Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2019

Concerned about thick phlegm waking me up at night

Hello fellow CLLers; I've been diagnosed a year ago and so far so good. My oncologist said I don't need to be seen for the next 6 months. One thing is...

Hello fellow CLLers; I've been diagnosed a year ago and so far so good. My oncol...

Michael199

•5 years ago

9 Replies

Constant feeling of being chilled

I have been on Imbruvica for 21 months. About three months ago, I have a chilled feeling - from my belt level to my scalp. I am wearing sweaters in June....

I have been on Imbruvica for 21 months. About three months ago, I have a chille...

Agatesup

•5 years ago

7 Replies

German CLL12: ibrutinib vs W&W - update at EHA 2019. (spoiler: they are still recommending W&W)

Source: https://twitter.com/lymphomahub/status/1140193758421688320 This was a late-breaking presentation today.

Source: https://twitter.com/lymphomahub/status/1140193758421688320 This was a l...

avzuclav

•5 years ago

3 Replies

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Mutated vs. Unmutated

Hi Guys, I always emphasize that I am rookie here. I am just learning what does CLL mean. Fortunately your support helps a lot to understand what is it...

Hi Guys, I always emphasize that I am rookie here. I am just learning what does ...

tomster

•5 years ago

24 Replies

Cryoglobulins/vasculitis and CLL. Anyone? Please help-LoveCuresCLL

Calling for Help: Has anyone gotten this vasculitis in their skin and been Rai stage 1 pretreated CLL. Anyone tried plasmapharesis or been put on steroids like...

Calling for Help: Has anyone gotten this vasculitis in their skin and been Rai s...

LovecuresCLL

•5 years ago

18 Replies

POST BMT 1-Year & 7 Months, BOY OH BOY!!!

“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,”...

“Ring the bells that still can ring Forget your perfect offering There is a crac...

NMMP

•5 years ago

47 Replies

Fatboy98

Well went to see my Dr. Yesterday ( miss poppy-pants) such a pleasent person not. Month and 1/2 on imburuvica 420mg doing pretty good so far except severe ear...

Well went to see my Dr. Yesterday ( miss poppy-pants) such a pleasent person not...

Hidden

•5 years ago

20 Replies

Mushrooms

Hi - has anyone ever been recommended to take mushroom supplements, specifically Reishi Mushrooms? I’ve read a lot about their medical benefits and there’s...

Hi - has anyone ever been recommended to take mushroom supplements, specifically...

shellsb

•5 years ago

12 Replies

A phase II trial of eltrombopag for patients with CLL and thrombocytopenia

Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induces proliferation and differentiation of megakaryocytes. Eltrombopag is approved...

Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induc...

Jm954

Administrator•5 years ago

1 Reply

Venetoclax for CLL patients who progress after MORE THAN ONE B‐cell receptor pathway inhibitor

27/11/18 This study represents the first retrospective analysis of this high‐risk patient population, who were uniformly evaluated as part of a prospective...

27/11/18 This study represents the first retrospective analysis of this high‐ris...

Jm954

Administrator•5 years ago

4 Replies

Ibrutinib provides favourable survival outcomes in patients with comorbidities versus established therapies

10th Feb 2019 Older age and higher comorbidity burden are associated with poor survival outcomes in patients with chronic CLL. Additionally, chemoimmunotherapy...

10th Feb 2019 Older age and higher comorbidity burden are associated with poor s...

Jm954

Administrator•5 years ago

5 Replies

Efficacy of venetoclax monotherapy in patients with relapsed CLL in the post‐BCR inhibitor setting: a UK wide analysis

Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic leukaemia (CLL). We conducted a multi‐centre...

Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/...

Jm954

Administrator•5 years ago

2 Replies

More CAR-T: Looking Back to Go Forward in CAR-T Cell Therapy in R/R CLL

Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen receptor (CAR) T-cell (CAR-T) therapy in patients with R/R CLL showed that the...

Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen rec...

Jm954

Administrator•5 years ago

7 Replies

Gettng Ibrutinib in Canada

Hello, I hope somebody in Canada can help me. Myself and my partner are UK nationals, but my partner also has dual nationality and a Canadian passport. He...

Hello, I hope somebody in Canada can help me. Myself and my partner are UK nati...

pollyg2016

•5 years ago

4 Replies

Imbruivica

Well, Rosa getting ready to start Imbruvica in a few weeks. Nurse said I may get High Blood pressure in about 5 months. Anyone experiencing this? thanks

Well, Rosa getting ready to start Imbruvica in a few weeks. Nurse said I may ge...

oso7672

•5 years ago

7 Replies

ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)

Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news:...

Is venetoclax as safe and effective in the real world as compared to clinical tr...

bkoffman

CLL CURE Hero•5 years ago

7 Replies

Should I be encouraged with my blood test results?

Just about a year ago I was diagnosed with CLL. My self-definition suddenly included having cancer and owning a status as "13q unmutated." I was terrified....

