Posts - CLL Support | HealthUnlocked

CLL Support

22,531 members • 38,700 posts

All posts for March 2018

Massage

I'm wondering if anyone can recommend a massage therapy organisation in the greater Manchester (UK) area? I was given a voucher by my partner for The...

I'm wondering if anyone can recommend a massage therapy organisation in the grea...

Rebrin-UK

•6 years ago

11 Replies

LHD

Been a while since I posted on here, busy getting on with it . No issues , fit and healthy , no symptoms , having six monthly blood tests with my GP not...

Been a while since I posted on here, busy getting on with it . No issues , fit a...

Nigel-Q

•6 years ago

9 Replies

Gout

Hello to all. A little background.I am in a clinical trial, at MD Andersen , that combines Ibrutinib with Venentaclax and Alpurinal. So far everything has...

Hello to all. A little background.I am in a clinical trial, at MD Andersen , tha...

pwebster

•6 years ago

5 Replies

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Get my CAR-T cells tomorrow

As you know, I’ve been blogging on my experience and we are adding interviews and research on CAR-T (see:...

As you know, I’ve been blogging on my experience and we are adding interviews an...

bkoffman

CLL CURE Hero•6 years ago

37 Replies

Low platelets count

It has been almost two year since treated with FR, and gradually my platelets are down, now at 50. I wonder if something is affecting my remission, since I...

It has been almost two year since treated with FR, and gradually my platelets ar...

tropicsurvivor

•6 years ago

9 Replies

Headaches while taking Ibrutinib

I started treatment with Ibrutinib about Two months ago. I am taking the pills after lunch. I started having occasional mild headaches usually in the evenings....

I started treatment with Ibrutinib about Two months ago. I am taking the pills a...

Mike-72

•6 years ago

14 Replies

Navigating the Financial Maze for Cancer Survivorship Webinar by Leukemia & Lymphoma Society (LLS) USA

On behalf of The Leukemia & Lymphoma Society (LLS), we would like to announce a virtual lecture, Navigating the Financial Maze for Cancer Survivorship with...

On behalf of The Leukemia & Lymphoma Society (LLS), we would like to announce...

lankisterguy

Volunteer•6 years ago

1 Reply

CLL WITH NO TREATMENT

My mom has been diagnosed with slight CLL , she's also been a heart and diabetic patient from past many years now. When the reports came in doc said there is...

My mom has been diagnosed with slight CLL , she's also been a heart and diabetic...

Akansha09

•6 years ago

9 Replies

CLL and CAD

I need assistance on how to manage my CLL and my CAD. It seems like my CAD is aggravating my CLL and really don't have a lot of information in managing it...

I need assistance on how to manage my CLL and my CAD. It seems like my CAD is ag...

somarybur

•6 years ago

4 Replies

Hemoglobin dropping

My last visit to Mayo Clinic in Rochester MN my hemoglobin is now at 11.2. Small drop from previous visit, but doc thinks I should start Ibrutinib because I...

My last visit to Mayo Clinic in Rochester MN my hemoglobin is now at 11.2. Smal...

aremmick

•6 years ago

27 Replies

Feeling nasty after my third and final day of lymphs-depleting chemo (FC) before my CAR-T cells on March 22

Hi, I wrote most of my last blog post https://cllsociety.org/car-t-blog/ on why I chose to come to Seattle for my CAR-T therapy before today which was good cuz...

Hi, I wrote most of my last blog post https://cllsociety.org/car-t-blog/ on why ...

bkoffman

CLL CURE Hero•6 years ago

24 Replies

Acalabrutinib

“Logan says that a more targeted Bruton's tyrosine kinase (BTK) inhibitor than ibrutinib may have some advantages.”...

“Logan says that a more targeted Bruton's tyrosine kinase (BTK) inhibitor than i...

Fant1924

•6 years ago

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Intestinal colics and diarrhea

Hello.. Does anyone have intestinal colics and diarrhea taking ibrutinib? I'm on ibrutinib for 3 months, and now the colics are horrible! My bone pains are a...

Hello.. Does anyone have intestinal colics and diarrhea taking ibrutinib? I'm on...

Deta1961

•6 years ago

8 Replies

A global snapshot of leukemia incidence

FROM THE LANCET HAEMATOLOGY: "Chronic lymphocytic leukemia incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (4.4), and...

FROM THE LANCET HAEMATOLOGY: "Chronic lymphocytic leukemia incidence was highest...

AussieNeil

Administrator•6 years ago

7 Replies

How juicing could be bad for your health

Many of us have shared how juicing has become an important part of our diet, with a few voicing concerns about whether this unnatural way of obtaining...

Many of us have shared how juicing has become an important part of our diet, wit...

AussieNeil

Administrator•6 years ago

20 Replies

Causes of CLL?

Does anyone know a site where they research the causes of CLL? I am looking into low dose radiation that would start it out and it shows up 15-20 years later....

Does anyone know a site where they research the causes of CLL? I am looking int...

Nfeeney

•6 years ago

36 Replies

Change from Imbruvica??

I have been dealing with CLL since 2003 and had various chemo treatments, last being Treanda/Rituxan combo that knocked it down for a bit Roughest time I had...

I have been dealing with CLL since 2003 and had various chemo treatments, last b...

chuckh

•6 years ago

21 Replies

CAR-T update and more

Hi, Been busy and tired, trying to get ahead of what I need to do while spending many hours at the hospital at the Seattle Cancer Care Alliance (SCCA). Writing...

Hi, Been busy and tired, trying to get ahead of what I need to do while spending...

bkoffman

CLL CURE Hero•6 years ago

47 Replies

Vision blurry

Can CLL make my vision blurry?

Marlene9

•6 years ago

18 Replies

Blood viscosity and wbc count

Hi fellow CLLsuffurers. Reading your posts daily but newer did anything my self . Now after 3 days in hospital want to shere my story. All started in 2009....

Hi fellow CLLsuffurers. Reading your posts daily but newer did anything my self ...

Geta

•6 years ago

8 Replies

need help on qol during w &w

I am male 66 dx 18months stage0, on w&w. Yesterday was quarterly review and I am advised to come after 3 months. Doctor did not address my poor quality of...

I am male 66 dx 18months stage0, on w&w. Yesterday was quarterly review and I am...

vinnet

•6 years ago

13 Replies

Question about my CLL.

I was recently diagnosed with CLL. Not even sure what stage because biopsies are not back yet iron is low so I have to have infusions this Wednesday and next....

I was recently diagnosed with CLL. Not even sure what stage because biopsies are...

Mamawof25

•6 years ago

4 Replies

Empathy vs sympathy

https://youtu.be/1Evwgu369Jw

Judyanne

•6 years ago

6 Replies

Confused again

I’ve spent over a year worrying that I may have CLL because my GP mentioned it to me when I had blood tests done which revealed raised lymphocytes. The last...

I’ve spent over a year worrying that I may have CLL because my GP mentioned it t...

Cathbrg

•6 years ago

55 Replies

Lower back pain with CLL.

My mother is suffering with lower back pain. Is that common with CLL?

Kimsaylor

•6 years ago

3 Replies

Are these numbers reason to see a hematologist

I may be overreacting in joining this group, and for asking this question, but a little history may help in understanding my paranoia. My Father died of CLL,...

I may be overreacting in joining this group, and for asking this question, but a...

wizzard166

•6 years ago

7 Replies

Treatment

Hi Everyone I need your opinions please. I was diagnosed with CLL in September 2016. I was told to take care of myself because this could be a long term watch...

Hi Everyone I need your opinions please. I was diagnosed with CLL in September ...

migirlusa

•6 years ago

15 Replies

83 year old dad diagnosed with stage 4 CLL/SLL. Doc wants to start Rituxan (once a week for 4weeks) then Ibrutinub. Does this seem right????

I have searched over and over, and I can’t find anywhere that Rituxan is first line therapy for stage 4 CLL/SLL. So confused!

I have searched over and over, and I can’t find anywhere that Rituxan is first ...

Jenette01

•6 years ago

11 Replies

Dizzy / brain freeze

Been on ibrutinib for 11 months and already in remission but from time to time i get like a brain freeze sort of dizzy spells few seconds only . Now i know it...

Been on ibrutinib for 11 months and already in remission but from time to time i...

cartwheels

•6 years ago

7 Replies

Splenomegaly

Hi everyone my spleen is very painfull what can i do?

Hidden

•6 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2018

Massage

LHD

Gout

Get my CAR-T cells tomorrow

Low platelets count

Headaches while taking Ibrutinib

Navigating the Financial Maze for Cancer Survivorship Webinar by Leukemia & Lymphoma Society (LLS) USA

CLL WITH NO TREATMENT

CLL and CAD

Hemoglobin dropping

Feeling nasty after my third and final day of lymphs-depleting chemo (FC) before my CAR-T cells on March 22

Acalabrutinib

Intestinal colics and diarrhea

A global snapshot of leukemia incidence

How juicing could be bad for your health

Causes of CLL?

Change from Imbruvica??

CAR-T update and more

Vision blurry

Blood viscosity and wbc count

need help on qol during w &w

Question about my CLL.

Empathy vs sympathy

Confused again

Lower back pain with CLL.

Are these numbers reason to see a hematologist

Treatment

83 year old dad diagnosed with stage 4 CLL/SLL. Doc wants to start Rituxan (once a week for 4weeks) then Ibrutinub. Does this seem right????

Dizzy / brain freeze

Splenomegaly

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