Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2019

Moving to Calquence from Ibrutinib

I’ve been on Imbruvica for about 15 months and while it’s driven my numbers down in am ideal fashion, I approached my ONC because the fatigue due to the meds...

I’ve been on Imbruvica for about 15 months and while it’s driven my numbers down...

Mellyjake

•5 years ago

1 Reply

Free CLL specific educational forums in Duarte, Charlotte, Seattle and Portland

Hi, We will be holding a total of a dozen free CLL specific ½ day Educational Forums for patients and caregivers across the country over the next few months....

Hi, We will be holding a total of a dozen free CLL specific ½ day Educational Fo...

bkoffman

CLL CURE Hero•5 years ago

3 Replies

CLL Unmutated CD38 92%

Question for someone that understands all this better than me. When blood test was done 2 months ago CD38 44%. Now after biopsy and removal of 5 slightly...

Question for someone that understands all this better than me. When blood test ...

Bryanb

•5 years ago

6 Replies

Want to take advantage of all our features? Just log in!

New York City -- CLL Patient Support Group- Sunday February 3, 2019 - from 3pm – 5pm - 1305 York Ave, New York, NY (Manhattan)

New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please...

New York City -- CLL Patient Support Group The CLL Society invites you to our su...

lankisterguy

Volunteer•5 years ago

2 Replies

New to Imbruvica

3years in remission and my CLL is back. My WBC is not outrageous (66) but my ONC wanted to start me on Imbruvica now. Been on it little over a week and the...

3years in remission and my CLL is back. My WBC is not outrageous (66) but my ONC...

Legaldoc

•5 years ago

8 Replies

CLL , Lyme and Ibrutinib

Hi everyone I am wondering if anybody had to deal with this . My wife started Ibrutinib 10 days ago and the first week looked promising. Nodes in the neck...

Hi everyone I am wondering if anybody had to deal with this . My wife started I...

Sergi

•5 years ago

8 Replies

Outstanding third opinion.

I had to get a third opinion because the first doc said at the first visit no treatment until see symptoms. When I went back after bone marrow and lymph node...

I had to get a third opinion because the first doc said at the first visit no tr...

showdog

•5 years ago

7 Replies

World Health Organization lists "vaccine hesitancy" as a global health threat

"Vaccine hesitancy, where people are reluctant or refuse to have themselves or their children vaccinated, is a growing trend among those fearing negative...

"Vaccine hesitancy, where people are reluctant or refuse to have themselves or t...

AussieNeil

Administrator•5 years ago

3 Replies

admitted to hospital

THE SWELLING GOT WORSE IN MY LEGS..PAIN WAS EXCRUTIATING IN LOWER BACK..HAD A SCAN DONE..THEY FOUND A TUMOR ON MY LOWER BACK THE SIZE OF A BASEBALL,,12 CM...

THE SWELLING GOT WORSE IN MY LEGS..PAIN WAS EXCRUTIATING IN LOWER BACK..HAD A SC...

tlcladygiraffe

•5 years ago

40 Replies

Painful process of waiting and not knowing swollen lymph nodes

I had swollen lynode in my neck for two years the pain is so bad the Dr have not fully diagnose me yet but watch and see my mother had aml leukemia IAM going...

I had swollen lynode in my neck for two years the pain is so bad the Dr have not...

Lindarella38

•5 years ago

10 Replies

How to tell if platelets are low

How can you tell if you’re platelets are low and has anyone had their eyelids to be red and infection on them and I’m having blurry vision my vision is blurry...

How can you tell if you’re platelets are low and has anyone had their eyelids to...

LUCYLU51

•5 years ago

4 Replies

High CBC & Platelet Counts

I just recently did an analysis of all the blood work that I've had done since 2002 (total of 14 blood tests) and am not sure if I should be concerned at my...

I just recently did an analysis of all the blood work that I've had done since 2...

riccamarsh

•5 years ago

4 Replies

100 years later, why don’t we commemorate the victims and heroes of ‘Spanish flu’?

Worldwide, the pneumonic influenza pandemic of 1918–19 killed an estimated 50-100 million people – at least three times all of the deaths caused by the First...

Worldwide, the pneumonic influenza pandemic of 1918–19 killed an estimated 50-1...

AussieNeil

Administrator•5 years ago

12 Replies

Helpful article for the cll

Ways to Activate the Lymphatic System to Boost Immunity Katie Wells 1 Comment Updated: January 19, 2019 This post contains affiliate links how to have healthy...

Ways to Activate the Lymphatic System to Boost Immunity Katie Wells 1 Comment Up...

Alaoun

•5 years ago

12 Replies

דר תמר תדמור- החדשות על CLL מכנס ה Dr. Tamar Tadmor - News about the CLL ASH Conference 2018

https://youtu.be/ybYjc0enqHs

Cllcanada

Link to summary of ongoing treatments

https://www.onclive.com/web-exclusives/combination-trials-signal-next-wave-of-treatment-for-cll

https://www.onclive.com/web-exclusives/combination-trials-signal-next-wave-of-tr...

