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CLL Support

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All posts for December 2018

Please ask your friends and famly to give blood this holiday season

RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS...

RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-u...

Cllcanada

Anyone taking calquence (acalabrutinib)?

I had a serious bout of arrhythmia after only a few weeks on imbruvica, even thought I had no previous heart problems. I won't go back on it. My doctor wants...

I had a serious bout of arrhythmia after only a few weeks on imbruvica, even tho...

profrich

•5 years ago

100 Replies

Lymph nodes and rash

Hello everyone! Can anyone please explain to me how big your lymph nodes are? Do they wax and wane? To what sizes? Do you have skin rashes or itch? If so...

Hello everyone! Can anyone please explain to me how big your lymph nodes are? Do...

Proudmom1983

•5 years ago

14 Replies

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CLL Symptoms Question

I was diagnosed 2 years ago with CLL and start treatment (BR) in January. I have some strange skin rashes, scalp, ears and general itchiness. Also a new...

I was diagnosed 2 years ago with CLL and start treatment (BR) in January. I have...

Estate1

•5 years ago

10 Replies

ASH Conference Speaker: Diet valuable in reducing Inflammation and Symptom Burden in People with Blood Disorders

OK, so I'm one part blown away, one part grateful and one little part "I told you so!" In a Patient Power video recap of the recent ASH conference in San...

OK, so I'm one part blown away, one part grateful and one little part "I told yo...

jawdfs

•5 years ago

68 Replies

Australian researchers discover unique cancer biomarker

https://ab.co/2SyQNyu

lamboman

•5 years ago

1 Reply

Anyone had these drugs? Comments please.

My first treatment starts in January. My Hem/Onc is prescribing Bendamustine and Rituximab as first line treatment. Dr said there is a protocol for 65 and...

My first treatment starts in January. My Hem/Onc is prescribing Bendamustine an...

Estate1

•5 years ago

23 Replies

Ibrutinib plus obinutuzumab versus chlorambucil plus obinutuzumab in first-line treatment of chronic lymphocytic leukaemia (iLLUMINATE):

https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(18)30788-5/fulltext

https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(18)30788-5/fullt...

Myrddin

•5 years ago

6 Replies

Finger nail fungus

So I guess I will start from the beginning of this journey. Let’s start off with saying I have always taken great care of my nails so this experience has been...

So I guess I will start from the beginning of this journey. Let’s start off with...

M_Hartzog

•5 years ago

11 Replies

Chemo-Free Treatment Best Option for CLL Patients Under 70

There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with you. Results of...

There is good news in the advancement of chemo-free approaches to managing chron...

GlennSabin

•5 years ago

46 Replies

protocols

new here stage 0 : I would like to know how far apart to take matcha powder and curcumin also is bio perene or BCM95 recommended ?

new here stage 0 : I would like to know how far apart to take matcha powder an...

superon

•5 years ago

6 Replies

Second month down on Inutrib

Last month WBC was up in first month and I know that was to be expected. Second month down and WBC down to 247k from 260k which I’ll assume is better than...

Last month WBC was up in first month and I know that was to be expected. Second ...

kwarehime

•5 years ago

2 Replies

Ibrutinib, Imbruvica (ibrutinib) and Rituxan in firstline younger patients, the BC, Canada viewpoint

https://youtu.be/Xo8ghyK4Rr4

Cllcanada

90 days on Ibrutinib

Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from...

Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only...

Mick491

•5 years ago

12 Replies

New York City -- CLL Patient Support Group -- Sunday December 16 3:00pm to 5:00pm

The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. In addition to our regular meeting this month we’ve...

The CLL Society invites you to our support group sponsored by the CLL Society Su...

lankisterguy

Volunteer•5 years ago

Be the first to reply

IR vs FCR - PFS Sub-Group Analysis

Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the...

Thanks to twitter users posting slides from the late-breaking ASH 2018 presentat...

avzuclav

•5 years ago

2 Replies

richters

How do I add tags to my previous post so ppl can find it ?

nazkaur

•5 years ago

2 Replies

Ibrutinib plus CD19-specific CAR T-cell therapy may benefit patients with relapsed or refractory CLL

Administration of ibrutinib beginning 2 weeks prior to leukapheresis and continuing until 3 months after CD19-specific chimeric antigen receptor T-cell therapy...

Administration of ibrutinib beginning 2 weeks prior to leukapheresis and continu...

wmay13241

•5 years ago

1 Reply

Observe

I am 79 and have CLL zero stage. I have had lots of squamous cell Mohs surgeries.My Dermatologist said I am susceptible due to my condition and many years of...

