Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2019

6 months on ibrutinib

Hello 6 month on Ibrutinib . Good results (WCC is 9800 from 350.000 at the peack ,all other labs improving ) Very few side effects although ...my BP is...

Hello 6 month on Ibrutinib . Good results (WCC is 9800 from 350.000 at the peac...

antonb

•5 years ago

20 Replies

Update #2 to “ Treatment Begins”

Wow, Saturday 4/20 Day 2 of infusion. Of Obinutuzumab started with labs 5:15 am. Imbrutinib places on hold til Monday restart Labs came back ok on potassium...

Wow, Saturday 4/20 Day 2 of infusion. Of Obinutuzumab started with labs 5:15 am....

Coolerjoe

•5 years ago

13 Replies

Remembering Chris Dwyer

It is with great sadness and deep regret that we mourn the death of our fellow Board member Christopher (Chris) Harrington Dwyer. He was a founding member of...

It is with great sadness and deep regret that we mourn the death of our fellow B...

ivy39

•5 years ago

1 Reply

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Antidepressants

CLL & antidepressants

Jschech

•5 years ago

1 Reply

So Long Chris. You will be missed!

You were an invaluable resource and mentor!

tekusa

•5 years ago

1 Reply

Random low grade fevers anyone?

Hello, I notice after working too much or too much activity, I get the chills sometimes in the evening then run a low grade fever for less than 12 hours, have...

Hello, I notice after working too much or too much activity, I get the chills s...

ChrisLovesLife

•5 years ago

9 Replies

Travelling to Kenya

Planning to travel to Kenya soon. Any advice ?

Jucl

•5 years ago

4 Replies

remembering Chris Dwyer

Many in our community including myself owe much to Chris Dwyer. His death came not so much as a shock to me but a sadness in losing such a fellow warrior who...

Many in our community including myself owe much to Chris Dwyer. His death came n...

ThreeWs

•5 years ago

24 Replies

CLL and Crohn's Disease

I have been recently diagnosed with CLL. I have the P17 deletion. In 2003 I was diagnosed with Crohn's disease. I've been taking Entivyo since 2017. My...

I have been recently diagnosed with CLL. I have the P17 deletion. In 2003 I wa...

CLLToronto

•5 years ago

7 Replies

FISH test

Fish test from my side🐟🤪Enjoy the spring and sunshine🌝

tomster

•5 years ago

15 Replies

Update to “ Treatment Begins”

Well if you have read my post on Treatment beginning. Then you may know that the introduction of Obinutuzumab did not go well. Had a reaction on Monday. Sent...

Well if you have read my post on Treatment beginning. Then you may know that the...

Coolerjoe

•5 years ago

8 Replies

Chris...

No words can convey the shock, sadness and loss of such a gentleman. To Chris' family, I send my heartfelt sorrow and sadness. He leaves behind a great wealth...

No words can convey the shock, sadness and loss of such a gentleman. To Chris' f...

Bethan49

•5 years ago

2 Replies

Forum for follicular non-Hodgkin lymphoma

Is there a forum like this for follicular non-Hodgkin lymphoma?

Soupbowl

•5 years ago

1 Reply

Potential cure for CLL

Has anyone followed the research in the UK in the Clarity and Flair trials that are underway. They are looking at the venetoclax and ibrutinib as a combined...

Has anyone followed the research in the UK in the Clarity and Flair trials that ...

Hidden

•5 years ago

47 Replies

CLL

I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing in March 2014. I became stable but had some bad side effects like eczema and...

I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing ...

Kmegood

•5 years ago

1 Reply

CLL Ireland tribute to Chris Dwyer

We are sad to share the news that one of the world's foremost #CLL patient advocates Chris Dwyer, of CLL Canada, has left us. A recent winner of the inaugral...

We are sad to share the news that one of the world's foremost #CLL patient advoc...

Irishcll

•5 years ago

4 Replies

To chris

RIP

Dsingh

•5 years ago

Be the first to reply

Chris Dwyer

It was with shock and deep sadness that I learned from the email ACOR list this morning of the passing of Chris Dwyer, who like Brian, was another giant of the...

It was with shock and deep sadness that I learned from the email ACOR list this ...

