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CLL Support

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All posts for November 2018

USA Health Insurance Open Enrollment Ends Dec 15 for Non-Medicare and Dec 7 for Medicare

Open Enrollment for those not on Medicare ends on December 15th. 2019 options have increased in many markets this year and price increases have slowed. Many...

Open Enrollment for those not on Medicare ends on December 15th. 2019 options ha...

lankisterguy

Volunteer•6 years ago

1 Reply

CAR-T Cell expert Dr. Utkarsh Acharya online; CAR-T Patient Dr. Brian Koffman at CLL Society Support Meetings- Philadelphia & New York City

This week there are several opportunities to learn more about CAR-T...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Inbrutnib side effects

Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about...

Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyo...

Turntwo

•6 years ago

6 Replies

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MRD with Next Generation Sequencing (NGS)

People on various combination trials are tested for MRD after a few months of treatment. I wonder if anyone of you has been tested with NGS (Next Generation...

People on various combination trials are tested for MRD after a few months of tr...

lamboman

•6 years ago

3 Replies

B12 deficiency

Can I have B12 deficiency without having pernicious anemia? My red blodd cell count is within the 'normal' limits. I have chest pains quite regularly and have...

Can I have B12 deficiency without having pernicious anemia? My red blodd cell co...

jigsaw7

•6 years ago

5 Replies

Flu shot with lung congestion

I'm 10 years WW with unmutated, treatment looming with 192 WBC, enlarged spleen and 9.8 hemoglobin, also IVgs in the toilet. My question is about IVgs and flu...

I'm 10 years WW with unmutated, treatment looming with 192 WBC, enlarged spleen ...

debralynn

•6 years ago

4 Replies

cll and flebodia600

Hello!) I'm new. I have cll (diagnosed September 17), w & w I complain of lower abdominal pain due to varicose veins. When I took Flebodia 600 (diosmin) - it...

Hello!) I'm new. I have cll (diagnosed September 17), w & w I complain of lower ...

Ricotta

•6 years ago

5 Replies

Is anyone on Essential Oils for W&W?

Folks around here are getting into essential oils... I've rolled on immune therapy for my swollen neck gland, and it seemed to help some... but I have a sore...

Folks around here are getting into essential oils... I've rolled on immune thera...

barbkerm

•6 years ago

24 Replies

I haven't seen my doctor for a year... I just get a Physician's Assistant.

I'm going to request the doctor the next time... I assumed that I would be seeing him.. but I just got a PA. She asked the questions, asked if I had any...

I'm going to request the doctor the next time... I assumed that I would be seein...

barbkerm

•6 years ago

14 Replies

Is Green Tea and Matcha powder same, similar?

Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus...

Hello All, I've always experienced a benefit from simply drinking green. Over th...

jawdfs

•6 years ago

34 Replies

Seeking information

My wife had some Multiple Subcentimeteric Sized normally enhancing lymphnodes along mesentery of average size apx. 12x9 mm. 2.She was lately treated for...

My wife had some Multiple Subcentimeteric Sized normally enhancing lymphnodes al...

Shampam

•6 years ago

2 Replies

Need info on raising red cell count

Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you...

Hello I have been here on and off for about a year. I know you are all going thr...

Lorray

•6 years ago

3 Replies

CLL is gone!!!!

After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life....

After living with CLL for 5 years. We have decided to divorce after she MRDed n...

lamboman

•6 years ago

59 Replies

Neutropenia with Ibrutinib

Husband becoming neutropenic after 2 years on Ibrutinib. Maybe he will be forced to quit treatment if he can’t take it anymore because of that. Is there any...

Husband becoming neutropenic after 2 years on Ibrutinib. Maybe he will be forced...

marlapoi

•6 years ago

12 Replies

Lymph Nodes behind the knee

I did not know there were Lymph Nodes behind the knee My Orthopedic Dr said I have Arthritic Knee but I feel Lumps behind it and the Cortisone shot did not...

I did not know there were Lymph Nodes behind the knee My Orthopedic Dr said I ha...

poppykraus

•6 years ago

4 Replies

Help for a newbie please...

Hi I keep hearing (at the conference) and seeing discussion (on here) about the ''type of CLL'' whether I have mutated or unmutated, can anyone help explain...

Hi I keep hearing (at the conference) and seeing discussion (on here) about the ...

Normsky

•6 years ago

11 Replies

Cough post FCR

Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said...

Hello everyone I completed FCR in January and now enjoying what I hope will be ...

Eebie1234

•6 years ago

9 Replies

New lumps

Found two lumps..one in my breast..the other below...have an appointment with my oncologist on Nov 14th..have been on imbruvica for 13 months and had not found...

Found two lumps..one in my breast..the other below...have an appointment with my...

tlcladygiraffe

•6 years ago

10 Replies

Mental health + CLL

Anyone else out there have mental health issue as well as CLL? I have GAD with panic, PTSD, depression, and am Aspergers (not that Aspergers is a mental health...

Anyone else out there have mental health issue as well as CLL? I have GAD with p...

macchiato

•6 years ago

5 Replies

Weight gain 😩

I was diagnosed in January 2017, went on imbruvica later that year, and put on 5kg. Went into remission and this year it came back, and on imbruvica again....

I was diagnosed in January 2017, went on imbruvica later that year, and put on 5...

macchiato

•6 years ago

11 Replies

metastatic breast cancer

can I add to other people about day and night sweats?

ghopper

•6 years ago

2 Replies

Front Line Treatment in Canada?

My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in...

My father was just at his CLL appointment with a specialist here in Vancouver, B...

alpek

•6 years ago

8 Replies

Confused about treatment option

Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no...

Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolyt...

Kotek

•6 years ago

51 Replies

Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society

Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society The latest information for patients and...

Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org ...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Cancer Care Education Workshops Online 1 hour free sessions

Cancer Care Education Workshops Online 1 hour free sessions https://www.cancercare.org/connect_workshops/tagged/chronic_lymphocytic_leukemia - Upcoming...

Cancer Care Education Workshops Online 1 hour free sessions https://www.cancer...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Gazyva

My husband was diagnosed with CLL in November 2016, although they suspect he had it for years prior to his diagnosis. Things have progressed and his oncologist...

My husband was diagnosed with CLL in November 2016, although they suspect he had...

plglass2011

•6 years ago

8 Replies

New CLL survival milestones

I just love to read sentences like “I think we’re approaching a time when we could start thinking about CLL patients living 20 to 30 years after they start...

I just love to read sentences like “I think we’re approaching a time when we co...

BettinaB

•6 years ago

10 Replies

Bone Marrow Biopsy and pain

I've been on the Ibrutinib/Venetoclax trial for 8 months now and last Friday my blood test came back CLL free. I underwent yesterday my 2nd bone marrow...

I've been on the Ibrutinib/Venetoclax trial for 8 months now and last Friday my ...

lamboman

•6 years ago

14 Replies

Natural only for me.

I'm very interested to hear what kinds of results folks have gotten from clean organic eating and juicing. Our Drs tell us there's nothing we can do to improve...

I'm very interested to hear what kinds of results folks have gotten from clean o...

CLLnaturally

•6 years ago

32 Replies

On w/w. Just had 2 dental crowns fitted and now my eyes do not blink at the same time. Dentist says just unfortunate. Is this cll linked..

Help please unfortunate Dental experience

Ysabeau

•6 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2018

USA Health Insurance Open Enrollment Ends Dec 15 for Non-Medicare and Dec 7 for Medicare

CAR-T Cell expert Dr. Utkarsh Acharya online; CAR-T Patient Dr. Brian Koffman at CLL Society Support Meetings- Philadelphia & New York City

Inbrutnib side effects

MRD with Next Generation Sequencing (NGS)

B12 deficiency

Flu shot with lung congestion

cll and flebodia600

Is anyone on Essential Oils for W&W?

I haven't seen my doctor for a year... I just get a Physician's Assistant.

Is Green Tea and Matcha powder same, similar?

Seeking information

Need info on raising red cell count

CLL is gone!!!!

Neutropenia with Ibrutinib

Lymph Nodes behind the knee

Help for a newbie please...

Cough post FCR

New lumps

Mental health + CLL

Weight gain 😩

metastatic breast cancer

Front Line Treatment in Canada?

Confused about treatment option

Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society

Cancer Care Education Workshops Online 1 hour free sessions

Gazyva

New CLL survival milestones

Bone Marrow Biopsy and pain

Natural only for me.

On w/w. Just had 2 dental crowns fitted and now my eyes do not blink at the same time. Dentist says just unfortunate. Is this cll linked..

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