Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2018

A remembrance of P.C. Venkat - plus

Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the ending of my 7th year for successful containment of my CLL with PCI-32765...

Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the en...

ThreeWs

•6 years ago

6 Replies

Reaction to and results of taking imbruvica

aberk

•6 years ago

14 Replies

Looking in Tampa, FL

Hi Folks: I am looking for others with CLL in the Tampa, FL area.

Tbodtockwriter

•6 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Hi I am looking for some info regarding my partner having CLL

My partners been several date to start treatment since christmas but keeps getting put on hold because he’s had several infection

My partners been several date to start treatment since christmas but keeps getti...

Angus1953

•6 years ago

4 Replies

MOR 208

It looks like, a very effective and potent new monoclone antibody for treatment against CLL is in the pipeline. The german produced anti cd20 antibody should...

It looks like, a very effective and potent new monoclone antibody for treatmen...

seoul

•6 years ago

3 Replies

Lungshypodensities

I have just been told that i have. Intrathoracic lymphadenopathy and plus pericardial fluid plus hepatic hypodensitie plus i have 2 nodules one is 5mm the...

I have just been told that i have. Intrathoracic lymphadenopathy and plus perica...

Catherinemissie

•6 years ago

1 Reply

FIRST Post

First post. Anyone in the Washington, DC area?

bigger32

•6 years ago

3 Replies

Does Vitamin C really help with CLL?

Has anyone else seen the report in the New Scientist of 25.08.17 which reported on trials involving mice and large intravenous doses of Vitamin C? I have been...

Has anyone else seen the report in the New Scientist of 25.08.17 which reported ...

catmad1

•6 years ago

10 Replies

Working while on Chlorambucil/Leukeran

Working while taking Chlorambucil (Leukeran)? Just started oral chemo with the above medicine after CLL reappeared after an 8 year remission. Anybody out there...

Working while taking Chlorambucil (Leukeran)? Just started oral chemo with the a...

ObiYan

•6 years ago

8 Replies

Labs

These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC with Diff: Eosinophil 23%, Eosinophil Absolute 1.2k/CMM, HGB 11.8, PLT 136....

These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC...

Mamawof25

•6 years ago

3 Replies

Gazyva again?

Hi All, Has anyone had Gazyva for second line treatment? I had Gazyva in late 2016, was only in remission for a few months and then the lymphoma started coming...

Hi All, Has anyone had Gazyva for second line treatment? I had Gazyva in late 20...

skinkade

•6 years ago

17 Replies

Imbriciva - need financial assistance

Been fighting CLL for 18 years. Now 74 yrs old. Dr. prescribed Imbruciva. PAN program (Patient Assistance Network will run out this August. Any ideas on were...

Been fighting CLL for 18 years. Now 74 yrs old. Dr. prescribed Imbruciva. PAN pr...

Tvettes5

•6 years ago

10 Replies

Prepared

Hi All, I hope everyone is keeping well I have my very first CLL specialist appointment tomorrow and I’d like to arrive prepared. Instead of remembering all...

Hi All, I hope everyone is keeping well I have my very first CLL specialist ap...

Philipoc

•6 years ago

20 Replies

Atrial Fibrillation, and stroke.

AF and Ibrutinib. Does anyone know of studies about lower doses of Ibrutinib in the U.K. to prevent AF and bleeding Thanks

AF and Ibrutinib. Does anyone know of studies about lower doses of Ibrutinib in...

unun

•6 years ago

9 Replies

Ringing in ear

My husband has been on Imbruvica for about 4 months and now has ringing in the ears. Is this normal side effect?

My husband has been on Imbruvica for about 4 months and now has ringing in the e...

Chriskw68

•6 years ago

3 Replies

Cll and painful joints, muscles

I was told that I have CLL 15 months ago. I have been tired. I find bruising on my legs and stomach in the mornings. Now my left elbow/arm hurts when I either...

I was told that I have CLL 15 months ago. I have been tired. I find bruising on ...

Nuisance1

•6 years ago

5 Replies

Heard a distant ROR; now getting a bit closer?

[open post] Patient Power featured Dr. Kipps discussing cirmtuzumab, a mAb that attaches to ROR1 protein to suppress signaling used by CLL cells....

[open post] Patient Power featured Dr. Kipps discussing cirmtuzumab, a mAb that...

gemit2000

•6 years ago

5 Replies

New drug soon...Acalabrutinic (Calquence) will have less side effects than Imbruvica.

