Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2018

Lumps

I have lymphoma and am on imbruvica for 13 months..I now have found 2 lumps one in my breast the other below...having a mammagram and ultrasound on Dec...

I have lymphoma and am on imbruvica for 13 months..I now have found 2 lumps one ...

tlcladygiraffe

•5 years ago

15 Replies

Call information

Does anyone have severe ovary pain with cll

RWalker

•5 years ago

5 Replies

Do they ever remove enlarged lymph nodes?

Please forgive me if this has been addressed before, but do docs ever just remove enlarged lymph nodes? If not, why not? One person on the forum said recently...

Please forgive me if this has been addressed before, but do docs ever just remov...

CLLB

•5 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Avoiding bugs

Hi I am new here. Diagnosed about 18 months ago. Was OK for the first year when I didn't know much about CLL. But now I feel very tired and anxious about...

Hi I am new here. Diagnosed about 18 months ago. Was OK for the first year when ...

anapurna

•5 years ago

13 Replies

6 months on imbruvica. Irregular heart beat

Hello. New to this site. Hope to get to know all of you. Have had cll for 6 years. Started treating 6 months ago with imbruvica. Last 10 days irregular heart...

Hello. New to this site. Hope to get to know all of you. Have had cll for 6 year...

Antiquer

•5 years ago

4 Replies

Food!

Hi ,can anyone help ?, I’m not very clear on what I can and can’t eat on ibrutinib ,I’m told no cream cheese ,sorry to sound dim but I call Brie soft cheese...

Hi ,can anyone help ?, I’m not very clear on what I can and can’t eat on ibrutin...

Workers

•5 years ago

11 Replies

Can enlarged lymph nodes in neck be dangerous

Hello everyone My wife has been diagnosed with Cll five years ago and now she has multiple very large (3 inches ) nodes in her neck area that are really...

Hello everyone My wife has been diagnosed with Cll five years ago and now she ...

Sergi

•5 years ago

23 Replies

CLL Regressed????

Had a haematology appt today, 3 months post partum. I have had CLL for 11 years. Not sure what to make of it, either is my consultant but my blood results are...

Had a haematology appt today, 3 months post partum. I have had CLL for 11 years....

TinyTattooedToes

•5 years ago

33 Replies

Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients

#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab (FCR)...

#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therap...

Newchallnge

•5 years ago

44 Replies

Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)

https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to...

https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The co...

avzuclav

•5 years ago

15 Replies

Kombucha...Safe?

Has anyone had experience with Kombucha... the health food drink that is fermented tea. Is it safe?

Has anyone had experience with Kombucha... the health food drink that is ferment...

barbkerm

•5 years ago

5 Replies

EXPLORER, medical imaging scanner that can capture a 3-D picture of the whole human body with a radiation dose up to 40 times less

https://www.eurekalert.org/pub_releases/2018-11/uoc--hif111918.php - EXPLORER, the world's first medical imaging scanner that can capture a 3-D picture of the...

https://www.eurekalert.org/pub_releases/2018-11/uoc--hif111918.php - EXPLORER, t...

lankisterguy

Volunteer•5 years ago

4 Replies

Newly diagnosed with CLL. Have a question.

I was diagnose with cll in August. I have the 13d and was told my prognosis is good. I have no symptoms but have noticed a couple of tiny swollen glands....

I was diagnose with cll in August. I have the 13d and was told my prognosis is ...

elm1

•5 years ago

29 Replies

Question

My Mom has been on inbruvika for 2 months and has terrible side effects. Has anyone had a burning sensation down your legs and feeling like your blood is cold...

My Mom has been on inbruvika for 2 months and has terrible side effects. Has any...

Moff

•5 years ago

2 Replies

First Cycle of FCR (IV)

I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years...

I am writing this to document what I am going through and maybe compare with oth...

Hidden

•5 years ago

20 Replies

How I Deal With Fatigue

Short story: Baking soda works for me. Back story: I was diagnosed with CLL in 2006. A few years later the fatigue, which for me included mental fog, kicked...

Short story: Baking soda works for me. Back story: I was diagnosed with CLL in...

Ducksoup

•5 years ago

39 Replies

Will I always be on Imbruvica?

Dummer70

•5 years ago

10 Replies

Summary of UK CLL Trials Portfolio ~ November 2018

The summary of current CLL trials has been updated and is available by following the link below...

