Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2018

Is it normal to loose wait when u got cll

I have lost 10kg from when the hospital weighed me in March but to be honest I Havnt really got a appetite either

I have lost 10kg from when the hospital weighed me in March but to be honest I H...

Jlee123

•6 years ago

7 Replies

Forearm rash

I have a rash on my right forearm which is irritating. I regularly rub a disinfectant cream but it is not really improving. I am on Ibrutinib (3years) now....

I have a rash on my right forearm which is irritating. I regularly rub a disinf...

foolish

•6 years ago

3 Replies

Do vaccinations benefit the individual or society?

'Compared to many other public health programs, immunisation is a targeted intervention and clinical trials tell us they work. But programs still need to...

'Compared to many other public health programs, immunisation is a targeted inter...

AussieNeil

Founder Admin•6 years ago

2 Replies

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Life in a herd – and why in health watching symptoms is easy, but finding causes is hard

Everyone knows we should exercise more, drink less, and stop scoffing junk food. Even committed smokers know that smoking is bad for them – but change isn’t...

Everyone knows we should exercise more, drink less, and stop scoffing junk food....

AussieNeil

Founder Admin•6 years ago

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Tattoo

I think I know the answer will be no but can I get a tattoo with SLL ? Thank you John

I think I know the answer will be no but can I get a tattoo with SLL ? Thank you...

Ironj

•6 years ago

8 Replies

What does CD 38 indicates?

My CD 38 = 5% what does it mean? And how can I know if I am muted or unmuted? Thanks a lot Firas

My CD 38 = 5% what does it mean? And how can I know if I am muted or unmuted? Th...

Nour80Leen2011

•6 years ago

16 Replies

What to avoid eating if you have CLL?

Hi everyone at age 46 I was unfortunately diagnosed with CLL, I want to know please what to avoid eating and what's good for me, thanks a lot. Firas

Hi everyone at age 46 I was unfortunately diagnosed with CLL, I want to know ple...

Nour80Leen2011

•6 years ago

36 Replies

Insane Drug Prices

So i call my CLL death by 1000 cuts and one of the 1000 is my now common skin problems and after yet another visit to the Dermatologist they come up with this...

So i call my CLL death by 1000 cuts and one of the 1000 is my now common skin pr...

Tommays56

•6 years ago

10 Replies

Newcomer

Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went...

Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct sc...

Feelsolow

•6 years ago

102 Replies

Imbruvica and Heart Issues

I have been taking Imbruvica for five months and my blood counts, while not good, have remained staple. I had Afib prior to starting Imbruvica but it has...

I have been taking Imbruvica for five months and my blood counts, while not goo...

umpireman

•6 years ago

19 Replies

HG and platelet number for starting therapy

My doctor recommended me that chemotherapy should be started because my number of hemoglobin went down less than 11.0 g/dl (it is international criterion for...

My doctor recommended me that chemotherapy should be started because my number o...

Miee

•6 years ago

27 Replies

CLL, Ibrutinib and kidney filtration

I have had CLL for over 10 years. Five months ago, my Whites counts reached 279, my platelets 80, and Reds about 2.70. My oncologist decided to put me on...

I have had CLL for over 10 years. Five months ago, my Whites counts reached 279,...

Mos1

•6 years ago

6 Replies

What else can I Drink other than water to flush

I’ve been on imbruvica for about a month now.. and I’m tied of just drinking water. Any suggestions

I’ve been on imbruvica for about a month now.. and I’m tied of just drinking wat...

Kettabr

•6 years ago

18 Replies

Ibrutinib and mouth sores anyone?

I have been on Ibrutinib for almost 3 months and being treated for painful mouth sores. Anyone experienced this? It’s been almost 3 weeks and taking antibiotic...

I have been on Ibrutinib for almost 3 months and being treated for painful mouth...

eoravillo

•6 years ago

19 Replies

Seems Good, But How Good?

Just reading article about this week's Phase II findings of CAPTIVATE trial at ASCO (Venetoclax/Ibrutinib frontline)...

Just reading article about this week's Phase II findings of CAPTIVATE trial at A...

gemit2000

•6 years ago

6 Replies

FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy

FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia...

FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small ...

lankisterguy

Volunteer•6 years ago

6 Replies

Bone marrow biopsy

Just in case anyone has got a bone marrow biopsy on the horizon - I had one yesterday and it was not nearly so bad as I was dreading it might be - probably a...

