Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2019

Molars rotting at root, 2 extracted, now a third?

Hello, everyone. My husband has just had 2 molars extracted within a month. He had serious pain and wicked headaches. Now he is having similar symptoms...

Hello, everyone. My husband has just had 2 molars extracted within a month. He...

hsouter

•5 years ago

2 Replies

MEDS FOR LEG SWELLING

ANYONE WITH SWELLING PROBLEMS WHAT DOES THE DOCTOR PERSCRIBE FOR THE CONDITION..FOR LEG AND ANKLE..IT IS SO UNCOMFORTABLE REPLIES PLEASE.

ANYONE WITH SWELLING PROBLEMS WHAT DOES THE DOCTOR PERSCRIBE FOR THE CONDITION.....

tlcladygiraffe

•5 years ago

5 Replies

Drs??

Are you Drs??

Cowgirl49

•5 years ago

1 Reply

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Treatment Postponed

Saw my Hemo/Onco today and she postponed my first BR for a week and prescribed antibiotic to deal with ear infection. Good plan...

Saw my Hemo/Onco today and she postponed my first BR for a week and prescribed a...

Estate1

•5 years ago

16 Replies

Hair loss?

I’m starting first round of BR tommorro. I’m curious if others that have had BR lost any hair? Thanks.

I’m starting first round of BR tommorro. I’m curious if others that have had BR ...

Estate1

•5 years ago

19 Replies

Imbrutinib side effects

Diagnosed in 2010. Started Imbrutinib Dec.19 after WBC reached 100,000. Got bronchitis on Jan. 2, pneumonia on Jan. 9. Oncologist said during Jan. 10...

Diagnosed in 2010. Started Imbrutinib Dec.19 after WBC reached 100,000. Got bron...

Hidden

•5 years ago

6 Replies

news

My dr checked out my swollen leg and urgently sent me an ultrasound...no clots...thank you Lord...again the cause of swelling imbruvica...happy it was checked...

My dr checked out my swollen leg and urgently sent me an ultrasound...no clots.....

tlcladygiraffe

•5 years ago

6 Replies

White Blood Cells lowered

I saw my consultant yesterday and she was very pleased with me. She told me that my white blood cell count was down from 43 to 36 from December 2018, there...

I saw my consultant yesterday and she was very pleased with me. She told me that...

kitchengardener

•5 years ago

5 Replies

AHA--autoimmune hemolytic anemia

My husband is on Venclexta and has developed autoimmune hemolytic anemia for the second time (first time was when he was on Ibrutinib). First treatment was...

My husband is on Venclexta and has developed autoimmune hemolytic anemia for the...

kulachick

•5 years ago

5 Replies

Start BR this Week

I’ve developed a bad ear infection last 24 hours. I’m starting my first treatment in 48 hours. I’m wondering if they would start When I’ve got this infection?

I’ve developed a bad ear infection last 24 hours. I’m starting my first treatmen...

Estate1

•5 years ago

7 Replies

Locking

How do I set my profile so that my posts are locked?

sophia60

•5 years ago

2 Replies

Inflammation, CLL and gluten

I have been diagnosed with CLL in the last month. I had high inflammatory markers in my blood prior to my CLL diagnosis for several years along with...

I have been diagnosed with CLL in the last month. I had high inflammatory marke...

sophia60

•5 years ago

7 Replies

Lumps on top of each hand which look like ganglion cysts

I’m newly diagnosed with cll stage zero ,no symotoms, watch and wait. I’ve noticed a bump on the top of each of my hands which resemble ganglion cysts. I...

I’m newly diagnosed with cll stage zero ,no symotoms, watch and wait. I’ve noti...

elm1

•5 years ago

4 Replies

TIME OF DAY

Hi there, I just want to know if its better to take Imbrutinib in the morning or evening? Thanks!

Hi there, I just want to know if its better to take Imbrutinib in the morning or...

HEALING55

•5 years ago

8 Replies

Ivig therapy

Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IGG 213 Dr wants to start replacement therapy:(. He also started talking about me...

Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IG...

Downriver555

•5 years ago

7 Replies

swelling in leg and ankles..numbness in my feet and hands

I am on imbruvica for 15 months..hate all the side effects..but it is keeping me alive...now I have swelling in my leg and numbness,tingling ..if only they...

I am on imbruvica for 15 months..hate all the side effects..but it is keeping me...

tlcladygiraffe

•5 years ago

14 Replies

REGARDING MY EXPERIENCE

MY EXPERIENCE WAS WITH OBINUTUZUMAB AND CLORAMBUCIL LEUKERAN + GAZYBA SORRY

giuliano

•5 years ago

6 Replies

how to find my posts...? Please

Always struggle to find my previous posts....where are they?

romarin

•5 years ago

3 Replies

Hello from TN

Hello. I have just joined this blog in hopes to learn more from other people who are going through similar treatments. Although, I have gone through lots of...

Hello. I have just joined this blog in hopes to learn more from other people who...

Balseria

•5 years ago

26 Replies

Being able to afford the copays???

Things are now under control. I am now on Imbruvica. It was prescribed on December 18 and got my first prescription and was very lucky to have gotten a grant...

Things are now under control. I am now on Imbruvica. It was prescribed on Dece...

Panz

•5 years ago

27 Replies

CLL and IV Vitamin C

Hi All Is there anyone suffering for cll taking IV vitamin C ? Thankyou

Maazi

•5 years ago

31 Replies

Shingles vaccination advice please

Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann

Can anyone tell me if it is safe for me to be around friends and family who have...

annmcgowan

•5 years ago

15 Replies

ASH 2018: ECOG trial shows superiority of Ibrutinib and rituximab over FCR

Hi friends, The early buzz at ASH 2018 was rightly about the ECOG trial that was presented on the last day as a late breaking abstract. In my interview at the...

Hi friends, The early buzz at ASH 2018 was rightly about the ECOG trial that was...

bkoffman

CLL CURE Hero•5 years ago

22 Replies

13q, now 11q too!

A recent FISH REVEALED MY HUSBAND ALSO HAS 11q now. Any thoughts on treatments?

A recent FISH REVEALED MY HUSBAND ALSO HAS 11q now. Any thoughts on treatments?...

Kokobean

•5 years ago

27 Replies

Body Soreness

Hello All! My husband was diagnosed at 29 with sll, recently he has been feeling pain/soreness on his waist hip joints , is it possible because he has sll or...

Hello All! My husband was diagnosed at 29 with sll, recently he has been feeling...

krikri1989ho

•5 years ago

2 Replies

SORE THROAT

Hi there, I have been on Imbrutinib for about 2 weeks now and have had a sore throat for about 5 days now. Has anyone else experienced this side effect?...

Hi there, I have been on Imbrutinib for about 2 weeks now and have had a sore th...

HEALING55

•5 years ago

2 Replies

CLL, Medicare & support meds

Hello all. I am about to retire (Mar 1) AND about to begin treatment for CLL - meaning we lose company sponsored BCBS and sign up for Medicare part D. I've...

Hello all. I am about to retire (Mar 1) AND about to begin treatment for CLL - m...

misterbee

•5 years ago

3 Replies

Adverse Reactions

Almost 3 mos. on imbruvica and side effects getting worse. Having alot of bone and muscle pain. It is worse at night and have trouble sleeping. My labs are...

Almost 3 mos. on imbruvica and side effects getting worse. Having alot of bone ...

6468

•5 years ago

30 Replies

Going on with Life?

I was just diagnosed 2 weeks ago with CLL. My lymphocytes are 7000 and I have a couple of enlarged lymph nodes. I am waiting for the results regarding if I...

I was just diagnosed 2 weeks ago with CLL. My lymphocytes are 7000 and I have a...

sophia60

•5 years ago

18 Replies

Postpone 3 month followup ?????

I am 64, Stage 0, unmutated, W&W on 3 month visits since diagnosis 2/18. I am considering skipping my visit due now and waiting until April when I have...

I am 64, Stage 0, unmutated, W&W on 3 month visits since diagnosis 2/18. I am co...

CLLmoxie

•5 years ago

16 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2019

Molars rotting at root, 2 extracted, now a third?

MEDS FOR LEG SWELLING

Drs??

Treatment Postponed

Hair loss?

Imbrutinib side effects

news

White Blood Cells lowered

AHA--autoimmune hemolytic anemia

Start BR this Week

Locking

Inflammation, CLL and gluten

Lumps on top of each hand which look like ganglion cysts

TIME OF DAY

Ivig therapy

swelling in leg and ankles..numbness in my feet and hands

REGARDING MY EXPERIENCE

how to find my posts...? Please

Hello from TN

Being able to afford the copays???

CLL and IV Vitamin C

Shingles vaccination advice please

ASH 2018: ECOG trial shows superiority of Ibrutinib and rituximab over FCR

13q, now 11q too!

Body Soreness

SORE THROAT

CLL, Medicare & support meds

Adverse Reactions

Going on with Life?

Postpone 3 month followup ?????

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