 4 drugs protocol from Care Oncology, Metabolic Combination Therapy.?...

lfridman

•5 years ago

5 Replies

Article in NEJM on ibrutinib and Venetoclax

Morning everyone. Thanks for all the great information and posts. Thought you may be interested in an article published today in the NEJM (New England Journal...

Morning everyone. Thanks for all the great information and posts. Thought you ma...

jdolinger

•5 years ago

46 Replies

Pain on left side

I have issues being able to lay on my left side when I sleep. When I turn to lay on my left side, the pressure against the mattress causes a lot of...

I have issues being able to lay on my left side when I sleep. When I turn to la...

Craftycat72

•5 years ago

1 Reply

We eat what we are – let’s detoxify the word ‘chemical’

The only thing chemical free is a perfect vacuum. "Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are...

The only thing chemical free is a perfect vacuum. "Food is a bunch of chemical...

AussieNeil

Administrator•5 years ago

4 Replies

After one year on Ibrutinib, BEST NEWS EVER!!

My husband has had CLL for over five years now, and was on Wait and Watch for 2 years before everything went really bad: fatigue,fevers, 160,000 white blood...

My husband has had CLL for over five years now, and was on Wait and Watch for 2 ...

kathymac52

•5 years ago

134 Replies

ICE OR HEAT OR ?

I have having my first BMB tomorrow in preparation for clinical trial. I will have some sedation during the procedure. Afterwards, what have you found most...

I have having my first BMB tomorrow in preparation for clinical trial. I will ha...

CLLmoxie

•5 years ago

11 Replies

UK CLL Clinical Trial Portfolio updated May 2019

The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us...

The Portfolio of clinical trials available in the UK has been updated and is a...

Myrddin

•5 years ago

3 Replies

Dominant-negative PD1-armored CART cells induce remission in refractory diffuse large B-cell lymphoma (DLBCL) patients

Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy....

Background: The chimeric antigen receptor (CAR) T cell treatment has been demons...

wmay13241

•5 years ago

Be the first to reply

U-MRD

Hi, The role of undetectable Minimal residual disease (U-MRD) in CLL is evolving and becoming increasingly important. Please see my interview with Dr. Wierda...

Hi, The role of undetectable Minimal residual disease (U-MRD) in CLL is evolving...

bkoffman

CLL CURE Hero•5 years ago

24 Replies

Eyes

Hi dose any one have real bad problems with focusing there eyes for the last year my eyes won’t focus I went for a eye test they said my prescription had only...

Hi dose any one have real bad problems with focusing there eyes for the last yea...

160376

•5 years ago

3 Replies

Creatinine goes up after bendamustine and rituximab infusion

I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11...

I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. ...

profrich

•5 years ago

7 Replies

Introduction of Redirect Notice when you select a link/reference/URL

Some of you may have noticed the above appearing when you select a link (URL). Below, Laura from HealthUnlocked explains why this security feature has been...

Some of you may have noticed the above appearing when you select a link (URL). B...

AussieNeil

Administrator•5 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2019

Indian imbruvica

Acalabrutinib

Spots on body

Hii everyone.my 52y mother was diagnosed with CLL 9months ago,her wbc count is 18k now and 14k lymph.trisomy12+(21%) ang igG hypermutated

Ibrutinib while on Steroids

Upcoming CLL17 trial: (obinutuzumab + venetoclax) versus (ibrutinib + venetoclax) versus (ibrutinib monotherapy)

Balance issues

Question about your experience with aloe vera

What can’t I DO while on treatment?

Arm going numb

Chronic lymphocytic leukemia/B-cell prolymphocytic leukemia. A tutorial for physicians, useful for us too.

ASH 2018: Dr. Lindsey Roeker research from ASH 2018 on real world use of venetoclax for CLL

Skin lesion on face. Should he irradiate it

Name for booklet/book

Yale study uncovers how gut bacteria can affect whether drugs work or not

CLLSA Members Conference Bournemouth May 2019

CLLSA VIRGIN 10K RUN! A FEW PLACES LEFT!

Looking for feedback on Care Oncology Treatment / COC Protocol

Article in NEJM on ibrutinib and Venetoclax

Pain on left side

We eat what we are – let’s detoxify the word ‘chemical’

After one year on Ibrutinib, BEST NEWS EVER!!

ICE OR HEAT OR ?

UK CLL Clinical Trial Portfolio updated May 2019

Dominant-negative PD1-armored CART cells induce remission in refractory diffuse large B-cell lymphoma (DLBCL) patients

U-MRD

Eyes

Creatinine goes up after bendamustine and rituximab infusion

Introduction of Redirect Notice when you select a link/reference/URL

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