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CLL Support

22,474 members • 38,607 posts

All posts for June 2018

Prostate

I have a question about Prostate Cancer and CLL/SLL. My husband had his annual Urology appointment Monday and his PSA was 15. Doctor ordered a 4K Blood test...

I have a question about Prostate Cancer and CLL/SLL. My husband had his annual...

Sis1Ap3

•6 years ago

11 Replies

Is anything known about time to first treatment after diagnosis?

I originally wrote this as an answer to another question, but find that perhaps I should just ask it as a separate topic. Everyone here knows that a CLL...

I originally wrote this as an answer to another question, but find that perhaps ...

Jonquiljo

•6 years ago

60 Replies

Within reach....

As some of you know, I follow twitter. My specialist (Dr. Wierda) retweeted this nugget earlier this month. I like the wording!!! Screenshot included.

As some of you know, I follow twitter. My specialist (Dr. Wierda) retweeted thi...

baq724

•6 years ago

1 Reply

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Swelling on arms

I get swellings on my arms and wonder if they are serious. i have been taking ibrutinib for 2 months and have improved in all other ways.

I get swellings on my arms and wonder if they are serious. i have been taking ib...

FranceMary

•6 years ago

7 Replies

CLL and skin cancer

I am wondering if others are having difficulty with skin cancers if they have CLL. Not sure if the skin cancer is progressing due to disease or side effect of...

I am wondering if others are having difficulty with skin cancers if they have CL...

Hidden

•6 years ago

44 Replies

FCR treatment - anyone else had burning sensation in bowels?

Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning...

Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till ye...

Angus1953

•6 years ago

6 Replies

Thansk for response re South America and Yellow fever risks

Thank you everyone for your most informative answers to my question regarding travelling to South America and the risks for CLL ers and yellow fever.My...

Thank you everyone for your most informative answers to my question regarding tr...

roszika

•6 years ago

1 Reply

Looking Ahead: What Treatments Are in Development for CLL?

Patient Power ( a for profit company ) has this video available along with many other informative videos....

Patient Power ( a for profit company ) has this video available along with many ...

lankisterguy

Volunteer•6 years ago

3 Replies

Painful lymph nodes

I have enlarged lymph nodes in my neck and they are quite painful, but my haematologist says CLL nodes are not painful or sore. Any comments?

I have enlarged lymph nodes in my neck and they are quite painful, but my haemat...

Indie1234

•6 years ago

22 Replies

Can't sleep

Does anybody else has the same trouble can't sleep at all

Jlee123

•6 years ago

17 Replies

efsa assesses safety of green tea catechins

https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before that too much green tea may cause some liver damage. Here is a European study...

https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before...

gemit2000

•6 years ago

1 Reply

Leukaemia

I only want that all people here suffering from illness could live plenty life on his happinness until the day he wants us to go. We need to be prepared in...

I only want that all people here suffering from illness could live plenty life o...

Worldcup691

•6 years ago

4 Replies

Car t therapy?

What exactly is cart therapy and when is it used?

Dawnclark

•6 years ago

14 Replies

exhaustion

I'll make this short. Been on a clinical trial (Ibrutinib and Venentaclax) since last November.I've experienced periodic bouts of tiredness but they have gone...

I'll make this short. Been on a clinical trial (Ibrutinib and Venentaclax) since...

pwebster

•6 years ago

34 Replies

The Second 2018 Issue of The CLL Tribune

The CLL Tribune Quarter 2 2018: Volume 4 Issue 2...

lankisterguy

Volunteer•6 years ago

1 Reply

Hi this is Roszika, I need advice on travelling to South America

Hi my hubbie and I are booked on a cruise to South America starting in Buenos Aries going down to Uraguay then the Cape Horn and back up to Puerto montt Chile...

Hi my hubbie and I are booked on a cruise to South America starting in Buenos Ar...

roszika

•6 years ago

12 Replies

Hives after coming off ibrutinib

Husband has been off ibrutinib for 2 weeks woke this morning with face swollen and hives all over. Big and itchy. Dr said he felt it has nothing to do with...

Husband has been off ibrutinib for 2 weeks woke this morning with face swollen a...

NIBROC51

•6 years ago

5 Replies

Starting Imbruvica today!

Hello, I’m 67 yo. Diagnosed with CLL in late 2009. About to start my treatment of Imbruvica tonight. Was wondering what I could expect. I know everybody is...

Hello, I’m 67 yo. Diagnosed with CLL in late 2009. About to start my treatment o...