Just in case anyone has got a bone marrow biopsy on the horizon - I had one yest...

Havemercy

•6 years ago

13 Replies

LIVE and OBSERVE

As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time...

As a CLL patient the past 6 years and reading this encouraging and productive fo...

bacimio

•6 years ago

7 Replies

Rash

Hi has anyone had a rash after taking ventaclax

581959

•6 years ago

1 Reply

Remission or Relapsed CLL? please help!!!!

I was treated two year ago with standard FR for first time. After two years of good life, my CBC shows constantly for 11 months, an average of 72-84 K of...

I was treated two year ago with standard FR for first time. After two years of g...

tropicsurvivor

•6 years ago

8 Replies

NCI Dictionary of Cancer Terms

https://www.cancer.gov/publications/dictionaries/cancer-terms/def/os I thought this a useful link. I can't remember all of the definitions.

https://www.cancer.gov/publications/dictionaries/cancer-terms/def/os I thought t...

bhayes84

•6 years ago

1 Reply

How to deal with Ibrutinib rash

I've been on IB for 2 months and this is the second time I've had a serious blistering rash on my legs that itches like crazy and makes it hard to wear shoes....

I've been on IB for 2 months and this is the second time I've had a serious blis...

bhayes84

•6 years ago

5 Replies

Does IVIG help fatigue?

So last week I was having the worst fatigue so far apart from when I had pneumonia. I’ve taken antibiotics for a few days now and the infection is clearing....

So last week I was having the worst fatigue so far apart from when I had pneumon...

AdrianUK

•6 years ago

33 Replies

Food grade peroxide

Does anyone know about taking food grade peroxide with water? If so, what are the measurements? Thanks!

Does anyone know about taking food grade peroxide with water? If so, what are th...

CWM77

•6 years ago

10 Replies

Mono

Any info for what mono figure implies, I got it normal three months ago, however out of the normal range on the report issued today, hope it is not linked with...

Any info for what mono figure implies, I got it normal three months ago, however...

leilei

•6 years ago

4 Replies

Venetoclax – a 30-year story. Q & A with clinician scientist Dr Mary Ann Anderson.

'At the Leukaemia Foundation-hosted New Directions in Leukaemia Research (NDLR) conference in Brisbane in March, Dr Mary Ann Anderson, a clinician scientist...

'At the Leukaemia Foundation-hosted New Directions in Leukaemia Research (NDLR) ...

AussieNeil

Founder Admin•6 years ago

3 Replies

Sleep deprived

Can you take melatonin if you’re on Ibrutinib?

SunnyCA

•6 years ago

24 Replies

What is the age profile of those diagnosed with CLL in UK

I keep reading of people around the age of 40 and younger being diagnosed with CLL. Do we have an up-to-date the age profile is in the UK now. I was...

I keep reading of people around the age of 40 and younger being diagnosed with C...

Steffi50

•6 years ago

3 Replies

Video Live from ASCO 2018 Meeting

Here is the link to the Patient Power video yesterday on the conference floor....

Here is the link to the Patient Power video yesterday on the conference floor......

lankisterguy

Volunteer•6 years ago

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Survey on CLL with Allergies

Hi everyone, I was just wondering if all CLL Patients have allergies. I have allergies to chemicals, foods and pollen. Also, If we all had allergies could...

Hi everyone, I was just wondering if all CLL Patients have allergies. I have al...

hmo1

•6 years ago

20 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2018

Is it normal to loose wait when u got cll

Forearm rash

Do vaccinations benefit the individual or society?

Life in a herd – and why in health watching symptoms is easy, but finding causes is hard

Tattoo

What does CD 38 indicates?

What to avoid eating if you have CLL?

Insane Drug Prices

Newcomer

Imbruvica and Heart Issues

HG and platelet number for starting therapy

CLL, Ibrutinib and kidney filtration

What else can I Drink other than water to flush

Ibrutinib and mouth sores anyone?

Seems Good, But How Good?

FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy

Bone marrow biopsy

LIVE and OBSERVE

Rash

Remission or Relapsed CLL? please help!!!!

NCI Dictionary of Cancer Terms

How to deal with Ibrutinib rash

Does IVIG help fatigue?

Food grade peroxide

Mono

Venetoclax – a 30-year story. Q & A with clinician scientist Dr Mary Ann Anderson.

Sleep deprived

What is the age profile of those diagnosed with CLL in UK

Video Live from ASCO 2018 Meeting

Survey on CLL with Allergies

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