Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2018

Relapsed CLL?

Diagnosed with CLL in 2012, treated in clinical trial with Ibrutinib... in 2015 I was in remission ...during those 2+ years I was tired and had leg muscle...

Diagnosed with CLL in 2012, treated in clinical trial with Ibrutinib... in 2015 ...

•6 years ago

ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)

Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a...

Just watched a video on MCL-1 and thought our group might be interested (if not ...

•6 years ago

So Very Blessed

Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to...

Good Morning fellow CLL sufferers , I have recently received the results from my...

BlueGillfisherman

•6 years ago

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Chemotherapy for CLL

Hi everyone I am 46 years old and just been diagnosed wilt Cll. I will start treatment next July with chemotherapy, I am worried from the side effects am I...

Hi everyone I am 46 years old and just been diagnosed wilt Cll. I will start tre...

•6 years ago

Platelets dropping after 7 Months on Ibrutinib

Hi: I have been on Ibrutinib since November after failing 4 cycles of FR. Things were good: AL and WBC almost normal. However a month ago I had bronchitis and...

Hi: I have been on Ibrutinib since November after failing 4 cycles of FR. Thing...

•6 years ago

First time post!

My husband, 52, Kansas was diagnosed July 2017. I have been reading lots of posts since then, but have never posted his story. We were initially given the...

My husband, 52, Kansas was diagnosed July 2017. I have been reading lots of pos...

•6 years ago

Swollen legs.

Went back to have a three month chek up and blood was ok. Somethin new showed up for about 10 days now my legs are swollen hemo recommended a blood test to...

Went back to have a three month chek up and blood was ok. Somethin new showed up...

•6 years ago

Ibrutinib

I have just taken delivery of my first month's pack of Ibrutinib and will have my first dose later. I have to say that when I read the words "Cytotoxic Drug"...

I have just taken delivery of my first month's pack of Ibrutinib and will have m...

•6 years ago

Cardiff Innovation and Impact Awards 2018, CLL prognostic testing innovation is nominated as finalist, your vote counts.

The diagnostic telomere testing tool developed by Profs: Fegan, Baird and Pepper at Cardiff University has been selected as a finalist in the 2018 Innovation...

The diagnostic telomere testing tool developed by Profs: Fegan, Baird and Peppe...

Founder Admin•6 years ago

A Doctor's Perspective on Important Vaccines for Grandparents

This is not specific to CLL or immune compromised, but may provide good background info for us Senior citizens:...

This is not specific to CLL or immune compromised, but may provide good backgrou...

Volunteer•6 years ago

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Raise money Macmillan

Hello lovely people I’m doing the mighty hike for Macmillan to give all thanks to the people how made me feel better about diagnosis so please help on just...

Hello lovely people I’m doing the mighty hike for Macmillan to give all thanks t...

•6 years ago

Painful Lymph Nodes For Two Years

Hello everyone! I’m new to this forum. I’ve suffered from extreme health anxiety my entire life. Two years ago I noticed a painful, swollen and a bit stiff of...

Hello everyone! I’m new to this forum. I’ve suffered from extreme health anxiety...

•6 years ago

LDH level 525 anaemia

Hai sir my wife LDH level 525and severe anaemia hb6.2 only..20 days before 3 unit blood transfusion over but again hb down..ferrittin test 1100...how to...

Hai sir my wife LDH level 525and severe anaemia hb6.2 only..20 days before 3 uni...

abinjosephranni

•6 years ago

What if venetoclax and/or ibritinib stops working?

Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor...

Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have b...

•6 years ago

Sertraline and CLL

I started taking anti anxiety medicine 3 weeks ago. It is helping with anxiety but I’ve developed lower back pain and believe it’s related. I’m also now...

I started taking anti anxiety medicine 3 weeks ago. It is helping with anxiety b...

•6 years ago

Need Help Understanding New Gene Mutation in CLL/SLL

Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer...

Hello to everyone! Thanks to all for providing a safe, positive place to read ab...

•6 years ago

SCT just got real.

I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when...

I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up a...

•6 years ago

SCA

Just found this site. In 2015 my husband was prescribed Imbruvica for CLL. He took one dose and passed away the next morning from sudden cardiac arrest.

Just found this site. In 2015 my husband was prescribed Imbruvica for CLL. He ...

•6 years ago

Tea Tree Oil Uses - Should it be a Permanent Part of Your Medicine Cabinet?

Wonder what everyone here thinks about tea tree oil. It's been a must carry with me for a long time especially when I travel.

Wonder what everyone here thinks about tea tree oil. It's been a must carry with...

•6 years ago

Ibrutinib and Beconase

Does anyone know if it is okay Beconase while taking Ibrutinib. Got prescription from GP but still wanted to check.

Does anyone know if it is okay Beconase while taking Ibrutinib. Got prescriptio...

•6 years ago

Worried

Can u help with this question please, ace had dvt problems for 10yrs,thru a blood clot hit my lungs,then 2016 had a brain anyruzum then 2017 results showed a...

Can u help with this question please, ace had dvt problems for 10yrs,thru a bloo...

•6 years ago

CLL Society New York Patient Support Group meeting Sunday June 10- 3:00pm to 5:00pm; 1305 York Ave Manhattan.

https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11/all/ CLL Society New York Patient Support Group meeting Sunday June 10- 3:00pm to...

https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11/all/ CLL...

Volunteer•6 years ago

Don’t suffer alone in silence

As a man and as a doctor I’m more used to attempting to “fix” other people. Since being diagnosed a year ago I’ve realized that these days it’s me who needs...

As a man and as a doctor I’m more used to attempting to “fix” other people. Sinc...

•6 years ago

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