Yuck

•5 years ago

8 Replies

Money, money, money

Not CLL specific, but it does affect us. Good read. Maybe it will get better sometime....

Not CLL specific, but it does affect us. Good read. Maybe it will get better s...

BeckyLUSA

•5 years ago

Be the first to reply

Start BR this Wednesday

My ear infection has been dealt with and now they will proceed with first session of BR that was postponed a week to deal with the bad ear. I’ve been referred...

My ear infection has been dealt with and now they will proceed with first sessio...

Estate1

•5 years ago

11 Replies

Venetoclax and rituxinib

For those who have followed my story, apparently the Ibrutinib has failed after ~2.5 years even though the blood looked good. A random trip to the ER for...

For those who have followed my story, apparently the Ibrutinib has failed after ...

rlyndecker

•5 years ago

16 Replies

Joint pain

Anyone else have swollen fingers and hands? How do you treat it besides ice packs and topical gel? Thanks.

Anyone else have swollen fingers and hands? How do you treat it besides ice pack...

Hidden

•5 years ago

33 Replies

Kimsome

Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR....

Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed wit...

Kimsome

•5 years ago

3 Replies

Last cycle of FCR next week

I am on the Flair trial am now approaching my last lot of FCR. When signing up to Flair given the choice FCR would have been my last choice of treatment, but...

I am on the Flair trial am now approaching my last lot of FCR. When signing up t...

dandelup

•5 years ago

8 Replies

CLL, Bladder Cancer and BCG coming up for me

I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic...

I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo...

Jvanfire

•5 years ago

3 Replies

Flair trial changes

Hi All Does anyone know why the I+R arm of theFlair trial is closed to recruitment? I see from the website that the other 3 arms are still there. Are there any...

Hi All Does anyone know why the I+R arm of theFlair trial is closed to recruitme...

Hm15

•5 years ago

12 Replies

CLL is no longer dormant

I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another...

I live in Hamilton and being followed by a Hematologist at Mc Master. I have had...

Mamouchi

•5 years ago

2 Replies

New 'Posts' Page layout appearing soon

HealthUnlocked have advised of an upcoming change of the Posts tab per the above image incorporating visual and functional changes to the site. Here's a copy...

HealthUnlocked have advised of an upcoming change of the Posts tab per the above...

AussieNeil

Administrator•5 years ago

15 Replies

Watch and Wait

I have posted before but now have all of my tests done. I wanted to see if the members here who know more than I do agree with my doctors recommendation of...

I have posted before but now have all of my tests done. I wanted to see if the m...

Bryanb

•5 years ago

6 Replies

Scientific journal articles regarding dental issues and dental care

Does anyone know of articles I could give to our dentist regarding CLL (or similar) so he can better inform himself? He is a conscientious but busy man and...

Does anyone know of articles I could give to our dentist regarding CLL (or simil...

hsouter

•5 years ago

6 Replies

Being able to work taking abruvica

I live alone and wondering about side effects and if I will be able to manage my 2 jobs. I know everyone is different just would like some input on experiences...

I live alone and wondering about side effects and if I will be able to manage my...

showdog

•5 years ago

11 Replies

Mother of a 16 year old son with extreme OCD

I am new here. I have a 16 year old son with extreme OCD. Our entire lives center around his Obsessions, Compulsions, Intrusive thoughts, Tics, and the...

I am new here. I have a 16 year old son with extreme OCD. Our entire lives cen...

OCDbreaksmyheart

•5 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2019

Moving to Calquence from Ibrutinib

Free CLL specific educational forums in Duarte, Charlotte, Seattle and Portland

CLL Unmutated CD38 92%

New York City -- CLL Patient Support Group- Sunday February 3, 2019 - from 3pm – 5pm - 1305 York Ave, New York, NY (Manhattan)

New to Imbruvica

CLL , Lyme and Ibrutinib

Outstanding third opinion.

World Health Organization lists "vaccine hesitancy" as a global health threat

admitted to hospital

Painful process of waiting and not knowing swollen lymph nodes

How to tell if platelets are low

High CBC & Platelet Counts

100 years later, why don’t we commemorate the victims and heroes of ‘Spanish flu’?

Helpful article for the cll

דר תמר תדמור- החדשות על CLL מכנס ה Dr. Tamar Tadmor - News about the CLL ASH Conference 2018

Link to summary of ongoing treatments

Money, money, money

Start BR this Wednesday

Venetoclax and rituxinib

Joint pain

Kimsome

Last cycle of FCR next week

CLL, Bladder Cancer and BCG coming up for me

Flair trial changes

CLL is no longer dormant

New 'Posts' Page layout appearing soon

Watch and Wait

Scientific journal articles regarding dental issues and dental care

Being able to work taking abruvica

Mother of a 16 year old son with extreme OCD

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive