Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for July 2018

The Changing Landscape of Lymphoma - National Conference - VANCOUVER, BC - Saturday, September 15, 2018

The Changing Landscape of Lymphoma National Conference - VANCOUVER, BC...

lankisterguy

Volunteer•6 years ago

1 Reply

MBL

MBL does anyone have some experience of this please 😊

Annieareyouok

•6 years ago

1 Reply

Good news 4 months post CAR-T therapy

Hi I got good news today 4 months post CAR-T when I saw Dr. Kipps. Hgb is over 14 so back to normal. That means the iron that I am taking is working and that...

Hi I got good news today 4 months post CAR-T when I saw Dr. Kipps. Hgb is over 1...

bkoffman

CLL CURE Hero•6 years ago

31 Replies

Want to take advantage of all our features? Just log in!

Expert Reviews Current State of CLL Treatment, Dr. Brander, Duke U

Recent developments in the treatment of patients with chronic lymphocytic leukemia (CLL) have created new, unanswered questions and left clinicians scrambling...

Recent developments in the treatment of patients with chronic lymphocytic leukem...

Cllcanada

Day 0 Finally dawned

What a roller coaster. Too much to detail but have a blog if you want to see more https://www.facebook.com/KirstysStemCellTransplant/

What a roller coaster. Too much to detail but have a blog if you want to see mo...

KAS8

•6 years ago

5 Replies

Road to BMT...oops just got there (Day +250)

Hello HealthUnlocked Community, I wanted to reach out to everyone and give you an update on Mark’s progress with his BMT, today is Day +250 – can I get a...

Hello HealthUnlocked Community, I wanted to reach out to everyone and give you a...

NMMP

•6 years ago

10 Replies

Not just night sweats

Does anyone else have harinduss sweats all during the day? I've had night sweats before I had chemo in 2010 but these just come out of nowhere! I'm on watch...

Does anyone else have harinduss sweats all during the day? I've had night sweats...

DRADCLIFF

•6 years ago

19 Replies

Swollen spleen, lymph nodes stomach lining, sharp abdo pain left side

hey everyone, I'm 22 years old and for the past 8 weeks I have been experiencing sharp pain on the left side of my adomen at the begging it was radiating...

hey everyone, I'm 22 years old and for the past 8 weeks I have been experiencing...

Hidden

•6 years ago

2 Replies

Did I miss something / update broken hip

Since coming home from hospital I notice there is now MPN posts. I am just curious why these are now on CLL site. Update on broken hip - since coming home I...

Since coming home from hospital I notice there is now MPN posts. I am just curi...

olyocl

•6 years ago

10 Replies

ASH 2017: Dr. Thomas Kipps on the ROR1 Antibody, Cirmtuzumab

Extremely exciting research into a “new” antibody targeting CLL cells. Note that it may be of particular interest both because of its promising Phase 1 trial...

Extremely exciting research into a “new” antibody targeting CLL cells. Note tha...

hsouter

•6 years ago

1 Reply

CLL Society Alert July 24, 2018 - Video Dr. Kipps on Cirmtuzumab - Paid Survey for USA CLL patients - Local support group meetings

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=2bc67386-01ab-40da-a13a-283e8f894e92 Hello, Friends and Supporters of the CLL Society. At...

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=2bc67386-01ab-...

lankisterguy

Volunteer•6 years ago

1 Reply

Health Check: how long should you stay away when you have a cold or the flu?

Ever wondered how long to stay away from anyone with a cold or flu infection? "Most people become contagious with cold symptoms one to two days...

Ever wondered how long to stay away from anyone with a cold or flu infection? ...

AussieNeil

Administrator•6 years ago

4 Replies

Advice for those newly diagnosed

Abbvie, the drug company behind Venetoclax, posted this today:...

thb4747

•6 years ago

5 Replies

My cramps are gone

I've been on Imbruvica for well over one year and I have often had some really bad cramps, mostly at night. Lately I have developed boils. I don't like to...

I've been on Imbruvica for well over one year and I have often had some really b...

Winnipegmike

•6 years ago

2 Replies

New research could banish guilty feeling for consuming whole dairy products

Having seen the occasion recommendations to avoid dairy food in responses about diet, these two items in today's news attracted my attention. "Enjoying...

Having seen the occasion recommendations to avoid dairy food in responses about ...

AussieNeil

Administrator•6 years ago

14 Replies

Has anyone seen this MDA Specialist?

I hope that you all are enjoying your Monday!!! My husband got the call this morning to schedule an appt for him at MD Anderson. They want to schedule him...

I hope that you all are enjoying your Monday!!! My husband got the call this m...

CaCo82

•6 years ago

13 Replies

Cholesterol and cll

I just received my fasting metabolic blood test results and my cholesterol continues to show marked improvement. It has gone from a very high of 300 several...

I just received my fasting metabolic blood test results and my cholesterol conti...

MonD

•6 years ago

5 Replies

A question re: an Ibrutinib risk factor

Does risk associated with ventricular tachycardia increase the longer one takes Ibrutinib? Thanks!

