Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2018

Experts talk about a future cure

I listen to cll Dr’s online including my Cll Dr talk about a cure just around the corner. My question is where’s the study that’s giving them this information....

I listen to cll Dr’s online including my Cll Dr talk about a cure just around th...

Ironj

•6 years ago

63 Replies

CLLSA conference

Hi, can anyone tell me if the CLLSA conference is useful to attend for the layperson?

Hi, can anyone tell me if the CLLSA conference is useful to attend for the laype...

MystyUK

•6 years ago

6 Replies

Imbruvica part D

When you have regular medicare and a supplement which companies Part D plan pays the most for Imbruvica? Anyone know? I have silverscripts right now.

When you have regular medicare and a supplement which companies Part D plan pays...

billy3

•6 years ago

7 Replies

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Cll chemo

Hi Has anyone being on strong chemo for cll. If so what are the side effects /symtoms to expect after two sessions.

Hi Has anyone being on strong chemo for cll. If so what are the side effects /...

Hidden

•6 years ago

11 Replies

After Venetoclax

I was diagnosed with cll 12 years ago. My age is 68. I went through all treatments, more or less, had a stemcell transplant and went on ubritinib 2 years ago....

I was diagnosed with cll 12 years ago. My age is 68. I went through all treatmen...

Tosti

•6 years ago

12 Replies

Narrow angles diagnosed in my eyes

I just had my eyes checked for a new prescription for glasses and was told I had Narrow angles which he recommended I have Laser Iridotomy surgery ( basically...

I just had my eyes checked for a new prescription for glasses and was told I had...

rcusher

•6 years ago

13 Replies

Hello I am new to the group and I have a question

Node behind knee Up until this week lymph nodes have only been in usual places Neck, groin armpits Now there is one behind right knee I never even knew they...

Node behind knee Up until this week lymph nodes have only been in usual places N...

poppykraus

•6 years ago

1 Reply

Travel insurance

I've just been refused travel insurance from World First. The questions that throws me out is: Do you have a high white cell count? high being 11 or 1100 per...

I've just been refused travel insurance from World First. The questions that th...

is-sul

•6 years ago

13 Replies

Integrated Health Clinics-Are they legitimate?

Hi, My dad was diagnosed with CLL in 2015, he has been on wait/watch for the past 3 years but as wbc/lymphocyte levels have increased he has opted to receive...

Hi, My dad was diagnosed with CLL in 2015, he has been on wait/watch for the pas...

alpek

•6 years ago

4 Replies

OncLive Videos of CLL Expert Doctors on New Treatments

ONCLive CLL eNews Combination Trials Signal Next Wave of Treatment for CLL Within the last decade, the FDA has approved 8 new agents for the treatment of...

ONCLive CLL eNews Combination Trials Signal Next Wave of Treatment for CLL W...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Partial remission

How is partial remission decided

retired46

•6 years ago

4 Replies

Find a good hematologist in Buenos Aires for CLL?

I would like to know if there´s any information here regarding good doctors, hematologist who knows better about ibrutinib an CLL

I would like to know if there´s any information here regarding good doctors, hem...

nicolas_12

•6 years ago

3 Replies

FCR, WHAT IS THE AGE LIMIT FOR FCR OR IS IT MORE ABOUT FITNESS

I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for...

I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed t...

BasTel

•6 years ago

29 Replies

Not CLL-Specific (Yet?)

Is the next big step in cancer therapy personalized vaccines? - SCIENMAG https://apple.news/AQ8OfGP_mR1G6O-rK5Awwyw

Is the next big step in cancer therapy personalized vaccines? - SCIENMAG https:/...

yazbe

•6 years ago

4 Replies

Clinical Trial Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab Untreated CLL & SLL @EU & UK locations

A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic...

A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus...

lankisterguy

Volunteer•6 years ago

19 Replies

Ibrutinib

Hi . I have to take cortisone with ibrutinib treatment. Is it contraindicated? and an antihistaminic? Thank you

Hi . I have to take cortisone with ibrutinib treatment. Is it contraindicated? a...

Bixilon

•6 years ago

16 Replies

The public and the NHS: what's the deal?

The NHS is under financial pressure with growing demand for services. As the NHS reaches its 70th birthday, The King’s Fund has been exploring how the public...

The NHS is under financial pressure with growing demand for services. As the NHS...

Myrddin

•6 years ago

1 Reply

Ask Dr. Furman - Monday, November 19 at 3 PM Eastern time (2 PM CT, 12 PM PT) for a LIVE, 30-minute session about CLL on Patient Power

Do you have a burning question for an expert in chronic lymphocytic leukemia (CLL)? Join Patient Power and the Patient Empowerment Network on Monday, November...

Do you have a burning question for an expert in chronic lymphocytic leukemia (CL...

lankisterguy

Volunteer•6 years ago

4 Replies

Venclexta

After being off treatment for about 3 months, last Thursday I started venclexta again. Last time I tried I had a lot of side effects so this time I was...

After being off treatment for about 3 months, last Thursday I started venclexta ...

MartiP2009

•6 years ago

7 Replies

Spam mail

Anyone else receive a HealthUnlocked message from sus101, who has cancer, 8.3 million, scheduled to die next week, and needs someone to show here where to...

Anyone else receive a HealthUnlocked message from sus101, who has cancer, 8.3 mi...

Mijoed

•6 years ago

22 Replies

Ibrutinib (Imbruvica) fatigue

Hi, does anyone have any tips to combat the fatigue from Imbruvica? I am a 47 year old male with 2 young daughters and a demanding sales job. I do not have...

Hi, does anyone have any tips to combat the fatigue from Imbruvica? I am a 47 ye...

Mellyjake

•6 years ago

15 Replies

Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018

Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia...

Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare ...

lankisterguy

Volunteer•6 years ago

Be the first to reply

EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D

The importance and merits of greater patient involvement in medicines research and development (R&D) are commonly acknowledged and are thought to offer...

The importance and merits of greater patient involvement in medicines research a...

Myrddin

•6 years ago

Be the first to reply

Is it safe for me if my wife has the live shingles vaccine?

I'm 72 and on W&W for 5 years. My wife is 71 and has low immunities and wants to have the live shingles vaccine available here in the UK. Her nurse says that...

I'm 72 and on W&W for 5 years. My wife is 71 and has low immunities and wants t...

carnvellan

•6 years ago

11 Replies

Prevnar

Has anyone received this vaccine while taking imbruvica and does the vaccine work?

Has anyone received this vaccine while taking imbruvica and does the vaccine wor...

tlcladygiraffe

•6 years ago

5 Replies

BILIRUBIN

What does a little bit higher than normal Bilirubin mean, when you have CLL?

blairzy

•6 years ago

11 Replies

Do I have cancer?

I am 28 years old and for 1 year my lymphocytes are consistently high level 4500-5000. Every other count is normal. I have red itchy rashes in my body that...

I am 28 years old and for 1 year my lymphocytes are consistently high level 4500...

Riyasat

•6 years ago

13 Replies

Acid reflux remedy

Does anyone on imbruvica take an acid inhibitor and which one does not interact with imbruvica...reply please asap....need to know.

Does anyone on imbruvica take an acid inhibitor and which one does not interact ...

tlcladygiraffe

•6 years ago

30 Replies

QUANKED

Our doctors are used to hearing we are tired, fatigued or exhausted which is often dismissed - perhaps using a different word, from Wiltshire, would get their...

Our doctors are used to hearing we are tired, fatigued or exhausted which is oft...

Myrddin

•6 years ago

20 Replies

Dual Diagnosis

Confused.com I have three diagnoses CLL Stage A on W&W, Multiple Sclerosis Slow Progress and Osteoarthritis. I cant differentiate with feelings and symptoms...

Confused.com I have three diagnoses CLL Stage A on W&W, Multiple Sclerosis Slow...

janrg

•6 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2018

Experts talk about a future cure

CLLSA conference

Imbruvica part D

Cll chemo

After Venetoclax

Narrow angles diagnosed in my eyes

Hello I am new to the group and I have a question

Travel insurance

Integrated Health Clinics-Are they legitimate?

OncLive Videos of CLL Expert Doctors on New Treatments

Partial remission

Find a good hematologist in Buenos Aires for CLL?

FCR, WHAT IS THE AGE LIMIT FOR FCR OR IS IT MORE ABOUT FITNESS

Not CLL-Specific (Yet?)

Clinical Trial Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab Untreated CLL & SLL @EU & UK locations

Ibrutinib

The public and the NHS: what's the deal?

Ask Dr. Furman - Monday, November 19 at 3 PM Eastern time (2 PM CT, 12 PM PT) for a LIVE, 30-minute session about CLL on Patient Power

Venclexta

Spam mail

Ibrutinib (Imbruvica) fatigue

Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018

EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D

Is it safe for me if my wife has the live shingles vaccine?

Prevnar

BILIRUBIN

Do I have cancer?

Acid reflux remedy

QUANKED

Dual Diagnosis

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