Mikey47

•5 years ago

3 Replies

Cramps with Ibrutinib

I have just finished my third month on Ibrutinib and have started suffering cramps in hands, arms and legs. Is this now to be a regular side effect.? Also I...

I have just finished my third month on Ibrutinib and have started suffering cram...

Poddle7

•5 years ago

3 Replies

When’s the best time to get your flu shot?

Why we should get the flu shot each year, when to get it, when is it too late and much more by Ian Barr, Deputy Director, WHO Collaborating Centre for...

Why we should get the flu shot each year, when to get it, when is it too late an...

AussieNeil

Administrator•5 years ago

12 Replies

Treatment begins

So started my treatment journey on Monday. Got the trifecta of my trial Imbrutinib Obinutuzumab Venetoclax to start in 3 months. Had a tough reaction...

So started my treatment journey on Monday. Got the trifecta of my trial Imbrut...

Coolerjoe

•5 years ago

9 Replies

Upcoming Educational Forums and Kipps on ROR1

I invite you to attend our free CLL Society Patient and Caregiver Educational Forums. Featured speakers will present the very latest advances in CLL research,...

I invite you to attend our free CLL Society Patient and Caregiver Educational Fo...

bkoffman

CLL CURE Hero•5 years ago

2 Replies

CLL and Brittle nails

Does anyone that's got CLL and on chemo tablets get brittle nails.

BayfieldAnnette

•5 years ago

22 Replies

Falling hemoglobin

I have been on imbruvica for over two years. The only side effect I had for awhile was bruising. My biggest side effect now is fatigue and last month my...

I have been on imbruvica for over two years. The only side effect I had for awhi...

Jamstev71

•5 years ago

5 Replies

IMBRUVICA FOR CLL

I'm taking Imbruvica 420mg tablet 1x daily for my CLL. The side effects are Horrible to me, so i'm thinking of taking it at night so I sleep thru the Nasty...

I'm taking Imbruvica 420mg tablet 1x daily for my CLL. The side effects are Horr...

elvs52

•5 years ago

24 Replies

Long Island CLL Society Support Group Meeting

Hi folks - It's that time of the month again - time for me to invite all of you to attend our monthly Long Island CLL Support Group. All are welcome, both...

Hi folks - It's that time of the month again - time for me to invite all of you ...

SusanBo

•5 years ago

1 Reply

Ibrutnib

Is there any generic equivalent for ibrutnib

Robbob71

•5 years ago

10 Replies

Newly diagnosed with CLL

I am happy to have found this site. I was diagnosed December 2018; agent orange related. I am currently at stage 0. I started taking EGCG recently at the...

I am happy to have found this site. I was diagnosed December 2018; agent orang...

Bill_Texas

•5 years ago

17 Replies

Introducing myself

Hi everyone, I've been sitting on the sidelines here for a few months and I thought I should introduce myself. I am a 57 year old male from Australia and have...

Hi everyone, I've been sitting on the sidelines here for a few months and I thou...

Skyfli

•5 years ago

7 Replies

Imbruvica issues from starting & stopping

Started on Imbruvica 420mg last year for CLL & have had to stop for 3 weeks for bladder surg, 3 times... anyone have any issues from stopping then restarting...

Started on Imbruvica 420mg last year for CLL & have had to stop for 3 weeks for ...

emarine

•5 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2019

6 months on ibrutinib

Update #2 to “ Treatment Begins”

Remembering Chris Dwyer

Antidepressants

So Long Chris. You will be missed!

Random low grade fevers anyone?

Travelling to Kenya

remembering Chris Dwyer

CLL and Crohn's Disease

FISH test

Update to “ Treatment Begins”

Chris...

Forum for follicular non-Hodgkin lymphoma

Potential cure for CLL

CLL

CLL Ireland tribute to Chris Dwyer

To chris

Chris Dwyer

Cramps with Ibrutinib

When’s the best time to get your flu shot?

Treatment begins

Upcoming Educational Forums and Kipps on ROR1

CLL and Brittle nails

Falling hemoglobin

IMBRUVICA FOR CLL

Long Island CLL Society Support Group Meeting

Ibrutnib

Newly diagnosed with CLL

Introducing myself

Imbruvica issues from starting & stopping

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