I have been on Imbruvica for 3 years. My flow cytometry reports are down to #1.But i do have mild side effects (respiratory). Dr. J C Byrd has helped to...

I have been on Imbruvica for 3 years. My flow cytometry reports are down to #1.B...

mhrh

•6 years ago

1 Reply

Dexamethasone, any experience, warnings use late stage cll

Steroid

buddyjo

•6 years ago

4 Replies

WBC %

May be a silly question but had bloods today and was wondering about the WBC % I have 82% Lymphocytes (27.2) out of WBC 33.2 how high can this percentage be...

May be a silly question but had bloods today and was wondering about the WBC % ...

Hevs333

•6 years ago

4 Replies

More information on new CLL trial treatment

Hi all, I recently read an article (link below) of a 75 year old CLL patient who went into remission and is now cancer free after a trial at UNIVERSITY OF...

Hi all, I recently read an article (link below) of a 75 year old CLL patient wh...

alastairUK

•6 years ago

2 Replies

Tattoo health warning for people with weakened immune systems

Tattoo health warning for people with weakened immune systems - The Guardian article written by Nicola Davis @NicolaKSDavis Mon 18 Jun 2018 18.30 EDT Last...

Tattoo health warning for people with weakened immune systems - The Guardian ar...

lankisterguy

Volunteer•6 years ago

5 Replies

Health News Review Site

We see so many news reports about breakthroughs and studies, and frankly, most of the reporting is just clickbait designed to increase web page revenue or...

We see so many news reports about breakthroughs and studies, and frankly, most o...

SeymourB

•6 years ago

4 Replies

Membership countries ?

Hi , Was just wondering if this forum is predominantly a U.K. Based forum ?

dmtm2005

•6 years ago

24 Replies

Ibrutinib my story update

Hi all, firstly thanks for the continued support. Many have asked if I had been in touch with my local press in relation to being denied Ibrutinib for my...

Hi all, firstly thanks for the continued support. Many have asked if I had been ...

Mick491

•6 years ago

39 Replies

IMPORTANT! HU will be down for maintenance for about 15 minutes TODAY!

Hi everyone, Due to planned migration of the HealthUnlocked website database to a faster machine, this site will be down for about 15 minutes today sometime...

Hi everyone, Due to planned migration of the HealthUnlocked website database to...

AussieNeil

Administrator•6 years ago

1 Reply

FCR-12 months on.

Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a...

Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloo...

rsw147

•6 years ago

9 Replies

bulky nodes

hi there.my consern is how to shrink down my lyph nodes with out chemotherapy treatment.is there any way? thanks a lot for your time all good fellows

hi there.my consern is how to shrink down my lyph nodes with out chemotherapy tr...

Neoklis

•6 years ago

15 Replies

Race for life - for all of you

Hi guys! I did the 5k race for life today in Scotland. For all of you. You are all in my heart. My hematologist told me last Thursday I’m getting treatment...

Hi guys! I did the 5k race for life today in Scotland. For all of you. You are...

Flabal

•6 years ago

13 Replies

Do Gut Bacteria influence who responds to treatment?

This fascinating article briefly overviews some of the emerging data about the influence of gut bacteria on the immune system. This is a very promising avenue...

This fascinating article briefly overviews some of the emerging data about the i...

AdrianUK

•6 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2018

A remembrance of P.C. Venkat - plus

Reaction to and results of taking imbruvica

Looking in Tampa, FL

Hi I am looking for some info regarding my partner having CLL

MOR 208

Lungshypodensities

FIRST Post

Does Vitamin C really help with CLL?

Working while on Chlorambucil/Leukeran

Labs

Gazyva again?

Imbriciva - need financial assistance

Prepared

Atrial Fibrillation, and stroke.

Ringing in ear

Cll and painful joints, muscles

Heard a distant ROR; now getting a bit closer?

New drug soon...Acalabrutinic (Calquence) will have less side effects than Imbruvica.

Dexamethasone, any experience, warnings use late stage cll

WBC %

More information on new CLL trial treatment

Tattoo health warning for people with weakened immune systems

Health News Review Site

Membership countries ?

Ibrutinib my story update

IMPORTANT! HU will be down for maintenance for about 15 minutes TODAY!

FCR-12 months on.

bulky nodes

Race for life - for all of you

Do Gut Bacteria influence who responds to treatment?

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