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CLL Support

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All posts for August 2018

Weakness in legs

Good morning all, I have CLL/SLL and I’m wondering if leg weakness is normal? There are times, and it is becoming more frequent, that my legs just give out on...

Good morning all, I have CLL/SLL and I’m wondering if leg weakness is normal? T...

Buckster

•6 years ago

9 Replies

New and Impressed

Hi Gang, I'm new to this forum but have been reading the posts for a couple of weeks. This forum seems to answer many of the questions I've had for the last...

Hi Gang, I'm new to this forum but have been reading the posts for a couple of w...

GrapeGrower1

•6 years ago

6 Replies

Leg weakness with call/sll

Hi all, I’m new to this blog. I was diagnosed a year ago with cell/all and I’m having weakness in my legs. They just seem to quit working at odd times. Is this...

Hi all, I’m new to this blog. I was diagnosed a year ago with cell/all and I’m h...

Buckster

•6 years ago

9 Replies

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Scared/Afraid/Worried

For the past two nights have had drenching sweats. This has been going on for the past two weeks. My white count is up to 30,000. I understand that this...

For the past two nights have had drenching sweats. This has been going on for t...

Mimi4times

•6 years ago

41 Replies

Venetoclax and mouth sores

I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab....

I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back...

Eliotf

•6 years ago

4 Replies

Hello!

I’m a newbie to this forum but not to CLL/SLL. I’m an 86 year old retired psychologist who was in great health and very active when I was dx‘d on Dec 2011, and...

I’m a newbie to this forum but not to CLL/SLL. I’m an 86 year old retired psycho...

drgrey

•6 years ago

19 Replies

Heart Problems because of imbruvica.

I was wondering if any patients had to go off the imbruvica because it was creating heart problems like high blood pressure and arrythmia and if you did how...

I was wondering if any patients had to go off the imbruvica because it was creat...

tlcladygiraffe

•6 years ago

14 Replies

Anyone else have high blood pressure on left side and low blood pressure on the right side?

I went to the hospital because I was having pain in my lower back (left side) and the nurse took my blood pressure it was 240/90 they immediately took me back...

I went to the hospital because I was having pain in my lower back (left side) an...

tpate45

•6 years ago

3 Replies

Has anyone heard of MALT B CELL LYMPHOMA

I was visiting with a friend that had almost 100% symptoms like I do and did that was diagnosed with MALT B cell lymphoma and treated for it.

I was visiting with a friend that had almost 100% symptoms like I do and did tha...

ozarkharper

•6 years ago

3 Replies

Motillium and CLL ?

Am experiencing my second bout of severe cramping and diarrhoea in the past month. Feeling miserable . Under normal circumstances I would let it take its...

Am experiencing my second bout of severe cramping and diarrhoea in the past mont...

Emerfly

•6 years ago

8 Replies

Cd20 assistance

I'm treated at that MD Anderson. My oncologist just suggested that I try cd20 shots. I'm very fatigued and the idea is that this may help. Has anybody gone...

I'm treated at that MD Anderson. My oncologist just suggested that I try cd20 sh...

Swissnology

•6 years ago

8 Replies

CLL Treatment Sequencing by Dr. Susan O'Brien

O'Brien Shares Overview of CLL Sequencing OncLive: by Brandon Scalea Published: Friday, Aug 10, 2018 ( poster comment; mostly a USA perspective)...

O'Brien Shares Overview of CLL Sequencing OncLive: by Brandon Scalea Publish...

lankisterguy

Volunteer•6 years ago

1 Reply

Flow Test - CD Marker CD19 keeps changing

Since 2013, I have been getting Flow Tests periodically to monitor whether any new mutations might be occuring. I have noticed that my CD19 marker has been...

Since 2013, I have been getting Flow Tests periodically to monitor whether any ...

markjeep51

•6 years ago

7 Replies

Side 2

Any help much appreciated

Stacky66

•6 years ago

Be the first to reply

Good news to share

Hi everyone. Thank you for supporting me. I am still in hospital and have been visited by my consultant. Had a discussion regarding chemo. He said that my...

Hi everyone. Thank you for supporting me. I am still in hospital and have been v...

lucyjack

•6 years ago

11 Replies

FLAIR Trial 2018 update

This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This...

This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclopho...

Myrddin

•6 years ago

7 Replies

Possible cause?

Any cabinet builders with cll from contact cement and solvent exposure?

Gvines

•6 years ago

1 Reply

Wondering

Does it take longer for imbruvica to work if you have 17p and 11q markers

Blallen

•6 years ago

9 Replies

New and a Bit Scared

Hi everyone, I'm new to this site. I was diagnosed November 2017 with Stage 0 CLL. At that time my WBC was 20. As of June 2018 it went up to 25.17. I had...

Hi everyone, I'm new to this site. I was diagnosed November 2017 with Stage 0 C...

Rhythmauthor1

•6 years ago

16 Replies

Very worried/concerned

Hi I am 19 year old female. I have an enlarged lymph node (this is what the doctor said it is) on the left side of my groin, at first in wasn't painful but...

Hi I am 19 year old female. I have an enlarged lymph node (this is what the doct...

Worried-chick-17

•6 years ago

3 Replies

Feeling really lost and scared.

My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his...

My husband did have CLL but had Richters Transformation to Lymphoma. He has been...

krisskross

•6 years ago

11 Replies

Doc said time to start Ibrutinib

On my way back from Mayo visit hemoglobin dropped to 10 and platelets dropped to 116. Doc said time to start, I'm sick of the fight! I've spent over $20,000...

On my way back from Mayo visit hemoglobin dropped to 10 and platelets dropped to...

aremmick

•6 years ago

35 Replies

p 53 gene mutational status results

I know this is a English speaking group . I received my p 53 gene mutational status today and i am not sure what it means......maybe somebody can help . It is...

I know this is a English speaking group . I received my p 53 gene mutational sta...

antonb

•6 years ago

5 Replies

Update after 3rd FCR!

After 3 rounds of FCR, my doctor said we can go ahead with plan to get BMB in September and hopefully stop treatment! Had no problems during chemo. Port was...

After 3 rounds of FCR, my doctor said we can go ahead with plan to get BMB in Se...

GMa27

•6 years ago

24 Replies

C T Scan

Should CLL patients with has been diagnosed with Stage 0 after Fish , Flow test ..should they be exposed to radiation like C T Scan , Pet Scan etc. to further...

Should CLL patients with has been diagnosed with Stage 0 after Fish , Flow test ...

Richie0619

•6 years ago

14 Replies

BR and neutropenia

Hi, I’m 49 yo female, T12. Diagnosed in 2013, w&w until I got to stage IV six months ago and was started on BR. All the results returned back to normal after...

Hi, I’m 49 yo female, T12. Diagnosed in 2013, w&w until I got to stage IV six mo...

Victoria666

•6 years ago

47 Replies

Update...Roseacea...Blisters

Posted recently about a flare up of my Roseacea. Saw the dermatologist who prescribed a topical gel and a new antibiotic, Minocycline, rather than Doxycycline....

Posted recently about a flare up of my Roseacea. Saw the dermatologist who presc...

RJR1

•6 years ago

10 Replies

Shingles vaccine reactions

I was told that all Cll patients would get shingles. I am 63 now and have taken s shingles vaccine on the advice of my Dr. Has anyone been told to do the...

I was told that all Cll patients would get shingles. I am 63 now and have taken...

Williamhenry

•6 years ago

22 Replies

Ibrutinib in September

Hi ,after just under 2 years remission after FCR , I am now starting ibrutinib in September.Just wondered how long people on here have been taking this?Thanks...

Hi ,after just under 2 years remission after FCR , I am now starting ibrutinib i...

Stacky66

•6 years ago

12 Replies

Consumer Reports - 9 delicious recipes to reduce inflammation - Is there a healthy ice cream? - Produce power

Consumer Reports Healthy, fresh & delicious _______________________________________...

Consumer Reports Healthy, fresh & delicious ______________________________...

lankisterguy

Volunteer•6 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2018

Weakness in legs

New and Impressed

Leg weakness with call/sll

Scared/Afraid/Worried

Venetoclax and mouth sores

Hello!

Heart Problems because of imbruvica.

Anyone else have high blood pressure on left side and low blood pressure on the right side?

Has anyone heard of MALT B CELL LYMPHOMA

Motillium and CLL ?

Cd20 assistance

CLL Treatment Sequencing by Dr. Susan O'Brien

Flow Test - CD Marker CD19 keeps changing

Side 2

Good news to share

FLAIR Trial 2018 update

Possible cause?

Wondering

New and a Bit Scared

Very worried/concerned

Feeling really lost and scared.

Doc said time to start Ibrutinib

p 53 gene mutational status results

Update after 3rd FCR!

C T Scan

BR and neutropenia

Update...Roseacea...Blisters

Shingles vaccine reactions

Ibrutinib in September

Consumer Reports - 9 delicious recipes to reduce inflammation - Is there a healthy ice cream? - Produce power

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