Posts - CLL Support | HealthUnlocked

CLL Support

22,472 members • 38,605 posts

All posts for March 2018

Imbruvica and neutropenia?

My husband just started Imbruvica this week. We go for our labs on Monday. He has been neutropenic for 3 months now....his neutrophils are at .5 right now, and...

My husband just started Imbruvica this week. We go for our labs on Monday. He ha...

kathymac52

•6 years ago

19 Replies

Doctor advice requested.

My wife is having CLL in stage 1. Some times she goes to sleep for hours togather. Is it normal in case of CLL patient? How to wake up from sleep. Please...

My wife is having CLL in stage 1. Some times she goes to sleep for hours togathe...

Swarupkbasu

•6 years ago

7 Replies

Kidney and blood

My bun creatinine level was 25 on my last test and my platelet count was 178. Are they bad. Only honest answers please.

My bun creatinine level was 25 on my last test and my platelet count was 178. Ar...

Donnalee67

•6 years ago

2 Replies

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About sll

Your near me so I wanted to know if we could communicate about sll/cll I’ve been just told I have it and am anxious.

Your near me so I wanted to know if we could communicate about sll/cll I’ve been...

Ironj

•6 years ago

13 Replies

Sll lymphoma small B cell

I’m told I have a slow growing form of sll ,I’m 46. I had a flow blood test it starts with a C I can’t remember the name. My understanding is that this test...

I’m told I have a slow growing form of sll ,I’m 46. I had a flow blood test it s...

Ironj

•6 years ago

41 Replies

Possible Lymphoma????

Hi Everyone! We found an enlarged lymph node on my 4 year old daughter's neck about a month ago while she was fighting a cold. I took her to the doctor because...

Hi Everyone! We found an enlarged lymph node on my 4 year old daughter's neck ab...

Kthomas84

•6 years ago

5 Replies

shingles prevention

My hematologist wants me on acyclovir as a preventative for shingles, is this necessary or can I get the shingles vaccine.

My hematologist wants me on acyclovir as a preventative for shingles, is this ne...

12ghi12

•6 years ago

9 Replies

Hi, I'm new and wanted to introduce myself

Hi everyone, I just joined the group. I found it while doing research about CLL. I am a holistic nurse and just found out that someone I love was diagnosed...

Hi everyone, I just joined the group. I found it while doing research about CLL...

kjharvey

•6 years ago

22 Replies

Omeprazole and Ibrutnib

Has anyone been on Omeprazole when they started taking Ibrutnib. Did you have to stop the Omeprazole or switch to a different antacid?

Has anyone been on Omeprazole when they started taking Ibrutnib. Did you have ...

uihwki

•6 years ago

22 Replies

CLL and sinusitis

Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of...

Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. O...

hammyj

•6 years ago

14 Replies

I.V.I.G. any tips?

Frequent infections following chemo means H.I.V.G likely according to my chest consultant. She is writing to my haematologist who already has results that...

Frequent infections following chemo means H.I.V.G likely according to my chest c...

luckyackerl

•6 years ago

17 Replies

Bloated tummy and enlarged spleen

Hello all, I have recently experienced a very bloated tummy and discomfort of the spleen. I am on W&W and my last ct scan revealed an enlarged spleen. I have...

Hello all, I have recently experienced a very bloated tummy and discomfort of th...

Leilalala

•6 years ago

7 Replies

NHL

My wife age 58 is in remission from NHL for past one and half years. At the moment she is absolutely fine. However, I am afraid it may not return. What...

My wife age 58 is in remission from NHL for past one and half years. At the mome...

nadeem1954

•6 years ago

2 Replies

Still neutropenic 5 months post FCR :-(

Hi all I am wondering if anyone else who has been through the FCR regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's...

Hi all I am wondering if anyone else who has been through the FCR regime has had...

Sucee

•6 years ago

29 Replies

relapsed CLL symptoms and Ibutrinib dosis

I have been in remission for almost two years. Which are the symptoms I should watch, in order to know that CLL has started to progress again ? How a CBC does...

I have been in remission for almost two years. Which are the symptoms I should w...

tropicsurvivor

•6 years ago

3 Replies

Can the contraceptive injection cause your lymphocyte count to go up??

This may sound stupid but can the contraceptive injection cause your lymphocyte count to go up? Mine is above the range and I recently stared the injection....

This may sound stupid but can the contraceptive injection cause your lymphocyte ...

Privategirl99

•6 years ago

2 Replies

Individual Cost

I have CLL and have been taking Imbruvicia for 2 years. Because I have an increase in income, Johnson's and Johnson will no longer provide it for me. My cost...

I have CLL and have been taking Imbruvicia for 2 years. Because I have an increa...

Hatbridges

•6 years ago

29 Replies

Newly-discovered human organ may help explain how cancer spreads

Interesting https://www.newscientist.com/article/2164903-newly-discovered-human-organ-may-help-explain-how-cancer-spreads/

Interesting https://www.newscientist.com/article/2164903-newly-discovered-human-...

zaax

•6 years ago

6 Replies

LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?

Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine,...

Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs ...

wmay13241

•6 years ago

Be the first to reply

My mom has WBC count more than 250000,how to reduce WBC count ,what happen when the count is high means pls reply

Pls reply my question

Hidden

•6 years ago

6 Replies

CLL Workshop Niagara Falls

Any news or info from Niagara Falls meeting available? Any significant news we should know?

Any news or info from Niagara Falls meeting available? Any significant news we s...

seoul

•6 years ago

4 Replies

Ibrutinib and Cll

I’m concerned that my husband who’s on ibrutinib for Cll has a raised liver count , This is the 2nd time he was on three tablets a day which was reduced down...

I’m concerned that my husband who’s on ibrutinib for Cll has a raised liver cou...

Jackiejohn

•6 years ago

4 Replies

The unspeakable bowel issues after chemo..... Do you ever get back to normal? From Beth, Nic, Del, and sue... And Maria

So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.....

So in our very random chats with a number of friends on HU, we got talking abou...

Bethan49

•6 years ago

25 Replies

Powerfit

Hi does anyone know if the Powerfit fitness machine is suitable for people with CLL. (There is very intense vibration in the workout).

Hi does anyone know if the Powerfit fitness machine is suitable for people with ...

Jabr

•6 years ago

7 Replies

Remission! What now?

After several months of chemotherapy my latest bone marrow biopsy came back cancer free! It left me with psoriasis and eczema that is beginning to clear up...

After several months of chemotherapy my latest bone marrow biopsy came back canc...

Smedley54

•6 years ago

20 Replies

Dapsone

Has anyone had any experience with dapsone. I had a rash possibly due to bactrim so i was changed to dapsone.

Has anyone had any experience with dapsone. I had a rash possibly due to bactrim...

lrcooke

•6 years ago

11 Replies

Joining in

I was diagnosed with CLL 5 years ago at 75 years old, now 80. I have blood draw every 4 months snd have maintained stage 0. Glad to find this site and learn...

I was diagnosed with CLL 5 years ago at 75 years old, now 80. I have blood draw ...

Stellabella2

•6 years ago

2 Replies

A feedback

Hi.I m shamim shakir.I want to know that green tea is good for thyroid and low vitamin d people. I have a desperation problem.plz reply me as I m suffering bad...

Hi.I m shamim shakir.I want to know that green tea is good for thyroid and low v...

ShamimShakir

•6 years ago

2 Replies

Venetoclax: Shaking CLL Off the Tree

The spectacular early observations on the use of venetoclax appear destined to ensure that CLL will itself now inevitably fall from the tangled branches of...

The spectacular early observations on the use of venetoclax appear destined to e...

zaax

•6 years ago

20 Replies

No 11q or 17p deletion

Besides being Trisomy 12 and unmutated I was told by the nurse practitioner in my hematologist office that there is no 11q or 17p deletion so, does that mean...

Besides being Trisomy 12 and unmutated I was told by the nurse practitioner in ...

Ladydi49

•6 years ago

39 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2018

Imbruvica and neutropenia?

Doctor advice requested.

Kidney and blood

About sll

Sll lymphoma small B cell

Possible Lymphoma????

shingles prevention

Hi, I'm new and wanted to introduce myself

Omeprazole and Ibrutnib

CLL and sinusitis

I.V.I.G. any tips?

Bloated tummy and enlarged spleen

NHL

Still neutropenic 5 months post FCR :-(

relapsed CLL symptoms and Ibutrinib dosis

Can the contraceptive injection cause your lymphocyte count to go up??

Individual Cost

Newly-discovered human organ may help explain how cancer spreads

LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?

My mom has WBC count more than 250000,how to reduce WBC count ,what happen when the count is high means pls reply

CLL Workshop Niagara Falls

Ibrutinib and Cll

The unspeakable bowel issues after chemo..... Do you ever get back to normal? From Beth, Nic, Del, and sue... And Maria

Powerfit

Remission! What now?

Dapsone

Joining in

A feedback

Venetoclax: Shaking CLL Off the Tree

No 11q or 17p deletion

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