I am 79 and have CLL zero stage. I have had lots of squamous cell Mohs surgeries...

Observe

•5 years ago

2 Replies

Strength traning

Can I do strength training with cll? And what kind of food isbest to eat for cll? Thank you guys!

Can I do strength training with cll? And what kind of food isbest to eat for cll...

krikri1989ho

•5 years ago

6 Replies

CLL Education Program w Adrien Wiestner in Baltimore

I was reading my Sunday newspaper this morning and saw an add from the Leukemia & Lymphoma Society. Adrian Wiestner, MD, PhD who is the senior investigator at...

I was reading my Sunday newspaper this morning and saw an add from the Leukemia ...

PSP52

•5 years ago

3 Replies

IGg

I See very little about levels of Immunology . Mine have been going down steadily especially my IGg levels. Right now my MY IGg is 265 down from 335 4 mnths...

I See very little about levels of Immunology . Mine have been going down steadi...

Downriver555

•5 years ago

7 Replies

Constant Nasal Congestion

40 days on imbruvica, labs better but continued issues with upper respiratory congestion. Drainage always clear but constant. I was suggested to try flonase...

40 days on imbruvica, labs better but continued issues with upper respiratory co...

6468

•5 years ago

11 Replies

Protect Cancer Medications for People on Medicare

Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump...

Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Ps...

JoelT

•5 years ago

3 Replies

Do Acai berries destroy leukemia?

Have anyone tried acai berry extract.was it helpful? Title edited by Admin

Supratim

•5 years ago

6 Replies

Foot Pain

After being on Ibrutinib for a year I started feeling pain and swelling in my feet. I suspect some of what I'm experiencing could be high blood pressure and...

After being on Ibrutinib for a year I started feeling pain and swelling in my fe...

pilantd

•5 years ago

3 Replies

Congratulations Dr Brian Koffman!!

CLL Society Co-Founder and Chief Medical Officer, Dr. Brian Koffman, has been honored as 1 of 4 CURE 2018 Chronic Lymphocytic Leukemia Heroes. On Sunday Dec....

CLL Society Co-Founder and Chief Medical Officer, Dr. Brian Koffman, has been ho...

Anastasia1

•5 years ago

4 Replies

Nice little tweet from ASH 2018

https://twitter.com/anthonymatomd/status/1069009832596754432?s=21

baq724

•5 years ago

4 Replies

CLL and Cannabis

I'm starting chemo January 16/19 and will be using Cannabis oil and vaping herb to combat side effects of treatment. Has anyone else tried?

I'm starting chemo January 16/19 and will be using Cannabis oil and vaping herb ...

Estate1

•5 years ago

16 Replies

Ibrvtinib and Tincture/CBD oil ?

Hi there, I am new to the site and just been reading through other peoples thoughts and experiences. I am on this site for my dad who was recently diagnosed...

Hi there, I am new to the site and just been reading through other peoples thou...

aj33

•5 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2018

Please ask your friends and famly to give blood this holiday season

Anyone taking calquence (acalabrutinib)?

Lymph nodes and rash

CLL Symptoms Question

ASH Conference Speaker: Diet valuable in reducing Inflammation and Symptom Burden in People with Blood Disorders

Australian researchers discover unique cancer biomarker

Anyone had these drugs? Comments please.

Ibrutinib plus obinutuzumab versus chlorambucil plus obinutuzumab in first-line treatment of chronic lymphocytic leukaemia (iLLUMINATE):

Finger nail fungus

Chemo-Free Treatment Best Option for CLL Patients Under 70

protocols

Second month down on Inutrib

Ibrutinib, Imbruvica (ibrutinib) and Rituxan in firstline younger patients, the BC, Canada viewpoint

90 days on Ibrutinib

New York City -- CLL Patient Support Group -- Sunday December 16 3:00pm to 5:00pm

IR vs FCR - PFS Sub-Group Analysis

richters

Ibrutinib plus CD19-specific CAR T-cell therapy may benefit patients with relapsed or refractory CLL

Observe

Strength traning

CLL Education Program w Adrien Wiestner in Baltimore

IGg

Constant Nasal Congestion

Protect Cancer Medications for People on Medicare

Do Acai berries destroy leukemia?

Foot Pain

Congratulations Dr Brian Koffman!!

Nice little tweet from ASH 2018

CLL and Cannabis

Ibrvtinib and Tincture/CBD oil ?

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