Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2018

CLL SPECIALIST IN NYC - MANHATTAN?

Hello everyone! I'm still on W+W after being diagnosed w/CLL in 2016. My current hematologist has not been helping me at all---with fatigue, all day hot clammy...

Hello everyone! I'm still on W+W after being diagnosed w/CLL in 2016. My current...

•6 years ago

LLS Ask the Doctor New York City- Dr. Anthony Mato Dinner Meeting Dec 12, 2018

http://support.lymphoma.org/site/MessageViewer?em_id=3116.0&dlv_id=6484 Ask the Doctor – New York, NY Free Educational Program for Lymphoma Patients,...

http://support.lymphoma.org/site/MessageViewer?em_id=3116.0&dlv_id=6484 Ask ...

Volunteer•6 years ago

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Greentea and tumeric extract dosing for CLL

Hi I was just diagnosed with stage 0 CLL last month.Of course I've been reading everything I can find about it.Green tea extract and tumeric keep coming up.How...

Hi I was just diagnosed with stage 0 CLL last month.Of course I've been reading ...

•6 years ago

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Mouth sores on Imbruvica

Is anyone else experiencing mouth sores while taking Imbruvica, and if so, are there any working solutions out there? I’ve been on the medication for five...

Is anyone else experiencing mouth sores while taking Imbruvica, and if so, are t...

•6 years ago

50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?

Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?

Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go u...

•6 years ago

CLL specialist in Istanbul?

Hi All, Can anyone recommend a CLL specialist in Istanbul (or Turkey as general)? Thank you!

Hi All, Can anyone recommend a CLL specialist in Istanbul (or Turkey as general...

•6 years ago

CLL and disability in USA and Canada

I had chemotherapy 4 years ago. Started Imbruvica 1 year ago but stopped 2 months ago because of side-effect. I am 58 and last year was difficult as I lost...

I had chemotherapy 4 years ago. Started Imbruvica 1 year ago but stopped 2 month...

•6 years ago

Imbruvica and amlodipine

Hi...Has anyone taken these 2 meds together and experienced swelling of the legs and ankles?I am dealing with that presently and wanted to know if this has...

Hi...Has anyone taken these 2 meds together and experienced swelling of the legs...

•6 years ago

Just joined group

Was diagnosed in 2014; had chemo & went into remission. Just started in imbruvica today. How long until side effects might begin?

Was diagnosed in 2014; had chemo & went into remission. Just started in imbruvic...

•6 years ago

BTK Inhibitor Success Puts Focus on Resistance Mechanisms

Less than 5 years after Bruton tyrosine kinase (BTK) inhibition was introduced in hematologic malignancies, the need for strategies to address primary and...

Less than 5 years after Bruton tyrosine kinase (BTK) inhibition was introduced i...

Top Poster CURE Hero•6 years ago

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Feeling isolated

I have always been a positive and optimistic person until the last few years when my health has gone downhill. I have 11 health problems now and find I can no...

I have always been a positive and optimistic person until the last few years whe...

•6 years ago

Systemic therapy - FCR: Day One

Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic...

Chemo was way too eventful today. For the first treatment the nurses give the iv...

•6 years ago

How two 1990s discoveries have led to (some) cured cancers, and a Nobel Prize

"This year’s award of the Nobel Prize for Physiology and Medicine to James P. Allison and Tasuku Honjo, for their work in the early 1990s on immune...

"This year’s award of the Nobel Prize for Physiology and Medicine to James P. Al...

Administrator•6 years ago

What Lipton green tea bags do you folks recommend? None of the boxes define the EGCG amounts.

Hello this is my first post. I signed up yesterday and have been spending a lot of time reading, so much information. My history starts when I was in the...

Hello this is my first post. I signed up yesterday and have been spending a lot...

•6 years ago

Flu and Aspergillosis link in 1/3 health patients?

This was looking at heakthy people with flu, obviously the risk is far higher in immunocompromised patients... more reasons to get your flu vaccine....

This was looking at heakthy people with flu, obviously the risk is far higher ...

Top Poster CURE Hero•6 years ago

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The Impact of Diet on CLL

Hello everyone, Please take a look at my article titled 'The Impact of Diet on CLL', which was published in CLL Society's Tribune....

Hello everyone, Please take a look at my article titled 'The Impact of Diet on C...

•6 years ago

13 Q DELETION, JUST GOT THE FISH REPORT DONT KNOW WHAT IT MEANS, CLL

hello, i just got my mothers reports of FISh it says 13 q deletion, i dont understand what that means, it would be very helpful if i can understand in layman's...

hello, i just got my mothers reports of FISh it says 13 q deletion, i dont under...

•6 years ago

Duvelisib has marked response, survival benefit in difficult-to-treat leukemia and lymphoma

"The way we treat patients with CLL is changing rapidly as we move from standard chemotherapy-based approaches to more targeted therapies," said principal...

"The way we treat patients with CLL is changing rapidly as we move from standard...

Top Poster CURE Hero•6 years ago

Colloidal Silver for CLL

Has anyone used colloidal silver for infections with CLL? I just read about it , apparently it’s great for fighting off viruses and other bacteria infections....

Has anyone used colloidal silver for infections with CLL? I just read about it ,...

•6 years ago

28 Days on Ibrutinib

Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS...

Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a...

•6 years ago

Best front-line treatment(non-chemo) for CLL with no 17p deleton/TP53?

Hi All, I am reading through many innovative approaches and trials of treatment naive patients with non-chemo drugs. Anyone doing well on therapies as...

Hi All, I am reading through many innovative approaches and trials of treatment...

•6 years ago

Does neulastin drop platelet counts?

Can neulastin cause thrombocytopenia?

Can neulastin cause thrombocytopenia?

•6 years ago

Cll follow up question for my mother

It's been 15 days that my mother is diagnosed with rai stage 0 cll. She has been started with a lot of vitamins with other things as the doc says she is on...

It's been 15 days that my mother is diagnosed with rai stage 0 cll. She has been...

•6 years ago

Leg and arm cramps

I haven't had any real symptoms like fevers or sweating, but I am having problems with cramps every once in a while in my legs and arms, especially at night....

I haven't had any real symptoms like fevers or sweating, but I am having problem...

•6 years ago

Quick question re chemo

Does anyone know if you still have chemo if you have a stinking cold?

Does anyone know if you still have chemo if you have a stinking cold?

•6 years ago

CD49d

Hello. From what I gather so far on the internet cd49d + makes it more difficult for ibrutinib to do its job and suggests shoter overall survival. Do you find...

Hello. From what I gather so far on the internet cd49d + makes it more difficul...

•6 years ago

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