Does risk associated with ventricular tachycardia increase the longer one takes...

Yuck

•6 years ago

7 Replies

Good video from WW on moving away from chemo.

https://www.vjhemonc.com/video/sis69vwgmf4-moving-away-from-chemotherapy-in-cll/

https://www.vjhemonc.com/video/sis69vwgmf4-moving-away-from-chemotherapy-in-cll/...

baq724

•6 years ago

1 Reply

Unpleasantness , apologies in advance

I have severe diarrhoea since the day before yesterday. Very mild cramping and nausea. No appetite to eat , sipping water to keep hydrated . My body aches. I...

I have severe diarrhoea since the day before yesterday. Very mild cramping and ...

Emerfly

•6 years ago

20 Replies

Ibrutinib MRD negative and shoe size increase

I am lucky to be on ibrutinib for 4 years now. I am delighted to inform the CLL community that my blood results show no signs of CLL the last 9 months and I...

I am lucky to be on ibrutinib for 4 years now. I am delighted to inform the CLL ...

vepiskop

•6 years ago

12 Replies

cll related itching solutions

My doctors are convined that the itching that has started is cll related. I can either tackle the symptoms or agree for treatment to the cll which I want to...

My doctors are convined that the itching that has started is cll related. I can ...

kolite

•6 years ago

12 Replies

Get your thyroid checked.

I have SLL, and six weeks ago started a clinical trial at OSU. So far I'm on Acalabrutinib and Obinutuzumab. Start Venetoclax next month. But I'm still very...

I have SLL, and six weeks ago started a clinical trial at OSU. So far I'm on Aca...

claire2017

•6 years ago

1 Reply

monocyte jump

65 year old male, diagnosed 3/12. Watch and wait, monocytes never an issue until last test, jumped from 0.8 to 6.1 in 3 months. WBC 71 and creeping up. Any...

65 year old male, diagnosed 3/12. Watch and wait, monocytes never an issue until...

fishnman

•6 years ago

5 Replies

Cll specialist in Nebraska

I live in Lincoln Nebraska and have been on watch and wait for 1 year. I have a hematologist but was wondering if there are any cll specialist in my area

I live in Lincoln Nebraska and have been on watch and wait for 1 year. I have a ...

Dawn-Marie

•6 years ago

7 Replies

Update on Round 2 FCR

Hi everyone! As promised I would let you know how it's going. Round 2 was uneventful as well ! It was such a relief to not have any side effects. I noticed I...

Hi everyone! As promised I would let you know how it's going. Round 2 was uneven...

GMa27

•6 years ago

5 Replies

Advice for brother living in Miami

My brother has just told me his GP has told him he is pre CLL . His lymphocytes slowly rising and he has low neutrophils. Do any of you know a CLL specialist...

My brother has just told me his GP has told him he is pre CLL . His lymphocytes ...

Emerfly

•6 years ago

9 Replies

Help please

Hello, I'm Vandana 25 year old girl. My problem is I had some sort of skin rash in the face two days back n in neck one lymph nod enlarged visibly I...

Hello, I'm Vandana 25 year old girl. My problem is I had some sort of ski...

Vandanabasu

•6 years ago

6 Replies

Secondary cancer

Wrote a week ago about secondary cancer and had a diagnostic mammogram and ultrasound now I wait to have a needle biopsy on my breast. I am3 months into my...

Wrote a week ago about secondary cancer and had a diagnostic mammogram and ultra...

Ninagram

•6 years ago

26 Replies

New to this

My platelets have been lower for about 7 years. Last year 116 this year 97. Also lumps went up slightly from last year. I saw hematologist last year and he...

My platelets have been lower for about 7 years. Last year 116 this year 97. Also...

Purpledog

•6 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2018

The Changing Landscape of Lymphoma - National Conference - VANCOUVER, BC - Saturday, September 15, 2018

MBL

Good news 4 months post CAR-T therapy

Expert Reviews Current State of CLL Treatment, Dr. Brander, Duke U

Day 0 Finally dawned

Road to BMT...oops just got there (Day +250)

Not just night sweats

Swollen spleen, lymph nodes stomach lining, sharp abdo pain left side

Did I miss something / update broken hip

ASH 2017: Dr. Thomas Kipps on the ROR1 Antibody, Cirmtuzumab

CLL Society Alert July 24, 2018 - Video Dr. Kipps on Cirmtuzumab - Paid Survey for USA CLL patients - Local support group meetings

Health Check: how long should you stay away when you have a cold or the flu?

Advice for those newly diagnosed

My cramps are gone

New research could banish guilty feeling for consuming whole dairy products

Has anyone seen this MDA Specialist?

Cholesterol and cll

A question re: an Ibrutinib risk factor

Good video from WW on moving away from chemo.

Unpleasantness , apologies in advance

Ibrutinib MRD negative and shoe size increase

cll related itching solutions

Get your thyroid checked.

monocyte jump

Cll specialist in Nebraska

Update on Round 2 FCR

Advice for brother living in Miami

Help please

Secondary cancer

New to this

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive