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CLL Support

22,611 members • 38,830 posts

All posts for February 2018

Bone pain and CLL. Are they related?

I was diagnosed with CLL April 2016. As I only have Stage 0 at this point, doctors don’t seem so concerned. I go every six months for blood work. Recently I’m...

I was diagnosed with CLL April 2016. As I only have Stage 0 at this point, docto...

Obxcll

•6 years ago

107 Replies

Airports and Aeroplane cabins: A new study confirms how dirty some of the commonly used areas are.

I don’t mean to scare monger or rather ‘dirt’ monger however just being informed and prepared could be a life saver....

I don’t mean to scare monger or rather ‘dirt’ monger however just being informe...

Juliette02

•6 years ago

8 Replies

CLL Live 2018 - Don't Miss It

•April 19-21, 2018 Hilton Hotel and Suites, Niagara Falls, Ontario •Featuring: Drs. Thomas Kipps, Nicole Lamanna, Carolyn Owen and Graeme Fraser •A day and a...

•April 19-21, 2018 Hilton Hotel and Suites, Niagara Falls, Ontario •Featuring: D...

peterdorfman

•6 years ago

10 Replies

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Bloated Belly, Lump on the left side of my abdomen..having a CT scan of the abdomen tomorrow

Hello everybody...hope y'all are doing well. I have had this belly thing going on for a year and have been questioning my doctors (gastro and primary care)...

Hello everybody...hope y'all are doing well. I have had this belly thing going ...

Ladydi49

•6 years ago

23 Replies

New to site

Hi I have just joined. I was told about two weeks ago that I have cll. Still trying to get my head round it. Have just told a few of my close family. I’m 62...

Hi I have just joined. I was told about two weeks ago that I have cll. Still try...

Mccavigan

•6 years ago

12 Replies

Travel during chemo

Can you safely travel to Mexico during the three weeks between chemo infusions? Should you?

Can you safely travel to Mexico during the three weeks between chemo infusions? ...

Pamhultin

•6 years ago

4 Replies

2013jan.diagosed.treared with chop 6 cycles.2015jan.blood counts low.given3reditux@4wks interval.then3@8wks.iterval.count ok.17pdeletionBCLP

BCLPD17p deltion.

haiderimam

•6 years ago

3 Replies

Local groups

I am new to this and wonder if there are any Formal or informal groups of members who meet to share experiences I am in West yorks

I am new to this and wonder if there are any Formal or informal groups of member...

Coffeejenny

•6 years ago

5 Replies

Holiday insurance

Hi All, I have just tried to renew my holiday insurance with World First. I've used them for several years last time in October for a trip to New York. This...

Hi All, I have just tried to renew my holiday insurance with World First. I've ...

is-sul

•6 years ago

5 Replies

Treatment for cll stage 4 with 17p deletion for 63 year old women?

Hello my mother diagnosed with cll stage 4 with 17p deletion in December 2017. She is taking chlorambucil. But in the blood test lymphocytes are increased....

Hello my mother diagnosed with cll stage 4 with 17p deletion in December 2017. S...

Poojaa

•6 years ago

6 Replies

Z Pak and Tamiflu

I was just prescribed tamiflu and a z pak as I have a fever of 102.8. Can these be taken together? I will follow up with Mayo tomorrow - they wanted me to get...

I was just prescribed tamiflu and a z pak as I have a fever of 102.8. Can these...

SunnyCA

•6 years ago

4 Replies

Feeling confused about starting treatment 😱

I have a really good cll specialist who thinks I should start treatment after he gets my BMB results and I have read on certain websites like NHS that I am...

I have a really good cll specialist who thinks I should start treatment after he...

crystal3333

•6 years ago

8 Replies

Did anyone else see this on the BBC today?

Hello everyone BBC has this piece on their website today . Very interesting for all of us I think you will agree....

Hello everyone BBC has this piece on their website today . Very interesting for...

MattGGibson

•6 years ago

7 Replies

Out of the Loop

As I have been out of the loop after my SCT, I presume everyone is au-fait with this: http://www.bbc.co.uk/news/stories-42920045 potentially life-changing...

As I have been out of the loop after my SCT, I presume everyone is au-fait with ...

zentangle

•6 years ago

15 Replies

In Denial

I guess I am in denial about the whole thing, I'm 78 years old, a jazz musician and playwright. I lost my beautiful wife to breast cancer 12 years ago she was...

I guess I am in denial about the whole thing, I'm 78 years old, a jazz musician ...

flugel1

•6 years ago

13 Replies

Elevated Bilirubin ?

Has anyone with CLL plus P17 deletion ever had their bilirubin elevated ?

brison2

•6 years ago

16 Replies

Dr. A. Kater, The MURANO Trial and Combination Therapies

https://youtu.be/qTTB0JRXr2I https://youtu.be/p3IzC6Da8M8 ASH 2017

Cllcanada

BBC Radio 4 "Find Me a Cure"

The BBC Radio 4 programme "Find Me a Cure" today concentrated on CLL and the search for a cure. The CLARITY trials from St James's Hospital in Leeds were...

The BBC Radio 4 programme "Find Me a Cure" today concentrated on CLL and the sea...

Mac_G

•6 years ago

4 Replies

Biopsy back. Squamous cell carcinoma in neck/head

Has anyone else have this as the secondary to their CLL? If so how did they treat it. Thanks

Has anyone else have this as the secondary to their CLL? If so how did they tre...

Huzzy

•6 years ago

11 Replies

Flair trial

http://www.bbc.co.uk/programmes/b09qcybv

Daveyo

•6 years ago

Be the first to reply

Bbc website good news

Very happy today just read something Exciting on bbc news have a look It’s about a new trial for cll A dr Peter Hillmen is conducting Have a lovely day

Very happy today just read something Exciting on bbc news have a look It’s abo...

scottfree

•6 years ago

Be the first to reply

CLL Programme on BBC Radio 4

Either today (Tuesday 6th Feb) at 11a.m. or next Monday (12th Feb) at 9p.m., there is a programme on BBC Radio4 on CLL; seems to be focussing on a...

Either today (Tuesday 6th Feb) at 11a.m. or next Monday (12th Feb) at 9p.m., the...

MR2Don

•6 years ago

Be the first to reply

Bruising

Hi I have completed my first week on the Flair Trial with Ibrutinib & Rituximab. First thing that I have noticed which is different is the large bruising...

Hi I have completed my first week on the Flair Trial with Ibrutinib & Rituximab....

Sanphil

•6 years ago

2 Replies

Secondary cancers

How common are secondary cancer with cll?

Sushibruno

•6 years ago

15 Replies

i am new here / my name is ben

what can i do to contain cll

sidney-1934-7-25-b

•6 years ago

10 Replies

Cancer-Related Fatigue: Syndrome Not Symptom- by Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society http://www.lls.org/ has published an excellent audio cast on fatigue, that has a different perspective than many of the Patient...

The Leukemia & Lymphoma Society http://www.lls.org/ has published an excellent a...

lankisterguy

Volunteer•6 years ago

1 Reply

what are the best treatments right now for stage 3 or 4 lung cancer

lung cancer

Fbarcia

•6 years ago

3 Replies

Is there a search bar so that i can search for a particular topic, eg. Gazayva or acalabrutinib,or green tea?

Searching the Health Unlocked Data base

Ezjacobs

•6 years ago

4 Replies

Anyone get bad collar bone pain.

Living with cll for 12 years on w+w. Recently had 2 skin cancers bcc and scc. Now getting bad collar bone pain for 4 days and getting concerned. Been to...

Living with cll for 12 years on w+w. Recently had 2 skin cancers bcc and scc. No...

Hidden

•6 years ago

3 Replies

Bendamustine & Rituximab

I started round 1 of BR last Tuesday and had a severe reaction to the rituximab on day 1 where I suddenly felt extremely ill and faint following by a bout of...

I started round 1 of BR last Tuesday and had a severe reaction to the rituximab ...

elizdonohoe

•6 years ago

20 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2018

Bone pain and CLL. Are they related?

Airports and Aeroplane cabins: A new study confirms how dirty some of the commonly used areas are.

CLL Live 2018 - Don't Miss It

Bloated Belly, Lump on the left side of my abdomen..having a CT scan of the abdomen tomorrow

New to site

Travel during chemo

2013jan.diagosed.treared with chop 6 cycles.2015jan.blood counts low.given3reditux@4wks interval.then3@8wks.iterval.count ok.17pdeletionBCLP

Local groups

Holiday insurance

Treatment for cll stage 4 with 17p deletion for 63 year old women?

Z Pak and Tamiflu

Feeling confused about starting treatment 😱

Did anyone else see this on the BBC today?

Out of the Loop

In Denial

Elevated Bilirubin ?

Dr. A. Kater, The MURANO Trial and Combination Therapies

BBC Radio 4 "Find Me a Cure"

Biopsy back. Squamous cell carcinoma in neck/head

Flair trial

Bbc website good news

CLL Programme on BBC Radio 4

Bruising

Secondary cancers

i am new here / my name is ben

Cancer-Related Fatigue: Syndrome Not Symptom- by Leukemia & Lymphoma Society

what are the best treatments right now for stage 3 or 4 lung cancer

Is there a search bar so that i can search for a particular topic, eg. Gazayva or acalabrutinib,or green tea?

Anyone get bad collar bone pain.

Bendamustine & Rituximab

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