Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for August 2018

Week from HELL!

Went to FL this past Monday to do depositions for my divorce. Was already feeli...
Mimi4times profile image

Alternatives to Ibrutinib ???

Here is an interesting article about the expanding field of BTK inhibitors that ...
Indolent profile image

Prevent osteoporosis Talk to your doctor about getting a bone mass measurement (bone density). If you’re at risk

Prevent osteoporosis Many people don’t know they have osteoporosis until they br...
lankisterguy profile image
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Vaccine Recommendations for CLL Patient Power Video- August 16, 2018

Should chronic lymphocytic leukemia (CLL) patients get preventative vaccinations...
lankisterguy profile image
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Understanding CLL: What You Should Know About Treatment, Genetic Testing and Research September 22, 2018

Have you signed up for the Patient Power September 22nd CLL town meeting in Atl...
lankisterguy profile image
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Ask the CLL Expert - LIVE - September 27, 2018 at 12 PM Pacific Time (2 PM CT, 3 PM ET) with leading CLL specialist Dr. Jeff Sharman

Ask the CLL Expert - LIVE September 27, 2018 https://www.patientpower.info/ev...
lankisterguy profile image
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Effect of Ibrutinib on Hormones

I am noticing hormonal imbalance in body after use of Ibnutrib for ard 1 year or...
Anilbhard profile image

No longer a treatment virgin

downed my first three 140 ibrutinib capsules Wednesday evening after 16 and a ha...
johnl profile image

Imbruvica

Can I take a pain medication while on Imbruvica?
smife profile image

Meds for afib

Which meds did your dr prescribe for you if you have afib..I may have to go on s...

Just a quick question re fcr

Starting FCR next week I presume I will have a picc line fitted? Just one of the...
dandelup profile image

Recent SLL/CLL Patient Question

Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatme...

Aunt with CLL and bone marrow infiltration

My aunt was just diagnosed with CLL with bone marrow infiltration. I work for a...
dleducALC profile image

Light the Night Australia..Walk Locations

The Australian Leukaemia Foundation includes these special fund raising events ...
AussieNeil profile image
Administrator

Great article on alternative medicine clinics

Today I read a great article on Medscape, a respected and reputable source for a...
Psalm4610 profile image

Melanoma linked with CLL, close monitoring recommended - worth a read on sciencedaily.com

While studying a large group of individuals with chronic lymphocytic leukemia (C...
Steffi50 profile image

Big day update

Now back from hospital I got selected for fcr which I was hoping to avoid, but g...
dandelup profile image

Big day for me

Today is the day I discover which arm of the Flair trial I am going on, and next...
dandelup profile image

Fundraising run for CLLSA

One of our supporters, Hazel Everett, is running the New Forests 10k to raise fu...
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Ibutrimib and medical canabis . Neck pain

Please, thank you for advise and help.¿ Ibutrimib is compatible with medical can...
3665jose profile image

Some questions from a Newbie in Limbo

Diagnosed 2 weeks ago, waiting in Chromosome analysis for my sub type, just had ...
fugazi profile image

Scare.

Did chemo in Oct. Done in Feb. Go every other month for the shot will do for the...
Judiahuntee profile image

Swimming, joy and sadness and MRD negativity

Hi, I got the great news that I am still MRD- more than 5 months post CAR-T For ...
bkoffman profile image
CLL CURE Hero

New member from Perth - Any recommendations on a CLL Specialist?

Hi all Firstly, I want to thank all of for sharing your experience and stories ...
jewels777 profile image

What do you all think?

Why? I am a white male 86 yrs old, and in questionably good health. I have be...
578999lme profile image

Zanubrutinib / BGB-3111

Hello everybody, I should go for the first line treatment. My choices are Ibruti...
VLAD11 profile image

Results of flow

What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A. Peripheral blood, f...
Pat351v profile image

Pins and needles

I have been taking Ibrutinib for my CLL for the past 18 months. One month ago I ...
Finzi profile image

Stop ibrutinib

Hola. Tuve que suspender Ibrutinib durante 15 dias. Y gran desilucion: aumente ...
Bixilon profile image

UK CLL Trials Portfolio as of July 2018

An updated list of UK CLL trials as of Jul 2018 can be found here https://www....