Just about a year ago I was diagnosed with CLL. My self-definition suddenly inc...

lynnsb6754

•5 years ago

19 Replies

IGHV year in Canada

Just found out from my CLL specialist that the IGHV test is now being done in Vancouver - as of earlier this week. (Presumably at the Cancer Agency) I’ll be...

Just found out from my CLL specialist that the IGHV test is now being done in Va...

Jemorgen

•5 years ago

31 Replies

The Other Side of CAR T-Cell Therapy: Cytokine Release Syndrome, Neurologic Toxicity, and Financial Burden

Details about CAR-T procedure and side effects. CAR (T cells and natural killer cells) constitutes a powerful new class of therapeutic agents to treat patients...

Details about CAR-T procedure and side effects. CAR (T cells and natural killer ...

Jm954

Administrator•5 years ago

14 Replies

Starting my diagnostic journey

Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL....

Hello. So glad to find this resource. I am a 68 year old woman in excellent gene...

Sunfishjoy

•5 years ago

21 Replies

I+V is the future.

https://www.targetedonc.com/news/ibrutinib-plus-venetoclax-appears-safe-and-effective-in-cll-for-highrisk-older-patients

https://www.targetedonc.com/news/ibrutinib-plus-venetoclax-appears-safe-and-effe...

Hidden

•5 years ago

8 Replies

Possible richters transformation?

My father was on watch and wait. In late FEB 2019 he caught shingles. The lesion was in his underarm( axilla region). His axillary lymphnode increased in size....

My father was on watch and wait. In late FEB 2019 he caught shingles. The lesion...

Haider98

•5 years ago

19 Replies

Bendamustine and Rituximab and liver toxicity

My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over...

My first round of BR went fine with no change in liver numbers. My ALT and AST a...

profrich

•5 years ago

16 Replies

Polyps and CLL

Is there any connection between CLL and polyps? Does anyone know? Apparently I have a polyp in the gastro intestinal lining and I wondered if CLL lends itself...

Is there any connection between CLL and polyps? Does anyone know? Apparently I h...

DanaNicholson

•5 years ago

2 Replies

FCR VS BR

My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 positive 45% The oncologist has suggested BR. My father is physically fit 57 years...

My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 posi...

Haider98

•5 years ago

34 Replies

Shingles vaccine update

2 months ago I had the first of the two Shingrix vaccines and had a pretty awful reaction. Horrible arm soreness, blisters in my throat, throat swelling,...

2 months ago I had the first of the two Shingrix vaccines and had a pretty awful...

t2aa

•5 years ago

25 Replies

Bendamustine and Rituximab and Low Lymphocyte Count

After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does...

After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after ...

profrich

•5 years ago

31 Replies

Hematologist in Phoenix, AZ

Hi could you recommend hematologist in Phoenix, AZ?

pragnar

•5 years ago

8 Replies

Navigating HealthUnlocked

Introduction (For a quick menu summary, page down to HU Menus in a nutshell) Our CLL Support community on HealthUnlocked, is the online...

Introduction (For a quick menu summary, page down to HU Menus in a nutshell) O...

AussieNeil

Administrator•5 years ago

36 Replies

a problem

I was diagnosed with CLL about 5 years ago I felt so low at the time I was told I nearly took my own life but after recieving some welcome news I found out...

I was diagnosed with CLL about 5 years ago I felt so low at the time I was told ...

techienumber1

•5 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2019

Concerned about thick phlegm waking me up at night

Constant feeling of being chilled

German CLL12: ibrutinib vs W&W - update at EHA 2019. (spoiler: they are still recommending W&W)

Mutated vs. Unmutated

Cryoglobulins/vasculitis and CLL. Anyone? Please help-LoveCuresCLL

POST BMT 1-Year & 7 Months, BOY OH BOY!!!

Fatboy98

Mushrooms

A phase II trial of eltrombopag for patients with CLL and thrombocytopenia

Venetoclax for CLL patients who progress after MORE THAN ONE B‐cell receptor pathway inhibitor

Ibrutinib provides favourable survival outcomes in patients with comorbidities versus established therapies

Efficacy of venetoclax monotherapy in patients with relapsed CLL in the post‐BCR inhibitor setting: a UK wide analysis

More CAR-T: Looking Back to Go Forward in CAR-T Cell Therapy in R/R CLL

Gettng Ibrutinib in Canada

Imbruivica

ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)

Should I be encouraged with my blood test results?

IGHV year in Canada

The Other Side of CAR T-Cell Therapy: Cytokine Release Syndrome, Neurologic Toxicity, and Financial Burden

Starting my diagnostic journey

I+V is the future.

Possible richters transformation?

Bendamustine and Rituximab and liver toxicity

Polyps and CLL

FCR VS BR

Shingles vaccine update

Bendamustine and Rituximab and Low Lymphocyte Count

Hematologist in Phoenix, AZ

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