Joelcarver

•6 years ago

22 Replies

Dodged Taking Treatment for Two More Months

I had my 2 month check up blood work today and Oncologist said my numbers from CBC are holding. She asked about my hubby, what he is taking (Folfiri) what line...

I had my 2 month check up blood work today and Oncologist said my numbers from C...

Mize

•6 years ago

4 Replies

Request from BLOODWISE for feedback on their Watch and Wait information

A booklet on Watch and Wait would have been a great help to me when first diagnosed so anything we can do to ensure good quality information is available...

A booklet on Watch and Wait would have been a great help to me when first diagno...

Myrddin

•6 years ago

2 Replies

Mobile

I have cll About 6 weeks other than the bloating and smal pain in my back I have no other symptoms does any know how long before other things happen to me or...

I have cll About 6 weeks other than the bloating and smal pain in my back I have...

Mobilehome

•6 years ago

1 Reply

Surgery with CLL

June 2018 I have CLL & recently needed surgery for a keratoacanthoma (a type of skin tumour) on my chest. I kept a diary of the events in case it happens...

June 2018 I have CLL & recently needed surgery for a keratoacanthoma (a type of ...

BSMI

•6 years ago

6 Replies

Mobile

Any one get bloating in the tummy

Mobilehome

•6 years ago

Be the first to reply

Mobile

Hi I was dignoised with Cll 6 weeks ago I get terrible bloating in stomach and a pain in me back started to day every pain I get I think I am getting tumors

Hi I was dignoised with Cll 6 weeks ago I get terrible bloating in stomach and ...

Mobilehome

•6 years ago

6 Replies

Bone Marrow Biopsy showing Manoclonal B Lymphocytosis

Hello My name is Gloria, My husband Angel has been fighting small B-Cell Lymphocytic Leukemia/lymphoma for more than 8 years and none of the chemotherapy has...

Hello My name is Gloria, My husband Angel has been fighting small B-Cell Lymphoc...

gsanchez

•6 years ago

12 Replies

What predicts atrial fibrillation in ibrutinib users?

Here is an interesting clinical paper that explores predictors of atrial fibrillation in users of ibrutinib I believe this is exactly the kind of study that...

Here is an interesting clinical paper that explores predictors of atrial fibrill...

AdrianUK

•6 years ago

41 Replies

Celery and fixing the gut.

If anyone is experiencing digestive and inflammation problems do to CLL treatment, conditions juicing Celery (also helps with anyone with a auto-immune...

If anyone is experiencing digestive and inflammation problems do to CLL treatmen...

barger1951

•6 years ago

12 Replies

I/V trial at M D Anderson

I'm looking into this trial for frontline patients. Can anyone that's on it tell me what the schedule is like how often do you go to Houston etc. john

I'm looking into this trial for frontline patients. Can anyone that's on it tell...

johnl

•6 years ago

3 Replies

Ibrutinib response from NHSE to Vernon Coaker MP

Hi all Just a quick up date. I recieved the letter below Vernon Coaker MP recieved from NHSE 're Ibrutinib. It doesn't address the 3 year issue and I've asked...

Hi all Just a quick up date. I recieved the letter below Vernon Coaker MP reciev...

Mick491

•6 years ago

4 Replies

CLL specialist in Scotland?

Sitting at my thinking spot tonight I wondered. Are u in Scotland? Do you see a specialist in CLL? If so would you recommend him/her? Thank you

Sitting at my thinking spot tonight I wondered. Are u in Scotland? Do you see a ...

Flabal

•6 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2018

Prostate

Is anything known about time to first treatment after diagnosis?

Within reach....

Swelling on arms

CLL and skin cancer

FCR treatment - anyone else had burning sensation in bowels?

Thansk for response re South America and Yellow fever risks

Looking Ahead: What Treatments Are in Development for CLL?

Painful lymph nodes

Can't sleep

efsa assesses safety of green tea catechins

Leukaemia

Car t therapy?

exhaustion

The Second 2018 Issue of The CLL Tribune

Hi this is Roszika, I need advice on travelling to South America

Hives after coming off ibrutinib

Starting Imbruvica today!

Dodged Taking Treatment for Two More Months

Request from BLOODWISE for feedback on their Watch and Wait information

Mobile

Surgery with CLL

Mobile

Mobile

Bone Marrow Biopsy showing Manoclonal B Lymphocytosis

What predicts atrial fibrillation in ibrutinib users?

Celery and fixing the gut.

I/V trial at M D Anderson

Ibrutinib response from NHSE to Vernon Coaker MP

CLL specialist in Scotland?

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