The summary of current CLL trials has been updated and is available by following...

Myrddin

•5 years ago

2 Replies

Lesions in liver?

I did CT of abdomen and pelvic. Discovered (3) large lesions on liver. Anyone has similar findings? Could it be enlarge lymph nodes? I was diagnosed with CLL...

I did CT of abdomen and pelvic. Discovered (3) large lesions on liver. Anyone ha...

Durachok

•5 years ago

4 Replies

I'm tired

Back on W&W after I developed serious side effects with Ibrutinib. Seriously disappointed as it worked like a treat and within 4 months all bloods were back...

Back on W&W after I developed serious side effects with Ibrutinib. Seriously di...

UKfulloflife

•5 years ago

20 Replies

Tisomy 12

Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic...

Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I...

venk_46

•5 years ago

4 Replies

Newbie to CLL

Hello I was only diagnosed with CLL this week after a frightening three weeks of blood tests and scans. I have been told that unless things change, I will not...

Hello I was only diagnosed with CLL this week after a frightening three weeks of...

kitchengardener

•5 years ago

14 Replies

Follow ups when on Ibrutinib

What is the follow up regiment when starting Ibrutinib? How to see if any changes in abdominal lymphoma mass?

What is the follow up regiment when starting Ibrutinib? How to see if any change...

VLAD11

•5 years ago

24 Replies

Wife just diagnosed with CLL too!

I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure...

I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was ...

Walt424

•5 years ago

7 Replies

Ibrutinib and dental work

Can anyone tell me how long before I have a tooth filled I need to stop with Ibrutinib?

Can anyone tell me how long before I have a tooth filled I need to stop with Ibr...

Mayor44

•5 years ago

8 Replies

CAR-T eduction this week

Wednesday, November 14, 2018, 12:15 – 1:15 pm, Eastern Time The CLL Society, Florida Society of Clinical Oncology, and Gilda’s Club South Florida invites you...

Wednesday, November 14, 2018, 12:15 – 1:15 pm, Eastern Time The CLL Society, Flo...

bkoffman

CLL CURE Hero•5 years ago

2 Replies

Health Check: should you take probiotics when you’re on antibiotics?

Following on from the Israeli research that Probiotics are mostly useless and can actually hurt you:...

Following on from the Israeli research that Probiotics are mostly useless and ca...

AussieNeil

Administrator•5 years ago

11 Replies

Anyone have experience with Kombucha?

Anyone have experience with Kombucha? An Essential Oils friend is touting the benefits of it (fermented tea).

Anyone have experience with Kombucha? An Essential Oils friend is touting the b...

barbkerm

•5 years ago

3 Replies

Is it okay to get a PPD?

My new CLL specialist said to be careful of shots; I know a TB test isn't exactly a shot, but he also said that my immune system isn't what it should be....

My new CLL specialist said to be careful of shots; I know a TB test isn't exactl...

mjcll41

•5 years ago

4 Replies

ASH Conference will hopefully have some good news on CLL progress

I am a patient of Dr. Jain at MDA (prior with Dr. O'Brien before she left for Irvine) and was in the early Ibrutinib/Rituxin study at MDA. I am currently on...

I am a patient of Dr. Jain at MDA (prior with Dr. O'Brien before she left for Ir...

17Pisme

•5 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2018

Lumps

Call information

Do they ever remove enlarged lymph nodes?

Avoiding bugs

6 months on imbruvica. Irregular heart beat

Food!

Can enlarged lymph nodes in neck be dangerous

CLL Regressed????

Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients

Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)

Kombucha...Safe?

EXPLORER, medical imaging scanner that can capture a 3-D picture of the whole human body with a radiation dose up to 40 times less

Newly diagnosed with CLL. Have a question.

Question

First Cycle of FCR (IV)

How I Deal With Fatigue

Will I always be on Imbruvica?

Summary of UK CLL Trials Portfolio ~ November 2018

Lesions in liver?

I'm tired

Tisomy 12

Newbie to CLL

Follow ups when on Ibrutinib

Wife just diagnosed with CLL too!

Ibrutinib and dental work

CAR-T eduction this week

Health Check: should you take probiotics when you’re on antibiotics?

Anyone have experience with Kombucha?

Is it okay to get a PPD?

ASH Conference will hopefully have some good news on CLL progress

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive