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CLL Support

22,611 members • 38,830 posts

All posts for February 2018

Sudden extreme change for the better. Anyone else experience this?

Hi all: I was diagnosed with SLL about 8 months ago (trisomy 12). The fatigue has been getting progressively worse, to the point last week where my oncologist...

Hi all: I was diagnosed with SLL about 8 months ago (trisomy 12). The fatigue ha...

claire2017

•6 years ago

23 Replies

New to Venetoclax (Venclexta)

Hi everyone I’ve just joined, I’m a 58 year old female I’ve hade CLL for 20 years, and have had chemo And radiation various times, I have been offered a...

Hi everyone I’ve just joined, I’m a 58 year old female I’ve hade CLL for 20 ye...

581959

•6 years ago

35 Replies

What is your real ‘biological age’, and what does this mean for your health?

When it comes time for treatment, our options are strongly influenced by our age - or perhaps our relative level of fitness compared to others our age, rather...

When it comes time for treatment, our options are strongly influenced by our age...

AussieNeil

Founder Admin•6 years ago

2 Replies

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Front line treatment options for wait and watch patients

I am CLL , Dx in 2013 and not yet started any treatment . My lymphocyte count has gone up to 1.50 lakhs, mild enlargement of spleen and a few lymph nodes in...

I am CLL , Dx in 2013 and not yet started any treatment . My lymphocyte count h...

venk_46

•6 years ago

3 Replies

Words make a difference at diagnosis

I have been on this site for quite a while now and I continue to see posts where newcomers are told that they have good cancer and we continue to see and use...

I have been on this site for quite a while now and I continue to see posts where...

ap64

•6 years ago

65 Replies

Dr. Chuck

Hi all. I just climbed onboard. Having CLL for twelve years and being on imbruvica for twelve months has been a trip. Side effects from imbruvica seem to...

Hi all. I just climbed onboard. Having CLL for twelve years and being on imbru...

Hcctherapy

•6 years ago

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Stopped Ibrutinib by the Doctor

Since i last wrote, that i had started developing a body rash and dry mouth and eyes, in end dec 17 my oncologist, did not put me on any preventive medicine....

Since i last wrote, that i had started developing a body rash and dry mouth and ...

adme

•6 years ago

24 Replies

BMB

When is it necessary? Seems that I read that we can get almost everything we need from peripheral blood and that we test to determine whether we are MRD...

When is it necessary? Seems that I read that we can get almost everything we nee...

Fant1924

•6 years ago

3 Replies

Buzzing sensation in chest and feet

My husband has been experiencing a tingling, buzzing sensation in his chest and over his body periodically. This is his 4th day after his first Chemo...

My husband has been experiencing a tingling, buzzing sensation in his chest and ...

Pamhultin

•6 years ago

3 Replies

First post but have been reading lots of q and a's

Hello everyone, my name is Tracey (trace), I am 50 years old and exactly 2 years into watch and wait. I was initially told of my diagnosis by my GP on the...

Hello everyone, my name is Tracey (trace), I am 50 years old and exactly 2 years...

Trace25

•6 years ago

8 Replies

I'm New Here!

I'm new here...have read posts from others. I was diagnosed by my family doctor in August 2017. I went to see an Oncologist in the Winter of 2017 who...

I'm new here...have read posts from others. I was diagnosed by my family doctor...

Hidden

•6 years ago

8 Replies

Does anyone with CLL or cancer, part of "Downwinder" radiation exposure from 1950s.

I lived in southern Utah in 1953-1954 during nuclear bomb testing by US government north of Las Vegas NV. All my family who lived with me are now deceased from...

I lived in southern Utah in 1953-1954 during nuclear bomb testing by US governme...

Big_Dee

•6 years ago

11 Replies

Should I get a second opinion!

After having blood tests, ultra sounds & CT Scan I feel I still am none the wiser since my last visit to my haematologist. These tests were all ordered through...

After having blood tests, ultra sounds & CT Scan I feel I still am none the wise...

CopJen-

•6 years ago

11 Replies

Hello From Nigel In Cornwall.

Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL,...

Diagnosed with early stage CLL in October 2017. The day my doctor telephoned m...

OwnedByCockerSpaniel

•6 years ago

7 Replies

Who are the greedy people in the cancer business?

Curious about funding for research. It seems to me on one hand research’s have their hand out for donated funds. Then after it shows some promise they partner...

Curious about funding for research. It seems to me on one hand research’s have t...

Hidden

•6 years ago

Be the first to reply

PAIN IN THE NECK AT THE COLAR BONE

Diagnosed with CLL 2 years ago, lymphocytes in the 20,000 range on wait and watch. Since last year I have extreme pain on the nerves on each side and worst on...

Diagnosed with CLL 2 years ago, lymphocytes in the 20,000 range on wait and watc...

Champlain

•6 years ago

2 Replies

Loss of a great man

It is with a heavy heart I write this post. My father passed away on Thursday, Feb 8th. I brought him to the hospital on Monday as he had horrible pains in his...

It is with a heavy heart I write this post. My father passed away on Thursday, F...

Stevediam

•6 years ago

104 Replies

Pain

Hello.. I have got a lot of pain in my right hand... Exactly on my capitate and middle finger (ibrutinib since november 2017 )... Anyone with this kind of...

Hello.. I have got a lot of pain in my right hand... Exactly on my capitate and ...

Deta1961

•6 years ago

6 Replies

Iron deficiency causes

Iron deficiency is the most common nutrient deficiency in the developed world, affecting around one in three women of reproductive age. It can develop when...

Iron deficiency is the most common nutrient deficiency in the developed world, a...

AussieNeil

Founder Admin•6 years ago

15 Replies

Trends in Cancer Survival

"The largest and most up-to-date study of international cancer registries shows that survival trends are generally increasing, even for some of the more...

"The largest and most up-to-date study of international cancer registries shows ...

AussieNeil

Founder Admin•6 years ago

8 Replies

IVIG Therapy

Hello! First diagnosed w/ CLL in 2013. Untreated, watch and wait, Atypical CLL. Since November 2016, have had bronchitis, diverticulitis, shingles and horrible...

Hello! First diagnosed w/ CLL in 2013. Untreated, watch and wait, Atypical CLL. ...

ckblack

•6 years ago

9 Replies

Neutropenic

Last weekend I picked up a serious infection and was told I was Neutropenic. Neutro's were 0.8 and they would have preferred a reading over 1. I am 5 months...

Last weekend I picked up a serious infection and was told I was Neutropenic. Ne...

Eric70

•6 years ago

8 Replies

Second cancer from CLL???

Hi. My name is Dianne and have had CLL for about 5 years. Thanks God no treatment needed yet. Unfortunately I also hace CLL in my linguial tonsils and just...

Hi. My name is Dianne and have had CLL for about 5 years. Thanks God no treatmen...

dcfrey

•6 years ago

8 Replies

Bone lesions and CLL

Hello. This is my 1st post. My dad was diagnosed with CLL a few weeks ago. His PET scan showed 3 bone lesions. He started Imbruvica 3 days ago. Just...

Hello. This is my 1st post. My dad was diagnosed with CLL a few weeks ago. Hi...

Jmjabel

•6 years ago

2 Replies

Stress and Elevations?

Hi fellow CLLers. It has been some time since I posted. Last May I was laid off from my job. At that time my wbc was 16000. September I started a new job that...

Hi fellow CLLers. It has been some time since I posted. Last May I was laid off ...

Teddy405

•6 years ago

10 Replies

SEVERE ITCHING

For the last week or so I have had severe itching issues all over my body, that is like needle pricks, to burning. It intensifies at night and wakes me and or...

For the last week or so I have had severe itching issues all over my body, that ...

ozarkharper

•6 years ago

3 Replies

Debate on Blood Cancer Care in the NHS on the 17th January 2018 from a CLL point of view

A debate took place in Westminster Hall on Blood Cancer Care in the NHS on the 17th January 2018. Much of the debate set the scene for the launch of the...

A debate took place in Westminster Hall on Blood Cancer Care in the NHS on the 1...

Myrddin

•6 years ago

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Find a Cure for Me - BBC 12 Feb

If you follow CLLSA on Facebook or Twitter or listen to BBC Radio 4 – you may already know that award-winning investigative journalist Simon Cox this week...

If you follow CLLSA on Facebook or Twitter or listen to BBC Radio 4 – you may a...

Myrddin

•6 years ago

3 Replies

Tamiflu = tummy phoo

Omg! I can’t figure out whether it’s the Tamiflu or the z pak or having to take both and believe me I’m grateful for both given how sick I was - BUT it’s...

Omg! I can’t figure out whether it’s the Tamiflu or the z pak or having to take ...

SunnyCA

•6 years ago

2 Replies

What is CRISPR gene editing, and how does it work?

There's been considerable interest in the potential for gene editing for curing diseases such as CLL, so this article by Merlin Crossley, Deputy...

There's been considerable interest in the potential for gene editing for curing ...

AussieNeil

Founder Admin•6 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2018

Sudden extreme change for the better. Anyone else experience this?

New to Venetoclax (Venclexta)

What is your real ‘biological age’, and what does this mean for your health?

Front line treatment options for wait and watch patients

Words make a difference at diagnosis

Dr. Chuck

Stopped Ibrutinib by the Doctor

BMB

Buzzing sensation in chest and feet

First post but have been reading lots of q and a's

I'm New Here!

Does anyone with CLL or cancer, part of "Downwinder" radiation exposure from 1950s.

Should I get a second opinion!

Hello From Nigel In Cornwall.

Who are the greedy people in the cancer business?

PAIN IN THE NECK AT THE COLAR BONE

Loss of a great man

Pain

Iron deficiency causes

Trends in Cancer Survival

IVIG Therapy

Neutropenic

Second cancer from CLL???

Bone lesions and CLL

Stress and Elevations?

SEVERE ITCHING

Debate on Blood Cancer Care in the NHS on the 17th January 2018 from a CLL point of view

Find a Cure for Me - BBC 12 Feb

Tamiflu = tummy phoo

What is CRISPR gene editing, and how does it work?

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